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Rare Voices Australia Ltd.

Australia


Rare Disease Day in Australia


Australia first participated in Rare Disease Day in 2009 and have since hosted many exciting events to raise awareness among the general public. These have taken place all over the country from Perth to Canberra and Sydney. Among them include an Indian dancing event, an online silent art auction, fun runs, public seminars, bake sales and a high tea event.

Rare Disease Day 2020 in Australia saw the launch of a National Strategic Action plan for Rare Diseases, a milestone event for Australia’s Minister for Health. Across the country a vast number of events took place for all members of the rare disease community. 

Multiple landmarks and buildings were lit up in rare disease day colours to mark the occasion. These include: The Story Bridge, The Victoria Bridge, Adelaide Oval, Perth’s Parliament House, Perth’s Yahan Square Digital Tower, Perth’s Council House, Tasmania’s Town Hall, Canberra’s Telstra Tower, Brisbane’s City Hall and Sydney’s Town Hall.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]



NATIONAL ALLIANCE

Rare Voices Australia Ltd. logo
Rare Voices Australia Ltd.

FRIENDS IN Australia

Events in Australia


Western Australia's Rare Disease Day Landmark Illuminations image
Western Australia's Rare Disease Day Landmark Illuminations

The following locations/landmarks in Perth will be illuminated to mark 2021 Rare Disease Day:- Optus Stadium  - Bell Tower...

28 Feb 2021 - Perth

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Victoria’s Rare Disease Day Landmark Illuminations image
Victoria’s Rare Disease Day Landmark Illuminations

The following locations/landmarks in Victoria will be illuminated to mark 2021 Rare Disease Day:- AAMI Park Melbourne - Wodonga...

28 Feb 2021 - Victoria

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Queensland's Rare Disease Day Landmark Illuminations image
Queensland's Rare Disease Day Landmark Illuminations

The following locations/landmarks in Queensland will be illuminated to mark 2021 Rare Disease Day:- Mackay Fountain- Story...

28 Feb 2021 - Queensland

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New South Wales' Rare Disease Day Landmark Illuminations image
New South Wales' Rare Disease Day Landmark Illuminations

The following landmark in New South Wales will be illuminated to mark 2021 Rare Disease Day:- Newcastle Clock Tower Illuminations...

28 Feb 2021 - New south wales

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South Australia's Rare Disease Day Landmark Illuminations image
South Australia's Rare Disease Day Landmark Illuminations

The following location in South Australia will be illuminated to mark 2021 Rare Disease Day:- Adelaide OvalIllumination organised...

28 Feb 2021 - South australia

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ACT's Rare Disease Day Landmark Illuminations image
ACT's Rare Disease Day Landmark Illuminations

The following landmark in the ACT will be illuminated to mark 2021 Rare Disease Day:- Telstra TowerIllumination organised...

28 Feb 2021 - Act

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Tasmania's Rare Disease Day Landmark Illuminations image
Tasmania's Rare Disease Day Landmark Illuminations

The following locations in Tasmania will be illuminated to mark 2021 Rare Disease Day:- Paranaple Convention Centre- Launceston...

28 Feb 2021 - Tasmania

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SCN2A Awareness image
SCN2A Awareness

We will be sharing interviews with parents abotu the impact of have SCN2A and why it needs further funding and support.

21 Feb 2021 - 28 Feb 2021 - National

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Rare Kids Art Competition image
Rare Kids Art Competition

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Rare Kids Art Competition.Ask your kids...

22 Jan 2021 - 22 Feb 2021

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Rare Disease Day Photography Competition image
Rare Disease Day Photography Competition

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Photography Competition.Get your cameras...

22 Jan 2021 - 28 Feb 2021

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Rare Star Day image
Rare Star Day

RARE STAR DAYThe Steve Waugh Foundation is ‘somewhere to turn’ for children and young adults living with Rare Diseases.Rare...

30 Mar 2020 - Gold coast, queensland

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Sydney Town Hall Illuminations for Rare Disease Day image
Sydney Town Hall Illuminations for Rare Disease Day

Sydney's Town Hall will be lit up pink on 1 March to mark Rare Disease Day.Rare Disease Day takes place on the last day of...

01 Mar 2020 - Sydney

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Light up Brisbane City Hall for Rare Disease Day image
Light up Brisbane City Hall for Rare Disease Day

Brisbane City Hall will be lit blue, pink and green to support Rare Disease Day.Rare Disease Day takes place on the last...

29 Feb 2020 - Brisbane

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Council House Perth light up for Rare Disease Day image
Council House Perth light up for Rare Disease Day

Perth's Council House will light up pink, blue and green on 29 February to mark Rare Disease Day.Rare Disease Day takes place...

29 Feb 2020

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Perth's Mandurah Bridge lights up for Rare Disease Day image
Perth's Mandurah Bridge lights up for Rare Disease Day

Perth's Mandurah Bridge will light up blue and pink to mark Rare Disease Day.Rare Disease Day takes place on the last day...

29 Feb 2020 - Perth

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Telstra Tower in Canberra to Light up Blue for Rare Disease Day image
Telstra Tower in Canberra to Light up Blue for Rare Disease Day

Canberra Telstra Tower will light up blue  to mark Rare Disease Day.Rare Disease Day takes place on the last day of February...

