Latvia has been involved in Rare Disease Day since 2010. Most notably, patient groups have held discussions in the EU Conference Hall in Riga to discuss Latvian policy for rare diseases. Other events have included photo exhibitions to raise awareness about the struggles rare disease patients face. In 2016, Latvian Alliance for Rare Diseases wrote an open letter to mass media and general public of Latvia about the crucial and problematic situation in the field of the rare diseases in Latvia.
For Rare Disease Day 2020 Latvia held a number of conferences on the topics of improving lives for those with rare diseases and assessing the needs of patients.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].
Actual discussion: Santa Survila, Ivars Balodis interviewing Baiba Ziemele, head of Latvian Alliance of Rare Diseases. Available support for people… Continue reading Support for people with rare diseases