United States

The USA joined Rare Disease Day in 2009, making the campaign a truly international affair. Diverse events and campaigns have been organised ever since then, and in 2013 President Barack Obama sent a letter proclaiming his support of the day.

Rare Disease 2020 saw a full programme of events and activities across the US aimed at raising awareness for those living with rare diseases. Ranging from educational conferences and symposia to fun runs to an art contest and exhibition championing the rare disease hand logo. Famous landmarks including the Empire State building were lit up in support of the campaign.

Find out about RareDisease Day in the US at https://rarediseases.org/rare-disease-day

National alliences


National Alliance
Laura Mullen

Other Friends


Country Organiser

Firefly Fund

Country Organiser

Rare Disease Network

Country Organiser

Boston Rare Connections

Country Organiser

Chronic Illness Alliance

Country Organiser