https://rddjapan.info/2024/ibd/
https://rddjapan.info/2024/ishikawa/
https://rddjapan.info/2024/fukushima/
https://rddjapan.info/2024/type2collagen/
https://rddjapan.info/2024/himawari/
https://rddjapan.info/2024/ppi/
https://rddjapan.info/2024/purpledayosaka/
https://rddjapan.info/2024/u-60/
https://rddjapan.info/2024/tenbin/
https://rddjapan.info/2024/kobe/
https://rddjapan.info/2024/osakameisei/
https://rddjapan.info/2024/ehime/
Unter dem Motto: „Teilt eure Farben und lasst uns Aufmerksamkeit schaffen”, organisiert die Selbsthilfe Salzburg den jährlichen Tag der Seltenen...
https://rddjapan.info/2024/specialkids/
https://rddjapan.info/2024/niigata/
https://rddjapan.info/2024/hamamatsucho/
A conference to mark the International Rare Disease Day in which doctors, researchers, professionals in the field and the patients’...
https://rddjapan.info/2024/medu-net/
Education event for college students to raise awareness for rare disorders and the importance of premarital testing
Talk and discussion on select rare diseases to elicit awareness among the public.
https://rddjapan.info/2024/honancho/
https://rddjapan.info/2024/miyagi/
https://rddjapan.info/2024/ppecc/
Chaque année, la Journée Internationale des Maladies Rares (JIMR) se tient le dernier jour de février. À cette occasion, des...
https://rddjapan.info/2024/wakayama/
https://rddjapan.info/2024/satsuma/
https://rddjapan.info/2024/art/
Episirus Scientifica regards each one of the individuals to go to the World Endocrine, Diabetes & Cardiovascular Conference 2024 (EDCC24)...
https://rddjapan.info/2024/aozora/
O ICVS e a Escola de Medicina – Universidade do Minho uniram-se à Ponto Braguez para realizar uma caminhada solidária/visita...
O ENCONTRO PARAENSE DE DOENÇAS RARAS (EPADORA) ACONTECE NA CIDADE DE BELÉM DO PARÁ DESDE 2013. ESTA VERSÃO BUSCA FAZER...
We are super excited for the return of the Rare Beer Challenge for 2024! On 8 March some of the...
Orphan Products for Rare Diseases: Availability and Accessibility – They’re Not The Same Thing The program will feature two keynote...
Webinar: This webinar brings together patients and caregivers with the rare diseases HoFH and FCS who will talk about how...
Rarus Health SPA y FECHER organizará un seminario web especial para pacientes, cuidadores y especialistas de salud. En palabras sencillas,...
https://rddjapan.info/2024/tottori/
Rare Disease Day in Madina, KSA (March 6-8, 2024) Rare Disease Day is a significant global initiative aimed at raising...
Presentation of Rare Disease Day at Rotary Club of Karen
The Medical Genetics Dept. and Egyptian society of human genetics is inviting you to 2024 rare disease day. Our aim...
https://rddjapan.info/2024/aichi/
Journée dédiée aux centres maladies rares du CHU de Clermont-Ferrand, et cette année, centrée sur les résultats de la labellisation...
A talk by Prof Zulf Mughal pediatric endocrinologist consultant in bone diseases. Hosted by the Pediatric Endocrine and Diabetes Unit...
In order to take part in Rare Disease Day 2024, MORE Community will hold an event entitled Langka(h) Kecil 2024:...
Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, we walk,...
Thai Rare Disease Foundation Organized Event To campaign for sustainable development in caring for patients with rare diseases The 14th...
A 1ª Corrida Nacional Inclusiva dos Raros é uma iniciativa da Casa de Saúde Nossa Senhora dos Raros, da Associação...
Missa em ação de graças pelo dia Mundial das Doenças Raras
Cambridge Rare Disease Network (CamRARE) invite you to join our community to celebrate Rare Disease Day 2024 at the wonderful...
A Catania il 3 Marzo 2024, ci incontreremo dalle ore 10 alle ore 12,00 all’ Albero dei Rari Aismac in...
https://rddjapan.info/2024/familia/
https://rddjapan.info/2024/harappa/
https://rddjapan.info/2024/senyaku/
High Tea to raise awareness for Rare Disease Day and funds for Rare Voices Australia
Ioga solidario para financiar la investigación de la enfermedad rara IRF2BPL
On the occasion of World Rare Disease Day, PKS Italia APS, the Italian Association for Pallister-Killian Syndrome, and the Fondazione...
In Bielefeld laden seit 2009 alljährlich Selbsthilfegruppen unterstützt von Der Paritätische NRW – Selbsthilfe-Kontaktstelle Bielefeld und der Heimat Krankenkasse zu...
https://rddjapan.info/2024/okinawa/
Sabato 2 marzo, in occasione della Celebrazione della Giornata Mondiale delle Malattie Rare (29 febbraio 2024), la Fondazione A.R.M.R ha...
Op 2 & 3 maart deel ik nogmaals mijn kleuren & organiseren we een pop-up weekend \’FRAMED\’. \’FRAMED\’ om het...
L’evento prevede una carovana formata dalle auto dei volontari delle associazioni delle malattie rare di Bergamo e Provincia per sensibilizzare...
El Colegio de Médicos Cirujanos del Estado de Nuevo León, A.C. Organiza el Primer Simposio de Enfermedades Raras, dirigido a...
Ein Networking-Tag von und für Menschen mit seltenen Erkrankungen, und deren Angehörige unter dem Motto ‚Gemeinsam weniger selten‘. Auf dieser...
A year ago, Baby Lukie was diagnosed with a very rare disease called ZTTK, discovered only in 2016. There are...
You are invited to the Rare Diseases Summit ’24’! The rare diseases ecosystem is transforming with the speed of technology...
Members Meeting for Rare Disease Kenya
Concerto straordinario del Coro DNA GOSPEL diretto dal Maestro Angelo Abate nella bellissima Chiesa Santi Filippo e Giacomo di Capua...
ore 15.00 “Un tè con te per le malattie rare” Intervengono: Doris Fosco, assessora alle politiche sociali del Comune di...
➡️ 1/15 000 enfant est touché par l’aplasie majeur de(s) l’oreille(s). ➡️ Environ 4 500 personnes en France, car on...
WALK FOR RARE is a solidarity walk to raise awareness about rare diseases in Portugal. The main theme of this...
ZUSAMMENSPIEL ZWISCHEN ELTERN, ÄRZTEN UND WEITEREN AKTEUREN Der Förderverein für Kinder mit seltenen Krankheiten feiert sein zehnjähriges Jubiläum und lädt...
Rare Disease Day Bay Area 2024 is back celebrating our 6th year of supporting the Rare Disease Community. Our small...
Conférences avec présence de stands d’association de patients
Konferenz und Stände von Patientenorganisationen.
Wissenstransfer Seltene Krankheiten: ❤️🐸 Der Förderverein für Kinder mit seltenen Krankheit feiert sein zehnjähriges Jubiläum und lädt am 2. 3.2024...
Talk held at the House of Councillors Hall in honour of Rare Disease Day in Japan.
Un concerto inaugurale “Le scarpe di Alice” della mostra “La donna di Sera”: filo conduttore il coraggio e la fragilità...
Brevi relazioni sulle malattie rare e le disabilità in generale e presentazione del progetto “Un cielo per tutti”
Reunión para familias de toda Latinoamérica. El objetivo es brindar herramientas y material para optimizar la inclusión escolar y adaptaciones...
Dirigido a profesionales de la salud, estudiantes, pacientes, cuidadores y publico en general.
https://rddjapan.info/2024/iseikai/
Il progetto “GeneRare: we know genetic and rare diseases” ha lo scopo di promuovere la conoscenza sulla genetica e sensibilizzare...
El Día de las Enfermedades Raras es el movimiento coordinado a nivel mundial sobre enfermedades raras. Este evento pretende socializar...
https://rddjapan.info/2024/jpa/
To mark Rare Disease Day 2024, join us for a webinar to launch Mapping Rare: an interactive resource highlighting the...
With reference to the International Day dedicated to Rare Diseases on 29 February, the StarLight association of Perugia is organizing...
A workshop with multi disciplinary and multi sectorial participation to define the patient’s pathways for RD patients.
Cal Poly Polytechnic State University lawn boothing to talk to students and bring awareness for individuals with rare diseases and...
Illumination of Marshal’s Office of Pomorskie Region in Gdańsk in honour of Rare Disease Day in Poland. — fot. Grzegorz...
Illumination of Cascais Town Hall in honour of Rare Disease Day in Portugal.
Illumination of the William Grundt Memorial Library in honour of Rare Disease Day in Australia.
Rejoignez-nous le 29 février pour une soirée unique à Lille, où la solidarité s’illuminera à travers la “Global Chain of...
Illumination of the Wickham Terrace Car Park Architectural Wall in honour of Rare Disease Day in Australia.
Telstra Tower will light up in the Rare Disease Day colours for the day/night of 29th February 2024.
L’équipe du Centre de Référence des Maladies Rares du CHU Amiens-Picardie propose l’Illumination de l’Hôtel de ville d’Amiens aux couleurs...
Illumination of Castelo Branco City Hall in honour of Rare Disease Day in Portugal.
Illumination of the Big Banana in honour of Rare Disease Day in Australia.
Illumination of the Bell Tower in honour of Rare Disease Day in Australia.
Illumination of the Busselton Civic Centre in honour of Rare Disease Day in Australia.
In an effort of global solidarity, building that Institute of Biotechnology (University of Rzeszow) is located will be lights up...
Illumination of the Bijeljina Administrative Offices in honour of Rare Disease Day in Bosnia and Herzegovina.
Liverpool town hall will be lit up to highlight Rare Disease Day!
As the action for the World Rare Disease Day 2024, CRYOPDP will broadcast a podcast program to educate and promote...
Missa em Ação de Graças pelo Dia Mundial das Doenças Raras
El Congreso de la República del Perú en coordinación con la sociedad civil ADCUM, se compromete a seguir haciendo incidencia...
The Mersey Gateway Bridge will be lit up for this year’s Rare Disease Day
March on Parliament Hill organised by CORD in honour of Rare Disease Day in Canada.
In occasione della Giornata delle Malattie Rare, la Direzione Socio Sanitaria dell’ASST Gaetano Pini-CTO, propone, giovedì 29 febbraio dalle ore...
Illumination of the Bolte Bridge and Citylink Sound Tube in honour of Rare Disease Day in Australia.
The Royal Liver building will be illuminated for Rare Disease Day on February 29th.
Illumination of Winnipeg Bridge in honour of Rare Disease Day in Canada.
S’il·lumina el Monument a la Dona treballadora el Dia Mundial de les Malalties Minoritàries.
Illumination of Calgary Tower in honour of Rare Disease Day in Canada.
S’il·lumina per les malalties minoritàries a la posta de sol.
Illumination of CC de Velinx Tongeren in honour of Rare Disease Day in Belgium.
Illumination of the Campbelltown Migrant Monument in honour of Rare Disease Day in Australia.
Illumination of the Winnipeg Sign in honour of Rare Disease Day in Canada.
Illumination of the Captain Scott Plaza in honour of Rare Disease Day in New Zealand.
Illumination of the Wharton Reef Lighthouse in honour of Rare Disease Day in Australia.
Illumination of Whanganui War Memorial Centre in honour of Rare Disease Day in New Zealand.
Illumination of the CN TOWER in the Rare Disease Day colors.
Illumination of Tīrau I-Site in honour of Rare Disease Day in New Zealand.
Illumination of the Toronto Sign in honour of Rare Disease Day in Canada.
Illumination of the Central Park Boardwalk in honour of Rare Disease Day in Australia.
Illumination of CN Tower in honour of Rare Disease Day in Canada.
Illumination of the British Columbia Legislature in honour of Rare Disease Day in Canada.
Illumination of Centre Administratif Mouscronnois in honour of Rare Disease Day in Belgium.
Illumination of Christchurch Airport and Airport Control Tower in honour of Rare Disease Day in New Zealand.
Illumination of Tokyo Tower in honour of Rare Disease Day in Japan.
Illumination of the Peace Bridge in honour of Rare Disease Day in Canada.
Rare Disease Day Empower Hour. On the Rare Disease Day, let’s gather together and shine a light on the many...
“Rare Diseases Greece” in collaboration with the Municipality of Kozani illuminates Municipal Library of Kozani in honor of Rare Disease...
Illumination of the Michael Fowler Centre in honour of Rare Disease Day in New Zealand.
“Rare Diseases Greece” in collaboration with the Technopolis City of Athens illuminates the Innovathens building of Technopolis City of Athens...
Illumination of the Hamilton Sign in honour of Rare Disease Day in Canada.
Illumination of the Ponta Delgada Gates in honour of Rare Disease Day in Portugal.
“RARE DISEASES GREECE” in collaboration with the Municipality of Athens, illuminates the Fountain in Omonoia Square in honor of Rare...
Illumination of the Fantail Sign in honour of Rare Disease Day in New Zealand.
Illumination of the Drum Theatre in honour of Rare Disease Day in Australia.
Illumination of the Townsville Sign in honour of Rare Disease Day in Australia.
Iluminamos los edificio más representativos de nuestro País para generar conciencia en el Día Mundial de las Enfermedades Raras
Illumination of Wharf St Lights in honour of Rare Disease Day in New Zealand.
Illumination of Vila Franca de Xira City Hall in honour of Rare Disease Day in Portugal.
Illumination of Bascule Bridge in honour of Rare Disease Day in New Zealand.
Illumination of the Banja Luka City Administrative Office in honour of Rare Disease Day in Bosnia and Herzegovina.
Illumination of the building
Illumination of the Brisbane City Hall in honour of Rare Disease Day in Australia.
Illumination of Wellington Cable Car in honour of Rare Disease Day in New Zealand.
Illumination of South Taranaki Water Tower in honour of Rare Disease Day in New Zealand.
Illumination of the Palace of Culture and Science
Illumination of the Victoria Park Broadbeach Sign in honour of Rare Disease Day in Australia.
Illumination of UZ Antwerpen in honour of Rare Disease Day in Belgium.
Illumination of the Town Hall of Dzierżoniów in honour of Rare Diseases Day
Illumination of Victoria Canopy Bridge in honour of Rare Disease Day in New Zealand.
Illumination of the Victoria Bridge in honour of Rare Disease Day in Australia.
Illumination of the Victoria Bridge in honour of Rare Disease Day in Australia.
Illumination of the Victoria Bridge in honour of Rare Disease Day in Australia.
Illumination of Vaughan City Hall in honour of Rare Disease Day in Canada.
Illumination of Vancouver Convention Centre in honour of Rare Disease Day in Canada.
Illumination of Vaka A Hina in honour of Rare Disease Day in New Zealand.
Missa em Ação de Graças pelo Dia Mundial das Doenças Raras
An event co-organized in partnership with the Commission for Health in the Romanian Senate.
The clock tower is lighting up in blue, pink, and green from 8 p.m. on February 29.
Rare Disease Day is a scientific, educational activity where health care workers share their patients rare cases , the ones...
We invite you to gather together with SRNA’s founders, partners, fellow community members, and leading medical professionals together for a...
A Webinar will be organized. A lymph therapist will describe the diagnoses and how to handle primary lymphoedema and show...
This year, Rare Disease Day is on that rarest of days, 29th February, and to mark the occasion NIHR Cambridge BRC...
Sjældne Diagnoser afholder fællesarrangement d. 29/2-24 kl. 17-18. På programmet er: Velkomst v. Birthe Byskov Holm Premiere på Sjældne-sang Overrækkelse...
An initiative by medical students concentrating on rare diseases on the rarest day of them all. The Student Scientific Circle...
Illumination of the Breakfast Creek Bridge in honour of Rare Disease Day in Australia.
Art Campaign held across hospitals in Finland as part of the #ColourUp4Rare postcard campaign, in honour of Rare Disease Day...
Rare Disease Day is a scientific, educational activity to allow health care workers to share rare cases they have diagnosed,...
On the 29th of February, to mark the Rare Disease Day, SANT committee will hold an exchange of views with...
Will be having a meet up event just to catch up have fun and share our stories ,will also have...
The Toronto Sign at Nathan Pillips Square will be illuminated in the colors pink, green, blue and purple in recognition...
Illumination of Braga Cathedral in honour of Rare Disease Day in Portugal.
The Toronto City Hall will be illuminated in the Rare Disease Colors of pink, green, blue and purple in recognition...
The Toronto CN Tower will be illuminated in the Rare Disease colors of pink, green, blue and purple in recognition...
YORK REGION EARLY ON CHILD AND FAMILY PROGRAMS will be supporting RARE DISEASE DAY 2024 by displaying RDD posters in...
Rare Disease Centre at GSST, is having a Rare Disease Day event in St Thomas’ Hospital. This will be with...
C’est une exposition pour mettre en lumière le quotidien de ceux qui vivent avec un handicap invisible. Elle se compose...
Polish celebration of the Rare Disease Day 2024, organised annually by National Forum Orphan – Polish patients umbrella federation, in...
Illumination of the Box Hill Town Hall in honour of Rare Disease Day in Australia.
An art exhibition showcasing a collection of powerful and diverse art pieces done by students from different schools to raise...
We are excited to invite you to Rare Disease Day at the Izmir Biomedicine and Genome Center (IBG) – an...
Hands on activities and meet the scientist
Encendido de la Facultad de medicina UANL 6:30 pm Frontispicio de la Facultad
Come and join us outside A11 for some Rare Disease Day Fun and to raise awareness about Rare Diseases. On...
Hands on activities and meet the scientist
Table event to raise awareness for rare diseases and promote equity.
We will be holding our second annual Rare Disease Day on February 29th, 2024 (yes, it’s truly a rare day!)...
Round table, reserved only for professionals (from the world of associations, health, university, private enterprises and education), and dedicated to:...
Presentation and sharing experiences of living with a rare disease in honour of Rare Disease Day in Bosnia and Herzegovina.
Illumination of Brampton Clock Tower in honour of Rare Disease Day in Canada.
Charla a cargo de Iliara Borges , Co fundadora de FUPIER y Claudia Rodríguez Verde, Co fundadora de Raras Cro....
At the Rare Disease Day Event there will be discussed Georgian Rare Disease NP/NS 2024-2030
L’ISTITUTO COMPRENSIVO “RADICE-ALIGHIERI” CATONA RC _SCUOLA SECONDARIA DI PRIMO GRADO partecipa alla sensibilizzazione della Giornata delle Malattie Rare 2024, con:...
Talk held at Sir Ketumile Masire Teaching Hospital in honour of Rare Disease Day in Botswana.
A call to action for people living with rare diseases. Rare Diseases Bulgaria send an open letter to the Prime...
Talk held at Banja Luka Medical School in honour of Rare Disease Day in Bosnia and Herzegovina.
Our event highlight of “Rare Disease Day 2024 – Share Your Colours” was at 1-2pm on 29th Feb. The event...
Rare Disease awareness through social media, and discussion in school, especially. A child living with OI (Osteogenesis Imperfecta), a rare...
THE BALLAD OF HUMAN MUTATIONS, esibizione di Alice Babolin, in arte #Aliteia, curata da Alisia Viola , torna live a...
Will be lit up in blue from sunset until 11 p.m. on February 29.
The P4A team will be taking part in ‘Race for Rare’ across London on 29th Feb 2024. We will be...
Shining in blue on February 29.
Join us over the lunch period (with your food!) for a 60- minute session for Rare Disease Day highlighting rare...
Lit in blue, pink, and green on February 29.
Niagara Falls Canada will be illuminated on Thursday February 29, 2024 in recognition of Rare Disease Day. It will be...
Illumination of the Art Gallery in honour of Rare Disease Day in New Zealand.
Niagara Falls will be lit up in the Rare Disease colors pink, green, blue, purple from 10:00pm to 10:15pm. live...
Si tienes Síndrome de Guillain-Barré , CIDP, NMM, o cualquier otra polineuropatía desmielinizante, esta es tu jornada.
IN OCCASIONE DELLA GIORNATA INTERNAZIONALE DELLE MALATTIE RARE L’ASSOCIAZIONE DI PROMOZIONE SOCIALE SINDROME KABUKI NORD EST ONLUS CON LA COLLABORAZIONE...
1. NMOSD Patientenbroschüre – Ihre Meinung ist gefragt! Kommentieren Sie die NEMOS Patientenbroschüre. Sie wird derzeit von NEMOS für Patienten,...
NEMOS INITIATIVE FÜR BETROFFENE 1. NMOSD Patientenbroschüre – Ihre Meinung ist gefragt! Kommentieren Sie die NEMOS Patientenbroschüre. Sie wird derzeit...
Illumination of Bom Jesus do Monte in honour of Rare Disease Day in Portugal.
On Thursday, Feb. 29, 2024, the National Center for Advancing Translational Sciences and the NIH Clinical Center will sponsor Rare...
Hamilton Sign: Displaying blue, pink, and green on February 29.
İSTisNA Projesi Nadir Hastalıklar Günü’nde proje ortağı İstanbul Üniversitesi Aziz Sancar Deneysel Tıp Araştırma Enstitüsü’nde! Öğleden sonra başlayacak Nadir Hastalıklar...
1200 km ride to raise fund for Lysosomal storage Dieases patients
Conferencia: El genetista como parte del equipo multidisciplinario : impacto en el abordaje de las enfermedades raras en pediatría
Peace bridge will be Illuminated in blue, pink, purple, and green on February 28, starting the awareness campaign a day...
Illumination of the Broeltorens in honour of Rare Disease Day in Belgium.
Patient representatives talk at Karolinska Huddinge Hospital in honour of Rare Disease Day in Sweden.
A day full of announcements and surprises regarding the launch of ‘Recognise ME’, a memoir about medical gaslighting.
Project Title: Empowering Communities through Rare Disease Education Objective: To educate and raise awareness about rare diseases within the Sri...
Patient representatives talk at Ryhov County Hospital in honour of Rare Disease Day in Sweden.
Patient representatives talk at New Karolinska Solna University Hospital in honour of Rare Disease Day in Sweden.
Patient representatives talk at Malmö University Hospital in honour of Rare Disease Day in Sweden.
Patient representatives talk at Lund Hospital in honour of Rare Disease Day in Sweden.
Patient representatives talk at Linköping University Hospital in honour of Rare Disease Day in Sweden.
Patient representatives talk at Kalmar County Hospital in honour of Rare Disease Day in Sweden.
Evento sulle Malattie Rare, rivolto principalmente agli studenti con età compresa tra i 16 e i 19 anni. L’obiettivo è...
Information evening arranged by the Centre for Rare Diseases in honour of Rare Disease Day in Sweden.
Digital lunch seminar across the Northern Region focusing on networks for rare diseases, in honour of Rare Disease Day in...
Illumination of the Bowker Fountain in honour of Rare Disease Day in New Zealand.
WHAT: Chicago Rare Disease Day 2024. We will have an hour for introductions, conversation and fellowship, then screen the film...
Mostra di sensibilizzazione “Rare Abilità” , accendiamo le luci sulle malattie rare. Shooting fotografico di sensibilizzazione
Programa de abordaje integral de las Enfermedades Poco Frecuentes. Universidad Nacional de Rosario El 29 de febrero se conmemora el...
On February 29, 2024, the Tarczyński Arena Municipal Stadium in Wrocław will be illuminated to show solidarity with people suffering...
Illumination of the Bridge of Remembrance in honour of Rare Disease Day in New Zealand.
Illumination of the Surfers Paradise Sign in honour of Rare Disease Day in Australia.
Illumination of the Botanical Gardens in honour of Rare Disease Day in New Zealand.
Illumination of Fred A. Lundy Bridge in honour of Rare Disease Day in Canada.
Illumination of the Little Fletcher Bridge in honour of Rare Disease Day in Australia.
Illumination of Batiment du Centre Culturel in honour of Rare Disease Day in Belgium.
Light up the Pisa Tower
Illumination of the Launceston Town Hall in honour of Rare Disease Day in Australia.
Illumination of Lar da Santa Casa da Misericórdia in honour of Rare Disease Day in Portugal.
Illumination of the Lakes District Museum in honour of Rare Disease Day in New Zealand.
Awareness event with illumination of a research building, information stands, discussion rounds and guided laboratory tours.
Winnipeg will be lighting up their Winnipeg Sign and the Esplanade Riel Bridge on Rare Disease Day (At the Forks...
Illumination of the Mandurah Bridge in honour of Rare Disease Day in Australia.
Illumination of the Kununurra Courthouse in honour of Rare Disease Day in Australia.
Illumination of the Kingsway Flyover Billboard Sign in honour of Rare Disease Day in Australia.
The city hall tower will be lit up for Rare Disease day for the first time ever.
The top of the iconic Terminal Tower in downtown Cleveland will be lit in the colors of Rare Disease Day.
Illumination of the Kingston Clock Tower in honour of Rare Disease Day in Australia.
Illumination of the King José I Statue in honour of Rare Disease Day in Portugal.
Illumination of Kerk Sint-Genesius-Rode in honour of Rare Disease Day in Belgium.
Light up for Rare 2024 In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland...
Illumination of Lousã Town Hall in honour of Rare Disease Day in Portugal.
Illumination of the Manly Town Hall in honour of Rare Disease Day in Australia.
In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland Rare Disease Partnership (NIRDP), has...
Illumination of the Mount Street Bridge in honour of Rare Disease Day in Australia.
Illumination of Neptune’s Fountain in honour of Rare Disease Day in Poland ___ fot. Grzegorz Mehring, www.gdansk.pl
Illumination of Nelson Clock Tower in honour of Rare Disease Day in New Zealand.
Illumination of Nelson Cathedral in honour of Rare Disease Day in New Zealand.
Illumination of the New Brighton Pier in honour of Rare Disease Day in New Zealand.
Illumination of the Nancy Blumer Memorial in honour of Rare Disease Day in Australia.
Illumination of Nanaimo Bastion in honour of Rare Disease Day in Canada.
Illumination of Museu do Traje in honour of Rare Disease Day in Portugal.
Illumination of the Mount Gambier Visitor Centre in honour of Rare Disease Day in Australia.
Illumination of Martelarenplein in honour of Rare Disease Day in Belgium.
Illumination of Mississauga City Hall in honour of Rare Disease Day in Canada.
Illumination of the School of Medicine at Minho University in honour of Rare Disease Day in Portugal.
Illumination of the Melbourne Town Hall in honour of Rare Disease Day in Australia.
BioPartner and VICO are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with the...
Illumination of the Melbourne Cricket Ground in honour of Rare Disease Day in Australia.
Illumination of the Matagarup Bridge in honour of Rare Disease Day in Australia.
Less Rare: demystifying rare diseases is the event organized by CNC-UC to mark World Rare Disease Day, on February 29,...
Illumination of the Maryborough City Hall in honour of Rare Disease Day in Australia.
Illumination of the Clock Tower in honour of Rare Disease Day in New Zealand.
Light up for Rare 2024 In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland...
Illumination of New Plymouth Clock Tower in honour of Rare Disease Day in New Zealand.
Illumination of Gemeentehuis Wellen in honour of Rare Disease Day in Belgium.
Illumination of Havenhuis Port of Antwerp-Bruges in honour of Rare Disease Day in Belgium.
