Associations in Ukraine have participated in Rare Disease Day since 2008, using the occasion to launch publicity campaigns in major cities and hold conferences to progress Ukraine’s National Plan on rare diseases. They also aired a television show based on rare diseases on national television. Annual conferences are held where patients are able to express their views on living with rare diseases and what can be done to further progress the rare disease cause. Patient organisations have also celebrated the occasion with an online flashmobs on Facebook, posting pictures with handprints to represent the Rare Disease Day logo. 

Rare Disease Day 2020 saw a debate and fun games for all members of the community, a photoshoot – spreading important messages via a social media campaign, and an information campaign raising awareness for better lives of every orphan patient.

You can also get involved! Do you know of any events not listed here? Email us at [email protected].

National Alliances

NGO “Rare Diseases of Ukraine”

National Alliance
Vitaliy Matyushenko


Other Friends


Country Organiser