Australia

Australia first participated in Rare Disease Day in 2009 and have since hosted many exciting events to raise awareness among the general public. These have taken place all over the country from Perth to Canberra and Sydney. Among them include an Indian dancing event, an online silent art auction, fun runs, public seminars, bake sales and a high tea event.

Rare Disease Day 2020 in Australia saw the launch of a National Strategic Action plan for Rare Diseases, a milestone event for Australia’s Minister for Health. Across the country a vast number of events took place for all members of the rare disease community. 

Multiple landmarks and buildings were lit up in rare disease day colours to mark the occasion. These include: The Story Bridge, The Victoria Bridge, Adelaide Oval, Perth’s Parliament House, Perth’s Yahan Square Digital Tower, Perth’s Council House, Tasmania’s Town Hall, Canberra’s Telstra Tower, Brisbane’s City Hall and Sydney’s Town Hall.

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]

National Alliances

Rare Voices Australia Ltd.

National Alliance

Events

Phelan-McDermid Syndrome Foundation Australia Global High Tea
Sydney

PMSF Australia is hosting its 8th High Tea event. This year we have decided to go GLOBAL. Join from any… Continue reading Phelan-McDermid Syndrome Foundation Australia Global High Tea

The Genetic Support Network of Victoria Rare Disease Day 2021
Online

Join the GSNV in celebration of Rare Disease Day with a virtual journey showing the power of alliances that build… Continue reading The Genetic Support Network of Victoria Rare Disease Day 2021

Werribee Mansion Illumination
Werribee, Melbourne

For the first time, the iconic Werribee Mansion will be illuminated in the colours of Rare Disease Day from 7.30pm… Continue reading Werribee Mansion Illumination

The Genetic Support Network of Victoria Rare Disease Day Conversations “Who’s on your Team?”
Victoria, Australia

This year the Genetic Support Network of Victoria (GSNV),  Australia will hold a virtual event to raise awareness amongst the general… Continue reading The Genetic Support Network of Victoria Rare Disease Day Conversations “Who’s on your Team?”

Rare Disease Day Fun Run & Walk
Cairns

Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, on the… Continue reading Rare Disease Day Fun Run & Walk

Rare Disease Day Photography Competition

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Photography Competition. Get your cameras… Continue reading Rare Disease Day Photography Competition

Rare Kids Art Competition

To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Rare Kids Art Competition. Ask… Continue reading Rare Kids Art Competition

Tasmania’s Rare Disease Day Landmark Illuminations
Tasmania

The following locations in Tasmania will be illuminated to mark 2021 Rare Disease Day: – Paranaple Convention Centre – Launceston Town Hall Illumination organised… Continue reading Tasmania’s Rare Disease Day Landmark Illuminations

ACT’s Rare Disease Day Landmark Illuminations
ACT

The following landmark in the ACT will be illuminated to mark 2021 Rare Disease Day: – Telstra Tower Illumination organised by Andrew Bannister.

Other Friends

SCN2A Awareness

Country Organiser

Fabry Australia

Country Organiser

Melbourne Health

Country Organiser

Tarlov Cyst Society of Australia

Country Organiser
Dawn Douglas

Young Lungs

Country Organiser