Illumination of Hastings Clock Tower in honour of Rare Disease Day in New Zealand.
Illumination of the AAMI Park in honour of Rare Disease Day in Australia.
Illumination of AC Praetorium Tongeren in honour of Rare Disease Day in Belgium.
Illumination of the General Workers’ Union building in honour of Rare Disease Day 2024 in Malta.
Illumination of the Goulburn Visitor Information Centre in honour of Rare Disease Day in Australia.
Illumination of the George Roberts Bridge in honour of Rare Disease Day in Australia.
Illumination of Gemeentehuis van Lochristi in honour of Rare Disease Day in Belgium.
Illumination of Heikantweg in honour of Rare Disease Day in Belgium.
Illumination of Amherst Town Hall in honour of Rare Disease Day in Canada.
Illumination of Gemeente Gooik in honour of Rare Disease Day in Belgium.
Illumination of Angra do Heroísmo Town Hall in honour of Rare Disease Day in Portugal.
Illumination of GBS Lochristi in honour of Rare Disease Day in Belgium.
Illumination of Anzac Parade Bridge in honour of Rare Disease Day in New Zealand.
Illumination of Funchal City Hall in honour of Rare Disease Day in Portugal.
Illumination of Fronteira City Hall in honour of Rare Disease Day in Portugal.
Illumination of Arcadas da Serra do Pilar in honour of Rare Disease Day in Portugal.
Illumination of the Fremantle Prison Gatehouse in honour of Rare Disease Day in Australia.
Illumination of the Hervey Bay Esplanade in honour of Rare Disease Day in Australia.
Illumination of Kerk Onze-Lieve-Vrouw Oorzaak onzer Blijdschap in honour of Rare Disease Day in Belgium.
Illumination of the Isle of Capri Bridge in honour of Rare Disease Day in Australia.
Illumination of Kelburn Fountain in honour of Rare Disease Day in New Zealand.
Illumination of the Joondalup Drive Bridge in honour of Rare Disease Day in Australia.
The Frost Tower is participating in the Light Up For Rare Campaign and its iconic exterior lighting will illuminate in...
Illumination of Jardim das Portas do Sol in honour of Rare Disease Day in Portugal.
Light up for Rare Disease Day 2024 Both Enniskillen Castle and Strule Arts Centre, will be lighting up pink! In...
In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland Rare Disease Partnership (NIRDP), has...
In a heartfelt call for unity and awareness, Patrick Toland, CEO of the Northern Ireland Rare Disease Partnership (NIRDP), has...
The Downtown Detroit Partnership is proud to show our stripes for those living with rare diseases by lighting up Campus...
Illumination of the Ipswich Civic Centre in honour of Rare Disease Day in Australia.
Illumination of 101 Collins Street in honour of Rare Disease Day in Australia.
Illumination of Infantário Nossa Senhora da Vila Velha in honour of Rare Disease Day in Portugal.
Illumination of Igreja Matriz in honour of Rare Disease Day in Portugal.
Illumination of Hotel Communal d’Etterbeek in honour of Rare Disease Day in Belgium.
Illumination of Horta Town Hall in honour of Rare Disease Day in Portugal.
Illumination of Hof van Villers in honour of Rare Disease Day in Belgium.
Illumination of His Majesty’s Theatre in honour of Rare Disease Day in Australia.
Illumination of Hikitia Crane at Wellington Waterfront in honour of Rare Disease Day in New Zealand.
Illumination of 1 Nicholas Street Ipswich Central in honour of Rare Disease Day in Australia.
Illumination of New Plymouth Airport in honour of Rare Disease Day in New Zealand.
Illumination of New Zealand Maritime in honour of Rare Disease Day in New Zealand.
Illumination of the “Love Taupo” sign in honour of Rare Disease Day in New Zealand.
Illumination of the Riddoch Arts and Cultural Centre in honour of Rare Disease Day in Australia.
Illumination of the Crown Resorts in honour of Rare Disease Day in Australia.
Illumination of the Derventa Administrative Offices in honour of Rare Disease Day in Bosnia and Herzegovina.
Illumination of Royal Whanganui Opera House in honour of Rare Disease Day in New Zealand.
Illumination of the Royal Australian Mint in honour of Rare Disease Day in Australia.
Illumination of Dunedin Railway Station in honour of Rare Disease Day in New Zealand.
Illumination of the Riverbank Footbridge in honour of Rare Disease Day in Australia.
La Plateforme d’Expertise Maladies Rares Centre-Val de Loire, les professionnels du CHRU de Tours, l’AFM-Téléthon et l’Equipe Relais Handicaps Rares...
Illumination of the Eastern Goldfields Community Centre in honour of Rare Disease Day in Australia.
Illumination of the Vancouver Sails of Light in honour of Rare Disease Day in Canada.
Do you or your partner have a Rare Disease? Join the Instagram Live where Jennifer and Tamaha 🇲🇽, and Alfons...
Illumination of Redwoods Tree Walk in honour of Rare Disease Day in New Zealand.
Illumination of Eden Park in honour of Rare Disease Day in New Zealand.
About the Conference Under the theme “Navigating the Uncharted: Advancements, Collaborations, and Hope in Rare Diseases”, the International Congress on...
Illumination of the Reddacliff Place Steam Sculptures in honour of Rare Disease Day in Australia.
Illumination of the Recordati Office in honour of Rare Disease Day in Belgium.
Illumination of Edifício do Arquivo Distrital de Viseu in honour of Rare Disease Day in Portugal.
Illumination of Queen’s Park Gates and Fountain in honour of Rare Disease Day in New Zealand.
Illumination of the Crown Melbourne in honour of Rare Disease Day in Australia.
Illumination of the Seafront Oval in honour of Rare Disease Day in Australia.
Pour célébrer la Journée internationale des maladies rares, MaRaVal vous invite à la projection du film Invincible été, avec Olivier...
Illumination of the Story Bridge in honour of Rare Disease Day in Australia.
Illumination of Téléphérique de Namur in honour of Rare Disease Day in Belgium.
Illumination of Teatro Garcia de Resende in honour of Rare Disease Day in Portugal.
Illumination of Te Aroha Clock Tower in honour of Rare Disease Day in New Zealand.
Illumination of Tavira City Hall in honour of Rare Disease Day in Portugal.
Illumination of Coruche City Hall in honour of Rare Disease Day in Portugal.
Illumination of Takeda Zaventem in honour of Rare Disease Day in Belgium.
Illumination of Argenx in honour of Rare Disease Day in Belgium.
Illumination of Stratford Clock Tower in honour of Rare Disease Day in New Zealand.
Illumination of Stadhuis Beringen in honour of Rare Disease Day in Belgium.
Illumination of Cromwell Fruit Sculpture in honour of Rare Disease Day in New Zealand.
Illumination of Covilhã City Hall in honour of Rare Disease Day in Portugal.
Illumination of St Paul’s Church in honour of Rare Disease Day in New Zealand.
Illumination of Speights Brewery Bridge in honour of Rare Disease Day in New Zealand.
En el marco del día mundial de las enfermedades raras,Esperantra del Centro asociación de pacientes organiza este año el iluminado...
Se llevará a cabo la conmemoración en el marco del Día Mundial y Nacional de las Enfermedades Raras 2024 Iluminación...
Illumination of the Sky Ribbon in honour of Rare Disease Day in Australia.
Iluminacja Iglicy Międzynarodowych Targów Poznańskich z okazji Dnia Chorób Rzadkich
Illumination of Signal Hill in honour of Rare Disease Day in Canada.
Illumination of Edmonton High Level Bridge in honour of Rare Disease Day in Canada.
Hybrid Conference in Lisbon and online in honour of Rare Disease Day in Portugal.
Iniciativa Pensemos en Cebras México y Fundación Mujer México como cada año participan activamente en la conmemoración del Día Mundial...
Illumination of Foxton Clock Tower in honour of Rare Disease Day in New Zealand.
Illumination of the Olympic Cauldron in honour of Rare Disease Day in Canada.
La plateforme d’expertise maladies rares du Grand Paris Est ESMARA se mobilise pour la Journée Internationale Maladies Rares 2024 à...
Illumination of Flinders Street Station in honour of Rare Disease Day in Australia.
Journée Maladies Rares – 29 février 2024 Grands Salons de l’Hôtel de Ville (entrée place Stanislas) 08h30 – 17h00 Gratuit...
Illumination of Olivia Hall in honour of Rare Disease Day in Poland
Illumination of the Old Melbourne GPO in honour of Rare Disease Day in Australia.
La Plateforme d’Expertise Maladies Rares vous propose une journée thématique sur l’implication et l’engagement des patients dans le soin, la...
Illumination of the Old Magistrates Court House in honour of Rare Disease Day in Australia.
Chaque année, le dernier jour de février a lieu la Journée Internationale des Maladies Rares (JIMR). Cette journée, célébrée dans...
Illumination of Bourg-la-Reine town hall in honour of Rare Disease Day in France
Creata per affrontare le sfide che le persone affette da malattie rare devono affrontare quotidianamente intende ricordare a tutti che...
Illumination of Bourg-la-Reine Town Hall in honour of Rare Disease Day in France
Illumination of Oamaru Opera House in honour of Rare Disease Day in New Zealand.
Illumination of Oakville Town Hall in honour of Rare Disease Day in Canada.
Illumination of the Northbridge Tunnel in honour of Rare Disease Day in Australia.
Illumination of the Niagara Sign in honour of Rare Disease Day in Canada.
Illumination of Niagara Falls in honour of Rare Disease Day in Canada.
Illumination of Otago Boys’ High School in honour of Rare Disease Day in New Zealand.
Illumination of Otago Museum in honour of Rare Disease Day in New Zealand.
Illumination of Porter’s Lodge in honour of Rare Disease Day in Belgium.
Illumination of the Parliament of Western Australia in honour of Rare Disease Day in Australia.
Illumination of Pomeranian Voivodeship Office in Gdańsk in honour of Rare Disease Day in Poland. ___ fot. press materials of...
Illumination of Polsat Plus Arena Gdańsk in honour of Rare Disease Day in Poland ___ fot. Polsat Plus Arena Gdańsk
Illumination of Edmonton Tower in honour of Rare Disease Day in Canada.
Illumination of Peterborough City Hall in honour of Rare Disease Day in Canada.
Illumination of the Perth Children’s Hospital in honour of Rare Disease Day in Australia.
Illumination of Péristyle Conservatoire in honour of Rare Disease Day in Belgium.
Illumination of Escola Básica Frei Manuel Cardoso in honour of Rare Disease Day in Portugal.
Illumination of the Fan Fare Sculpture in honour of Rare Disease Day in New Zealand.
Illumination of Faro City Hall in honour of Rare Disease Day in Portugal.
Illumination of Otago Settlers Museum in honour of Rare Disease Day in New Zealand.
Illumination of the Parliament House in honour of Rare Disease Day in Australia.
Illumination of Parlement Bruxellois in honour of Rare Disease Day in Belgium.
Illumination of the Paranaple Convention Centre in honour of Rare Disease Day in Australia.
Stand para visibilización, folletería, micrófono abierto, información sobre leyes de las EPOF, experiencias con las EPOF.
Illumination of Palmerston North Clock Tower in honour of Rare Disease Day in New Zealand.
Con el objetivo de visibilizar la necesidad del fortalecimiento de las competencias profesionales acerca de la sospecha y manejo de...
Illumination of Palacete dos Viscondes de Balsemão in honour of Rare Disease Day in Portugal.
Illumination of University of Otago Clock Tower in honour of Rare Disease Day in New Zealand.
Raise awareness for rare diseases day and support the ZMYND-11 Treatment Foundation by making a contribution and wearing jeans to...
Illumination of British Columbia Place in honour of Rare Disease Day in Canada.
The Red Mexicana de Enfermedades Raras (ReMexER), the International Laboratory for Human Genome Research (LIIGH, UNAM) and the Colaborativa para...
A las 12:00h. a los pies del Ayuntamiento de Gandía (Valencia), se procederá a la lectura del manifiesto del Día...
Mit einer Runde Lachyoga starten wir zu einem fröhlichen Austausch unter Betroffenen. Wir freuen uns über Betroffene und Angehörige und...
An hybrid meeting with scientific session with expert in the field.
À l’occasion de la Journée Mondiale des maladies rares, nous vous proposons une table ronde sur le thème du travail...
Lantern walk to celebrate this day and raise awareness around our site.
Screening of Do Something, the Jeffrey Modell Story, to the UCLA Medical School and LA Rare disease community
Simposio que busca fomentar entre los profesionales de la salud, especialmente aquellos en el nivel de primer contacto, la importancia...
Falling once every four years, February 29 is the rarest day of the year. On that very day, in the...
The RDD meet and greet will be held at The University of New Mexico, Department of Chemistry and Chemical Biology...
Anche quest’anno il Comune di Arenzano aderirà alla giornata denominata “Accendiamo le luci sulle malattie rare” in data 29/02/2024 illluminando...
Palazzo Sant’Antonio
Danzando per arrivare….come un palloncino al cielo. Scuola di danza Giselle diretta da Gioia Concetta ore 18:30 ILLUMINAZIONE FONTANA DI...
O Evento irá reunir, pacientes, associações de paciente, gestores públicos, profissionais, familiares, amigos e parceiros que se somam em uma...
Fleur (21) leeft al van kleins af aan met het syndroom van Alport, een zeldzame nierziekte die ook het gehoor...
Public live event in Munich’s city centre in the shopping hotspot Hofstatt on 29 February 2024, starting at 01:00 pm,...
This year, Rare Disease Day is a very special day because it is a leap year. On the 29th of...
The Vaughan City Hall will be illuminated in the colors pink, green, blue and purple in honor of Rare Disease...
Illuminazione delle mura del Castello Dei Conti con i colori della Giornata delle malattie rare 2024, a cura del Comune...
Derby Theatre will be illuminated from 7pm to recognise Rare Disease Day. Students of the BSc Sound, Light, and Live...
Colorado, join us on the east steps of the Capitol at 1:30PM on February 29th for a picture at 2:00PM...
Si affronteranno argomenti molto cari ai malati rari ovvero il diritto alla genitorialità, come diventare genitori e il sostegno psicologico...
To raise awareness of Rare Disease Day our pupils will come to school in colourful clothing to ‘Show Their Colours’....
Desde la Alianza de Familias afectadas por el Síndrome de Wolfram (AFASW) nos sumamos a la conmemoración del Día Mundial...
Vaughan City Hall will be illuminated on Thurs. Feb. 29, 2024 in recognition of RARE DISEASE DAY in the official...
Illumination of the Vaughan City Hall in RARE DISEASE DAY COLORS.
El grupo epof.vt formado por pacientes con enfermedades raras o poco frecuentes, sus familiares y profesionales, nos reunimos para visibilizar...
Presentamos una charla en Youtube con testimonios de tres familias con niños afectados por el Síndrome de Phelan-McDermid. De esta...
Romanian Academy of Neuromuscular Diseases will organize a scientific session, located at National Clinical Hospital for Children Neurorehabilitation “Dr. Nicolae...
Scientific Congress with Dissemination and Dissemination of Scientific Research Results for EEC Syndrome. Study of an eye drops for the...
Running an information stand on the subject of rare diseases, and various fun activities (nail polish workshop, etc.) for Sciensano...
Presentation of 8 success stories in the field of rare diseases – from different departments and specialties of our clinics,...
Patients with rare diseases followed in our Medical Genetics Clinic and families will be invited to the event. There will...
A-T RUN
Insightful 30-minute roundtable discussion, featuring Ipsen colleagues in discussion with Jennifer Seidman from Courageous Parents Network (CPN) to discuss the...
Join us on Zoom for a Rare Disease Day Gathering with members and friends of the hyperinsulinism community on Thursday,...
Lampionnentocht van ongeveer 5km door de straten van Hoeselt, vertrek aan Cafe Den Engel, bij terugkomst, gratis een tas soep...
Am Tag der Seltenen Erkrankung und zum 14. Jahrestag unseres Vereins laden wir ein: 29.2.2024 um 20 Uhr Zoom-Meeting Das...
Our inaugural congress witnessed groundbreaking discussions, profound insights, and remarkable advancements in the understanding and management of rare diseases. Building...
The Hayeffes school is mobilizing to raise awareness of rare diseases and their management in Belgium! The week of February...
Alle kindjes van de school hun nagels worden in verschillende kleuren gelakt.
Quality of life of patients with rare diseases System of comprehensive shared social health care for patients with rare diseases...
Internal employee event at MSD Belgium with bright colors, nail polishing and colorful snacks to raise awareness and show our...
La conferencia correrá a cargo de la doctora Berta de la Cerda Haynes y el doctor Álvaro Plaza Reyes, investigadores...
Nagels lakken via leerlingengroepen, collega’s en passanten.
l’Alliance Algérienne contre les Maladies Rares organise en partenariat avec les laboratoires Pfizer une rencontre des groupes de patients des...
fijne nagellaknamiddag in een het centrum van Hoeselt, iedereen is welkom
Iniciativa Pensemos en Cebras México, Fundación Mujer México, Angelman México. 👉Sumando esfuerzos con el Gobierno del Estado de México, la...
Join us as we celebrate RAREsies with a Rare Disease Day Flag raising ceremony. Meet our Deputy Mayor, Biba Tinga...
THIS EVENT TAKES US ON A JOURNEY OF A PATIENT WITH A RARE DISEASE – EMPHASIZING THE ASSISTANCE WHICH IS...
De ramen van het Gemeentehuis worden met gekleurd zijdepapier behangen.
Pedalear en una bicicleta de spinning durante 6 horas sin parar.
Since 2015, the Fondation René Touraine’s Rare Skin Diseases Network has been running an art contest to raise public awareness...
We are excited to invite you to our Rare Disease Day event in Calgary on February 29, 2024! Our theme...
Dans le cadre de la Journée internationale des maladies rares ce 29 février 2024, le centre de référence des pathologies...
Awareness-raising booth organized by the LUSS, from 8 a.m. to 1 p.m.
Deel je kleuren op Sociale Media.
On the occasion of the international “Rare Disease Day” 2024, our non-profit organisation Chiara will organise its film-debate at the...
🌍 Ce 29 février, c’est la journée des maladies rares à l’échelle mondiale ! 🖤 La Ville de Charleroi a...
A central focus of this year’s Rare Disease Day conference in Norway will be the follow-up on the national strategy...
Het AZ Vesalius gaat aandacht vragen via hun sociale kanalen en naar de zorgverleners toe.
Arenzano, anche quest’anno, ha aderito al RareDiseaseDay, la giornata mondiale dedicata alle malattie rare che sarà celebrata in tutto il...
TORONTO MAYOR OLIVIA CHOW OFFICIALLY PROCLAIMS FEBRUARY 29TH AS RARE DISEASE DAY THROUGHOUT THE CITY OF TORONTO!
Register to attend the 11th Annual Rare Disease Symposium on Feb. 29 – March 1! This is a hybrid event,...
En una nueva jornada de concientización, la Comuna de María Teresa conmemoró el Día de las Enfermedades Pocos Frecuentes iluminando...
Mostra fotografica “Rare Abilità” e shooting di sensibilizzazione
Liebe Betroffene, liebe Kolleginnen und Kollegen, sehr geehrte Damen und Herren, Menschen mit seltenen Erkrankungen und Erkrankte ohne Diagnose benötigen...
A one-day educational and inspirational event for medical practitioners and people living with rare diseases. The topics and lectures are...
This Rare Disease Day, join Oncology Data Advisor live on YouTube on Thursday, February 29, at 2:00 pm EST. OncData’s...
Proiezione del film “Amleto è mio fratello” di Framcesco Giuffrè, fra gli attori un socio di Associazione Italiana Sindorme X...
Im Emden wird der Rare Disease Day auch am 29. Februar begangen. In der Zeit von 10 bis 18 Uhr...
Missa em Ação de Graças a conscientização sobre o Dia das Doenças Raras, às 19 horas, Paróquia Sagrado Coração de...
https://rddjapan.info/2024/japan15thanniversary/
Join us for an evening celebrating Ellce Home’s 3rd year in our downtown Naperville showroom in which we will feature...
Sambutan Hari Penyakit Jarang Jumpa 2024 (Rare Disease Day 2024) yang bertujuan untuk meningkatkan kesedaran orang ramai terhadap penyakit jarang...
https://rddjapan.info/2024/japan15thanniversary/
ADSSL1 myopathy is a recently identified ultra-rare disease affecting the muscular system that is thought to impact only a few...
Join lululemon ambassador Kasha Mitton for a free all-levels online yoga class in honour of Rare Disease Day! Roll out...
17.00 rare disease day theme posters exhibition will takę place at foundation Office. Pieces of art comes from families,schools ,scouts...
https://rddjapan.info/2024/kagawa/
Diffusion sur notre page Facebook de la séance d’information virtuelle avec Laura Frégeau, ergothérapeute spécialisée https://www.facebook.com/constellationthtc
La XIII Jornada CIBERER “Investigar es avanzar” tendrá lugar el 29 de febrero de 15:30 a 19:30 horas en el...
Intervengono: • Mirella Florian, Conseiera de Procura alle attività sociali del Comun General de Fascia; • Monica Mazzucato (online), medico...
Cyprus Alliance for Rare Disorders and the National Commitee for Rare Diseases co-organise the illumination of various buildins. Kick-off event...
The Dutch Genetic Alliance (VSOP) organizes a national event/ conference, titled ‘Patient and Innovation’. An independent jury announces the nominees...
The RI Ehlers Danlos Syndrome Awareness and Support group will have two tables set up with free up to date...
Réunion zoom avec un docteur sur le thème ” le conseil génétique dans les maladies mitochondriales
https://rddjapan.info/2024/mie/
Arrío de la Bandera Nacional en el Día Mundial de las Enfermedades Poco Frecuentes.
On International Rare Disease Day 2024 we are asking people around the world to capture a simple clip of something...
The event puts together patients, specialists and journalists to raise awareness on rare diseases, diagnostic, access and prevention for next...
Ask the Doctor About Lymphoma is a two-hour program that combines a presentation by a medical doctor with an extensive...
Join the worldwide campaign to raise awareness, learn, and recognize the rare disease community. Hear patients discuss their diagnostic odyssey...
Presentazione dei progetti delle associazioni di pazienti che si occupano di malattie rare
VII konferencja naukowa z okazji Dnia Chorób Rzadkich współorganizowana przez Instytut Biochemii i Biofizyki PAN
The exhibition aims to provide an in-depth view of the vulnerability and strengths of patients affected by various neurodegenerative and...
The House of Rares (Casa Dos Raros) will be opening its doors to welcome the rare disease community, families, professionals,...
Ilumination
Join us on Rare Disease Day, Thursday, February 29 at 11:30 a.m. ET for the #RAREis One webinar to hear...
This webinar delves into rare liver and kidney diseases, exploring their diagnosis and treatment through the lens of genetics. It...
Forum on the status of rare diseases and the experience of patients and their families. Presentation of the draft national...
Anlässlich des 17. Internationalen Aktionstages der Seltenen Erkrankungen (Rare Disease Day 2024) möchten wir Sie recht herzlich am 29.02.2024 von...
Arzt-Patienten Seminar zu den aktuellen Zulassungsstudien für Sarkoidosemedikamente. Ärzte erklären, Patienten/Ärzte fragen Als Gäste sind anwesend Dr. Björn Frye, Freiburg;...
ACTIVIDAD DE EDUCACION Y SENSIBILIZACION SOBRE ENFERMEDADES RARAS Y ANOMALIAS CONGENITAS
L’Institut Imagine annonce son prochain #GénéTalks : le rendez-vous incontournable des passionnés de génétique L’Institut Imagine, leader mondial dans...
https://rddjapan.info/2024/gbs/
Un viaggio nella vita delle persone affette da patologia rara attraverso il racconto dei protagonisti.
Im Emden wird der Rare Disease Day auch am 29. Februar begangen. In der Zeit von 10 bis 18 Uhr...
Evento para discutir e expor a realidade das Doenças Raras no Brasil e, especialmente, no estado de Mato Grosso
Pour la 4e année consécutive, la Plateforme d’expertise maladies rares Paris Nord a le plaisir de vous proposer un webinaire...
Evento finale della campagna di sensibilizzazione in cui ripercorreremo le iniziative del mese dedicato alle malattie rare e ci proietteremo...
Se acerca el gran día ! El 29 de Febrero es el Dia Mundial de las Enfermedades Poco Frecuentes (...
https://rddjapan.info/2024/nishiharima/
Ågrenska arrangerar ett festligt Sällsynta dagen-disco för de familjer som deltar i vår familjevistelse den veckan. Dessutom kommer vårt karakteristiska...
Celebration for people with RDs on this special day. We will celebrate by attending to a theatre play on the...
Facilitar el acceso a los recursos especializados; aplicar la cobertura de los tratamientos (más allá de los medicamentos); es una...
“Mostrar tus colores” es la iniciativa de Rare Disease Day, en la cual nos sumamos una vez más. Este movimiento...
Symposium des Zentrum für Seltene Erkrankungen am Universitätsklinikum Düsseldorf (ZSED) anlässlich des Rare Disease Day 2024
A colouring competition will be held from 1 Jan to 20 Feb 2024 for all ages. This is follow by...
Let’s talk about Rare Diseases – Live debate georganiseerd door Artsenkrant – Live debate organised by Le Journal du Médecin....
In de Kapenbergstraat wonen minstens 3 mensen met een zeldzame ziekte in hun gezin. De buren tonen hun steun voor...
Illumination of Science World in honour of Rare Disease Day in Canada.
Illumination of the Newcastle Clock Tower in honour of Rare Disease Day in Australia.
Please join us for a Global Group Sound Therapy Session in Honor of Rare Disease Day. Sound Therapy with Heart...
Fundación de Familias con Amiloidosis en México te invita a participar en el taller virtual para pacientes: El cuidado multidisciplinario...
Illuminazione delle mura del Castello dei Conti di Acerra con i colori della Giornata delle malattie rare 2024
This two-day workshop will expose participants to the most recent developments, knowledge and expertise in managing patients with Inborn Error...
Nous organisons une exposition de créations produites par des patients ayant une maladie rare. Ce rendez-vous aura lieu le 28...
🌟 Live Q&A Event for Rare Disease Day 🌟 Support our community and Rare Disease Day for an enlightening Live...
Il Comune di Segrate, in provincia di Milano, si unisce alla Global Chain of Lights, illuminando il Centro Verdi, così...
La Secretaría de Obras y Servicios Urbanos se une al Día Mundial de las Enfermedades Raras iluminando de color azul,...
La Ciudad de México ilumina sus monumentos en apoyo a las personas que viven con una enfermedad rara.
The Nano Rare Diseases Day is an event organized within the framework of World Rare Diseases Day where the latest...
28 lutego 2024 roku, z okazji Międzynarodowego Dnia Chorób Rzadkich, Fundacja ICHB PAN we współpracy z Instytutem Chemii Bioorganicznej PAN...
Charla introductoria sobre las enfermedades raras
RANDONNEE PEDESTRE ORGANISEE PAR LE GROUPE DE PRESSE AFRIKSANTE ET L’ASSOCIATION HUMANITAIRE DE LUTTE CONTRE LES MALADIES EN PARTENARIAT AVEC...