29 Feb 2020 - Canberra

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Rare Together Expo image
Rare Together Expo

Come along to our Rare Together Expo and find out more about navigating the WA health system and some of the health and support...

29 Feb 2020 - Perth

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Rare Disease Day 2020 - Rare Together Expo image
Rare Disease Day 2020 - Rare Together Expo

Come along to our Rare Together Expo and find out more about navigating the WA health system and some of the the useful health...

29 Feb 2020 - Perth

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Townsville lunch for Rare Disease Day image
Townsville lunch for Rare Disease Day

Join the Myasthenia Gravis Association of Queensland (MGAQ) Townsville group for lunch at The Avenues Tavern, 270 Kern Brothers...

29 Feb 2020 - Queensland

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Brisbane Rare Disease Day Coffee and Chat image
Brisbane Rare Disease Day Coffee and Chat

Coffee and Chat, The Royal Hotel, 1259 Sandgate Road, Nundah at 10.30am on Saturday 29th February supporting Rare Disease...

29 Feb 2020 - Queensland

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Brisbane Rare Disease Day evening event - Brisbane City Hall image
Brisbane Rare Disease Day evening event - Brisbane City Hall

Join Myasthenia Gravis Association of Queensland (MGAQ) at Pig ‘N’ Whistle, King George Square, 100 Adelaide Street at 6pm...

29 Feb 2020 - Queensland

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Perth's Parliament House lights up for Rare Disease Day image
Perth's Parliament House lights up for Rare Disease Day

Perth's Parliament House will light up in green from 28 February to 1 March to mark Rare Disease Day.Rare Disease Day takes...

28 Feb 2020 - 01 Mar 2020 - Perth

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Perth's Yagan Square Digital Tower lights up for Rare Disease Day image
Perth's Yagan Square Digital Tower lights up for Rare Disease Day

Perth's Yagan Square Digital Tower will light up pink, blue and green to mark Rare Disease Day.Rare Disease Day takes place...

28 Feb 2020 - Perth

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Tasmania's Town Hall lights up for Rare Disease Day image
Tasmania's Town Hall lights up for Rare Disease Day

The St John Street façade of the Town Hall in Tasmania will light up for Rare Disease Day in 2020.Rare Disease Day takes...

28 Feb 2020 - 02 Mar 2020 - Tasmania

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Genetic Support Network of Victoria's Rare Disease Day event image
Genetic Support Network of Victoria's Rare Disease Day event

The Genetic Support Network of Victoria (GSNV) will be holding an event to mark Rare Disease Day in 2020 on 28 February from...

28 Feb 2020 - Melbourne, victoria

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Rare Disease Day image
Rare Disease Day

Rare Disease Day Event - Friday 28th February 2020Rare Disease Day is an annual event for the Victorian Support Sector and...

28 Feb 2020 - Parkville

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Rare Disease Day by the Genetic Support Network of Victoria image
Rare Disease Day by the Genetic Support Network of Victoria

Rare Disease Day is an annual event for the Victorian Support Sector and will be held from 9:30am – 4.30pm at the Royal Children’s...

28 Feb 2020 - Parkville

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Light up Brisbane for Rare Disease Day - Story Bridge, Kangaroo Point image
Light up Brisbane for Rare Disease Day - Story Bridge, Kangaroo Point

The Story Bridge will be lit Blue, Purple, Pink and Green to support 2020 Rare Disease Day.Rare Disease Day takes place on...

27 Feb 2020 - Brisbane

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Light up Brisbane for Rare Disease Day - Victoria Bridge image
Light up Brisbane for Rare Disease Day - Victoria Bridge

The Victoria Bridge will be lit Blue, Purple, Pink and Green to support 2020 Rare Disease Day.Rare Disease Day takes place...

27 Feb 2020 - Brisbane

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Adelaide Oval to light up for Rare Disease Day image
Adelaide Oval to light up for Rare Disease Day

Adelaide Oval will light up pink, blue and green on Thursday, 27 February to mark Rare Disease Day.Rare Disease Day takes...

27 Feb 2020 - Adelaide

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National Strategic Action Plan for Rare Diseases Launch image
National Strategic Action Plan for Rare Diseases Launch

National Strategic Action Plan for Rare Diseases LaunchA milestone event with Australia's Minister for Health, The Hon Greg...

26 Feb 2020 - Canberra

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Rare Disease Day Seminar image
Rare Disease Day Seminar

Rare Disease Day is on the 29th February, the rarest day of the year. Please note this lecture will be held on the 24th February...

24 Feb 2020 - Canberra

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Rare Disease Day Public Lecture image
Rare Disease Day Public Lecture

Rare Disease Day Public Lecture in Canberra on 24 February from 5:30pm to 7pm.The John Curtin School of Medical Research...

24 Feb 2020 - Canberra

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Rare Disease Day Fun Run & Walk image
Rare Disease Day Fun Run & Walk

Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, on the last...

23 Feb 2020 - Cairns

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Fabry Australia's Be Rare. Be You. campaign image
Fabry Australia's Be Rare. Be You. campaign

Fabry Australia, is marking Rare Disease Day with its Be Rare. Be You. campaign. The campaign acknowledges that we are all...

15 Jan 2020 - 29 Feb 2020

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