Patient organisations in Hungary have engaged in Rare Disease Day since its launch in 2008. Various events have aimed to use the day for advocacy purposes as well as for raising awareness amongst the general public. Events have included workshops, round-table discussions, letter-writing campaigns, art contests and consultations with government officials to discuss rare disease policies.

Rare Disease Day 2020 saw a fun family filled programme of entertainment for those living with a rare disease and their family and friends in Budapest. 

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].