Spain

Spain has been involved in Rare Disease Day since 2008. In previous years Spain has celebrated Rare Disease Day in a variety of ways from concerts in Zaragoza and Madrid to conferences near Valencia. Previous years have included seminars focusing on research at an international level and screening of documentaries illustrating the difficulties people living with a rare disease may experience on a daily basis.

In Spain, Rare Disease Day 2020 was widely celebrated. There were Open Door Days, educational table pop-ups, conferences & symposia, fun runs and art events, such as the ‘painted hands’ photo contest. In addition a large number of buildings across the country were lit up in rare disease day colours giving visibility to the campaign and to help raise awareness.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

National alliences

FEDERACIÓN ESPAÑOLA DE ENFERMEDADES RARAS

National Alliance
María Tomé

Events

Jornada del Día Mundial de las Enfermedades Raras 2021
Valencia

Meeting aimed at disseminating research activities on rare diseases carried out in the Valencian Community. ++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ Jornada destinada a dar… Continue reading Jornada del Día Mundial de las Enfermedades Raras 2021

CONFERENCIA ¿Qué es la uveitis?
LEON

Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org  

CONFERENCIA
LEON

Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org  

Il·luminació per al Dia mundial de les malalties minoritàries o rares
Terrassa (Barcelona)

Lighting from 5pm to midnight on the Terrassa City Council in the colors green-pink-blue for the day of minority diseases. Highlighted… Continue reading Il·luminació per al Dia mundial de les malalties minoritàries o rares

DÍA MUNDIAL DE LAS ENFERMEDADES RARAS
CAMPO DE CRIPTANA, CIUDAD REAL

Os animamos a grabar un vídeo con nuestro lema: LA INVESTIGACIÓN, NUESTRO CAMINO A LA ESPERANZA. Podéis hacérnoslo llegar por… Continue reading DÍA MUNDIAL DE LAS ENFERMEDADES RARAS

Iluminación Plaza de España
Sevilla

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Iluminación fuente cuatro estaciones
Sevilla

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Muralla de Puerta Pilar
Badajoz

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Muralla Parques infantiles
Badajoz

https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2

Other Friends

INDEPF

Country Organiser
Jesús

ADAIF

Country Organiser
Silvia Campa Andrés

AFASCOL

Country Organiser

FECAMM

Country Organiser