Australia first participated in Rare Disease Day in 2009 and has since hosted many exciting events to raise awareness among the general public. These events have taken place all over the country from Perth to Victoria, Canberra and Sydney. Among them include an Indian dancing event, an online silent art auction, fun runs, public seminars, bake sales and a high tea event.

2020 Rare Disease Day saw Australia’s Minister for Health launch the National Strategic Action Plan for Rare Diseases (the Action Plan), with bipartisan support. The Action Plan is the first nationally coordinated effort to address rare diseases in Australia.

In 2020 and 2021, multiple landmarks were illuminated in the official Rare Disease Day colours to mark the occasion. Landmarks included The Story Bridge, The Victoria Bridge, Adelaide Oval, Perth’s Parliament House, Perth’s Yahan Square Digital Tower, Perth’s Council House, Tasmania’s Town Hall, Canberra’s Telstra Tower, Brisbane’s City Hall and Sydney’s Town Hall.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]