Slovenia began participating in Rare Disease Day in 2010. Events have sought to bring together families, researchers and policy makers to celebrate the day and bring about change. There have also been fundraising events and  marches to celebrate everyone’s differences and to symbolise hope and love.

In 2020 Slovenia held its 6th National Conference for the rare disease community.  The conference organised, by the Rare Disease Association of Slovenia, featured a keynote speech from the Secretary of the Ministry of Health.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].


Other Friends

National Alliance of Rare Diseases of Slovenia

Country organiser
Tea Cernigoj Pusnjak

Zavod 13

Country Organiser