Turkey’s involvement in Rare Disease Day began in 2013. Turkey has held many different events all across the country for Rare Disease Day. Symposiums on different themes including special education, current therapies, nutrition and physiotherapy have taken place. In addition, there have been rehabilitation workshops and story telling events to share the experiences of living with a rare disease and art competitions for children.
The occasion was marked in 2020 with a number of awareness meetings where patients shared their stories and experts in the field gave scientific presentations. In addition, a series of testimonies were shared by patients and their families and an art event was held for students to help raise awareness and spread the message that we are ‘Rare but not alone’.
You can also get involved! Do you know of any events not listed here? Email us at [email protected]