EVENTO RIVOLTO AI DOCENTI ED AL PERSONALE SANITARIO dell’area Veneto Orientale per sensibilizzare sul tema delle Malattie Rare e dell’importanza...
Dr. Bruno Guedes Baldi, pulmonologist from the Brazilian LAM Clinic, talks to Maria Clara Castellões, vice-president of Alambra, the Brazilian...
Il Comune di Aquileia, in provincia di Udine, si unisce alla Global Chain of Lights, illuminandosi con i colori della...
Ayuh sertai kami untuk meningkatkan pengetahuan dan tunjukkan sokongan anda kepada penyakit jarang jumpa!
A webinar to explore and discuss the diagnostic challenges and opportunities for rare diseases in low-middle-income countries, fostering global collaboration....
Le CHU de Clermont-Ferrand accueillera une vingtaine d’associations de patients atteints de maladies rares dans le hall de l’hôpital Estaing.
فعاليات توعوية واركان تفاعليه للاطفال والكبار لزيادة التوعيه بالأمراض النادرة
The Conference of Rare Diseases Day became a traditional one in Moldova. This year the Conference of Rare Disease Day...
Rare Disease Day is an international day celebrated in over 100 countries to raise awareness amongst the general public, the...
This amazing virtual music festival was organized by DJs who have come together to spread awareness for the Rare Disease...
Cyprus Alliance for Rare Disorders and the Cyprus University of Technology co-organise a workshop addressed to patients, nurses, nursing students...
Q&A session about cardiological and psychosocial topics for ARVC patients with ARVC expert Prof. Daniela Husser-Bollmann and psychocardiologist Dr. Hilka...
Join us for a thought-provoking panel discussion featuring researchers from Simons Searchlight and the Simons Foundation Autism Research Initiative (SFARI)....
Join us for the Oxford-Harrington Rare Disease Centre’s 2024 Rare Disease Day webinar. February 28 2024, 10:00AM – 11:00AM EST...
Illumination of the Adelaide Oval in honour of Rare Disease Day in Australia.
Illumination event: Buildings on campus of the University Hospital Essen are illuminated with different colors to symbolize the diversity of...
The 10th International Rare Diseases Day Conference : Learning the Rare in Medicine
A public awareness campaign including a talk on Expanded New Born Screening with complimentary 100 NBS from Yayasan Luth
Foro Legislativo en conmemoración del Día Mundial de las Enfermedades Raras 2024 “No dejar a Nadie Atrás” y Evento de...
En este evento podrás disfrutar de muchas actividades para toda la familia, como talleres, manualidades 🎨, pintacaras 🎭, música 🎶,...
We are happy to announce the opening of the Pulmonary Hypertension Center for Pediatric patients in Lviv city on Rare...
The 10th International Rare Diseases Day Conference : Learning the Rare in Medicine
Informatieve avondsessie voor huisartsen en alumni geneeskunde. Lezingen: Dr. Nika Schuermans: \’Genetica en zeldzame ziekten: een update\’ Prof. Dr. Bruce...
Diverses entitats representants d’aquestes malalties, juntament amb l’Ajuntament de sant Feliu de Llobregat volem participar dels actes i activitats organitzats...
Share Your Colors and Show Your Stripes on Rare Disease Day! A collaborative group of divisions within Cincinnati Children’s Hospital...
PREMESSA L’evento ha la finalità di celebrare la giornata delle malattie rare. Il convegno intende delinearsi come occasione per affrontare,...
In honor of Rare Disease Day 2024, Jerry Vockley MD, PhD, will discuss a new era in therapies for rare...
Charla de la Dra. Mattos sobre las enfermedades raras. Escúchanos a través de nuestra radio online https://colegiomedicodepichincha.org/radio/
7-8pm We will be bringing awareness to Fragile X syndrome and having a guest speaker, Genetic Counselor Alexandra Mohner present...
16 years ago we were starting a journey with an unforeseen destination, entering with small steps into a world full...
The NGO ‘Rare Diseases of Ukraine” organises the illumination to highlight the Rare Disease Day 2024 in Ukraine and to...
https://rddjapan.info/2024/fukui/
FIACCOLATA COLORATA E RUMOROSA ANIMATA DAI BAMBINI E DAI RAGAZZI DELL’ORATORIO PARROCCHIALE MOMENTO DI SENSIBILIZZAZIONE E TESTIMONIANZE VOLO DI PALLONCINI
An event organized by medical students, led by Miss Lama Almaqbali under the supervision of Dr Hussain Alsaffar, pediatric endocrinologist....
Illumination of the Tasman Bridge in honour of Rare Disease Day in Australia.
Community Awareness about Hereditary Cancers through Online Awareness Messages.
We organized this event to improve overall knowledge about the rare diseases highlighting spinal muscular atrophy (SMA) in Egypt. Our...
One-day hybrid (in person + online) conference in the form of panel discussion “DOUBLE WAR: Ukraine`s European vector in providing...
https://rddjapan.info/2024/kagoshima/
Samen met Revalidatieziekenhuis Inkendaal organiseert het UZ Brussel verschillende activiteiten op Rare Disease Day 2024. De ziekenhuisschool van Inkendaal en...
# Light Up For Rare #Rare unites us 26 February 2024 Kazakhstan Almaty Alfarabi Kazakh National University Higher School Of...
https://rddjapan.info/2024/yamaguchi/
From February 26 to March 3, 2024, the MATIO Foundation is organizing for the twenty-third time a social campaign called...
A week of digital lunch lectures to raise awareness in honour of Rare Disease Day in Sweden.
Illumination de la mairie en violet
The 3rd Rare Diseases Run, will take place from 26th February – 3rd March 2024. It is a virtual and...
Illumination of Ipsen-BeLux Office in honour of Rare Disease Day in Belgium.
Illumination of Gemeentehuis van Hoeselt in honour of Rare Disease Day in Belgium.
This campaign is aimed at the public and is a joint action by the pharmaceutical and health companies Alexion, Chiesi,...
deuren openen om 17u, voor de film Red Sandra, een wargebeurd vehaal over de strijd van een vader voor zijn...
Цветные ладошки 🖐🏾💜✨ 💥мастер-класс 💥 Уже много лет цветные ладошки являются символом Дня редких заболеваний 🧬🌏 Люди раскрашивают краской ладони,...
We houden een leuke nagellaknamiddag in T\’Siebelke te Romershoven… hier kan je je nagels gratis in veel kleurtjes laten lakken
The Alamo Quarry is participating in the Light Up For Rare Campaign and will have the famous smoke stacks illuminated...
https://rddjapan.info/2024/shizuoka/
Danzavida De San Antonio Dance Company is proudly participating in the Light Up For Rare Campaign. The lighting in the...
I bambini del catechismo cantano a sostegno delle malattie rare. Illuminazione monumento
El objetivo del Foro es identificar en que medida los actores que participan en el acceso a tecnologías sanitarias, pueden...
Our Association is formed by students and graduates from PhD. in Human Genetics by the Universidad de Guadalajara, a lot...
https://rddjapan.info/2024/jichiidai/
A Rare Disease Lantern Walk will take place on Monday, 26th February, in Zaventem organized by the Rare Disease Diagnosis...
Anualmente el mundo dedica el último día del mes de febrero para pensar en estas patologías. Colombia se une a...
A gathering of individuals and families from the rare disease community in the northern region of Malaysia ie Perak, Pulau...
https://rddjapan.info/2024/kochi/
https://rddjapan.info/2024/kyoto/
https://rddjapan.info/2024/shiga/
The ACSN is dedicated to the training of lifeguard dogs and their handlers. Also there will be a demonstration of...
https://rddjapan.info/2024/toyama/
https://rddjapan.info/2024/ryoikuworld/
Genetics Matters, one of the FMS flagship public engagement events, is an annual event organised as part of the International...
Campagne met poster en verhalen van patiënten. Deze hangen verspreid over het ziekenhuis. De verhalen zijn te lezen op: https://www.azwest.be/nieuws/wij-steunen-zeldzameziektendag
https://rddjapan.info/2024/tsuruokayamagata/
https://rddjapan.info/2024/osaka/
https://rddjapan.info/2024/nara/
Zusammen mit der Sarkoidose Austauschgruppe möchten wir auf den Tag der seltenen Krankheiten aufmerksam machen. Durch Beiträgen in den sozialen...
UZ Antwerpen kleurt digitaal het ziekenhuis met de campagnekleuren met een screensaver en aankondiging op intranet die het thema zeldzame...
ORE 15:00 CELEBRAZIONE SANTA MESSA DON RENATO TRAPANI TESTIMONIANZE: DON ALFONSO LAPATI BRUNO CAMMAROTA MARIA PERROTTA AVV.AURELIA DE NUZZO AVV....
https://rddjapan.info/2024/mitaka/
We joined the Global Chain of Lights and organised the illumination of the National Center for Public Health and Pharmacy.
We joined the Global Chain of Lights and organised the illumination of Megyeri Bridge.
Satellite program of Rare Disease Day organised by HUFERDIS with the University of Pécs.
We joined the Global Chain of Lights and organised the illumination of Fire Tower in Sopron.
El Colectivo Los Pacientes Importan –integrado por 32 organizaciones de pacientes con enfermedades raras, huérfanas, crónicas, autoinmunes y cáncer –...
Why jazz? Jazz has a positive effect on the body and soul, including those affected by rare diseases. Moreover, jazz...
https://rddjapan.info/2024/iwate/
ORE 17.15 NEI PRESSI DELLA MADONNINA FIACCOLATA, SANTA MESSA, VOLO DEI PALLONCINI E SUCCESSIVA ILLUMINAZIONE CHIESA
Únete a nosotros en una jornada extraordinaria donde la investigación y los tratamientos para las Enfermedades Hereditarias de la Retina...
Realizar una caminata para llevar el mensaje a más personas
https://rddjapan.info/2024/kobekaisei/
https://www.facebook.com/rddjapan
Bloco do Xulé Xêroso é um evento de conscientização sobre as doenças raras que se aproveita de outra data bem...
https://rddjapan.info/2024/tsunagari/
https://rddjapan.info/2024/telomerejapan/
Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...
We joined the Global Chain of Lights and organized the illumination of Fisherman’s Bastion.
We joined the Global Chain of Lights and organized the illumination of Duna Aréna.
Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...
https://rddjapan.info/2024/hiroshima/
We are co-sponsoring a Rare Disease Day Event with other community partners who support individuals with rare diseases. For example,...
HUFERDIS took care about art as well with the Rare Beauties Collection exhibition, which is part of the program since...
At the LOUDRARE ONLINE FESTIVAL 2024, those affected will come together to talk about their stories – about their individual...
Cold Water Dip in aid of Rare Ireland. Rare Ireland (RI) is a parent run charity, supporting families living with...
Bei den virtuellen Patiententagen am 24. & 25. Februar 2024 (jeweils ab 10 Uhr) werden von Expert:innen aus Österreich und...
Illumination of Emigration Museum in honour of Rare Disease Day in Poland fot. Anna Żbikowska
The National Association of People with Rare and Congenital Disorders (RIROSZ) has now organized World Rare Diseases Day for the...
HUFERDIS took care about art as well with the Rare Beauties Collection exhibition, which is part of the program since...
Calvin University, Corewell Health/Helen DeVos Children’s Hospital, MSU College of Human Medicine and Van Andel Institute will host its 5th...
At Maria Assumpta High School, a navy blue uniform is the order of the day. But this Friday, February 23rd,...
23 febbraio 2024, 17:00 CET Conosciamoci! Raccontiamoci! Un incontro per pazienti CIDP e GBS in collegamento Zoom con il Prof....
💜💙💚🩷🩵 “Playground of dreams – life of dreams for every child” is an event organized by ZLRBP “My Rare World”...
Momento d’incontro con le famiglie rare e il mndo delle istituzioni
https://rddjapan.info/2024/nmosd/
https://rddjapan.info/2024/shimane/
Charla Virtual ” PREPARANDO LA PIEL PARA EL MAÑANA ” en pacientes con Malformación Anorrectal y Hirschsprung. Desde @amar.asociacion_padres, queremos...
Vensters versieren en de kinderen vertellen aan andere kinderen over zeldzame ziekten.
Rare Disease Fact sharing through digital channels, call out to share our colours activities among colleagues, and organisation of a...
Seminar for health professionals, university and high school students, patients with rare diseases, caregivers and the public. Free admission. Limited...
La red Latinoamericana de Genética Humana – RELAGH tiene el agrado de invitar al Tercer Ciclo de Conversatorios 2024, con...
Café y tertulia científica con el Dr. Luis Figuera, quien es experto en enfermedades raras (ER). Platicaremos en un ambiente...
Celebrate Rare Disease Day 2024 in an unforgettable way with a live discussion hosted by Medidata visionaries and a special...
Emotional Support for Coping with Uncertainty on your MMN Journey. Coping with Uncertainty Hosted by Foundation Health Navigator, Amy Stein...
evento a lapoblacion abierta con feria de la salud y evento musical participacion de autoridades de salud municipales y declaratoria...
https://rddjapan.info/2024/hokkaido/
Instagram Live de difusión de información sobre enfermedades raras.
Illumination of the Palmerston Memorial Park in honour of Rare Disease Day in Australia.
We are hosting a Quiz Night at our local community centre to spread awareness for Rare Disease Day this year.
Illumination of the Palmerston Recreation Centre in honour of Rare Disease Day in Australia.
SESIÓN GENERAL DE CASO CLÍNICO. En conmemoración a canalopatías
Illumination of the Palmerston Library in honour of Rare Disease Day in Australia.
Delve into the complexities of apraxia of speech with a distinguished panel featuring Dr. Angela Morgan, Dr. Ruth Stoeckel, and...
Program Alert: Rare Disease Month StoryTime on February 20, 6:00 p.m. in the Taylor Prairie School Library. February is Disease...
Join us for an upcoming webinar on the genetics of NF2-SWN. We are honored to have Kara Anstett, a Clinical...
We are delighted to welcome you to the 2nd European Congress of Neurology and Neuropsychiatry which will take place on...
evento dirigido a medicos en formación de la escuela de medicina de la Universidad Autonoma de Guadalajara
Rare diseases awareness in schools: “10days for rare (10DAYS4RARE)” Sharing lessons on rare diseases in schools: “Living with a rare...
https://rddjapan.info/2024/tsuruokacollege/
On 29th February 2024, also in Rwanda as it’s done internationally, we celebrate “Rare Diseases Day” for the 5th time...
18 February, 2024, it will be a car free day in Kigali-Rwanda, so we will take that opportunity to make...
https://rddjapan.info/2024/scd-msa/
Jornada nacional e internacional de enfermedades huérfanas/raras, para esta ocasión con el protagonismo de quienes tienen una relación directa con...
Photo contest exhibition at the Tokyo Tower in honour of Rare Disease day in Japan.
In this month of rare diseases, our Association is promoting a sequence of thematic lives on the pathologies that are...
🇮🇹 #BIKE4RAREDISEASEDAY 2024: Ferrara-San Luca 😎 Torna la social ride dedicata alla Giornata delle Malattie Rare, che si celebra ogni...
https://rddjapan.info/2024/saitamaseibu/
https://rddjapan.info/2024/
https://rddjapan.info/2024/saga/
📣Calling all pediatric #patients, join our Empowerment Day on Saturday, February 17, 2023 at 12pm ET! This 2 hour virtual...
Es un evento dirigido a pacientes y familiares de personas con enfermedades raras; que busca motivar a la población a...
Encontro do GAHP – Grupo de Apoio as Famílias com Hipertensão Pulmonar realizado pela ABRAF – Associação Brasileira de HP...
Le 16 février a eu lieu la Journée des Maladies Rares organisée par l’institut MarMaRa, l’Alliance Maladies Rares ainsi que...
On this day we celebrate the lives of all of those affected by the ultra-rare WWOX-related diseases and honor those...
The Saudi Rare Disease Summit is a unique platform that explore the area of rare diseases and fosters collaboration among...
HÃY ĐI CÙNG NHAU – và cùng chúng tớ. ️💝 Ai đó đã từng nói: “…Sẽ có một lúc nào...
Open to everyone who wants to take action to create public awareness on Rare Diseases! (RD individual, a caregiver, siblings,...
Get ready for a deep dive into understanding the roles of genetic counselors, genetic testing, and the array of resources...
We are thrilled to announce the eagerly awaited second edition of the Europe Rare Disease Summit, set to take place...
https://rddjapan.info/2024/saitamamedical/
Internal share our colours activity among colleagues (painting and nail polishing) and information sharing on rare diseases.
https://rddjapan.info/2024/jobfit/
This February, Lupin Neurosciences, a division of Lupin Atlantis Holdings SA, embarks on a mission to raise awareness for Non-Dystrophic...
We are thrilled to invite you and your family to our special Valentine’s event, « All You Need is Love », hosted...
La Marcia dei Malati Rari è uno degli appuntamenti più attesi dalla comunità delle persone con malattia rara, oltre 2...
https://rddjapan.info/2024/sakatanishi/
Picture Exhibition in honour of Rare Disease Day in Sweden.
Interdisciplinary conference on rare diseases, Friday, 9 February 2024, 9.30 – 12.30 in Lucca, San Micheletto Complex: RARE DISEASES –...
Interdisciplinary conference on rare diseases, Friday, 9 February 2024, 9.30 – 12.30 in Lucca, San Micheletto Complex: RARE DISEASES –...
Interdisciplinary conference on rare diseases, Friday, 9 February 2024, 9.30 – 12.30 in Lucca, San Micheletto Complex: RARE DISEASES –...
This year campaign is continuing our activities initiated in 2013 and will make more visible the AGU and AJC contribution...
Join us for an insightful discussion with Dr. Cora Taylor as she shares valuable insights into behavioral interventions tailored for...
This year campaign is continuing our activities initiated in 2013 and will make more visible the AGU and AJC contribution...
Patient representatives talk at Växjö Health Library in honour of Rare Disease Day in Sweden.
Patient representatives visit Södra Älvsborg Hospital in honour of Rare Disease Day in Sweden.
Patient representatives visit Skaraborg Hospital in honour of Rare Disease Day in Sweden.
Patient representatives visit Sahlgrenska Hospital in honour of Rare Disease Day in Sweden.
Patient representatives visit Queen Silvia’s Children’s Hospital in honour of Rare Disease Day in Sweden.
Patient representatives visit Östra Hospital in honour of Rare Disease Day in Sweden.
Patient representatives visit Norra Älvsborg County Hospital in honour of Rare Disease Day in Sweden.
Patient representatives visit Mölndal Hospital in honour of Rare Disease Day in Sweden.
https://rddjapan.info/2024/kumamoto/
A hybrid educational symposium aimed at integrating medical genetics into everyday medical practice in Pakistan. The target audience includes practicing...
https://rddjapan.info/2024/miyazaki/
https://rddjapan.info/2024/kids/
Sharing by ten caregivers from the rare disease community of Sarawak, Pulau Pinang, Pahang, Johor and Kuala Lumpur on caring...
Giovedì 1 febbraio dall’Auditorium del Ministero della Salute UNIAMO – Federazione Italiana Malattie Rare lancerà la campagna #UNIAMOleforze: più di...
Lighting up of Old Mutual Tower
Each Thursday in February, we offer you a series of medical presentations on rare neoplasias or rare aspects
NoRo team and patients will meet children and teachers in schools and kindergardens and speak about the needs of patients...
Radio interview with Capital FM #DriveOut
https://rddjapan.info/2024/kitakyushu/
MENA Organization for Rare Diseases Annual Meeting & Exhibition 2024 MENA Organization for Rare Diseases announces the third annual meeting,...
PLWRD and their organizations will organize awareness events in schools, art exhibitions, will illuminate buildings, houses etc.
https://rddjapan.info/2024/rarecancer/
Every Thursday in February, a series of medical presentations on rare tumours will take place at the Liège University Hospital....
This is the 7th Rare Disease Day to be observed in Ghana since 2018. Various activities have been planned which...
RaDiOrg, the Belgian alliance for rare diseases, is putting together an awareness campaign in French and Dutch. We invited all...
Iniciativa Pensemos en Cebras México, Mujer México y el Hospital General de México “Dr. Eduardo Liceaga” Invitan al: Foro Enfermedades...
Take a picture of yourself, familiy, friends.. support our digitale campagne. Share it on your social media and tag Boks...
https://rddjapan.info/2024/ishigakijima/
En el marco de la “I Campaña Informativa sobre Enfermedades Raras en Honduras”, la Fundación Hondureña para la Salud Hepática (FUNHEPA), Fundacion...
Indonesia Rare Disorders collaborates with Lensa Anak Terminal (Bus Station Children’s Lens Community) to hold photo storytelling workshops for people...
https://rddjapan.info/2024/fukuoka/
Indonesia CARE for RARE Diseases proudly present SpectacuRARE Fest 2024, an annual event since 2021. We make a virtual and...
Carry Hope is the annual rare disease awareness and fundraising campaign of the Rare Disorders Society (Singapore), or RDSS, in...
https://rddjapan.info/2024/gifu/
https://rddjapan.info/2024/chiba/
Hematologists, rheumatologists and immunology-allergology specialists will share their practical and theoretical knowledge about rare diseases.
– Rehabilitation + Eurhythmics – Lego Play Games
Rare Disease Day Conference and Cocktail Reception Delivering on Canada’s Rare Disease Investment Virtual option is available For more information:...
The 2nd RDD High School Summit
Online Lecture + Panel Discussion
Diese beiden Anlässe verwandeln den EUROPARK Salzburg, am Samstag, 18. März 2023 in einen ganz besonderen Veranstaltungsort. Denn unter dem...
It will be our second chat, so we will be get to know each other, I hope a specialist will...
Pour la 3ème année consécutive, la Plateforme d’expertise maladies rares Paris Nord a le plaisir de vous proposer un webinaire...
There is clear evidence that the rare diseases are one of the biggest challenges in medical practice, with several gaps...
A l’occasion de la Journée Internationale des Maladies Rares, le groupe hospitalier AP-HP.Sorbonne Université (Hôpitaux Pitié-Salpêtrière, Saint-Antoine, Tenon, Trousseau, Rothschild,...
Conmemoración Día Mundial de Enfermedades Raras 2023 Aliados proyecto Colaborativo Ruta de Enfermedades Huérfanas Parque espíritu del Manglar. Playón Del...
– lecture – RDD Exhibition – Kids Doodle Party – Star gazing party – Planetarium
Expertos: pacientes, profesionales y cuidadores Mesa de enfermedades raras para Antioquia y red técnica por las enfermedades huérfanas de Antioquia,...
Pour la JIMR, PLEMaRa, avec le soutien des Filières Maladies Rares FIMATHO, FAI²R, MHEMO, du CHU de Lille et de...
Panel exhibition and others
Un evento teatrale dedicato ai bambini con malattia rara, in particolare a quelli seguiti dal Centro Malattie Rare Pediatriche dell’Ospedale...
Aims for the day: – To examine Newcastle’s strengths and potential to address the challenges posed by Rare Disease –...
– Help Card/Help Mark Video Screening – Materials and Panel Exhibit
Se lleva a cabo el 2do Foro de Enfermedades Raras en México “Mayor Visibilidad, Mayor Oportunidad de Vida” Organizado por...
Rare Disease Day on 28 February — and the events surrounding it — offer many exciting opportunities to raise awareness...
Reconocimiento a nuestros campeones, Mesa de enfermedades raras para antioquia y red tecnica por las enfermedades huérfanas de Antioquia.
Join us for a celebration of Rare Disease Day with an opportunity for Rare Disease Warriors to Skate Under the...
Encontro de pacientes, associações, gestores, profissionais da Saúde para debaterem temas importante dentro das demandas das doenças raras no Brasil...
Promoción Campaña #UnidosPorLasRaras en partido de fútbol Millonarios vs. Cali presencial
Lecture Meeting
You’re invited to our Rare Disease Day celebration on March 5, 2023 from 2-3pm PST. This year, we are highlighting...
Promoción Campaña #UnidosPorLasRaras en paratido de futbol América vs. Junior en el Estadio Pacual Guerrero, Cali
Aliados Proyecto Colaborativo Ruta de Enfermedades Huérfanas
We’re so excited to be celebrating Rare Disease Day 2023! Please join us for an early evening Denim Walk in...
El Grupo de Trabajo Derechos, Discapacidad y Enfermedades Raras de la Sociedad Interamericana de Psicología organiza, en el marco de...
Meeting with associations, scientists, clinicians and patients belonging to the Incontinentia Pigmenti world
El Ministerio de Salud de Santiago del Estero, la Alianza Argentina de Pacientes (ALAPA), la Asociación Mucopolisacaridosis Argentina (AMA) y...
Mesa Enfermedades Raras Para Antoquia
14h00| SESSÃO DE ABERTURA Sérgio Faria residente da Direção da AAADMJ Dr. Clélio Meneses Secretario Regional da Saúde e Desporte...
Join us for KGI’s 16th Annual Rare Disease Day Virtual Event, our theme is Mental Health & Rare Disease! This...
To kick off Endometriosis Awareness Month, join us on March 4th from 2pm-6pm for our FriENDO Social! The event will...
– Online Lectures on Employment – Roundtable Discussions
Provide advocacy, community, and support for those affected by a rare disease across Southern Arizona. FREE admission to the museum...
My name is Leah Haynes and I am the co-founder of a Canadian-based registered charity called Endometriosis Events. Endometriosis Events...
Unter der Schirmherrschaft von Herrn Sozialdezernent Dr. Eckert Lensch, der Landeshauptstadt Mainz wird in diesem Jahr zum 11. Mal der...
“Patient Information Day for People living with Limb Girdle Muscular Dystrophy” is an Event organised by the John Walton Muscular...
Meeting Point: Sloterpark around 4.45/ 5 pm where the IAMSTERDAM letters are. We take a picture together, and from there...
le associazioni A.I.D. – Kartagener Onlus ed A.Ma.R.A.M. Aps, celebreranno la Giornata Mondiale delle Malattie Rare 2023 organizzando l’incontro dal...
MENA Organization for Rare Diseases Annual Meeting 2023, we are delighted to invite you to in our meeting that will...
In honor of those who have lost their battle with rare diseases like cystinosis and in honor of Rare Disease...
In this webinar, our panel of experts will examine how to navigate pricing and reimbursement challenges for rare disease technologies....
The Rare Diseases Day Event, which will be held on Thursday, March 2nd, 2023, will take place online between 16.00-17.30.
We participated in the Rare Disease Day event with Treatment Plans Center and ,we shared some rhizokids children’s stories translated...
Diversity in the Rare Disease Community: Challenges for Newborn Screening and Early-life Genetic Testing Equity Thursday, March 2, 2023 9-10...
فعالية تضم استشارات مجانيه لعدة تخصصات ورشة نفسية للأمهات فعاليات ترفيهيه ومفاجأآت للاطفال
Dans le cadre des journées de sensibilisation, et à l’occasion de la Journée Internationale des Maladies Rares 2023, l’Association Espoir...
Mesa de Enfermedades raras para Antioquia y Red de Técnica por las Enfermedades Huérfanas de Antioquia
WEBINAR | Mesa debate La investigación en EPOF: Un camino común para 8.000 patologías Moderadora • Dra. Jorgelina Stegmann |...
