Rare Disease Day in Belgium
Patient organisations in Belgium have participated in Rare Disease Day since its launch in 2008, organising activities every year. The past two years RaDiOrg, Rare Disease Belgium, has organised national campaigns together with it’s members. In 2018 stands were held in the university hospitals throughout the country; in 2019 RaDiOrg and it’s members attracted the attention of the larger public in major trainstations throughout the country.
By uniting the efforts of all stakeholders around a joint, national campaign, RaDiOrg aims at showing that rare diseases are rare but many, that all affected and involved join forces in putting the rare diseases at the forefront of attention. We are united in the ambition to raise the attention of the general public and ask policy makers to address the specific needs of all concerned.
If you would like to get involved or if you know of any events that are not listed here we would love to hear from you. Write to us at [email protected].