New Zealand

New Zealand’s participation in Rare Disease Day goes back to 2010. Since then, patient associations from New Zealand have used the occasion to educate the public and raise money through fundraising events. Previous highlights of Rare Disease Day in New Zealand include a photo competition, a run around the Bays of Auckland and a cocktail evening in Wellington. Symposiums focusing on enabling clinicians, researchers and patients to work together to optimise progress have also taken place. 

In 2020 Rare Disorder NZ held an event at Parliament to call for Fair for Rare.The event called for acknowledgement of the common challenges faced by people living with a rare disease, along with a commitment to address these challenges through the development of a New Zealand National Rare Disorder Framework.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

National Alliances

Rare Disorders New Zealand

National Alliance
Amy Watson


Summer Picnic
Orewa, Auckland

We hope to see plenty of members and any others at our beach picnic at Orewa this Sunday in support… Continue reading Summer Picnic

New Zealand’s Rare Disease Day Illuminations

The following locations/landmarks in New Zealand will be illuminated to mark 2021 Rare Disease Day: – Oamaru Opera House, New Zealand… Continue reading New Zealand’s Rare Disease Day Illuminations

Other Friends

Palmerston North City Library

Country Organiser