The aim of the conference is to introduce doctors, nurses, and geneticists to the latest developments in the diagnosis and...
Mercredi 1er mars, la filière SENSGENE et ses partenaires tiendront un stand de sensibilisation aux maladies rares dans le centre...
The final conference will bring together all the partners that organized events and awareness campaigns during February and will present...
The conference “Rare Diseases: tomorrow is now!” is dedicated to rare disease day. It is intended to share the latest...
Join Akron Children’s Hospital’s Genetic Center for its inaugural Rare Disease Day event to raise awareness and support for patients...
Online webinar for family doctors & pediatricians regarding rare diseases in general including the condition in Ukraine in particular
Illumination of the Guppy Park in honor of Rare Disease Day in Australia.
In celebration of the upcoming rare disease day, the Glycoimmunology Lab from UCIBIO NOVA is organizing an open event entitled...
With great pleasure I am organizing, for second year, a webradio show dedicated to Rare Disease Day on www.moysikotherapeiawebradio.com Many...
Morning Tea to meet the researchers working on Rare Diseases at UTS
Illumination of the George Roberts Bridge in honor of Rare Disease Day in Australia.
The 2nd Rare Diseases Run, organized by SYNGAP Elternhilfe e.V and Laufen macht glücklich GbR, will take place from 28th...
Rare Disease Day 2023 #Jeans4Genes – wear your favorite jeans and support our #RareBearFund by buying delicious cupcakes. There’s a...
Lupus Alert is marking Rare Disease Day (Tuesday, February 28) with an appeal for people to donate their blood. Patients...
Meeting with healthcare professionals, patients and parents organizations. The main objective is to raise awareness about rare diseases and support...
The opening of the photographs exhibition. Stories of EB patients and Debra, patient organization, will be presented on ten panels....
We brewed a beer using modern brewing products and techniques. This is to signify modern technology moving forward to find...
Dr. Manda Hosen, medical science liaison with the Department of Pediatrics Division of Medical Genetics and School of Medicine Genetics...
Illumination of Hospital Marqués de Valdecilla in honour of Rare Disease Day in Spain
This year the awareness will focus on the value of helping those rare suffering kids and their families to reach...
Illumination of the Ipswich City Council Building in honor of Rare Disease Day in Australia.
لقاء حواري الأمراض الوراثيه طرق التشخيص والوقايه مع د. عزيزه مفرح مشيبه
At Same but Different, we strive to continually create innovative and unique campaigns that capture people’s attention and encourage dialogue....
Ever wondered about the role of genetics in your child’s rheumatic disease? Have questions you’ve been wanting to ask an...
Mesa de enfermedades raras paa Antioquia y red técnica por las enfermedades huérfanas de Antioquia
Illumination of the Igreja de Santiago, Óbidos in honor of Rare Disease Day in Portugal.
Illumination of Hospital Universitario Cruces in honour of Rare Disease Day in Spain
From 11 am to 1 pm, our Genetic Counseling SIG club will be joined with other prehealth clubs and the...
“Rare, but not alone: Together, we can find a cure” – Rare Disease Day Event at iXCells Light up, stripe...
La XII Jornada CIBERER “Investigar es avanzar” tendrá lugar el 28 de febrero de 16 a 19 horas en el...
Illumination of Cabildo de Tenerife in honour of Rare Disease Day in Spain
Une série de webinaires pour sensibiliser aux maladies rares / A series of webinars to raise awareness of rare diseases
Rare Voices Forum Topic: Overcoming stumbling blocks together – Ways and opportunities for more resilience in rare diseases On Feb....
Join us for a rare disease day event. This will be a webinar format. This is a community focused event,...
28 februarie este ziua constientizării bolilor rare, iar Asociația Rebeca Faith-Hope-Love marchează acestă zi printr-un eveniment, ca în fiecare an!...
We are hoping to use this event to host a variety of presentations from all stakeholders in the rare disease...
Illumination of Cauce del Río in honour of Rare Disease Day in Spain
We were glad to have been invited to participate in the Rare Disease choir to record the song #ThisIsMe at...
das Zentrum für Seltene Erkrankungen (ZSE) Hannover möchte Sie anlässlich des “Rare Disease Day 2023″ am Dienstag, den 28.02.2023 zu...
Illumination of the Catenary Lights, Geelong Intersection Moorabool in honor of Rare Disease Day in Australia.
National Skills University Islamabad organized an event related to “Rare Disease Day 2023” in order to highlight the rare diseases...
Since 2011, the National Center for Advancing Translational Sciences and the NIH Clinical Center have sponsored Rare Disease Day at...
Illumination of the Edifício dos Paços do Concelho, Guarda in honor of Rare Disease Day in Portugal.
Illumination of El foso de San Felipe in honour of Rare Disease Day in Spain
Illumination of El castell de Benidorm in honour of Rare Disease Day in Spain
Illumination of the Niagara Falls in #RareDiseaseDay colours #LightUpForRare
Illumination of the Council House in honor of Rare Disease Day in Australia.
Kom til webinar om den diagnostiske rejse På selve Sjældne-dagen holder vi et åbent webinar – det er d. 28....
Illumination of Edificio Moneo in honour of Rare Disease Day in Spain
Illumination of Cristo del Otero in honour of Rare Disease Day in Spain
In the United States, a disease is considered “rare” if it affects fewer than 200,000 individuals. More than 7,000 rare...
Illumination of the Crown Casino in honor of Rare Disease Day in Australia.
Convegno ibrido (realizzazione in presenza con diretta streaming associata sul canale @universityoftrento), pubblico e gratuito. Abstract: Partendo dalla trasformazione del...
Illumination of the Calgary Tower in #RareDiseaseDay colours #LightUpForRare
Illumination of the Edifício dos Paços do Concelho, Évora in honor of Rare Disease Day in Portugal.
Illumination of the difício dos Paços do Concelho, Coimbra in honor of Rare Disease Day in Portugal.
Illumination of the Edifício dos Paços do Concelho, Coimbra in honor of Rare Disease Day in Portugal.
The platform of rare diseaeses expertise, Auvergne-Rhône-Alpes région is waiting for you in ViIlleurbanne- Gratte Ciel to learn more about...
Illumination of Diputación de Ciudad Real in honour of Rare Disease Day in Spain
Illumination of the Edifício dos Paços do Concelho, Angra do Heroísmo, Açores in honor of Rare Disease Day in Portugal.
Illumination of the Victoria, BC Parliament Building’s (Ceremonial Entrance, front Centre Fountain, and the back Library Fountain at the Parliament...
Illumination of Edificio Capitania del Puerto de Badalona in honour of Rare Disease Day in Spain
Illumination of Diputación Foral de Álava in honour of Rare Disease Day in Spain
28.02 on Rare Disease Day CF Sister Dalila and PHURDA joined a global initiative to raise awareness of rare diseases...
Illumination of the CN Tower in #RareDiseaseDay colours #LightUpForRare
Illumination of Estadio San Mamés in honour of Rare Disease Day in Spain
LIGHT UP FOR RARE
We are excited to announce a charitable exposition and event to raise awareness and support for individuals and families affected...
Join us to raise awareness about rare diseases and its impact on patients and families. This event is free and...
Illumination of the Eastern Goldfields Community Centre in honor of Rare Disease Day in Australia.
Illumination of Fuente de Santo Domingo in honour of Rare Disease Day in Spain
Illumination of the Central Park Boardwalk in honor of Rare Disease Day in Australia.
We organize an advocacy event tot informs and raise awareness about rare diseases and thus improve the visibility of people...
Pink, Blau, Grün und Lila sind die Farben des Rare Disease Day. Wir beteiligen uns am 28.02.2023 an der Aktion...
Illumination of Fuente de Murrieta de Logroño in honour of Rare Disease Day in Spain
Illumination of Fuente de Cibeles in honour of Rare Disease Day in Spain
People living with rare diseases facing with lots of challenges and one of them is not understand what they will...
Illumination of the City Beach Function Centre in honor of Rare Disease Day in Australia.
Illumination of the Fremantle Prison Gatehouse in honor of Rare Disease Day in Australia.
Illumination of the Evan Walker Bridge in honor of Rare Disease Day in Australia.
Listen live to the legend who started the #RARE Revolution with the US Orphan Drug Act of 1983 – Now...
The Canadian Organization for Rare Disorders is hosting Breakfast Reception at Queen’s Park in celebration of International Rare Disease Day....
Illumination of the City Hall Annex in honor of Rare Disease Day in Australia.
Join us on the iconic rooftop of Cure for Rare Disease Day when we launch CureX’s inaugural event series, where...
Illumination of the City of Gosnells Civic Centre in honor of Rare Disease Day in Australia.
We have produced a 5-part web series about couples and rare diseases. Episode 3 (in 2 parts already published) and...
Illumination of the Flinders Street Station in honor of Rare Disease Day in Australia.
Illumination of the Federation Square in honor of Rare Disease Day in Australia.
Join us for a special Cure experience to discuss the current state of affairs for the 30 million Americans afflicted...
Illumination of the 3D Toronto Sign at Nathan Phillips Square in #RareDiseaseDay colours #LightUpForRare
Illumination of El Tossal de Benidorm in honour of Rare Disease Day in Spain
Illumination of the Red Earth Arts Precinct in honor of Rare Disease Day in Australia.
Illumination of the Jacaranda Tower in honor of Rare Disease Day in Australia.
Illumination of Torre Glòries de Barcelona in honour of Rare Disease Day in Spain
“95” Rare Alliance Greece illuminates the Innovathens building of Technopolis City of Athens in honor of Rare Disease Day, Greece.
Illumination of Palacio de la Aljaferia in honour of Rare Disease Day in Spain
Illumination of Palacio Almudí in honour of Rare Disease Day in Spain
På sällsynta dagen bjuder Centrum för sällsynta diagnoser Väst tillsammans med medarrangörerna, Ågrenska, Mun-H-Center och Riksförbundet sällsynta diagnoser in till...
To mark Rare Disease Day, at the end of the Conference the central building of Institute of Mother and Child...
“Healthcare Professionals Hosting RDD” “Children’s Feelings, Families’ Feelings 2023 ”
The building of the event as well as the telecommunication tower in the Capital, Bucharest, will be lit up in...
“95” Rare Alliance Greece illuminates the Town Hall of Syros in honor of Rare Disease Day.
Illumination of the Optus Stadium in honor of Rare Disease Day in Australia.
Missa de intenção de Ação de Graças, as pessoas com Doenças Raras em reflexão ao Dia Mundial das Doenças Raras....
Alle Menschen mit Sarkoidose sind herzlich eingeladen zu sehen, dass sie nicht alleine sind. In einem virtuellen Café wollen wir...
Illumination of Torre Mangana in honour of Rare Disease Day in Spain
Illumination of Palacio de la Diputación Provincial de Palencia in honour of Rare Disease Day in Spain
With the slogan “I am rare alone, together we are strong”, we invite all schools on this day to join...
Illumination of the Townsville Sign in honor of Rare Disease Day in Australia.
Illumination of the Trafalgar Bridge in honor of Rare Disease Day in Australia.
Illumination of the Unley Town Hall in honor of Rare Disease Day in Australia.
Illumination of the Old Melbourne GPO in honor of Rare Disease Day in Australia.
Join us for a BYO picnic at Queens Park Toowoomba to help us acknowledge Rare Diseases Day by raising awareness...
Illumination of the Old Magistrates Court House in honor of Rare Disease Day in Australia.
Dirijido a profesional Pacientes Cuidadores y sociedad civil para orientación de Enfermedades Raras y sus tratamientos.
Simposio con ponentes Profesionales de la salud dirigidos a:Médicos generales, residentes, especialista, profesionales de la Salud, Pacientes, familiares.
Illumination of the Victoria Bridge in honor of Rare Disease Day in Australia.
Illumination of the Wharton Reef Lighthouse in honor of Rare Disease Day in Australia.
Illumination of the Northbridge Tunnel in honor of Rare Disease Day in Australia.
“95” Rare Alliance Greece illuminates the Fountain in Omonoia Square in honor of Rare Disease Day in Athens, Greece.
Illumination of Palacio del Ayuntamiento y la Plaza Mayor in honour of Rare Disease Day in Spain
Illumination of Newcastle Clock Tower in honor of Rare Disease Day in Australia.
Illumination of the Riverlinks Eastbank in honor of Rare Disease Day in Australia.
Illumination of the Reddacliff Place Steam sculptures in honor of Rare Disease Day in Australia.
Illumination of Puente sobre el rio Anoia en Martorell in honour of Rare Disease Day in Spain
RDD color Lit up Tokyo tower
Illumination of Puente de San Miguel in honour of Rare Disease Day in Spain
Illumination of Puente de Cullera in honour of Rare Disease Day in Spain
Illumination of Revellín de Logroño in honour of Rare Disease Day in Spain
Illumination of the Richmond Reserve in honor of Rare Disease Day in Australia.
Illumination of the Riverbank Footbridge in honor of Rare Disease Day in Australia.
Illumination of Plaza de los luceros in honour of Rare Disease Day in Spain
Illumination of Plaza de la Puerta del Mar Valencia in honour of Rare Disease Day in Spain
Illumination of Plaza de España de Sevilla in honour of Rare Disease Day in Spain
Illumination of Plaza de Don Juan de Austria de Sevilla in honour of Rare Disease Day in Spain
2.28国际罕见病日 为了促进了社会公众对罕见病的认识，上海市慈善基金会-蓝鲸罕见病专项基金，携手国际罕见病组织Rare Disease Day、EURODIS等，发起了“亮起色彩，照耀罕见”的主题活动。 以下海报为参与支持此次活动的专家、机构组织、患者及社会各界爱心人士等。（专家排名不分先后，以姓名首字母为序） 在此特别感谢楷泽广告传媒（上海）有限公司的公益支持，在杭州湖滨银泰IN77电子广告屏亮灯。 6.1国际儿童节 6月1日国际儿童节到来之际，我们延续了“Share your colours”这一主题，把缤纷的色彩继续带到罕见病儿童的世界，为他们可能因罕见病而黯淡的童年注入一道明媚的光彩，让罕见病孩子的童年由此而绽放色彩！为此我们特举办“关爱‘罕见’儿童，绽放生命色彩”的主题活动，诚挚邀请各位罕见病儿童和家长朋友们，以及社会各界的参与，用画笔为他们“罕见”的人生，涂上缤纷的色彩。我们希望每一张罕见的脸庞，都能因为我们的爱与行动，绽放纯真的笑颜。
Illumination of the The Drum Theatre, Dandenong in honor of Rare Disease Day in Australia.
Illumination of the Perth Children’s Hospital in honor of Rare Disease Day in Australia.
Illumination of the Perth Bell Tower in honor of Rare Disease Day in Australia.
Illumination of Paseo de Alfonso X in honour of Rare Disease Day in Spain
Illumination of the Sky Ribbon in honor of Rare Disease Day in Australia.
Illumination of the Story Bridge in honor of Rare Disease Day in Australia.
Illumination of the Suncorp Stadium in honor of Rare Disease Day in Australia.
Illumination of Parlamento Vasco in honour of Rare Disease Day in Spain
Illumination of Parlamento de Navarra in honour of Rare Disease Day in Spain
Illumination of Parlamento de las Islas Baleares in honour of Rare Disease Day in Spain
La Asociación Mexicana de Amigos Metabólicos, A. C., la Asociación Mexicana de Angioedema Hereditario, A. C. Creadores del Premio Dr....
Illumination of the Telfer Water Tower in honor of Rare Disease Day in Australia.
Illumination of the Big Banana in honor of Rare Disease Day in Australia.
Illumination of the William Grundt Memorial Library in honor of Rare Disease Day in Australia.
This seminar, which is planned to be organized with the Chamber of Deputies of the Czech Parliament, under the auspices...
Lançmento de video: Raras sem vergonha, quebrano o tabu Painel de mulheres raras sobre criar inclusão na sociedade: 4 mulheres...
Illumination of the Queensland Country Stadium in honor of Rare Disease Day in Australia.
Illumination of the Mandurah Bridge in honor of Rare Disease Day in Australia.
Illumination of the M8 St Peters Interchange in honor of Rare Disease Day in Australia.
The Department of Media Studies, Christ Nagar College, Trivandrum Kerala along with Focus Games (UK) is organising a National Webinar...
The Fellowship of Christian Students at Stokes Early College High School will be hosting “Rare Disease Day” on February 28,...
Illumination of the Little Fletcher Bridge in honor of Rare Disease Day in Australia.
SWAN Australia is the only not-for-profit charity supporting families caring for children with undiagnosed and rare genetic conditions, all of...
Mỗi bệnh hiếm và người bệnh hiếm là một bông hoa, và ngày bệnh hiếm là ngày của những sắc...
Illumination of the Kurilpa Bridge in honor of Rare Disease Day in Australia.
15.30 Uhr | Begrüßungsrede durch Landrat Olaf Meinen, er hat die Schirmherrschaft übernommen ——————+—————————————————————————————————– 16.00 Uhr | Rote Luftballon-Aktion zum...
Illumination of the Koombana Bay Foreshore in honor of Rare Disease Day in Australia.
Illumination of the Koombana Bay Footbridge in honor of Rare Disease Day in Australia.
North South Rare Disease Day Celebration On behalf of Rare Diseases Ireland (RDI) and Northern Ireland Rare Disease Partnership (NIRDP),...
In occasione della giornata mondiale delle Malattie Rare Padova si illumina. In occasion of Rare Disease Day Padua lights up.
Stand informativi promosso dall’associazione rete malattie rare.
Illumination of the Broadmeadows Town Hall in honor of Rare Disease Day in Australia.
Illumination of the Palacete dos Viscondes de Balsemão – Porto in honor of Rare Disease Day in Portugal.
Conference aimed at health workers and the community. Palliative approach in orphan disease: panoramic in Colombia, comprehensive approach, home care
In recognition of Rare Disease Day 2023, we’re hosting a Facebook Live to talk about the critical role of genetic...
Tbilisi Medical Academy uses this opportunity to bring healthcare students a special event dedicated to raising awareness about rare diseases....
Join PIP-UK for an afternoon snack, donated by local businesses and find out about rare disease day, Poland Syndrome and...
Krajowe Forum na Rzecz Terapii Chorób Rzadkich ORPHAN w imieniu organizacji członkowskich oraz własnym zaprasza Państwa na wspólne obchody Światowego...
Evenimentul va avea loc la clasa pregatitoare D a Colegiului National “Octavian Goga”, Marghita, clasa in care se afla un...
The logo of the World Rare Disease Day and the logo of “95” Rare Alliance Greece will be projected on...
Illumination of the Joondalup Drive Bridge in honor of Rare Disease Day in Australia.
A l’occasion de la Journée internationale des maladies rares 2023, la Maison de l’Italie vous propose une soirée projection suivie...
Join us live on rare disease day!!! Find out more about the #EDIRA conference and how it can help Poland...
It is a tradition to mark the Rare Disease Day by a National Conference including health care professionals working with...
Illumination of the Marlston Waterfront in honor of Rare Disease Day in Australia.
28 January is rare disease day, a special day for over 300 million people worldwide living with a rare disease....
Illumination of the Muralhas do Jardim das Portas do Sol, Santarém in honor of Rare Disease Day in Portugal.
Illumination of the Wineglass Water Tower in honor of Rare Disease Day in Australia.
We will be organizing a charitable auction for patients with rare diseases from Dr Victor Gomoiu Center of Expertise in...
Illumination of Uniwersytet Rzeszowski, Instytut Biologii i Biotechnologii in honour of Rare Disease Day in Poland
28/2/2023 /8:30 am/ Savion Center The Sheba Medical Center annual congress for the rare disease international day is a unique...
We’re really pleased to share the upcoming event ‘Shining a Light on Silver-Russell Syndrome’. Taking place on Rare Disease Day...
Duna Arena is a new sport building in Budapest. It was painted with blue lights at the offial Rare Disesase...
Tues 28 Feb, 18:00-19:30 ONLINE Shining a Light on Silver-Russell syndrome (SRS) on Rare Disease Day. Join us for this...
Illumination of the Navigators at the Koombana Drive Roundabout in honor of Rare Disease Day in Australia.
Illumination of National Carillon in honor of Rare Disease Day in Australia.
Illumination of the Museu do Traje – Viana do Castelo in honor of Rare Disease Day in Portugal.
A vos agendas : les taka reviennent en live une fois par mois. Nous commençons le 28 février 2023, ici...
Illumination of Museo de Arte Contemporáneo de Palencia (Fundación Díaz Caneja) in honour of Rare Disease Day in Spain
Illumination of the Multi-Arts Pavilion in honor of Rare Disease Day in Australia.
Join us on February 28 as we recognize and celebrate Rare Disease Day. Sit with us at the #Rare Roundtable...
Illumination of the Mounts Street Bridge in honor of Rare Disease Day in Australia.
Málþing um málefni líðandi stunda í heimi Einstakra barna / ungmenna / foreldra þeirra og systkina
Illumination of the Mooroopna Water Tower in honor of Rare Disease Day in Australia.
Illumination of the Monash Park Tree in honor of Rare Disease Day in Australia.
Zum Tag der seltenen Erkrankungen 2023 lädt NEMOS ein zum offenen Gespräch: Mit Expertinnen und Experten ins Gespräch kommen, Fragen...
Morning tea to meet the UTS Researchers of Rare Disease
Illumination of the Melbourne Town Hall in honor of Rare Disease Day in Australia.
Celebrating Rare Disease Day 2023, 3billion made a Youtube music playlist. Many people, including family members of patients, sent us...
Pink, Blau, Grün und Lila sind die Farben des Rare Disease Day. Wir beteiligen uns am 28.02.2023 an der Aktion...
Nano Rare Diseases Day is an event organised in the framework of World Rare Diseases Day where the latest innovations...
Illumination of the Matagarup Bridge in honor of Rare Disease Day in Australia.
Dit jaar staan we stil bij het medisch-wetenschappelijk onderzoek in Nederland. Zijn de keuzes die daar worden gemaakt logisch en...
Illumination of Royal Australia Mint in honor of Rare Disease Day in Australia.
“Jedna na milion. Czy to znaczy, że nie istnieje?” Chcielibyśmy zaprosić Państwa do udziału w IV Dniu Chorób Rzadkich na...
Illumination of the Broadmeadows Town Hall in honor of Rare Disease Day in Australia.
An educational program to learn more about a treatment in Cold Agglutinin Disease (CAD). Hear from a patient speaker living...
“Una luz por las raras” es el nombre con el cual la organización del Día Mundial de Enfermedades Raras 2023...
The County Administration has agreed to Light up the building on/for Rare Disease Day
This is a cake decorating championship in cooperation with Roche Hungária Kft. The main topic is: Show your Colours. The...
The Millennium bridge will be lit up to celebrate International Rare Disease Day in collaboration with Gateshead City Council and...
St Mary’s Lighthouse will be lit up to celebrate International Rare Disease Day in collaboration with Gateshead City Council and...
Let us be together, empowering rare patients and their families to be rare, strong, and proud.
Light Up for Rare Philippines is an open invitation to all offices, institutions, corporations and government agencies. The Light Up...
Informationsveranstaltung zu Seltenen Erkrankungen und Beleuchtung des Gebäudes
Illumination of Ayuntamiento de Jaén in honour of Rare Disease Day in Spain
The rené touraine foundation and its rare disease network are organizing their art contest. Each year, all the drawings of...
Light Up for Rare Philippines is an open invitation to all offices, institutions, corporations and government agencies. The Light Up...
Illumination of Ayuntamiento de Gijón in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Gandía in honour of Rare Disease Day in Spain
In honor of Rare Disease Awareness month, The Children’s Rare Disorders Fund has launched its first annual Donate to Win...
We will share our colours and have a afternoon coffee break sharing information about rare diseases and some of our...
Everyone can participate! Show solidarity with the rare disease community and light up for Rare Disease Day at 7pm on...
Rare Disease Day Municipal Proclamation 2023 Light Up Wolfeboro Town Hall for Rare Disease Day
Cebras México-Mujer México-XLH México, participarán en el evento protocolario organizado en conjunto con la Comisión de Salud de la Cámara...
As Turkish Association of Public Health Specilists Rare Diseases Working Group, we organize a forum with the “Earthquake Special” agenda...
Rare Diseases Awareness Day activities were held at Ankara University Rare Diseases Application and Research Center with the participation of...
Broadcast of the RDD radio spot – Antena 3 radio for Rare Disease Day in Portugal.
Illumination of Ayuntamiento de Reocin in honour of Rare Disease Day in Spain
Plática para medicos y pacientes en conmemoración de las enfermedades raras.
Junto a las organizaciones que son parte de ALAPA organizamos un evento para difundir y concientizar sobre las Enfermedades Poco...
BioPartner and VICO are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with the...
Illumination of Ayuntamiento de Pamplona in honour of Rare Disease Day in Spain
Evento di sensibilizzazione in occasione della Giornata Mondiale delle Malattie Rare presso il Comune di Aquileia, Friuli Venezia Giulia 💙💚🩷💜...
El Puerto de Buenaventura se suma a la conmemoración del Día Mundial de Enfermedades Raras. Uno de sus íconos arquitectónicos,...
Banja Luka illuminated the cultural building “Banski dvor” in the city center for the third year in a row.
Los invitamos al III Foro Internacional de Enfermedades Raras Día: 28 febrero 2023 Hora: de 9:00 am...
Indo US Organization for Rare Diseases (IndoUSrare) is honored to announce the force behind the US Orphan Drug Act, Dr....
Lighting the building and a conference about Rare diseases
Our international art contest is organized by the Rare disease network of the René Touraine foundation. It is an opportunity...
El municipio de #Calarcá se une a la campaña mundial #UnaLuzPorLasRaras iluminando el Edificio de las Empresas Públicas de Calarcá...
We are gathering at Southwest Mountain States Carpenters Union Local 714 support of Raising Awareness for Rare Diseases.
The National Alliance for Rare Diseases Support – Malta in collaboration with the Ministry for Gozo will be lighting up...
På måndag lyser himlen upp lite extra över Lilla Amundön när Ågrenska uppmärksammar Sällsynta dagen. Ågrenska gör då gemensam sak...
Illumination of the Alison Harman Garden in honor of Rare Disease Day in Australia.
Broadcast of the RDD video – Brandstore advertising screens for Rare Disease Day in Portugal.
Diego de 13 años de edad portador de 17 mutaciones genéticas, tendrá el honor de realizar el encendido conmemorativo en...
Klankjorum zingt het liedje EDELWEISS. Hiervan is een filmpje gemaakt om de boodschap van zeldzame ziektendag te verspreiden via social...
Broadcast of the RDD TV spot – Sporting TV for Rare Disease Day in Portugal.
Illumination of the Albany Town Square in honor of Rare Disease Day in Australia.
Broadcast of the RDD TV spot – RTP2, RTP Memória and RTP3 – Portuguese national TV channels for Rare Disease Day in...
Broadcast of the RDD TV spot – Porto Canal for Rare Disease Day in Portugal.
Broadcast of the RDD video – Centro Hospitalar do Porto, Porto for Rare Disease Day in Portugal.
Illumination of Amiens’ town hall in honour of Rare Disease Day in France
Illumination of Antiguo Palacio de Justicia y Antiguo Ayuntamiento de Estella-Lizarra in honour of Rare Disease Day in Spain
El martes 28 de Febrero a las 16 hs se realizara un evento con el objetivo de compartir los avances...
