Canada

Patient organisations in Canada have engaged in Rare Disease Day since its first year in 2008, arranging gala dinners and exchanges between researchers and patients, as well as regional events across Canada. To raise awareness in Toronto in 2017, the city’s 3D sign was lit up in the colours of Rare Disease Day—blue, green, pink and purple—for the whole of 28 February!

Rare Disease Day 2020 saw a wide range of events bringing together all members of the community. There were many innovative events from lectures and networking dinners to interactive exhibitions and family fun days. CORD (Canadian Organization for Rare Diseases) hosted a breakfast reception for all members of the rare disease community to meet with Members of the Provincial Parliament and other supporters. In addition they held their annual conference and awards gala celebration. 

You can also get involved! Do you know of any events not listed here? Email us at [email protected].
 

 

National Alliances

Canadian Organization for Rare Disorders

National Alliance
Hilary Wong-Rieger

Events

Rare Disease Day at SickKids

The last day of February is recognized worldwide as Rare Disease Day.  We at SickKids, are proud to join the many… Continue reading Rare Disease Day at SickKids

LUMIÈRE SUR LES ZÈBRES

En février, les projecteurs se braquent sur la résilience des personnes vivant avec une maladie rare! Voilà, nous lançons la… Continue reading LUMIÈRE SUR LES ZÈBRES

Journée des maladies rares-Édition 2021-Saguenay Lac St-Jean
Ville de Saguenay

Cette journée dédiée aux maladies rares permet de sensibiliser la population sur ces maladies et leurs impacts sur la vie… Continue reading Journée des maladies rares-Édition 2021-Saguenay Lac St-Jean

Canada’s Rare Disease Day Illuminations

The following locations/landmarks in Canada will be illuminated to mark 2021 Rare Disease Day: – CN Tower in Toronto, Canada – Calgary… Continue reading Canada’s Rare Disease Day Illuminations

Being mind-full. Wellness for people living with a Rare Disease
Calgary

Being mind-full. Wellness for people living with a Rare Disease We welcome everyone to join us online to iscuss mental… Continue reading Being mind-full. Wellness for people living with a Rare Disease

Virtual Walk for MCADD/Rare Disease Day
Parrsboro

February 28, 2021 is Rare Disease Day. My son, Archie, was diagnosed at birth via the newborn screening test with… Continue reading Virtual Walk for MCADD/Rare Disease Day

Other Friends