Malaysia’s patient organisations first joined Rare Disease Day in 2010. Over the years, they have organised a variety of events, from exhibits to information sessions focused on rare diseases. A highlight of previous celebrations was a dance competition followed by balloon animals and goodie bags in 2015.
In 2020 Malaysia held a poster exhibition at the University of Malaya Medical centre as well as interviews with national television and radio stations. Social media was used to spread awareness and promote the message of Rare Disease Day 2020.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].
National Alliances
Events
Annual RD Community Potluck 2025 (North Region)
Greetings & Hello Everyone Let’s have a picnic at The TOP in Menara Komtar In conjunction with the World Rare… Continue reading Annual RD Community Potluck 2025 (North Region)
Malaysian Rare Disorders Society @ More Than You Can Imagine – UMMC Rare Disease Day
The Genetic Medicine Unit, University Malaya Medical Centre (UMMC), invites members of the Malaysian Rare Disorders Society (MRDS) to attend… Continue reading Malaysian Rare Disorders Society @ More Than You Can Imagine – UMMC Rare Disease Day
Rare Disease Media Week – Kempen Kesedaran Penyakit Jarang Jumpa
Rare Disease Day 2025: “More Than You Can Imagine” approaches, and the Malaysian Rare Disorders Society (MRDS) is amplifying awareness!… Continue reading Rare Disease Media Week – Kempen Kesedaran Penyakit Jarang Jumpa
Malaysian Rare Disorders Society @ HosTAR Sambutan Hari Penyakit Jarang Jumpa 2025
Let’s join the Rare Disease Day 2025 Celebration at HosTAR! This February 25th & 26th, 2025, we gather to raise… Continue reading Malaysian Rare Disorders Society @ HosTAR Sambutan Hari Penyakit Jarang Jumpa 2025
Malaysian Rare Disorders Society @ Rare Disease Day 2025
Join us for Rare Disease Day 2025 at Hospital Kuala Lumpur! For the first time, Hospital Kuala Lumpur (HKL) is… Continue reading Malaysian Rare Disorders Society @ Rare Disease Day 2025
#More Than You Can Imagine : Adult Living with RD Sharing
Unveiling the Unseen: More Than You Can Imagine – WRDD 2025 Millions living with rare diseases face daily battles beyond… Continue reading #More Than You Can Imagine : Adult Living with RD Sharing
MRDS Rare Mentor Recognition Award!
Celebrating World Rare Disease Day: MRDS Shout-Out to All Rare Mentors! Who was your guiding light? Was there someone who… Continue reading MRDS Rare Mentor Recognition Award!
Hi, Komuniti RD Malaysia (Ahli Baru & Sukarelawan)
In conjunction with the countdown to Rare Disease Day 2025, come and learn more about MRDS and the volunteer opportunities… Continue reading Hi, Komuniti RD Malaysia (Ahli Baru & Sukarelawan)