L’Alliance Algérienne contre les Maladies Rares et l’Association Shifa des Maladies NeuroMusculaires organise conjointement un E-Séminaire national des maladies rares...
Broadcast of the RDD TV spot – Canal Q for Rare Disease Day in Portugal.
Illumination of Ayuntamiento Cartes in honour of Rare Disease Day in Spain
L’Alliance Algérienne contre les Maladies Rares et l’Association Shifa des Maladies NeuroMusculaires organisent conjointement un E-Séminaire national des maladies rares...
Illumination of the Adelaide Oval in honor of Rare Disease Day in Australia.
Broadcast of the RDD video – Centro Hospitalar Universitário de Lisboa Central for Rare Disease Day in Portugal.
In Graz arbeiten die Kinderklinik und das Genetikinstitut eng zusammen, um Patient*innen mit seltenen Erkrankungen eine Diagnostik am neuesten Stand...
Entrevista de un reportero de la cadena de televisión Televisa para hablar de las enfermedades raras.
“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...
Illumination of Ayuntamiento de Burlada in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Barcelona in honour of Rare Disease Day in Spain
“95” Rare Alliance Greece illuminates a building at Eleftherios Venizelos Airport, in Athens, Greece.
A panel discussion on drug development and clinical trials in rare diseases
Undergraduate students from Duke University and North Carolina Central University will share information about rare cancers and encourage participation in...
Broadcast of the RDD video / Posters – Carris buses, Lisbon for Rare Disease Day in Portugal.
Rare diseases are gaining traction as a pressing health priority worldwide. We have now seen the first-ever UN Resolution on...
Illumination of Ayuntamiento de Avilés in honour of Rare Disease Day in Spain
Entrevista con un medio de comunicación para hablar de las enfermedades raras.
Illumination of the AAMI Park in honor of Rare Disease Day in Australia.
Broadcast of the RDD video – Serviços Sociais da Câmara Municipal Lisboa, Lisbon for Rare Disease Day in Portugal.
Entrevista televisiva para hablar del Día de las Enfermedades Raras.
Broadcast of the RDD video – Hospital da Luz, Lisbon for Rare Disease Day in Portugal.
Illumination of Ayuntamiento de Almería in honour of Rare Disease Day in Spain
The Alamo Quarry Market is participating in the #LightUpForRareCampaign and will illuminate the smoke stacks for Rare Disease Day
The Frost Tower will participate in the #LightUpForRareCampaign in support of Rare Disease Day.
The event dedicated to the Rare Disease Day will be held on Feb. 28, 2023 at 5.30 p.m. in the...
La Facultad de Medicina de la UNAM a través de La Unidad de Enfermedades Raras de la División de Investigación,...
Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...
Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...
Un changement de lettre dans le code génétique peut faire basculer une vie. Une mutation suffit à altérer un processus...
Conversatorio por la conmemoración del Día Mundial de Enfermedades Raras
Ruta de 5.6 quilòmetres, de 120 minuts, geolocalitzada en temps real amb un tècnic en activitat física per la commemoració...
Join us at the annual North-South Rare Disease Day virtual celebration on Tuesday 28th February from 1.30 pm to 3...
El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL_NACIONAL_RAMIRO_PRIALÉ_PRIALÉ. Invita al II ENCUENTRO REGIONAL DE ENFERMEDADES...
Coffee Morning hosted by Rare Ireland Family Support Network – an opportunity for families to meet up on Rare Disease...
El Área de Genética y Citogenética del Servicio de Anatomía Patológica del HOSPITAL NACIONAL RAMIRO PRIALÉ PRIALÉ . 🗓Fecha: 28...
La Red Mexicana de Enfermedades Raras (ReMexER) y el Laboratorio Internacional de Investigación sobre el Genoma Humano se unen a...
Students of the specialty “General Medicine” of the Higher School of Medicine tested the campaign with the goal of drawing...
3rd International Conference on Rare Diseases: Greek Chapter ‘’Leveraging the momentum for a comprehensive rare disease strategy’’ In the context...
To mark Rare Disease Day today, we are pleased to release the now 10th episode of our podcast series, “Rare Diseases and...
Le 28 Février prochain, journée mondiale des maladies rares, notre association organisera dès 19:30 au Cinéma For&ver un ciné-débat ayant...
Illumination of the paranaple convention centre in honor of Rare Disease Day in Australia.
The Lupin Neurosciences team worked with people living with NDM to develop the #LetsMove4NDM challenge to raise public awareness of...
A white board will be set up at the entrance of the Pasteur Institute in Tunis next to the research...
Illumination of the Birrarung Marr Pedestrian Bridge in honor of Rare Disease Day in Australia.
Mujer México-Cebras México Promovió la iluminación del color de las enfermedades raras en el Estado de Guanajuato. Con la finalidad...
Los alumnos de la materia de Genética y Medicina Genómica participarán en nuestro concurso de redes sociales en señal de...
💚💙💜❤️🧡💛💚💙💜❤️🧡💛💚💙💜❤️ 28 FEBBRAIO – GIORNATA DELLE MALATTIE RARE 💚💙💜❤️🧡💛💚💙💜❤️🧡💛💚💙💜❤️ Abbiamo pensato ad una puntata speciale per tutti voi: 👩⚕️COME SI...
For Rare Disease Day 2023, Alexion Germany in partnership with CBT, MSD_Deutschland, Novartis-Deutschland, Takeda, UCB and supported by Ravensburger will...
OVERVIEW On Rare Disease Day 2023, Rare Diseases International (RDI) invites you to “#SeeRare”, a virtual event showcasing the breadth...
Conmemoración Día Mundial de Enfermedades Raras 2023
Se lleva a cabo la 2da Conmemoración del Día Mundial, Nacional y Estatal de las Enfermedades Raras en el Estado...
#LightUpforRare at 7:30pm
Conmemoración Día Mundial de Enfermedades Raras 2023
Conmemoración Día Mundial de Enfermedades Raras 2023
Iluminação do Cristo Redentor pela ABRANHI Das 7 maravilhas do mundo moderno, o Cristo Redentor é a mais nova e...
Dans le cadre de la Journée Internationale des Maladies Rares, la Fondation Maladies Rares, la plateforme d’expertise Maladies Rares « Est Rare », et leurs partenaires, dont SENSGENE,...
Illuminazione torre dell’orologio di Palazzo Sant’Antonio
Join MassBio as we mark the annual Rare Disease Day at the Statehouse by bringing attention to the groundbreaking, patient-focused...
Når: 28. februar kl. 10:00 – 15:30 Hvor: Thon Hotel Opera Påmelding og mer informasjon om konferansen Lenke til streaming...
Broadcast of the RDD radio spot – Radio RFM for Rare Disease Day in Portugal.
Tiistaina 28.2.2023 klo 17–19 järjestettävä tilaisuus on suunnattu harvinaista neurologista sairautta sairastaville ja heidän läheisilleen, mutta mukaan voivat tulla kaikki...
Charla científica que se trasmite por el canal https://youtube.com/@fundacionfupieruy Para informar de manera responsable sobre los últimos avances de la...
Illumination of Ayuntamiento de Soria in honour of Rare Disease Day in Spain
On February 28, at 4:00 p.m., we will hold a webinar “Rare diseases in the practice of family doctors: what...
DIA 28/2 LIVE PARA PUBLICO GERAL SOBRE OS DIREITOS DAS CRIANÇAS COM DOENÇAS RARAS DIA 4/3 LIVE PARA MÉDICOS SOBRE...
MONOLOGO EN STREMING “RARO YO”
Illumination of Ayuntamiento de Valdepeñas / fuente de la Plaza de España de Valdepeñas in honour of Rare Disease Day in...
Edmonton’s high level bridge will be lit up for rare disease day
Illumination of Ayuntamiento de Valencia (+ lectura institucional y pancarta) in honour of Rare Disease Day in Spain
We have a number of buildings and landmarks lighting up in a chain of light around the country. The chain...
AnDDI-Rares a visité 12 hôpitaux de France avec son projet d’ateliers artistiques dédiés aux enfants Pendant trois mois, des artistes...
Illumination of Ayuntamiento Santander in honour of Rare Disease Day in Spain
Il Comune di Arenzano illuminerà la torre dell’orologio di Palazzo Sant’Antonio
Ogni anno scolastico, nella Scuola dell’infanzia “Gli Aquiloni” Istituto Comprensivo “A. G. Roncalli” Rosà (Vi) vengono proposte all’interno delle sezioni...
Horário: 14:00 – 18:00 Organização: Mirror Group Português do Programa Europeu Conjunto para as Doenças Raras (NMG – EJP RD)...
The hospital is lighting up for Rare Disease Day 2023!
As Rare Disease Day 2023 is approaching, on behalf of the Chinese Organization for Rare Disorders, it is my honor...
Choroby rzadkie wcale nie są rzadkie! Zmagają się z nimi miliony ludzi w Polsce i na całym świecie. Dlatego 28...
À l’occasion de la 16ème édition de la Journée Internationale des Maladies Rares (JIMR 2023), les associations de personnes concernées...
Students of De La Salle University-Dasmarinas’ Master of Sustainable Leadership and Governance (MSLG) program launched a month-long exhibit at the...
Students of De La Salle University-Dasmarinas’ Master of Sustainable Leadership and Governance (MSLG) program launched a month-long exhibit at the...
Dans le cadre de la Journée Internationale des Maladies Rares, l’équipe du Centre de Référence des Maladies Rares du CHU...
Join Congenital Hyperinsulinism International as we gather to share stories and experiences of patients and families with congenital hyperinsulinism worldwide....
Global Workshop on Access to Rare Disease Diagnosis and Treatment | Rare Disease Day 2023 Reimbursement of drugs from pharmaceutical...
Se lleva a cabo el evento conmemorativo de Iluminación en el Senado de la República 2023. En conjunto con la...
We are inviting you to join our virtual campaign on the 27th & 28th of February 2023 9:00-9:30am Twitter Chat...
We were delighted to announce that would will be running our annual Rare Disease Day event on the 27th February...
Cebras México-XLH México y otros Raquitismos-Mujer México Conmemoran en el evento de Iluminación en conjunto con la Comunidad de Pacientes...
Iniciativa Pensemos en Cebras México, XLH y otros Raquitismos México y Mujer México Organizan e Invitan a seguir la transmisión...
Saint Peter’s joins the chain of lights across the globe raising awareness of rare diseases this #RareDiseaseDay by illuminating it’s...
RDM’s Conference titled “How can the Educator Become an Advocate on Rare Diseases’, is going to be held under the...
Iniciativa Pensemos en Cebras México-XLH México y otros Raquitismos- Mujer México y comunidad de pacientes. Conmemoramos el Día Mundial y...
MORE COMMUNITY IS A COMMUNITY FOR MOTHERS OF CHILDREN WITH RARE DISEASES AND CHILDREN WITH SPECIAL NEEDS CENTERED IN MALANG...
Entrevista al Dr. Santiago March Mifsut, coordinador del consejo de Nuevas Tecnologías, en la Fundación Mexicana para la Salud (Funsalud).
Instagram Live | Lunes 27 de febrero (20 horas CET) Desde la Fundación Lovexair, y con el objetivo de dar...
Information and sensibilization to rare diseases in terms of public health and ethics.
Cebras México, XLH México y Otros Raquitismos y Mujer México organizan el : Foro Nacional de Enfermedades Raras: Panorama Actual...
El día 27 de febrero a las 17:30 estaremos en la puerta de la casa de la cultura de Quilmes...
From February 27 to March 5, 2023, the MATIO Foundation for the 22nd time organizes a social campaign under the...
El Hospital Carlos Andrade Marín y la Unidad Técnica de Pediatría en conjunto con la Unidad Técnica de Genética, han...
Le malattie rare sono una piaga che colpisce milioni di bambini in tutto il mondo. Spesso, però, il numero di...
We are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open...
À l’occasion de la 16e édition de la Journée mondiale des maladies rares, la Plateforme régionale d’information et d’orientation pour...
É uma live moderada pela vice-presidente da Alambra e com a participação de um pneumologista e de um cirurgião do...
MSP (Minneapolis St Paul), MN – In honor of Rare Disease Day, which happens every year at the end of...
Entrevista al Dr. Joaquín Carrillo Farga, director del Instituto Nacional de Hematopatología en México. Es el médico que más sabe...
The National Alliance for Rare Diseases Support – Malta will be joining the rest of the world in the Global...
Promoción Campaña #UnidosPorLasRaras en partido de fútbol Atlético Nacional vs. Atlético Huila
A virtual global summit, free registration organised to mark Rare Disease Day. A professional summit for rare disease therapies development...
Conmemoración Día Mundial de Enfermedades Raras 2023 ACPEIM y Universitario San Ignacio
Don’t miss RARE Skydive 2023! Mark your calendars for 27 February 2023. Through this unique awareness initiative, we hope to...
El 28 de febrero se celebra el Día Mundial de las Enfermedades Raras y para conmemorar este día y darle...
– Panel display at the library – Clarinet Concert – RDD video screening – NANBYO café
Please join SWAN families in Launceston for a relaxed morning tea in the park. Share laughs, information and stories with...
– ALS Patient Stories – Social gathering – Chronic Pediaric Disease Peer Support Counseling
Appuntamento sotto l’albero dei Rari di Chiari e Siringomielia per un sorriso ed una foto
Medical Lecture
– Create a message board – Exchange meeting
Art gallery ‘share your colours’ & bar
Missa em ação de graças pelos Raros no dia 26 de fevereiro às 08h. Todos estão convidados.
𝗗𝗼𝗺𝗲𝗻𝗶𝗰𝗮 𝟮𝟲 𝗳𝗲𝗯𝗯𝗿𝗮𝗶𝗼, 𝗼𝗿𝗲 𝟭𝟬.𝟯𝟬 𝘼𝙙𝙤𝙯𝙞𝙤𝙣𝙚 : 𝙪𝙣𝙖 𝙨𝙘𝙚𝙡𝙩𝙖 𝙙’𝙖𝙢𝙤𝙧𝙚 Abbiamo deciso di organizzare un evento in cui parlare dell’esperienza...
Please join SWAN families in Canberra for a relaxed morning tea in the park. Share laughs, information and stories with...
meet for morning tea
On Sunday, February 26 Raise a Toastie and raise awareness for Rare Disease Day. Join with the 300,000 people living...
Please join SWAN families in VIC for a relaxed morning tea in the park. Share laughs, information and stories with...
Sponsored Swim/Dip for RARE Ireland Family Support Network to celebrate Rare Disease Day 2023. Date: Saturday February 26th Location: Portmarnock...
“Genetics Matters” is an annual event organised by Newcastle University to mark the International Rare Disease Day. Currently in its...
The 13th Rare Disease Day Thailand Event will be held on Sunday, February 26th, 2023 under the theme, “Show Your...
An informal and insightful interview with Jorge Sequeiros. Jorge Sequeiros is recognised as one of the most prominent figures in...
Event Description: An informal and insightful interview with Jorge Sequeiros. Jorge Sequeiros is recognised as one of the most prominent...
Santa Missa em ação de graças pelos Raros. Dia 26 de fevereiro, às 08h. Com transmissão ao vivo pela TV...
Santa Missa em ação de graças pelos raros. dia 26 de fevereiro de 2023 às 19h Todos estão convidados
Please join SWAN families in WA for a relaxed morning tea in the park. Share laughs, information and stories with...
9eme édition de la Marche pour Kabuki. Départs libres toute la journée 3 parcours prévus de 3, 6 et 10km...
Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, on the...
Remotely discuss issues and challenges regarding the future management of the patient group
We will be flagging off the campaign with the clocking of the 7.7KM run, or a choice of a 4KM...
Mesa técnica de enfermedades huérfanas de Cali, CIAFER, FECOER, organizaciones sociales del Valle del Cauca y Aliados Proyecto Colaborativo Ruta...
– Panel exhibition of intractable disease patient groups and related organizations – RDD fundraising activity to connect patients and society...
In occasione della Giornata delle Malattie Rare (che si celebra l’ultimo giorno di febbraio) domenica 26 febbraio si terrà il...
Please join us for our 5th Annual Rare Disease Day Bay Area 2023 event. This years event will be located...
We are excited to invite you to Rare Disease Day 2023 in Calgary on February 26, 2023! If you are...
Mesa e enfermedades raras para Antioquia y Red Técnica por las Enfermedades Huérfanas de Antioquia.
Please join SWAN families in the Gold Coast for a relaxed morning tea in the park. Share laughs, information and...
Please join SWAN families in Hobart for a relaxed morning tea in the park. Share laughs, information and stories with...
– Exchange of opinions between patients and listeners (medical students) – Patient’s testimonial – Question and answer session – Exchange...
– NANBYO cafe – Orchestral live performance
Please join SWAN families in Adelaide for a relaxed morning tea in the park. Share laughs, information and stories with...
Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...
The event was a hands-on experience where everyone walked the streets together while experiencing a wheelchair and white cane/eye mask.
The last week of February is a rare diseases’ awareness week and the time when we can show our solidarity...
WALK FOR RARE aims to raise awareness about rare diseases in Portugal. Join us and show how rare you are!...
Partido de fútbol Junior FC vs. La Equidad
Jornada deportiva a favor de la investigación de las enfermedades raras, organizada por En Ruta por las Enfermedades Raras y...
– RDD panel exhibition – Toy Corner at Toy Museum – Online medical seminar – Workshop for children
Street campaign
Panel discussions and clinical presentations for patients and healthcare professionals. The aim is to lead information sessions and fruitful discussions...
The Zebra 5K Run/Walk is an in person or virtual 5K run OR walk! It will take place to mark...
«Tenemos todo el tiempo para escucharlos» será un evento en el que, por primera vez en todo el mundo y...
Lanzamiento del libro “Un milagro llamad Emmanuel” Autora: Leonisa Castillo Centeno. Líder de 11Q Latinoamerica
On behalf of Prof. Fatma Al Jasmi, Congress President, and the Organizing Committee of the 1st International UAE Rare Disease Society Congress, under the...
On Saturday 25th February Rare Ireland Family Support Network will have Irish artist Sean Corcoran The Art Hand create a...
Lyndsey & Aisling have chosen to fundraise for Rare Ireland Family Support Network as both their daughters are living with...
Campaña de Difusión, actividades recreativas y encuentro personas con enfermedades raras y sus familias. Promovido por Asociación Peruana de Pacientes...
We organise a scientific conference with standsection, entertainment programmes, photocontest, art exhibition, arts and crafts, playground for babies, “Show your...
Raising awareness about rare disease and rare disease day. As a small island we also deal with rare disease eventhough...
– Online Occupational Therapist Lecture – Patient’s testimonial
As China has a large population, the patients with rare diseases in China are not rare. Chinese government and passionate...
– Messages from Patients with Rare and Intractable Diseases – Opinion exchange and social gathering
– Singing of short words (poems) of the participants – Presentation of experiences with intractable diseases – Exchange of opinions
Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...
A children’ party will be hosted at the Department of Child Neurology at the National Institute Mongi Ben Hmida of...
To help raise awareness of the day, the Trent Building on University Park Campus will join a host of other...
To mark Rare Disease Day, a scientific conference for students willing to present medical cases will be held.
LABORATORIO_RAREDISEASEDAY 2023 OCCORRENTE: T-SHIRT BIANCA COLORI ACRILICI (AZZURRO, VIOLA, VERDE E FUCSIA) PENNELLI UNIPOSCA (per scrivere...
With of budget of €5.3 billion, the EU4 Health program 2021-2027 represents an unparalleled EU financial support in the health...
Tercera edición de la carrera más solidaria con las enfermedades mitocondriales en España- del 24 al 28 de febrero y...
This exhibit uses the medium of photography and videography to highlight some of the conditions affecting those within the sector....
Iluminarea cladirilor, expozitii de fotografie, de pictura, Conferinta nationala Ziua bolilor rare 2023, Timisoara
The public awareness campaign on 24-25 of Feb 2023, Bahrain Seef mall, has as goal to interact with the society...
Rare Disease Day is an international day that takes place on the last day of February each year. The day...
Stand informativo sulle Malattie Rare
Lunch to celebrate Rare Diseases Day for those living in the Wollongong and Shoalhaven areas. Contact Anita Chalmers on 0421314138...
Jacks Grill By Smiths Street Foods Cronin’s Hotel. Time: 12.30pm Lunch is pay yourself. Numbers are limited.
ALAN and the council of Hesperange invite to the concert “Rare Music 4 Rare Diseases”, on the 24th of February...
Convidamos os pacientes com doenças raras, as suas famílias e cuidadores a visitarem-nos no dia 24 de fevereiro (sexta-feira), no...
Capilala culturala eutrpeana si capitala europeana a bolilor rare 2023itatea de medicina si Farmacie, Universitatea politehnica si Spitalul de copii...
At the LOUDRARE ONLINE FESTIVAL, people with rare diseases, patient communities, medicine, the pharmaceutical industry and other stakeholders involved in...
Rare cancers are a mixed group of more than 200 kinds of neoplasia, and globally considered they are about 20%...
Dans le cadre de la journée des maladies rares et/ou graves, l’asbl Chiara, Vie, Don d’organes et Solidarité organise en...
#UnaLuzPorLasRaras💡 es el nombre con el cual la organización del Día Mundial de Enfermedades Raras 2023 🖐️🏾 Rare Disease Day...
De vorbă cu ChatGPT Cum poate AI să susțină campania de conștientizare a bolilor rare? Boala Gaucher este o boală...
Pledge Your Support for Rare Diseases! Rare Disease Day is held annually on the last day of February, it is...
Please join SWAN members (parents and full time carers only) for dinner at PappaRich in Parramatta. Date: Thursday, 23 February...
Thurs 23 Feb – Genetics Unzipped Podcast: “The diagnostic odyssey: a journey into genetic testing” prior to Rare Disease Day...
On World Rare Disease Day, the Department of Pathology and Laboratory Medicine is launching a Newborn Screening Program for Selected...
Sul tema Malattie Rare (MR), dato il rapido evolvere dello scenario legislativo, organizzativo-gestionale e tecnico-scientifico, vi è il bisogno a...
We’re hosting a Twitter chat on Feb. 22, 1–3 p.m. EST. Rare disease experts will be available to answer your...
Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...
Dear All We would like to invite you to join us and attend the “CareForRare Support Group” webinar on 22nd...
– Online PPeCC cafe
Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...
Intervención comunitaria que tendrá lugar en Benavides de Órbigo, el día 21 de febrero de 2023, con motivo de la...
In occasione della Giornata mondiale delle Malattie Rare 2023, la Conferenza Territoriale Socio Sanitaria Metropolitana in accordo con il Comune...
On Tuesday, February 21, 2023 at 7:25 PM, concluding the Be the Catalyst Group Photo opportunities everyone will join in...
UNA PRESA IN CARICO PIU’ EQUA ED OLISTICA DI UNA PERSONA CON MALATTIA RARA: IL TAVOLO RETE METROPOLITANA MALATTIE RARE,...
Fighting H.A.R.D. Foundation’s Run HARD for Rare Kids was started in 2021 as a way to safely raise funds and...
Two webinars to commemorate the celebration of the rare disease day on the theme: “Make rare visible, shine the light...
The EURORDIS Black Pearl Awards (https://blackpearl.eurordis.org/) are one of the biggest events in Europe marking the occasion of Rare Disease...
As part of our RARExham initiative we are delighted to be exhibiting at Xplore Science Discovery Centre tomorrow. You can...
Same but Different has created a Bilboard exhibition that will be shown throughout the week. Look up and see some...
Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...
The Jackson Laboratory is an independent, nonprofit biomedical research institution with nearly 3,000 employees in locations across the United States...
This is a social media campaign where persons with interest in rare disease pledge their support to persons living with...
The Rare Aware Campaign is launching its third roundtable, with a focus on the challenges faced by patient advocacy organizations...
Video to promote Keratoconus Knowledge
RareMed Solutions is coming together to celebrate Rare Disease Day by hosting a week-long exercise challenge. Employees will band together...
Anche Bari viaggia con il colori del #RareDiseaseDay Questa mattina il taglio del nastro nel capoluogo pugliese Grazie al Sottosegretario...
1. Pledge4Rare Campaign: This is a social media campaign to solicit support from the general public to increase the voice...
RDD JAPAN Advertisement Exhibition at Hankyu Osaka Umeda Station.
– Slide presentation of activities and explanation of RDD to all students – Creation of a book newsletter introducing books...
A l’occasion de la journée mondiale des maladies rares, le centre administratif de Mouscron (CAM) sera illuminé aux couleurs des...
Get to know each other, each other’s problems among health care within Europe. To make collaborations
Rare Diseases Open Chess Championship 2023 (U2000 FIDE Rated Rapid – 20 mins) Tarikh: 19 Feb 2023 (Ahad) Masa: 8.30...
Report on Participation in the American Patients Association Symposium
Our first event in our five-part series launches in honor of Rare Disease Day on February 19. This event will...
Part Craft Class, Part Storytelling, Wear Your Rare is a virtual meeting for those diagnosed with AVM or any rare...
Cafe-style panel exhibition
Cambridge Rare Disease Network (CamRARE) invite you to join us for tea and cakes to celebrate this year’s Rare Disease...
Panel/Photo Exhibition
Potencialidades Raras Somos um grupo de 10 mulheres raras com potencialidades diversas entre nós. Nos unimos para mostrar ao mundo...
Family Fun Day, Talk and Forum on Mental Health, People with Prader-Willi Syndrome.
In occasione del mese delle malattie rare, i volontari e le famiglie a contatto con la Sclerosi tuberosa hanno pensato...
Desmoid Tumor awareness event at both the girls and boy’s basketball games.
Soft Bones, Inc. will be hosting their 2023 National Patient Meeting in Phoenix, AZ. We will be celebrating and highlighting...
CEBRAS MÉXICO Y MUJER MÉXICO en conjunto con el Congreso Legislativo de Quintana Roo, la Comisión de Salud y Asistencia...
Reflexiones de hombres y mujeres que atienden en México al universo de pacientes que viven con enfermedades raras.
«La Conversación» es una serie de entrevistas a destacados científicos médicos dedicados con pasión a mejorar la calidad de vida...
La Conferenza Stampa ha inaugurato la campagna #UNIAMOleforze sul circuito Mupi, che avrà luogo nella città di Napoli dal 15...
#UNIAMOLEFORZE – RARE DISEASE DAY – CITTA’ DI GENOVA Comune di Genova – Salone di Rappresentanza Palazzo Doria-Tursi – Via Garibaldi, 9...
We invited you to the seminar about rare diseases centres in Brno and about cooperation with patients organizations. Centres specialized...
RARE DISEASES- from clinical to genetic diagnosis and counseling Seminar Date 15 February 2023 TARGETED AUDIECE: Specialists and consultants from...
The seminar is dedicated to medical students, genetics, doctors, physiotherapists, and social workers. The seminar will provide an overview of...
The Belgian Rare Disease Day campaigns, invites all to share their colours and share the infographics developed in Flemish and...
La campagna di sensibilizzazione #uniamoleforze dedicata alle malattie rare, lanciata nel mese di febbraio che culmina con la giornata dedicata...
