South Africa

South Africa first participated in Rare Disease Day in 2010, focusing on increasing the visibility of rare diseases amongst the general public. Since then, patient organisations have launched many successful media campaigns and have reached out to important ministers within the government to stress the need for official policy on rare diseases. An annual “Denim Walk” takes place through the Walter Sisulu Botanical Gardens to raise awareness of those living with rare diseases.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

National Alliances

The Rare Disease Society of South Africa

National Alliance
Kelly du Plessis


Rare Disease Day
Cape Town

Rare Disease Day

Rare Disease Day 2021 #28FactsFor28Days
Cape Town

Tygerberg Hospital and Stellenbosch University will celebrate Rare Disease Day on 24 February 2021 and with #28FactsFor28Days on social media.


This February we’re flipping the script and encouraging South Africans to share their rare stories in an effort to stimulate a… Continue reading #ShareYourRare