Slovakian patient organisations have collaborated on Rare Disease Day since 2013. They have used the occasion to host conferences for all stakeholders, publish scientific papers, and hold events in the Slovak parliament. 

In 2020 the rare disease community of Slovakia joined a political discussion to speak out about rare diseases drawing on the importance of health and social care for everybody, the legislative background of rare diseases and the value of innovation for patients, their families and the whole society. 

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

National Alliances