In Pakistan, Rare Disease Day has been celebrated since 2012. The day has been used to host educational seminars, poster presentations and group discussions on rare diseases.

For Rare Disease Day 2020 there were a number of educational events held around the country. Conference and webinar topics covered include bridging the gap between stakeholders and genetic testing. There were also literacy, education and awareness programs that took place throughout Pakistan.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].