Rare Disease Day in Belgium
Patient organisations in Belgium have participated in Rare Disease Day since its launch in 2008, organising activities every year. Key events in celebration of Rare Disease Day, such as the National Conference for Rare Diseases at the Belgian Parliament in 2009 and the annual Belgian march for rare diseases, serve to mobilise both policy makers and the general public. Belgium’s Rare Disease Day celebrations have even gained the support of Belgian royalty, with Her Royal Highness Astrid of Belgium acting as the Patron of Rare Disease Day in 2009 and attending EURORDIS’ Black Pearl Awards night in February 2018.
It is with great excitement that for Rare Disease Day 2018 they announced a new Centre des Maladies Rares. Other highlights included a ciné-débat on the French documentary 'Et les Mistrals Gagnants'. For the 12th edition in 2019, events took place across the country around Rare Disease Day, including tours of genetic laboratories and a travelling exhibition of artwork by rare disease patients.
If you would like to get involved or if you know of any events that are not listed here we would love to hear from you. Write to us at [email protected].