Patient organisations in Finland have taken part in Rare Disease Day since its launch in 2008. Finland has marked the day in a variety of ways, from conferences all over the country on topics as varied as nutrition and disability law, to magic shows, sledging and a ‘rare tour’ which provided awareness-raising activities around the country.

In 2020 to mark Rare Disease Day, Finland hosted a Rare Fair family event inviting all members of the community. 

You can also get involved! Let us know if you know of any events that are not listed here. Write to us at [email protected].

National Alliances


Harvinaisten sairauksien päivän tapahtuma
Verkossa ja etäkatsomoissa: Helsinki, Jyväskylä, Kokkola, Kuopio, Oulu, Pori, Riihimäki, Salo, Tampere

Lappia Talo illuminated in support of rare diseases

Lappia Talo, the iconic building designed by Alvar Aalto and hosting the Rovaniemi Theatre, will show support for Rare Disease… Continue reading Lappia Talo illuminated in support of rare diseases

Harvinaisten ilta

Harvinaisten ilta on verkossa toteutettava koko illan ohjelma!  Harvinaisten illan aikana kuulemme mm. opiskelusta harvinaisen sairauden kanssa, minkälaista on kun diagnoosin… Continue reading Harvinaisten ilta

Virtuaaliset Harvinaismessut

Rare Fair 2021 is a good mood virtual event for a whole family. No entrance fee, registration needed. Come and… Continue reading Virtuaaliset Harvinaismessut