Russian Federation

The Russian Federation has participated in Rare Disease Day since 2009, involving the general public and stakeholders alike. Events have varied from photo and children’s art exhibitions, to roundtables and advocacy events. Charity auctions as well as press conferences to improve legislation and the health care system have also taken place.

For Rare Disease Day 2020 the Russian Federation held a number of events across different countries, Russia, Moldova, Kazakhstan, Armenia and Belarus. The day was celebrated with screenings of documentaries and films dedicated to different rare diseases aimed at promoting awareness.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

National Alliances

Russian Patients Association

National Alliance

Russian Association of Rare Diseases

National Alliance
Irina Myasnikova


Other Friends

Charity Foundation Nuzhna Pomoshch (Help Needed)

Country Organiser
Katerina Abramova