Patient organisations from the Czech Republic have collaborated in organising Rare Disease Day activities since 2010, hosting educational seminars, creating videos to communicate the work of the National Alliance, and securing media attention via radio broadcastings on rare diseases. Every year a Rare Disease Day bulletin is produced to illustrate what issues are a current priority with regards to rare diseases in Czech Republic.
In 2020, Rare Diseases Czech Republic hosted a fun filled event in Prague to thank its members and supporters for their work and efforts to raise awareness and improve the quality of the lives of those living with rare diseases.
You can also get involved! Do you know of any events not listed here? Email us at [email protected].