Patient organisations in Bulgaria have participated in Rare Disease Day since the first celebration in 2008. The day was endorsed by the First Lady at the time, Zorka Parvanova, who lent her support publically to the cause. In 2017, events included a march through the streets in Sofia and a joint press conference with the Ministry of Health, at which the creation of a national registry for rare disease patients was announced.
In 2020 a balloon launch was organised to celebrate Rare Disease Day. Thousands of balloons were released into the sky symbolising different rare diseases.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected].
On February 28, 2021, at 13:00 EET in front of the National Palace of Culture in Sofia, Bulgaria, patients with… Continue reading National Palace of Culture in Sofia will be lit in blue, purple, pink and green