Patient associations in Panama joined Rare Disease Day in 2011 and have since used the occasion to mobilise the general public in marches, and to push for greater legislation for rare disease patients and orphan drugs.
In 2020, a rare disease video was shown in cinemas around the country to help spread awareness and the Rare Disease Day campaign was promoted through social media channels. In addition a number of iconic landmarks were lit up in the rare disease day colours.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].
FEBRERO MES DE LAS ENFERMEDADES RARAS La fundación AYOUDAS Panamá da inicio a sus actividades y campaña de difusión masiva… Continue reading Exposición del Mes de las Enfermedades Raras 2021
Los invitamos a la I Jornada de Enfermedades Raras del 18 al 20 de febrero organizado por CASPH en colaboración… Continue reading 1era Jornada de Enfermedades Raras 2021
I Conference of Rare Diseases in Panama is an academic and social event organized by CASPH from Faculty of Medicine of… Continue reading I Jornada de Enfermedades Raras (I Conference of Rare Diseases)