Maladies Rares Tour est un programme de sensibilisations et d’éducation sur les places publiques de cinq villes en Cote d’ivoire...
Papa Francesco riceve in udienza privata una delegazione di UNIAMO – Federazione Italiana Malattie Rare Presenti oggi in Vaticano 100...
Exhibition of panels and posters on intractable epilepsy and rare/intractable diseases
In 2021, GLI successfully launched the caregiver summit and the A3 symposium that allowed patients, families, and caregivers to discuss...
This is a virtual walk to raise awareness and fundraise for APS Type 1 research and education in association with...
Die Kunstaktion »Selten allein« … zeigt Selbstporträts, die Menschen mit seltenen Erkrankungen (SE) in den letzten Monaten und Jahren gemalt,...
In the run-up of Rare Disease Day, Chan Zuckerberg Initiative presents: No Ordinary Campaign at the Presidio Theatre in San...
Sign up, get sponsored and rock bad hair for a good cause on Feb 28 and you’ll make an incredible...
With the symbolic painting of hands and posters the teachers and the students sent a message for unreserved support and...
Conferenza Stampa di lancio del tram Sirio della tranvia #uniamoleforze #rarediseaseday. Grazie ab Eugenio Giani , Simone Bezzini Serena Spinelli...
– Lectures by University Researchers – Lecture by RDD Secretariat – Lectures by companies – QA session
Jornadas de sensibilización y concienciación sobre la realidad de las enfermedades poco frecuentes, previstas para los sábados de febrero por...
Daily posts on facebook (LBioMiT). All of February and early March. Eyes on You: LHON – avarias na fábrica de...
– Introduction: Introduction of each family and student staff member. Determination of student staff responsibilities. – First contact between the...
Oggi pomeriggio presso il nostro liceo si è tenuto un interessante momento formativo per i nostri alunni, rivolto particolarmente agli...
– RDD Panel Exhibit – Marche
Patients from NoRo Center and NoRo staff will organize raising awareness activities with children in schools and kindergartens, including a...
Conference will be focused on social inclusion, home care and monitoring patients with rare diseases.
Quem vê cara, não vê dor! Na exposição fotográfica que está no metrô de SP neste mês você vai conhecer...
Per celebrare la Giornata delle malattie rare 2023, ACMT-Rete, associazione di pazienti affetti da Charcot-Marie-Tooth, promuove il concorso «Parla di...
#28DaysOfRare awareness campaign online on social media @RareGenomicsRSA, @Su_MBHG, @Suhealthsci
ALAN closes the “RaReflections” traveling photo exhibition with a ceremony at the “19 Liberté” building of the Spuerkeess, who is...
In diretta streaming il 1 febbraio dalle ore 10.30 l’evento Uniamo Federazione Italiana Malattie Rare onlus di presentazione della campagna...
In commemoration of Rare Disease Day 2023, MRDS and GCSM (Genetic Counseling Society Malaysia) have joined forces to publish a...
We’re counting down 90 days to RDD! 💜💚💙 #Donations #Humanitarianevents In anticipation of February 28 2023-International Day of Rare Diseases...
Samuil’s Fortress, Ohrid Gymnasium OSU “St. Kliment Ohrid OEMUC “St. Naum Ohridski” SOSU “St. Cyril and Methodius” all elementary schools,...
Join us for our 8th annual Rare Disease Day virtual race to benefit the National Organization for Rare Disorders (NORD)...
ALD Makes Me Blue is a collaborative fundraising coalition among international ALD organizations. It is the “Brain Child” of a...
Nous lançons le challenge #partagetescouleurs, cela consiste pour la journée internationale des maladies rares de partager jusqu’au 28 février, –...
A post will be uploaded on a daily basis with statistical information about rare diseases and testimonies from our members,...
RDD Japan secretariat Kickoff YouTube live
Coffin-Lowry Syndrome Association, Romania is organizing a social media campaign to raise awareness on this rare disease. Each day of...
RDD Panel Exhibition
The National Alliance for Rare Diseases Support Malta will launch the nationwide Rare Diseases Campaign 2022 on 31 January 2023....
The National Alliance for Rare Diseases Support Malta will be raising rare disease awareness through its annual Rare in the...
Online social networking
Live Song Performance of my Song for the Rare Disease Day “Proud To Be Rare” at THE bEAR Live Story...
– Soliciting opinions on rare cancers – Rare Cancer Community Raccoon Towel distribution and collection of supportive photos (educational activities)...
The Egyptian society of human genetics and the Medical Genetics Department, Ain Shams University are inviting you to our fourth...
The Rare Diseases Alliance of Latvia (LRSA) is an independent non-governmental organization founded on October 3, 2014, uniting organizations representing various interests of...
– Panel display @ Kumamoto City Hall – Display of books related to intractable and chronic diseases, the array of...
III ed. del Concurso de dibujo Solidario que organiza CONGEN para visibilizar las enfermedades raras en España. Con los 12...
Third edition of the charitable drawing contest organised by CONGEN to raise awareness about rare diseases. The 12 selected drawings...
SpectacuRARE Fest 2023 diselenggarakan oleh Indonesia CARE for RARE Diseases (IC4RD). Terdiri dari rangkaian acara virtual. Acara puncak akan dilaksanakan...
IndoUSrare invites submissions from artists all over the globe for our Annual Rare Art Contest, ART4RARE 2023. This year’s theme...
Patients with Rare Diseses could send happy photos about themseves and were judged by representatives of media for prizes. The...
Science4Rare 2023 – Worldwide Science Contest IndoUSrare, announces Worldwide Science contest – Science4Rare – 2023. Registration: https://bit.ly/science4Rare2023 Calling on all...
Are you ready to get involved in #RareDiseaseDay and help raise awareness for your community? We are here to help!...
STEPS FOR SKYE is a community fitness and fundraising challenge for Sanfilippo Children’s Foundation. It was started in 2020 when...
The event is of an educational nature about the existence of rare diseases, education as well as civil assistance regarding...
The Mosa Conference is a (bio)medical research conference organized by students, for students. This international conference is held annually at...
Annual golf outing for the 3rd floor researchers of Case Western Reserve University School of Nursing.
On May 28, 2022 the Necrotizing Fasciitis Foundation (NFF) will be holding our 4th annual event, the “NFF 2022 Walk...
12pm Casual lunch meet-up for a couple of hours in good company. Please RSVP as seating limited.
In this webinar, you’ll hear the voices of CMD-affected individuals as they share their journeys into adulthood education and independent...
In honor of the over 300 million people worldwide with a rare disease, the UCSF Catalyst Program and Foundation IPSEN...
𝗗𝗶𝘀𝗰𝗼𝘃𝗲𝗿𝗶𝗻𝗴 𝗮 𝗰𝘂𝗿𝗲 𝗳𝗼𝗿 𝗟𝗠𝗡𝗔: 𝘊𝘶𝘳𝘳𝘦𝘯𝘵 𝘴𝘵𝘳𝘢𝘵𝘦𝘨𝘪𝘦𝘴, 𝘤𝘳𝘢𝘻𝘺 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘧𝘶𝘵𝘶𝘳𝘦 𝘤𝘰𝘭𝘭𝘢𝘣𝘰𝘳𝘢𝘵𝘪𝘰𝘯𝘴 A Scientific Network Session focused on Lamin A/C...
Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
“95” Rare Alliance Greece illuminates the Municipal Library of Kozani in honor of Rare Disease Day, Greece.
The course is aimed at professionals, students and all those interested in knowing the world around a minority disease. Theis...
Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
Dans le cadre de la Journée internationale des maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
La Federación Española de Enfermedades Raras (FEDER) ha seleccionado en esta ocasión la comunidad autónoma de Castilla y León, que...
WEBINAR Patient Family Exchange Meeting
La Federación Mexicana de Enfermedades Raras (Femexer) desde México y las federaciones más importantes del resto de Latinoamérica estamos trabajando...
Pour la 2ème année consécutive, la Plateforme d’expertise maladies rares Paris Nord a le plaisir de vous proposer un webinaire...
Dans le cadre de la Journée internationale des Maladies rares, la Plateforme régionale PRIOR maladies rares vous invite à participer...
3 online lectures on ARVC research with following Q&A
Educational lecture for students is an event which purpose is to introduce pharmacy and medical students with rare diseases. The...
Charity Match of Basketball beetwen Morabanc Andorra and Breogan of the professional ACB spanish league. Some actions of the match...
More than 80 countries take part annually in Rare Disease Day in support of the millions of affected individuals worldwide....
WEBINAR Online Well Festa 2022 with RDD in Chiba
A day to bring together patients, families and clinicians and discuss the latest research on Incontinentia Pigmenti. So that on...
Join FOCUS and the MECP2 Duplication Foundation for a Rare Disease Day carnival from 1:30-3:30 pm on March 5th!
As a part of rare diseases day , Aster MIMS neuromuscular center is conducting an awareness programme for children living...
Kooperationspartner: Landeshauptstadt Mainz, AHC18+ e. V. KISS Mainz (Kontakt- und Informationsstelle für Selbsthilfe) und ACHSE e. V. (Allianz Chronischer Seltener...
A l’occasion de la Journée Internationale Maladies Rares, le service génétique du CHU de Caen, la filière AnDDI-Rares, EURORDIS, et...
FDA will host a virtual public meeting on March 4, 2022 to join the global observance of Rare Disease Day....
Online – Veranstaltung
L’obiettivo dell’evento è illustrare le attività condotte nel settore delle malattie a livello regionale e internazionale e sensibilizzare al lavoro...
In celebration of Rare Disease Day, H4B Boston is thrilled to be hosting the Living Rooms of Rare virtual event:...
Inventemos el mañana, en vez de preocuparnos por lo que sucedió ayer. Steve Jobs IAE Business School, Hospital Universitario Austral,...
El último día de febrero se conmemora el Día Internacional de las Enfermedades Raras, o Enfermedadea de Poca Frecuencia, Enfermedades...
Jornada de Capacitacion en Enfermedades Poco Frecuentes con la organización de Corazones Solidarios.
An online meeting to inform physicians and families about the recent activities in the field of rare diseases, from the...
“95” Rare Alliance Greece co-organizes with “Health Daily” the 2nd INTERNATIONAL CONFERENCE ON RARE DISEASES: Greek Chapter, under the patronage...
Come orientarsi nel mondo delle Malattie Rare? Questo è un dilemma a cui abbiamo cercato di trovare una risposta. In...
In honor of Rare Disease Day 2022, we will be lighting up our screens with a #LightUpForRare video, and chatting...
A virtual conference held by the Coordinating Center for Rare and Undiagnosed Diseases, Hospital of Lithuanian University of Health Sciences...
Be Rare Spirit Day, which was planned, organized, and hosted by Abigail Villarreal will take place at Thomas Jefferson High...
We illuminated our school building with the colors of rare diseases
Illumination of Wait Chapel at Wake Forest University in honor of Rare Disease Day in USA.
Illumination of Wasserturm am Südgelände der Berliner Gärten der Welt in honour of Rare Disease Day in Germany
The most important museum of art of Andorra participates in the building illumination for rare disease day.
Illumination of VNG AG Hauptsitz Leipzig in honour of Rare Disease Day in Germany
Illumination of Gori Victory Memorial in honor of Rare Disease Day in Georgia.
Lighting up the Wasl Dome which is the beating heart of Expo 2020 Dubai !
Illuminazione del Torrione AST Associazione Sclerosi Tuberosa e Associazione Sindrome di Williams E.R.
The University College building at Western University will be illuminated in honour of Rare Disease Day 2022!
With the help of Beck-Fahrner syndrome families, six Minnesota landmarks will be joining the global chain of lights by illuminating...
Illuminazione del Municipio
Illumination of the Wells Fargo Tower in honor of Rare Disease Day in the United-States.
Illumination of Victoria Bridge in honor of Rare Disease Day in Australia.
Join our Hybrid Event on the 28th of February in commemorating #RareDiseaseDay2022 by helping us raise awareness about rare diseases...
Illumination of Vereinshaus Junge Linde in honour of Rare Disease Day in Germany
Illumination of Venado Tuerto in honour of Rare Disease Day in Argentina
Illumination of Vecchia Sede Comunale in honor of Rare Disease Day in Italy.
Illuminazione della Torre dell’Orologio e la Fontana di Bellerofonte in onore della Giornata delle Malattie Rare
FEMEXER, la UNAM y el Museo de la Mujer se unen en un conversatorio fresco y desenfadado para tratar un...
llumination of the City Hall (Urząd Miejski) in Bytów in honour of Rare Disease Day in Poland. It will happen...
Duna Aréna (Danube Arena), the world-class swimming and water sports complex overlooking the Danube, will be the first ever building...
Illumination of Wells Fargo Duke Energy Center in honor of Rare Disease Day in USA.
The last day of February is recognized as Rare Disease Day. We at SickKids, are proud to join the many...
The Duke Consortium for Inflammatory Breast Cancer will be tabling on the Bryan Center Plaza from 10am to 2pm in...
Illumination of Wolkenhain der Berliner Gärten der Welt in honour of Rare Disease Day in Germany
Lights on Rare Disease – Forlì will light up of rare disease colours
Lights on Rare Disease – Firenze will light up of rare disease colours
Lights on Rare Disease – Municipality of Ferrara, in cooperation with Teatro Comunale di Ferrara, will light up of rare...
Lights on Rare Disease – Cuneo will light up of rare disease colours
Lights on Rare Disease – Cittadella will light up of rare disease colours
Lights on Rare Disease – Barletta will light up of rare disease colours
Date: February 28, 2022 Cause: International Rare Disease Day Colour: Pink, blue and green The lighting begins at sunset, however...
Medical Universities, City Halloween, Centers for Rare Diseases and other buildings will be illuminated for RDD, on the evening of...
Illumination of Zentrum für Seltene Erkrankungen am Uniklinik Freiburg in honour of Rare Disease Day in Germany
We invite you to join us for this year’s #rddatindousrare, on the theme Celebrating 30 Years of Rare Disease Treatment,...
Illumination of Zakim Bridge in honor of Rare Disease Day in USA.
Illumination of Yagan Square in honor of Rare Disease Day in Australia.
Illumination of Wrocław in honour of Rare Disease Day in Poland Tarczyński Arena Wrocław | Wrocław Opera Wrocławska | Wrocław okna w Sali...
Illumination of Wodonga Water Tower in honor of Rare Disease Day in Australia.
ERN ReCONNET, the European Reference Network for Rare and Complex Connective Tissue Diseases, renews its appointment with the illumination of...
Illuminating the emblematic Council House of the City of Nottingham.
Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that...
In the year 2021-2022, Rare Disease Genetics and Genomics Research at Centre for Omic Sciences, Islamia College Peshawar has successfully...
Illumination of Willis Tower; Willis Towers Watson in honor of Rare Disease Day in USA.
RDD street campaign
Der Haupteingang des Krankenhauses wird in den Farben des Rare Disease Day erleuchten und so auf die Arbeit der Klinik...
Indian Pharmacy Graduates Association IPGA-Andhra Pradesh State Branch is conducting an online Webinar on eve of world Rare Diseases Day...
On Rare Disease Day 28.02.2022 1:00 PM EST Documentary Short Film Premier A Mother & Son Journey of Healing created...
Art can make people invisible visible, with their strength and beauty. Djamila Beldjoudi-Calin is an artist photographer and mother of...
Illumination of William Grundt Memorial Library in honor of Rare Disease Day in Australia.
Illumination of Wharton Reef Lighthouse in honor of Rare Disease Day in Australia.
Para ULAPA (Unión Latinoamericana de Pacientes con Enfermedades Raras), el Dr. Santiago March Mifsut de Funsalud explica los avances de...
Illumination of Uniklinikum Magdeburg in honour of Rare Disease Day in Germany
Rare Diseases Czech Republic will publish a special bulletin dedicated to special project of some of our member patient organizations...
Illumination of Uniwersytet Rzeszowski, Instytut Biologii i Biotechnologii in honour of Rare Disease Day in Poland
Illumination of Trafalgar Bridge in honor of Rare Disease Day in Australia.
Illumination of Ulivo al centro di Falvaterra in honor of Rare Disease Day in Italy.
Illumination of The Navigators at the Koombana Drive roundabout in honor of Rare Disease Day in Australia.
The City of Winnipeg Mayor and Council are lighting up the tourist “Winnipeg sign” at the Forks in the Rare...
“95” Rare Alliance Greece illuminates the monument of the White Tower in honor of Rare Disease Day in Thessaloniki, Greece.
“95” Rare Alliance Greece illuminates the Τown Ηall of Veroia in honor of Rare Disease Day in Greece.
“95” Rare Alliance Greece illuminates the Town Hall of Florina in honor of Rare Disease Day.
Illumination of Quite the Big Litvínov Theater in honour of Rare Disease Day in Czech Republic.
A week campaign dedicated to Rare Liver Diseases. One disease will be presented each day with contributions from both the...
Illumination of The SUNY Plaza in honor of Rare Disease Day in USA.
On the 28th of February, Trinity College Dublin will be lit up in purple as we celebrate Rare Disease Day...
“95” Rare Alliance Greece illuminates the stone clock in the municipality of Piraeus in honor of Rare Disease Day in...
“95” Rare Alliance Greece illuminates the Rio – Antirrio Bridge in honor of Rare Disease Day in Greece.
Join us February 28th for a presentation with Dr. Tim Call from the Mayo Clinic. The Mayo Clinic is an...
Illumination of the Parliament House in honor of Rare Disease Day in Australia.
“95” Rare Alliance Greece illuminates the Οld Τown Ηall of Mitilini in honor of Rare Disease Day in Greece.
“95” Rare Alliance Greece illuminates the monument in the Three Admirals’ Square in honor of Rare Disease Day in Pylos,...
“95” Rare Alliance Greece illuminates the building of the region of Kozani, in honor of Rare Disease Day, Greece.
Awareness and wellness walk where ribbons will be handed out in the colors of rare disease day!
Illumination of Mining house in honour of Rare Disease Day in Czech Republic.
Illumination of the University Health Robert B. Green Campus in honor of Rare Disease Day in the United States.
“95” Rare Alliance Greece illuminates the Innovathens building of Technopolis City of Athens in honor of Rare Disease Day, Greece.
Illumination of City Hall Hradec Králové in honour of Rare Disease Day in Czech Republic.
Illumination of The Helmsley Building, 230 Park Ave NYC in honor of Rare Disease Day in USA.
Sensibiliser et générer le changement pour les 300 millions de personnes dans le monde vivant avec une maladie rare, leurs...
No hay en México cifras exactas, confiables, basadas en suficiente evidencia como para hacer cálculos nacionales, ya que el censo...
“95” Rare Alliance Greece illuminates the Fountain in Omonoia Square in honor of Rare Disease Day in Athens, Greece.
Participe do nosso Vl Fórum Do Dia Mundial Das Doenças Raras de Uberlândia ! O Dia Mundial da Doença Rara...
Illumination of Elementary school and Practical school in honour of Rare Disease Day in Czech Republic.
Загорается для редких💥 Light up for rare 💥 Челябинск первый из российских городов присоединится к глобальной акции в поддержку людей...
Illumination of The Drum Theatre in honor of Rare Disease Day in Australia.
“95” Rare Alliance Greece illuminates the building of the region of Crete, in honor of Rare Disease Day in Heraklion,...
We are excited to be hosting a hybrid event to celebrate Rare Disease Day. Patients from our Genetics Division will...
Illumination of Tbilisi TV Tower in honor of Rare Disease Day in Georgia.
Illumination of Torre dell’acquedotto in honor of Rare Disease Day in Italy.
Illumination of the Trinity College in honor of Rare Disease Day in Ireland.
Será una reunión por zoom, cuyo objetivo es concientizar a médicos sobre la existencia de enfermedades raras e Endocrinologia, donde...
Lights on Rare Disease – Lecco will light up of rare disease colours
En el mes de Febrero se llevó a cabo el evento virtual ‘Enfermedades Raras en Latino América: diálogo con expertos’...
Rare disease awareness event
Illumination of Townsville Sign in honor of Rare Disease Day in Australia.
We are lighting up Townsville landmarks; Queensland Country Bank stadium Townsville sign Victoria Bridge Old Magistrate’s court Central Park boardwalk...
Illumination of Tour Tanguy in honour of Rare Disease Day in France
Illumination of Tour Bellanda in honour of Rare Disease Day in France
Illumination of Torretta sede dell’Ufficio Territoriale in honor of Rare Disease Day in Italy.
Illumination of Torre Normanna – Rutigliano (Ba) in honor of Rare Disease Day in Italy.
Illumination of Torre Mangana in honour of Rare Disease Day in Spain
Parliament house will illuminate blue, green and purple for rare disease day.
Illumination of Torre del Castello in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates Μunicipal theatre in honor of Rare Disease Day in Pefki, Greece.
Dunya Nadir Hastaliklar Gunu, Nadir Hastaliklarda Tani Yolculugu temasi ile 28 Subat 2022 tarihinde cevrimici etkinlik olarak duzenlenecek.
Illumination of Torre dei Da Pendolasco in honor of Rare Disease Day in Italy.
Welcome to Rare Disease Day 2022 at Royal Holloway. We hope you can attend. On Monday 28 February 2022, 10...
Community Heroes and advocates partake in the observance to raise awareness of rare diseases and their impact on patients and...
Illumination of Torre Civica di Muscoline in honor of Rare Disease Day in Italy.
Illumination of Torre Civica in honor of Rare Disease Day in Italy.
Illumination of Torre civica in honor of Rare Disease Day in Italy.
Illumination of Torre Civica in honor of Rare Disease Day in Italy.
Illumination of Torre Civica in honor of Rare Disease Day in Italy.
Illumination of Torre Campanaria (Il Campanone) in honor of Rare Disease Day in Italy.
A flashmob organized by ‘ Victor Babes’ University of Medicine and Pharmacy in partnership with the Dance Club ‘Bolero’.
Illumination of Tokyo Tower between 18.00-24.00 (Japan time) in honor of Rare Disease Day in Japan.
Carlos David Peña Aragón, mejor conocido como Toto, nos platica qué representa vivir como persona con una enfermedad rara en...
Illumination of Theater Dessau in honour of Rare Disease Day in Germany
Lights on Rare Disease – L’Aquila will light up of rare disease colours
Lights on Rare Disease – Potenza will light up of rare disease colours
Lights on Rare Disease – Locri will light up of rare disease colours
This year, the Chihuahuan association of rare diseases in conjunction with institutions, schools and doctors from different parts of Mexico...
RARE DISEASE DAY
NORD invites you to wear your favorite zebra print shirt or a striped scarf and meet online for a community...
An online chat/video sharing information about POMC and how it effects our life
Five films will be shown on consecutive Monday’s, starting on Rare Disease Day, and will continue until Monday 28th March....
Students from different Departments of University participate in it
Illumination of Broadmeadows Town Hall in honor of Rare Disease Day in Australia.
In 2021 we were able to perform whole exome sequencing of more one hundred index patients with Rare Disease in...
This lesson plan is a proposal that we address to the teachers of our schools. The goal is to help...
During the classes we gave a support for the Rare through out different kind of activities like singing songs, playing...
We will be selling bracelets and accepting donations to be donated to NORD for national Rare disease day.
The Oxford-Harrington Rare Disease Centre (OHC) invites you to recognize Rare Disease Day by attending its Rare Disease Day Webinar...
On Monday, the sky lights up a little extra over Lilla Amundön when Ågrenska draws attention to the Rare Day....
“95” Rare Alliance Greece in collaboration with the Children’s Hospital “H Agia Sofia”, which actively supports the National Awareness Campaign...
The Rare Links webinar series aims to provide a platform where national and international experts can share their knowledge and...
Her yıl Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN) olarak farklı kurum, kuruluş ve toplumsal organizasyonlardan...
Oggi GIORNATA MONDIALE DELLE MALATTIE RARE: partecipa alla RARE RUN BOLOGNA – Edizione Virtuale. Sostieni con noi tutti i bimbi...
Nanomed Spain together with Hospital Sant Joan de Déu and Sant Joan de Déu research institute is organizing the third...
Gaucher Awereness Workshop with residency student of internal disease department was applied at 28th of February. Colorful hand-paintings were carried...
The logo of the World Rare Disease Day will be projected on the Waterfalls in Edessa, Greece by “95” Rare...
The logo of the World Rare Disease Day will be projected on the Mikis Theodorakis Theater in Chania, by “95”...
Sesimizi duyurabilmek adına bir sosyal medya çağrısı düzenleyerek ve sizlerin bulunmuş olduğunuz kurumlarda kendi birimlerinize bu çağrıyı bildirmeniz neticesinde 28...
Join SWAN Australia, Carer Gateway – Wellways Australia and Community Junction in raising awareness about rare diseases on Rare Disease...
Illumination of the Consortium Lounge in honor of Rare Disease Day in Australia.
Evento de concientización, medios de prensa, radio, TV, prensa escrita. Redes sociales, con el apoyo de importantes influencers.
A Junta de Freguesia de Agualva Mira Sintra no dia 28 de fevereiro irá assinalar o Dia das Doenças Raras...
يوم توعوي، للعامة .. عن بعد موجه للجمهور، يهدف الى زيادة وعي المجتمع عن الأمراض النادرة وطريقة التعامل معها.. https://teams.microsoft.com/l/meetup-join/19%3ameeting_ZDg4OGIxYzMtNDJkMy00NDc0LWI4MzItYWExNzY2N2ZlMzNi%40thread.v2/0?context=%7b%22Tid%22%3a%22b84725a5-0373-4d77-9259-051685769bf2%22%2c%22Oid%22%3a%2209c630e6-d1c9-482e-91b3-60037840ef5d%22%7d
Anglicare WA Headquarters Lights Up and hosts a light visual show like no other by Roly at Frankensound using the...
Please join us for a special support event in honor of Rare Disease Day. This will be a great opportunity...
Su richiesta della Rete Regionale A.Ma.Re Puglia, una rete associativa a cui aderiscono 27 associazioni di pazienti di malattie rare...
Um quiz no Facebook com questões sobre doença rara mitocondrial, podendo ganhar 3 prémios! | A quiz on Facebook with...
La 15e édition de la Journée internationale des maladies rares aura lieu le lundi 28 février. Une nouvelle fois, la...
This Rare Disease Day (28 Feb 2022), join women from three countries creating change in the world of Rare Disease...
The Oxford-Harrington Rare Disease Centre invites you to a webinar: Advancing novel treatments for neurological rare diseases. Speakers include Richard...
In classrooms, offices and parks in Coolum and all over the world, dress in your brightest rainbow stripes on International...
Art Contest – Send your drawings by March 31 – By post: Fondation René Touraine // Hôpital Necker – Enfants...
Join the global Rare Disease Day event organised by the NGO Committee for Rare Diseases, the Ågrenska Foundation, RDI, and...
In occasione della Giornata Mondiale delle Malattie Rare, il filo diretto di Ospedale Incontra sarà con l’ematologo Roberto Santi, nuovo...
We are opening our cafe for the very first time and asking our customers to get out their animal prints...
On-line conference. Rare Diseases UAE-Israel Virtual Conference Program
The Swedish Edema Association manifests Rare Day 28 February 18:00 -19:15 with a webinar for members on primary lymphedema. Pia...
