Malaysia

Malaysia’s patient organisations first joined Rare Disease Day in 2010. Over the years, they have organised a variety of events, from exhibits to information sessions focused on rare diseases. A highlight of previous celebrations was a dance competition followed by balloon animals and goodie bags in 2015.

In 2020 Malaysia held a poster exhibition at the University of Malaya Medical centre as well as interviews with national television and radio stations. Social media was used to spread awareness and promote the message of Rare Disease Day 2020.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].

National Alliances

Events

Rare Disease Day 2021 Quiz Based Competition
Melaka

What do you know about Rare Diseases? Today, 28 February, is the very well-known Rare Disease Day; the day dedicated… Continue reading Rare Disease Day 2021 Quiz Based Competition

Ada Apa Dengan Cinta?
Kuala Lumpur

Ada Apa Dengan Cinta? All individuals with rare disorders (RD): – don’t have romantic feelings – don’t want to have… Continue reading Ada Apa Dengan Cinta?

SMA Malaysia Talk Show With Kedah FM (Visual Radio Conti Selection))
Kedah

The excitement is continued! In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce… Continue reading SMA Malaysia Talk Show With Kedah FM (Visual Radio Conti Selection))

SMA Malaysia Talk Show With Negeri FM (I-Medic)
Negeri Sembilan

In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce that SMA Malaysia will… Continue reading SMA Malaysia Talk Show With Negeri FM (I-Medic)

SMA Malaysia Talk Show With Kelantan FM (Morning Cheer Segment – Kecek Kiro Kito)
Kelantan

In conjunction with the celebration of World Rare Disease Day 2021, a talk program was held on 9 February 2021 (Tuesday)… Continue reading SMA Malaysia Talk Show With Kelantan FM (Morning Cheer Segment – Kecek Kiro Kito)

Gogohope Virtual Sports Challenge
Kuala Lumpur

Gogohope Virtual Sport Challenge is created with the objective to inspire and motivate everyone especially our MLDA patients to be… Continue reading Gogohope Virtual Sports Challenge

Other Friends

We Care Journey

Country Organiser
Edmund