NATIONAL ALLIANCE

RADIORG - Rare Diseases Organisation Belgium logo
RADIORG - Rare Diseases Organisation Belgium

Belgium


Rare Disease Day in Belgium


Patient organisations in Belgium have participated in Rare Disease Day since its launch in 2008, organising activities every year. The past two years RaDiOrg, Rare Disease Belgium, has organised national campaigns together with it’s members. In 2018 stands were held in the university hospitals throughout the country; in 2019 RaDiOrg and it’s members attracted the attention of the larger public in major trainstations throughout the country.

On Rare Disease Day 2020 Belgium hosted a number of events to raise awareness, including the 8th edition of the solidarity walk for Kabuki Syndrome and the creation of a flower carpet, of folded origami edelweiss flowers symbolising rarity, in the heart of Brussels. The EMRaDi (the first INTERREG project on rare diseases in the EMR) came to an end after 3 years of cross-border cooperation. A day meeting was held to review the project’s achievements and build on future projects aimed at improving the lives of those living with rare diseases.  

If you would like to get involved or if you know of any events that are not listed here we would love to hear from you. Write to us at [email protected].



NATIONAL ALLIANCE

RADIORG - Rare Diseases Organisation Belgium logo
RADIORG - Rare Diseases Organisation Belgium

FRIENDS IN Belgium

Events in Belgium


Webinar Rare Diseases image
Webinar Rare Diseases

Webinar concerning Rare DiseasesMetabolic diseases are rare diseases.Implementation of the Belgian Rare Disease Plan, updateRegister...

27 Feb 2021 - Melsele

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Zeldzame ziektendag image
Zeldzame ziektendag

Dit jaar hebben we aandacht voor erfelijke (zeldzame hematologische) kankers. Een geneticus vertelt wat het is en een clinicus...

27 Feb 2021 - Vlaanderen

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Symposium about Rare Diseases image
Symposium about Rare Diseases

Le 26 février, à l'occasion de la Journée des Maladies Rares 2021 (28/02/21), le Centre des Maladies Rares du CHU de Liège...

26 Feb 2021

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Improving care for rare disease patients in Europe - Rare Disease Day 2021 image
Improving care for rare disease patients in Europe - Rare Disease Day 2021

The European Reference Network for Rare Neurological Diseases (ERN-RND) is pleased to invite you to attend the webinar  on...

23 Feb 2021

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Not a Unicorn image
Not a Unicorn

RaDiOrg organised a full digital media campaign with 2 objectives: raising awareness on rare diseases towards the larger...

01 Feb 2021 - 28 Feb 2021 - Whole country

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