Researchers have identified more than seven thousand rare diseases, but effective treatments are available for fewer than ten percent. Drug...
While FMD is thought of as Underdiagnosed we are Rare until proven otherwise. Help us support Rare Disease Day on...
Show your support for #RareDiseaseDay by lighting up your home, office, or school on 28 February! By coming together to...
On this year’s International Day of Rare Diseases, the Lithuanian Association of Patients with Genetic Neuromuscular Diseases “Sraunia” invites to...
Carry RDSS beneficiaries hopes and wishes with you as you complete the 7.7km challenge either by yourself, with a team...
The NGO called Cetatea Voluntarilor is the constant partner of Romanian National Alliance for Rare Diseases in organizing events to...
This year for Rare Disease Day 2022 we are calling on everyone to help the rare disease community be united...
Der Lehrstuhl für Medizinmanagement und Versorgungsforschung der Universität Bayreuth lädt Sie herzlich zu einem Informationsabend zu den Erkrankungen SMA und...
In 2022, the eighth annual International Rare Disease Day online conference will take place at the Sheba Medical Center, with...
Join the first inclusive virtual Rare Diseases Run 2022! The event, initiated by the German patient organization SYNGAP Elternhilfe e.V.,...
Shining a Light on Genetic Diagnosis, Monday 28 February, 6-7.30pm Institute of Genetics and Cancer, the University of Edinburgh, in...
MANY, STRONG, PROUD – ein Lauf zum „Tag der seltenen Erkrankungen“! Vom 28.2.-6.3 findet der Rare Diseases Run als virtueller...
People living with genetic conditions and cancers are at the heart of our research at the Institute of Genetics and...
Un accordo di collaborazione tra Orphanet, Ospedale Pediatrico Bambino Gesù e OMaR e tante iniziative rivolte ai pazienti e alle...
Oman Rare Diseases Group is going to conduct an event on 28th of February to aware the community of rare...
In time for #RareDiseaseDay, our host Lelainia and Founder and Executive Director of the Sumaira Foundation, Sumaira Ahmed, discuss what...
For #RareDiseaseDay this year, we lit up our building in the colours of Rare Disease Day to spread awareness locally...
Sam Fillingham, CEO of PIP-UK has arranged for her local town hall in Buxton, Derbyshire in the Peak District to...
In occasione della XV Giornata Mondiale delle Malattie Rare, il giorno 28 febbraio 2022 dalle ore 8.45 alle ore 16,...
Ankara Kent Konseyi Halk Sağlığı Çalışma Grubu’nun 1 yıla yakın süredir her ayın son çarşambasında düzenlediği “Kent ve Sağlık Buluşmaları”...
Lights on Rare Disease – Mantova will light up of rare disease colours
Join the global initiative calling on everyone to help raise awareness of the rare disease community and unite all of...
An online event to commemorate International Rare Disease Day Goals of the Event: – To showcase our new Newcastle Centre...
The event is a digital inauguration ceremony for Center for Rare Diseases West (Gothenburg) with invited guests like the Swedish...
Limited Awareness campaign n launch of a website for connecting families affected with rare diseases, bridging gaps in diagnosis/treatment and...
“A rare friend” is a special episode of the cartoon series “Leo da Vinci” and the idea was due to...
Illuminazione
February 28 is the day of awareness of rare diseases, and the Rebeca Faith-Hope-Love Association marks this day with this...
Due to International Rare Disease Day, enjoy our Online Charity Concert from Monday 28.02.2022 to Sunday 06.03.2022 at 7:00 p.m...
Il centro commerciale Belicittà, bene confiscato alla criminalità organizzata, ha messo a disposizione un desk informativo in galleria per far...
The Arkansas State University clock tower will be lit up in honor of Rare Disease Day.
Due to International Rare Disease Day, you can enjoy our Online Charity Concert from Monday 28.02.2022 to Sunday 06.03.2022 at...
First Inflammatory Neuropathies’ Virtual Conference in Spanish.
Walk a lot
Awareness & Management of Rare Diseara Webinar by Women’s Forum of IPGA AP
A free, open-to-all online event to: • To showcase our new Newcastle Centre for Rare Disease Research, highlighting our mission...
Con motivo del Día Mundial de las Enfermedades Raras , estaremos con el puesto solidario en la caseta de Santa...
Lights on Rare Disease – Vercelli will light up of rare disease colours
Lights on Rare Disease – Trapani will light up of rare disease colours
Lights on Rare Disease – Rovigo will light up of rare disease colours
Lights on Rare Disease – Rimini will light up of rare disease colours
Lights on Rare Disease – Fontana del Teatro Valli will light up of rare disease colours
Lights on Rare Disease – Procida will light up of rare disease colours
This year we look forward to celebrating #RareDiseaseDay2022! Come enjoy a chat 7 pm EST, February 28, 2022. Speak with...
Rare Disease Day raises awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives....
In this conference we decided to talk about accessibility and what this means for rare patients, especially in these 2...
Lights on Rare Disease – Pistoia will light up of rare disease colours
Lights on Rare Disease – Montagnana will light up of rare disease colours
Illuminations for Rare Disease Day 2022 in Poland: City Hall | Bytów Neptune’s Fountain | Gdańsk Olivia Hall |...
Banja Luka City, along with hundreds of other cities was a part of the “Chain of light” which aims to...
On February 28 in the Rooms Hotel Tbilisi the press conference dedicated to the Rare Disease Day has been held....
Illumination of Torre comunale di Lacco Ameno in honor of Rare Disease Day in Italy.
Flag raising ceremony at Ottawa City Hall, including hot drinks, donuts, vendors, and ‘NEW’ this year, a skate-a-thon on the...
Wydarzenie jest organizowane cyklicznie z okazji Dnia Chorób Rzadkich. Zapraszamy naukowców, lekarzy, diagnostów laboratoryjnych, pacjentów i inne osoby zainteresowane tematem.
Conversatorios con especialistas, personas que viven con enfermedades raras y personas cuidadoras.
9:30-13:30h Webinar with the participation of several entities. The event has three main sessions. Organização: Mirror Group Português do Programa...
Das Forum ist eine virtuelle Informationsveranstaltung insbesondere adressiert an Patienten. Die Referenten sind sowohl Ärzte wie auch Betroffene, die aus...
4th Rare Disease Day Training Meeting will be held online with the attendance of Turkish Ministry of Health, academics, members...
Reading of OEIS heritage
Mes Raro consists in two main activities: Mesas Raras Live and Arte Raro, the first one will be a series...
In Rwanda, we will: i. make a Rare diseases awareness presentation online and onsite at the “centre-Alliance”, ii. Illuminate some...
We are attempting to row 30million meters in honor of the 30million living with rare disease in the US. Anyone...
🙌🏻 𝐃𝐢́𝐚 𝐌𝐮𝐧𝐝𝐢𝐚𝐥 𝐝𝐞 𝐥𝐚𝐬 𝐄𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬 𝐑𝐚𝐫𝐚𝐬 💜💜💜👚 👚👚 Los invitamos al FORO: 𝐄𝐥 𝐚𝐛𝐨𝐫𝐝𝐚𝐣𝐞 𝐝𝐞 𝐥𝐚𝐬 𝐩𝐞𝐫𝐬𝐨𝐧𝐚𝐬 𝐜𝐨𝐧 𝐞𝐧𝐟𝐞𝐫𝐦𝐞𝐝𝐚𝐝𝐞𝐬...
Con todo respeto y cariño, dedicamos este video a la amada memoria de Elizabeth, Valente y Emmanuel Martínez Pérez, los...
Online ZOOM Event: NEMOS lädt ein zum offenen Gespräch mit Experten und Expertinnen für alle Betroffenen und Interessierten rund um...
On February 28, 2022 we will be highlight throughout the day individuals and organizations helping and seeking a cure to...
We will be placing colorful Pinwheels in the lawn of the capital to signify patients who live in or have...
La Red Mexicana de Enfermedades Raras (ReMexER) se une a la celebración del Día de las Enfermedades Raras para informar,...
Brampton City Hall will be illuminating the Clock Tower on February 28th 2022 in Purple and Blue to recognize Rare...
The H2020 project ImmunAID is intended to tackle the problem of undiagnosed, misdiagnosed and underdiagnosed Systemic Autoinflammatory Diseases (SAID). General...
Birt Hogg Dubbe Syndrome patient, marathoner and now capable to an open water maratón swim.. nothing is impossible! Believe in...
La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...
Join the GSNV in celebration of Rare Disease Day with a virtual journey to focus on “Global Themes, Local Action”....
Show and share RD colours to start the awareness against rare diseases, we decide to illuminate our home (inside and...
La Iniciativa Pensemos en Cebras México, Mujer México y Femexer, en conjunto con la Comisión de Salud de la Cámara...
Este foro busca ayudar a la visibilización de estas condiciones, proponer alternativas para mejorar el diagnóstico y manejo de las...
Wear jeans and learn more about Rare Disease Day to raise awareness for the many rare diseases in our area.
We will light the national museum for the first time in lebanon
Register here: https://us06web.zoom.us/webinar/register/WN_r6WWl_ftRb2xySVM6DrDiA aHUS (atypical hemolytic uremic syndrome) is a rare disease that causes too many blood clots to form...
TOMAS Y RODRIGO ABANDERADOS DE LAS EPOF Argentina Por séptimo año consecutivo, 28 febrero en el #DíaMundialEPOF en el arrío...
The Cape Wheel is a giant observation wheel that offers a spectacular 360 panoramic view of Cape Town from the...
Illumination of Czech Republic Pavilion EXPO 2020 in honour of Rare Disease Day worldwide.
Iluminación en color violeta
Illumination of Collegium Carolinum in honour of Rare Disease Day in Czech Republic.
Illumination of Edifício dos Paços do Concelho – Funchal in honor of Rare Disease Day in Portugal.
Illumination of Mooroopna Water Tower in honor of Rare Disease Day in Australia.
Illumination of the clock tower in honour of the International Rare Disease Day and to celebrate the end of Rare...
Illumination of Mounts Street Bridge in honor of Rare Disease Day in Australia.
Rare Disorders NZ will be launching a White Paper on the results of their biannual NZ Voice of Rare Disorders...
Open classes – seminar :”You are not alone. Together we will be strong!”
Illumination of Municipality of San Michele al Tagliamento in honor of Rare Disease Day in Italy.
Illumination of Municipio Concordia Sagittaria (Ve) in honor of Rare Disease Day in Italy.
Illumination of Edifício dos Paços do Concelho – Portalegre in honor of Rare Disease Day in Portugal.
Illumination of Municipio di Aci Sant’Antonio in honor of Rare Disease Day in Italy.
Illumination of Municipio di Fossalta di Portogruaro in honor of Rare Disease Day in Italy.
Illumination of Municipio di Gravellona Toce in honor of Rare Disease Day in Italy.
Illumination of Edifício dos Paços do Concelho – Guarda in honor of Rare Disease Day in Portugal.
Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.
Illumination of Monumento alla fisarmonica e al lavoro Castel Fidardo (AN) in honor of Rare Disease Day in Italy.
Illumination of Municipio di Ischia in honor of Rare Disease Day in Italy.
Illumination of Municipio di Montagna in Valtellina in honor of Rare Disease Day in Italy.
Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.
Illumination of Edifício dos Paços do Concelho in honor of Rare Disease Day in Portugal.
Illumination of Municipio di Pistoia in honor of Rare Disease Day in Italy.
Illumination of Edifício dos Paços do Concelho – Angra do Heroísmo in honor of Rare Disease Day in Portugal.
Illumination of Municipio di Portogruaro (Ve) in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Lorca in honour of Rare Disease Day in Spain
Illumination of Municipio di Prato Sesia in honor of Rare Disease Day in Italy.
Illumination of Municipio di pressana in honor of Rare Disease Day in Italy.
Illumination of Municipio di Verbania in honor of Rare Disease Day in Italy.
Illumination of Municipio schermo in honor of Rare Disease Day in Italy.
Illumination of Municipio Teglio Veneto in honor of Rare Disease Day in Italy.
Illumination of Monumento dei caduti di Otranto in honor of Rare Disease Day in Italy.
Illumination of Monumento alla “Mamma Ciociara” in honor of Rare Disease Day in Italy.
Illumination of Museo de Arte Contemporáneo / Fundación Díaz Caneja de Palencia in honour of Rare Disease Day in Spain
Illumination of Monash Park Tree in honor of Rare Disease Day in Australia.
Illumination of Emergency University Hospital Bucharest in honor of Rare Disease Day in Romania.
BioPartner, VICO & Ntrans, are joining forces again this year to help raise awareness for Rare Disease Day (RDD), with...
Illumination of Melbourne Cricket Ground in honor of Rare Disease Day in Australia.
A las 12’00 del mediodía, en la fachada del Ayuntamiento de Gandía, se leerá una manifiesto de apoyo a las...
Illumination of Mid Hudson Bridge in honor of Rare Disease Day in USA.
Illumination of Mieczysław Karłowicz Philharmonic Concert Hall in Szczecin in honour of Rare Disease Day in Poland
In preparation to the Rare Disease Day 2022, we are pleased to invite you to a special webinar on Monday, Feb 28th from...
Illumination of Ministry of Health in honor of Rare Disease Day in Cyprus.
Illumination of Minnesota Bridge Anthony Falls in honor of Rare Disease Day in USA.
Illumination of Electricity Authority of Cyprus – Larnaca Offices in honor of Rare Disease Day in Cyprus.
On-line webinar on pediatric scleroderma organized by APMARR – Associazione Persone con Malattie Reumatologiche e Rare (Italian National Association of...
Illumination of Mole Antonelliana – Torino in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Campos del Río in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Casares in honour of Rare Disease Day in Spain
Illumination of Edifício dos Paços do Concelho – Santarém in honor of Rare Disease Day in Portugal.
Illumination of Ayuntamiento de Cuenca in honour of Rare Disease Day in Spain
Illumination of Monumento “La Mamma Ciociara” in honor of Rare Disease Day in Italy.
Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Dos Hermanas in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Huelva in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Huércal de Almería in honour of Rare Disease Day in Spain
Illumination of Monumento ai caduti in honor of Rare Disease Day in Italy.
Illumination of Monumento ai Caduti in honor of Rare Disease Day in Italy.
Illumination of Monumento ai Caduti di Castiglione della Pescaia in honor of Rare Disease Day in Italy.
Illumination of Monumento ai Caduti sul lavoro in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Jaén in honour of Rare Disease Day in Spain
Illumination of Monumento ai Caduti sul Lavoro – LECCO in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de La Carolina in honour of Rare Disease Day in Spain
Illumination of Edificio de la Consejería de Salud in honour of Rare Disease Day in Spain
Lappia Talo, the iconic building designed by Alvar Aalto and hosting the Rovaniemi Theatre, will be illuminated in honour of...
Illumination of Emigration Museum in honour of Rare Disease Day in Poland
Illumination of Cristo del Otero in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Reocin in honour of Rare Disease Day in Spain
Illumination of Opera architettonica di Rotonda Foschini in honor of Rare Disease Day in Italy.
Illumination of Opera House Timișoara in honor of Rare Disease Day in Romania.
Illumination of Cyprus Telecommunications Authority – Electra Building in honor of Rare Disease Day in Cyprus.
Illumination of Tarczyński Arena Wrocław in honor of Rare Disease Day in Poland.
Illumination of the Optum Frontier Therapies Pharmacy Flint in honor of Rare Disease Day in the United-States.
Illumination of the Optum Frontier Therapies Pharmacy Las Vegas in honor of Rare Disease Day in the United-States.
Illumination of Cyprus Institute of Neurology and Genetics in honor of Rare Disease Day in Cyprus.
Illumination of Ospedale Pediatrico Meyer in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Santa Cruz in honour of Rare Disease Day in Spain
L’équipe de génétique propose des stands d’informations, de jeux et d’activités créatives autour des maladies rares. En association avec la...
“La Gran Guardia si colora di verde, rosa e blu a sostegno delle malattie rare”. Verona, 28 febbraio 2022 Questa...
Illumination of Ayuntamiento de Sevilla in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Totana in honour of Rare Disease Day in Spain
Illumination of Diputación de Ciudad Real in honour of Rare Disease Day in Spain
Illumination of Craneosaurs of Żegluga Szczecińska & Karłowicz Philharmonic Concert Hall in Szczecin in honour of Rare Disease Day in...
Illumination of Pałac Kultury i Nauki (PKiN) in honour of Rare Disease Day in Poland
Illumination of Ayuntamiento de Valencia in honour of Rare Disease Day in Spain
Illumination of Council House in honor of Rare Disease Day in Australia.
Illumination of Comune in Sant’Antonio Abate in honor of Rare Disease Day in Italy.
Illumination of Palacio de la Diputación Provincial de Palencia in honour of Rare Disease Day in Spain
Illumination of Comune di Seveso in honor of Rare Disease Day in Italy.
Illumination of Comune di Rufina in honor of Rare Disease Day in Italy.
Illumination of Palaia in honor of Rare Disease Day in Italy.
Illumination of Comune di Mondovì in honor of Rare Disease Day in Italy.
Illumination of Palais des Beaux-Arts et Préfecture in honour of Rare Disease Day in France
Illumination of Comune di Mestre in honor of Rare Disease Day in Italy.
Illumination of Palais des ducs de Bourgogne in honour of Rare Disease Day in France
Illumination of Dipartimento di Medicina della Università Aldo Moro in honor of Rare Disease Day in Italy.
Illumination of Olivia Hall Gdańsk in honour of Rare Disease Day in Poland fot. redwedding.pl – Piotr Połoczański
Illumination of Museu do Traje – Viana do Castelo in honor of Rare Disease Day in Portugal.
Illumination of North Carolina Wells Fargo Bank and Bank of America in honor of Rare Disease Day in USA.
Illumination of Edifício da Câmara Municipal – Castelo Branco in honor of Rare Disease Day in Portugal.
Illumination of Edifício da Câmara Municipal – Calheta in honor of Rare Disease Day in Portugal.
Illumination of Ayuntamiento de Málaga in honour of Rare Disease Day in Spain
Illumination of Neckarfront Tübingen in honour of Rare Disease Day in Germany
Illumination of Neptune’s Fountain in honour of Rare Disease Day in Poland fot. redwedding.pl – Piotr Połoczański
Lighting up our home in rare diseases awareness colors.
Illumination of Newcastle Clock Tower in honor of Rare Disease Day in Australia.
Interactive workshop for postgraduate trainees of pediatrics on inborn errors of metabolism, highlighting rare disease day and increasing awareness of...
Illumination of Ayuntamiento de Málaga in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Marbella in honour of Rare Disease Day in Spain
Transitar una enfermedad es un camino difícil, pero tener una enfermedad poco frecuente pone el camino cuesta arriba ya que...
Illumination of Ayuntamiento de Palma de Mallorca in honour of Rare Disease Day in Spain
Illumination of NoRo Center in honor of Rare Disease Day in Romania.
Illumination of Northbridge Tunnel in honor of Rare Disease Day in Australia.
Illumination of old Melbourne’s GPO in honor of Rare Disease Day in Australia.
Illumination of Eastern Goldfields Community Centre in honor of Rare Disease Day in Australia.
Illumination of Dziedziniec Urzędu Miasta Poznania wraz z Placem Kolegiackim in honour of Rare Disease Day in Poland
Illumination of Novant Health New Hanover Regional Medical Center – Main Campus Hospital Pedestrian Bridge in honor of Rare Disease...
Illumination of Duomo Reggio Emilia in honor of Rare Disease Day in Italy.
Illumination of Novartis office in Nürnberg in honour of Rare Disease Day in Germany
Illumination of Dreifaltigkeitssäule Rathausplatz St. Pölten in honor of Rare Disease Day in Austria.
Illumination of the Dr. von Hauner Children’s Hospital in honour of Rare Disease Day in Germany
Illumination of Diputación Foral de Álava in honour of Rare Disease Day in Spain
Illumination of Ayuntamiento de Pamplona in honour of Rare Disease Day in Spain
Illumination of TOkna w Sali Sesyjnej w Sukiennicach, Wrocław in honor of Rare Disease Day in Poland.
Illumination of Old Magistrates Court in honor of Rare Disease Day in Australia.
Illumination of Diputación de Jaén in honour of Rare Disease Day in Spain
Sensibilizzazione sul tema delle malattie rare attraverso la lettura di fiabe, flash mob, volo di palloncini e accensione delle luci
Illumination of Medical University Carol Davila Bucharest in honor of Rare Disease Day in Romania.
Illumination of Ayuntamiento de Cádiz in honour of Rare Disease Day in Spain
Illumination of Palazzo Cavarretta – sede del Consiglio Comunale Città di Trapani in honor of Rare Disease Day in Italy.
Illumination of Hospital Marqués de Valdecillo in honour of Rare Disease Day in Spain
“95” Rare Alliance Greece illuminates Headquarters of the Regional Unit of Etoloakarnania in honor of Rare Disease Day in Mesologgi,...
Illumination of Health Insurance Organisation Head Offices in honor of Rare Disease Day in Cyprus.
The Automobile Association are lighting up their head office to represent Pontine Tegmental Cap Dysplasia and Lola who is a...
Illumination of the Henry B. González Convention Center in honor of Rare Disease Day in the United States.
“95” Rare Alliance Greece illuminates the “Umbrellas”, Work of Art by famous sculptor Giorgios Zoggolopoulos in honor of Rare Disease...
Illumination of Historical Arches in honor of Rare Disease Day in USA.
Illumination of Fontana di Piazza Ordelaffi in honor of Rare Disease Day in Italy.
Illumination of Marburg´s Historical University in honour of Rare Disease Day in Germany
Illumination of “El Capitolio” (Capitol of Puerto Rico) – San Juan – in honor of Rare Disease Day in Puerto...
Illumination of Fontana di Piazza della Repubblica in honor of Rare Disease Day in Italy.
Illumination of Horizon Therapeautics global and US headquarters in honor of Rare Disease Day in USA.
Quienes trabajamos en México por las personas que viven con enfermedades raras debemos tener claro cuáles son nuestros derechos.
Lighting up the tallest tower in East Africa, Kenyan style!!
Illumination of Hauptbahnhof Dresden in honour of Rare Disease Day in Germany
Illumination of Hôtel Groslot in honour of Rare Disease Day in France
Illumination of Fontana di Piazza della Repubblica in honor of Rare Disease Day in Italy.
Illumination of Iconic Shine Dome in honor of Rare Disease Day in Australia.
Illumination of Iglica Międzynarodowych Targów Poznańskich in honour of Rare Disease Day in Poland
Illumination of Igreja de Santiago – Óbidos in honor of Rare Disease Day in Portugal.
Illumination of Fontana di Diana Siracusa in honor of Rare Disease Day in Italy.
In Aguascalientes, Mexico, the geneticist doctor of our son Juan Diego, who has Phelan Mcdermid syndrome, managed to light up...
Illumination of Il Campanone della Brianza in honor of Rare Disease Day in Italy.
San Diego County Administration Center, Landmark building, will #LightUpforRare. This lighting was organized by ADCY5.org to raise awareness for all...
https://roanoketower.com/tower-lights/ Light up of city building
In coordination with the National Parks Development Committee, the Rizal Monument was illuminated in purple for Rare Disease Day as...
Illumination of Istituto comprensivo in honor of Rare Disease Day in Italy.
Illumination of Fontana di Corso Vittorio Emanuele II in honor of Rare Disease Day in Italy.
Illumination of AAMI Park in honor of Rare Disease Day in Australia.
Illumination of Acque del fiume della città di Ceprano in honor of Rare Disease Day in Italy.
Illumination of J L Tower in honor of Rare Disease Day in USA.
By partnering with US Bank Stadium in Minneapolis to Light Up For Rare for a 2nd year, the Yaya Foundation...
Illumination of Asamblea Regional de Murcia in honour of Rare Disease Day in Spain
Illumination of Ars Electronica Center in honor of Rare Disease Day in Austria.
Illumination of Arrol Crane at Jetty Road in honor of Rare Disease Day in Australia.
Illumination of Fremantle Prison in honor of Rare Disease Day in Australia.
Illumination of Ayuntamiento de A Guarda in honour of Rare Disease Day in Spain
Illumination of the Frost Tower in honor of Rare Disease Day in the United States.
Illumination of Arena di Verona in honor of Rare Disease Day in Italy.
Illumination of Fuente de la puerta in honour of Rare Disease Day in Spain
Illumination of Fuente de la Réplica del submarino de Isaac Peral de Cartagena in honour of Rare Disease Day in Spain
Illumination of Fuente de los Patos de Alhama de Murcia in honour of Rare Disease Day in Spain
Illumination of Archie Graham Community Centre in honor of Rare Disease Day in Australia.
Illumination of some building homes and offices with Rare disease day colours in honour of Rare Disease Day in Rwanda:...
Illumination of Archi di Palazzo Catena in honor of Rare Disease Day in Italy.
Illumination of Geelong Intersection Moorabool in honor of Rare Disease Day in Australia.
Illumination of Adelaide Oval in honor of Rare Disease Day in Australia.
Illumination of Amiens’ town hall in honour of Rare Disease Day in France
Illumination of Albany Grain Terminal Silo in honor of Rare Disease Day in Australia.
Illumination of George Roberts Bridge in honor of Rare Disease Day in Australia.
Illumination of the Alamo Quarry Market smoke stacks in honor of Rare Disease Day in the United States.
Illumination of Governor Mario M. Cuomo Bridge in honor of Rare Disease Day in USA.
Illumination of Granarone Cerveteri in honor of Rare Disease Day in Italy.
Illumination of Grand Hôtel La Cloche in honour of Rare Disease Day in France
Illumination of Grand Place in honour of Rare Disease Day in France
Illumination of Greenbrier in honor of Rare Disease Day in the United-States.
Illumination of Fontana Piazza Umberto I in honor of Rare Disease Day in Italy.
Illumination of Fontana luminosa – Piazza Battaglione Alpini in honor of Rare Disease Day in Italy.
Illumination of Guppy Park in honor of Rare Disease Day in Australia.
Illumination of Fontana di Piazza San Leonardo in honor of Rare Disease Day in Italy.
Illumination of Fontana del Tritone – Piazza Garibaldi – Caltanissetta in honor of Rare Disease Day in Italy.
Illumination of Fontana del Teatro Valli in honor of Rare Disease Day in Italy.
Illumination of the Empire State Building in honor of Rare Disease Day in the United-States.
Illumination of Ex Convento dei Cappuccini in honor of Rare Disease Day in Italy.
Join our Rare Disease Day virtual panel discussion as BioNews columnists from a variety of our rare communities participate in...
Illumination of FDA in honor of Rare Disease Day in USA.
Illumination of Lausche Turm im Zittauer Gebirge in honour of Rare Disease Day in Germany
U 7 pm biće osvetljena Gradska kuća opštine Kruševac
Illumination of Limassol Municipality Hall in honor of Rare Disease Day in Cyprus.
Illumination of Ayuntamiento de Badajoz in honour of Rare Disease Day in Spain
Illumination of ex Convento dei Domenicani Cavallino (Le) in honor of Rare Disease Day in Italy.
Join us in a gathering of supporters of patients with Rare Diseases around the Fountain at Lafayette Square, LaGrange GA!...
