Rare Disease Day in Argentina
Argentina’s very first Rare Disease Day was in 2009. Since then, participants have been working with the media and patient organisations to increase awareness among the general public about rare diseases.
For Rare Disease Day 2018, there was an adapted walk followed by food, entertainment and the presentation of a local documentary project produced with support from a community of relatives and patients. A neonatal hospital also got involved with the face painting campaign to make rare diseases more visible.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]