Illumination of Little Fletcher Bridge in honor of Rare Disease Day in Australia.
Illumination of Loggia del Palazzo della Ragione in honor of Rare Disease Day in Italy.
קבוצה מדהימה של מיליוני משפחות בעולם, משפחות כמו שלך או שלי, אל תחמיצו את זה, אנחנו נחכה לכם. תסמונת קורנליה...
Illumination of Malbork’s town hall in honour of Rare Disease Day in Poland
Illumination of Malop Street in honor of Rare Disease Day in Australia.
Цель мероприятия: Формирование комплексных предложений по развитию медицинской помощи больным орфанными заболеваниями и выработка решений с участием пациентского сообщества, профильных...
Illumination of Las Murallas Reales in honour of Rare Disease Day in Spain
Illumination of Manly Town Hall in honor of Rare Disease Day in Australia.
Illumination of María Teresa in honour of Rare Disease Day in Argentina
Illumination of Ayuntamiento de Baeza in honour of Rare Disease Day in Spain
Illumination of Marienkirche Neubrandenburg in honour of Rare Disease Day in Germany
Illumination of Marlston Hill Lookout in honor of Rare Disease Day in Australia.
Illumination of Evan Walker Bridge in honor of Rare Disease Day in Australia.
Illumination of Marlston Waterfront in honor of Rare Disease Day in Australia.
Life’s a Polyp with Zeke and Katie explores the rare disease Familial Adenomatous Polyposis and all it involves including ostomies,...
Illumination of Maschio Angioino – Napoli in honor of Rare Disease Day in Italy.
Illumination of Estátua D. José I – Terreiro do Paço in honor of Rare Disease Day in Portugal.
Illumination of Massachusetts Bridges: Zakin, Longfellow, Fire River, Burns in honor of Rare Disease Day in USA.
Illumination of Matagarup Bridge in honor of Rare Disease Day in Australia.
An exhibition focused on using Art Therapy as a way of accepting or being affected by a rare disease. The...
Illumination of Launceston Town Hall in honor of Rare Disease Day in Australia.
Illumination of Larnaca Medieval Castle in honor of Rare Disease Day in Cyprus.
On the 28th of february at 7 pm cairo local time, sharing with the “global light up for rare” chain,...
Illumination of Koombana Bay Footbridge in honor of Rare Disease Day in Australia.
Illumination of Joondalup Drive Bridge in honor of Rare Disease Day in Australia.
Illumination of Fontana del Nettuno di Piazza Duomo – Trento in honor of Rare Disease Day in Italy.
Yocum Institute will be participating in #LightUpForRare by adding “Share you Colours” to their outdoor billboard.
Illumination of Katharinenturm Magdeburg in honour of Rare Disease Day in Germany
UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating the “Palazzo della Regione” in Piazza Unità d’Italia....
Illumination of Ayuntamiento de Alicante in honour of Rare Disease Day in Spain
Illumination of Kensington Town Hall in honor of Rare Disease Day in Australia.
UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” by illuminating “Palazzo della Loggia”. We are grateful to our...
UILDM joins UNIAMO campaign “Accendiamo le luci sulle Malattie Rare” illuminating of green the Mole Antonelliana. We are grateful to...
Illumination of Kienlesbergbrücke Ulm in honour of Rare Disease Day in Germany
Gateshead Millennium Bridge will be joining other landmarks in lighting up in support of Rare Disease day .
Illumination of Flinders Street Railway Station in honor of Rare Disease Day in Australia.
Illumination of Kleisthaus Berlin in honour of Rare Disease Day in Germany
UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” by illuminating “La Rotonda”. We are grateful to our branch...
This Rare Disease Day 2022 will be our very first building illumination in Zimbabwe and the second in Africa!! Join...
Illumination of Koombana Bay Foreshore in honor of Rare Disease Day in Australia.
Illumination of Kopuła Stadionu Miejskiego in honour of Rare Disease Day in Poland
Illumination of Festspielhaus St. Pölten in honor of Rare Disease Day in Austria.
UILDM joins UNIAMO campaign “Accendiamo le luci sulle malattie rare” illuminating Porta San Giacomo. We are grateful to our branch...
Illumination of Kurilpa Bridge in honor of Rare Disease Day in Australia.
Illumination of Ayuntamiento de Almería in honour of Rare Disease Day in Spain
Illumination of l’Ours Pompon in honour of Rare Disease Day in France
Illumination of La Baule-Escoublac’s town hall in honour of Rare Disease Day in France
Illumination of Federation Square in honor of Rare Disease Day in Australia.
Illumination of La Cappella di Piazza del Campo in honor of Rare Disease Day in Italy.
Illumination of La Rotonda in honor of Rare Disease Day in Italy.
Illumination of Laimer Würfel München in honour of Rare Disease Day in Germany
Rare Disease Day in Zimbabwe 2022! #LIGHTUPFORRARE
Illumination of Comune di carpi in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Talavera in honour of Rare Disease Day in Spain
Illumination of Porta al Prato in honor of Rare Disease Day in Italy.
Illumination of Spodek in honour of Rare Disease Day in Poland
Illumination of Piazza Duomo palazzo di Città in honor of Rare Disease Day in Italy.
Illumination of Piazza Verdi in honor of Rare Disease Day in Italy.
Illumination of Cascata Grande dei Liri in honor of Rare Disease Day in Italy.
Illumination of Plac Litewski in honour of Rare Disease Day in Poland
Illumination of Place Stanislas in honour of Rare Disease Day in France
Illumination of Sport & Culture Centre of Pruszcz Gdański in honour of Rare Disease Day in Poland
Local chapter of the action and part of the Global Chain of Lights campaign, which aims to unite the rare...
Illumination of Polo delle Arti e della Cultura in honor of Rare Disease Day in Italy.
Illumination of Polsat Plus Arena Gdańsk in honour of Rare Disease Day in Poland fot. redwedding.pl – Piotr Połoczański
Illumination of Pont de Recouvrance in honour of Rare Disease Day in France
Illumination of Ponte nel cielo Campo Tartano in honor of Rare Disease Day in Italy.
DGIESP / VIRTUAL4 le está invitando a una reunión de Zoom programada. Tema: VIRTUAL 4 DNOT IV Seminario Internacional por...
Illumination of Porta a Monte in honor of Rare Disease Day in Italy.
Illumination of Sopot’s town hall in honour of Rare Disease Day in Poland
Illumination of Porta alla Croce in honor of Rare Disease Day in Italy.
“KRIKOS ZOIS” Greek Society for Patients and Friends of Patients with Inherited Metabolic Diseases together with “95’Rare Alliance Greece” has...
Illumination of Porta d’ingresso al borgo storico in honor of Rare Disease Day in Italy.
Illumination of Sky Ribbon in honor of Rare Disease Day in Australia.
Illumination of Porta del sole in honor of Rare Disease Day in Italy.
Illumination of Sir Albert Abbott Administration Building in honor of Rare Disease Day in Australia.
Illumination of Porta Romana Fumone in honor of Rare Disease Day in Italy.
Illumination of Porta San Giacomo in honor of Rare Disease Day in Italy.
Illumination of Cascate Monumentali in honor of Rare Disease Day in Italy.
Illumination of Central Bank Boardwalk in honor of Rare Disease Day in Australia.
Illumination of BarArena in Leverkusen in honour of Rare Disease Day in Germany
Illumination of sede Municipio XII in honor of Rare Disease Day in Italy.
The famous Geneva Jet d’eau will be illuminate in purple the night of February 28 – thanks to the SIG...
It is an online event, on Instagram, in which posts will be published in order to raise awareness about living...
Illumination of Statua del Villano in honor of Rare Disease Day in Italy.
Illumination of Statua del Pescatore in honor of Rare Disease Day in Italy.
Illumination of Centro di aggregazione sociale – Surano (Le) in honor of Rare Disease Day in Italy.
Illumination of Parc Phoenix in honour of Rare Disease Day in France
Illumination of Casa Comunale – Roccamena (Pa) in honor of Rare Disease Day in Italy.
Illumination of Parlamento Andaluz in honour of Rare Disease Day in Spain
Illumination of Casas Colgadas de Cuenca in honour of Rare Disease Day in Spain
Illumination of Centro de Cultura e Congressos – Caldas da Rainha in honor of Rare Disease Day in Portugal.
Illumination of Bahnhof Dresden-Neustadt in honour of Rare Disease Day in Germany
Illumination of Parlamento Vasco in honour of Rare Disease Day in Spain
Illumination of St. Barbara Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany
Illumination of Besucherzentrum der Berliner Gärten der Welt in honour of Rare Disease Day in Germany
Illumination of Stabilimento Tettuccio in honor of Rare Disease Day in Italy.
Illumination of Staatstheater Mainz in honour of Rare Disease Day in Germany
Life with a rare disease can have infinite milestones, setbacks, traumas and triumphs—all likely to be interlaced with a variety...
Illumination of Parque de la Flrorida in honour of Rare Disease Day in Spain
A l’occasion de la 15ème Journée internationale sur les maladies rares,l’association ESPOIR VML MAROC organise le 28/02/2022, en partenariat avec...
Illumination of Passaggio Joyce, detto “Ponte Curto” in honor of Rare Disease Day in Italy.
Illumination of St. Elisabeth Krankenhaus Halle/Saale in honour of Rare Disease Day in Germany
Unidos bajo lo común y lo distinto a la vez, familias que estamos atravesadas por las Enfermedades Poco Frecuentes hemos...
Illumination of Bahnhof Mannheim in honour of Rare Disease Day in Germany
Illumination of Perth Bell Tower in honor of Rare Disease Day in Australia.
En Argentina la iniciativa viene siendo impulsada por la Federación Argentina de Enfermedades Poco Frecuentes – FADEPOF desde hace algunos...
Illumination of Porta San Niccolò in honor of Rare Disease Day in Italy.
Illumination of San Genesio in honor of Rare Disease Day in Italy.
Illumination of Rotunda dos Golfinhos – Setúbal in honor of Rare Disease Day in Portugal.
Illumination of Scultura in ferro di Via Roma in honor of Rare Disease Day in Italy.
Illumination of Rocca di Carmignano in honor of Rare Disease Day in Italy.
Illumination of Rocca Malatestiana in honor of Rare Disease Day in Italy.
Illumination of Rocchetta in honor of Rare Disease Day in Italy.
فعالية لدعم أسر الأطفال المصابين بالأمراض النادرة في مستشفى الاطفال بمدينة الملك سعود الطبية. حيث تهدف هذه الفعالية على تشجيع...
Illumination of Castello Aragonese in honor of Rare Disease Day in Italy.
Illumination of Roldán in honour of Rare Disease Day in Argentina
Illumination of Rotonda all’inizio di Camporosso in honor of Rare Disease Day in Italy.
Illumination of Rotonda all’inizio di Camporosso in honor of Rare Disease Day in Italy.
Illumination of Schlot Erlanger Stadtwerke in honour of Rare Disease Day in Germany
Illumination of Schlosskirche Lutherstadt Wittenberg in honour of Rare Disease Day in Germany
Illumination of Castello di Lari in honor of Rare Disease Day in Italy.
Illumination of Rotunda dos Peixes – Setúbal in honor of Rare Disease Day in Portugal.
Illumination of Rouen’s town hall in honour of Rare Disease Day in France
With the slogan “I am rare alone, together we are strong”, we invite all schools on this day to join...
To celebrate Rare Disease Day 2022, Royal Holloway University London will be lighting up its famous Founders building in the...
The students and staff of Rocky River Elementary will wear purple to support our friends with rare diseases.
Illumination of Schloss Hainewalde in honour of Rare Disease Day in Germany
Illumination of Rumors on Main in honor of Rare Disease Day in USA.
Illumination of San Mames Estadio in honour of Rare Disease Day in Spain
The objective of the event is to disseminate, among the community of the Autonomous University of Guadalajara and its students...
Illumination of Saint Denis’ town hall in honour of Rare Disease Day in France
Illumination of Castel Sismondo in honor of Rare Disease Day in Italy.
Illumination of Sede Comunale di Caggiano in honor of Rare Disease Day in Italy.
Illumination of Castello Medievale in honor of Rare Disease Day in Italy.
Illumination of Porte de Bourgogne in honour of Rare Disease Day in France
Illumination of Puentes de la Alameda de Talavera in honour of Rare Disease Day in Spain
Illumination of Porta Padova, Porta XX Settembre, Porta Legnago e Porta Vicenza in honor of Rare Disease Day in Italy.
Illumination of Sede Municipale provvisoria del Comune (ex Capricho de Calise) in honor of Rare Disease Day in Italy.
Illumination of Basse-Terre’s town hall in honour of Rare Disease Day in France
Illumination of Sede Fundación Vital (Casa del Cordón) in honour of Rare Disease Day in Spain
Illumination of Presidential Palace in honor of Rare Disease Day in Cyprus.
Illumination of Pruszcz Gdański’s town hall in honour of Rare Disease Day in Poland fot. Janina Wilkos-Gad
Illumination of Batumi Stadium in honor of Rare Disease Day in Georgia.
Illumination of Sede del Municipio X (Ostia e dintorni) di Roma Capitale in honor of Rare Disease Day in Italy.
Illumination of the Baylor College of Medicine in honor of Rare Disease Day in the United-States.
Illumination of Catenary Lights in honor of Rare Disease Day in Australia.
Illumination of Queensland Country Bank Stadium in honor of Rare Disease Day in Australia.
Illumination of Sede de Emuasa in honour of Rare Disease Day in Spain
Illumination of Rathaus Spandau Berlin in honour of Rare Disease Day in Germany
Illumination of Reddacliff Place Steam sculptures in honor of Rare Disease Day in Australia.
Illumination of Casina dell’Aquila, Parco Archeologico di Pompei in honor of Rare Disease Day in Italy.
Illumination of Sede del Municipio di Fontaniva in honor of Rare Disease Day in Italy.
Illumination of Castelo dos Mouros – Sintra in honor of Rare Disease Day in Portugal.
Webinar on Primary Lymphoedema by Svenska Ödemförbundet (SÖF) , membership organization of EURORDIS.
Illumination of Reggia di Caserta in honor of Rare Disease Day in Italy.
Illumination of Castel dell’Ovo in honor of Rare Disease Day in Italy.
Illumination of Castelo de Leiria in honor of Rare Disease Day in Portugal.
Illumination of Richmond Reserve in honor of Rare Disease Day in Australia.
Illumination of Castelo de Bragança – Bragança in honor of Rare Disease Day in Portugal.
Illumination of Chiesa degli Scolopi in honor of Rare Disease Day in Italy.
Illumination of Story Bridge in honor of Rare Disease Day in Australia.
Illumination of Paranaple convention centre in honor of Rare Disease Day in Australia.
Illumination of Tête carrée in honour of Rare Disease Day in France
Illumination of palazzo comunale di Valderice in honor of Rare Disease Day in Italy
Illumination of palazzo comunale di Valverde in honor of Rare Disease Day in Italy.
To the Rare Disease Community, we have the pleasure to invite you all to the light up of Burj Khalifa...
Illumination of Palazzo Comunale di Vico Equense in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Zagarolo in honor of Rare Disease Day in Italy.
Illumination of Palazzo comunale Nuoro in honor of Rare Disease Day in Italy.
Illumination of Brant Street Pier in #RareDiseaseDay colours
Illumination of Palazzo Comunale San Cassiano in honor of Rare Disease Day in Italy.
Illumination of Palazzo degli Elefanti in honor of Rare Disease Day in Italy.
Illumination of Clermont Auvergne Opéra in honour of Rare Disease Day in France
Illumination of Palazzo dei Principi a Carpegna in Piazza dei Conti in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Tricase in honor of Rare Disease Day in Italy.
Illumination of Palazzo del fanciullo – Matino in honor of Rare Disease Day in Italy.
Illumination of Palazzo del Municipio ( lato via Garibaldi) in honor of Rare Disease Day in Italy.
Illumination of Palazzo del Municipio Di Gattatico in honor of Rare Disease Day in Italy.
Illumination of Bytów’s town hall in honour of Rare Disease Day in Poland
Illumination of Palazzo del Podestà in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento de Villatorres in honour of Rare Disease Day in Spain
Illumination of City Hall Oradea in honor of Rare Disease Day in Romania.
Illumination of Ayuntamiento de Vitoria in honour of Rare Disease Day in Spain
Illumination of Palazzo del Podestà – Bologna in honor of Rare Disease Day in Italy.
Illumination of Templi del Parco Archeologico di Paestum in honor of Rare Disease Day in Italy.
Illumination of Palazzo della Gran Guardia – Verona in honor of Rare Disease Day in Italy.
Illumination of The Aldevron Tower, North Dakota State University in honor of Rare Disease Day in USA.
Illumination of Palazzo Comunale di Trevignano Romano in honor of Rare Disease Day in Italy.
Illumination of Chiesa di San Sebastiano in honor of Rare Disease Day in Italy.
“95” Rare Alliance Greece illuminates the Central Pedestrian Bridge of Trikala in honor of Rare Disease Day, Greece.
Illumination of Complesso Santa Sabina in honor of Rare Disease Day in Italy.
Illumination of City Hall Písek in honour of Rare Disease Day in Czech Republic.
Illumination of Palazzo Chigi Zondadari – San Quirico d’Orcia (SI) in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale – Veglie (LE) in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale Carpignano Salentino in honor of Rare Disease Day in Italy.
We join forces for the children with Rare Diseases: “95” Rare Alliance Greece illuminates the Children’s Hospital “H Agia Sofia”...
Illumination of Palazzo Comunale di Carmiano in honor of Rare Disease Day in Italy.
Illumination of Collegiata di Saint Gilles di Verrès in honor of Rare Disease Day in Italy.
Illumination of Palazzo comunale di Cellamare in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Corbetta in honor of Rare Disease Day in Italy.
Illumination of Budynek Instytutu Biochemii i Biofizyki PAN w Warszawie in honour of Rare Disease Day in Poland
“95” Rare Alliance Greece illuminates the monument of the Arch of Hadrian in honor of Rare Disease Day in Athens,...
Illumination of Castle Hněvín in honour of Rare Disease Day in Czech Republic.
“95” Rare Alliance Greece illuminates the building “Loggia” in honor of Rare Disease Day in Heraklion, Greece.
Illumination of Palazzo Comunale di Crotone in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Grosseto in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Nociglia in honor of Rare Disease Day in Italy.
Illumination of Palazzo Comunale di Palaia in honor of Rare Disease Day in Italy.
Illumination of Budynek Ortopedyczno-Rehabilitacyjnego Szpitala Klinicznego im. Wiktora Degi in honour of Rare Disease Day in Poland
Illumination of The Big Banana Fun Park in honor of Rare Disease Day in Australia.
Illumination of Palazzo Comunale di Ponte Buggianese in honor of Rare Disease Day in Italy.
Illumination of Burg und Kloster Oybin in honour of Rare Disease Day in Germany
Anlässlich des Rare Disease Day am 28. Februar, laden wir herzlich zur virtuellen Lesung mit Johanna Klug ein. „Mehr vom...
Iluminación del edificio “Lázaro Cárdenas”, edificio principal de las oficinas centrales a nivel nacional del Partido Acción Nacional
Subir más de 2.000 escalones
Illumination of City Hall Annex in honor of Rare Disease Day in Australia.
Illumination of Palazzo Nieddu del Rio in honor of Rare Disease Day in Italy.
Illumination of Tančící dům – Ginger and Fred in honour of Rare Disease Day in Czech Republic.
Illumination of Palazzo Municipale di Livorno in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale di Merate in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale di Olgiate Molgora in honor of Rare Disease Day in Italy.
Esta noche los edificios municipales de La Nucía se iluminan de “verde” por “Día Mundial de las Enfermedades Raras”, a...
Illumination of Chiesa S.Maria Assunta palazzo comunale in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale di Rieti in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale di Taranto in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale Surbo (Le) in honor of Rare Disease Day in Italy.
Municipality of Ferrara, in cooperation with Fondazione del Teatro Comunale di Ferrara, has organized a walk around Rare Disease from...
Illumination of Stuttgarter Bahnhof in honour of Rare Disease Day in Germany
Illumination of City Hall in honor of Rare Disease Day in USA.
Illumination of Palazzo Regione Sicilia in honor of Rare Disease Day in Italy.
Illumination of Chiesa Madre SS Pietro e Paolo – Galatina (LE) in honor of Rare Disease Day in Italy.
Illumination of Palazzo S.Antonio in honor of Rare Disease Day in Italy.
Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.
Illumination of Palazzo Santo Stefano in honor of Rare Disease Day in Italy.
The City of Philadelphia is lighting up historic Boathouse Row in the colors of Rare Disease Day. This event is...
Illumination of Chiesa madre di Padula S.Michele Arcangelo in honor of Rare Disease Day in Italy.
Illumination of Biogen Tower München in honour of Rare Disease Day in Germany
Warren City Hall Lights Up In Blue, Green and Pink
Illumination of Panevezys City Municipality’s Administration building in honor of Rare Disease Day in Lithuania.
Illumination of Chiesa Madre in honor of Rare Disease Day in Italy.
Illumination of Palazzo Municipale del Comune di Barano d’Ischia (NA) in honor of Rare Disease Day in Italy.
Illumination of Tarczyński Arena Wrocław in honor of Rare Disease Day in Poland.
Pfizer México se une a la conmemoración del Día Mundial de las Enfermedades Raras al iluminar su edificio en Ciudad...
Popup Waiting Room RaDiOrg opens a pop-up waiting room in the heart of Brussels On Rare Diseases Day 2022 –...
Illumination of Palazzo della Loggia in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento Gandía in honour of Rare Disease Day in Spain
Illumination of Teatro Valli in honor of Rare Disease Day in Italy.
Illumination of Palazzo della Regione Friuli Venezia Giulia in honor of Rare Disease Day in Italy.
Illumination of Teatro Massimo – Palermo in honor of Rare Disease Day in Italy.
Illumination of Teatro Herberia di Rubiera in honor of Rare Disease Day in Italy.
Illumination of Palazzo della Regione Friuli Venezia Giulia – Gorizia in honor of Rare Disease Day in Italy.
Illumination of Palazzo delle Logge di Banchi – Pisa in honor of Rare Disease Day in Italy.
Illumination of Ayuntamiento Jabalquito in honour of Rare Disease Day in Spain
Illumination of Palazzo di città Baronissi in honor of Rare Disease Day in Italy.
On 28 February, the children of Cappabue National School in West Cork will be coming to school in their most...
Illumination of Chiostro dei Minori Osservanti in honor of Rare Disease Day in Italy.
Illumination of Palazzo di Città di Augusta in honor of Rare Disease Day in Italy.
Illumination of Palazzo di Città di Fasano in honor of Rare Disease Day in Italy.
Illumination of Palazzo di Città di Potenza in honor of Rare Disease Day in Italy.
Illumination of Teatro Comunale di Carpi in honor of Rare Disease Day in Italy.
Illumination of Palazzo di Città di Salerno in honor of Rare Disease Day in Italy.
Illumination of Palazzo Estense (Palazzo Comunale) – Varese in honor of Rare Disease Day in Italy.
Illumination of Palazzo Mantegna in honor of Rare Disease Day in Italy.
Illumination of Box Hill’s town hall in honor of Rare Disease Day in Australia.
Illumination of San Francisco’s City Hall in honor of Rare Disease Day in USA.
For Rare Disease Day 2022, we invite you to an online “Conversation round” on February 27 at 3 p.m. Everyone...
Une marche dans le centre ville pour rompre l’isolement, sensibiliser aux maladies rares et permettre les échanges au sein de...
Illumination of Torre civica – Tuglie (LE) in honor of Rare Disease Day in Italy.
12pm to 2pm Sunday 27th February. Rare Disease Day Celebration Picnic in Park. (THERE WILL BE TWO CAKES!!!!!) Please bring...
En Chile, en el año 2020 se decretó el último mes de febrero como el “Día Nacional de Educación y...
The Edmonton High Level Bridge will be illuminated in pink, blue, and green in honour of Rare Disease Day.
28 FEBRUARY is Rare Disease Day Children who live with a rare disease are like all other children. They love...
The 45th Athens 21 km Health Road Race supports MDA Hellas. On the occasion of the Rare Disease Day (28/2)...
Illumination of Monumento ai caduti, Eboli in honor of Rare Disease Day in Italy.
Introduction On 28th February, 2022 the world will mark the Rare Disease Day. The aim of the day is to...
Access to Medicine.
Racefor7 is a 7 km Run/walk/Ride event to show solidarity for Rare Diseases on Sunday, 7.00 am, 27th February 2022....
Raise A Toastie to Raise Awareness for those living with a rare disease in Ireland. Join RDI and help make...
Langka(H) Kecil consists of three events, namely a virtual fun walk, where children with rare diseases and children with special...
Illumination of Comune di Camaiore in honor of Rare Disease Day in Italy.
A football match will be done and the local team will wear a bangle related to the rare disease day,...
Celebrating rare disease day in Nigeria.
Illumination of Porta Elisa in honor of Rare Disease Day in Italy.
Con tres actividades se conmemoró de manera muy exitosa en Colombia, durante todo el mes de febrero, el día mundial...
LIGHTING UP OF HOTEL DE VILLE DE BOURG-LA-REINE
Having created the main theme of RDD Japan, we have created a concert program based on the theme of RDD...
Dans la majorité des gouvernorats de Tunisie les scouts sortiront de leurs clubs moyennant leurs vélos en portant les bandes-rolles....
On the occasion of the 15th edition of the Rare Disease Day, the Department of Biomedical Sciences of the University...
Illumination of Palazzo “Riccio di Morana” in honor of Rare Disease Day in Italy.
Sensibilizzazione sul tema delle malattie rare attraverso la lettura, attività varie, flash mob. Volo di palloncini e accensione delle luci
The celebration of 12th Rare Disease Day Thailand is scheduled on Sunday, 27th February 2022, from 8 -12 a.m. virtual...
In 2021, the National Rare Disease Day of Iran with the goal of supporting the rare patients and raising awareness...
Illuminazione del teatro Herberia in occasione della Giornata mondiale Malattie Rare
Caminhada para assinalar o dia da doença rara , inicia junto a estatua de são Gonçalo e acaba junto do...
Illumination of Oslo University Hospitals helipad
Illumination of Palazzo Comunale di San Pancrazio in honor of Rare Disease Day in Italy.
Medical Lecture on Intractable Neurological Diseases ”NANBYO and Stress Management” Minoru MORITA
This year Malaysian Rare Disorders Society and RD Friends are hosting the first virtual family gathering. The gathering will be...
Rare diseases affect hundreds of millions of people every year. Many of these are children: it is estimated that 1...
Raising awareness about Perthes Disease. An online lecture will be held in the support group for Arabic speaking parents and...
In collaboration with the Latvian Culture College, and Children’s Clinical University Hospital, Latvian Alliance for Rare Diseases is expanding RDD...
A multistakeholder workshop that will be focused on various subjects such as transitioning from paediatric to adult care, European networking...
Evento conmemorativo al día mundial y nacional de las Enfermedades Raras.
Join us for the virtual Rare Disease Day 1q44 Run & Walk. You can choose to run or walk the...
Illumination of Palazzo del Sedile in honor of Rare Disease Day in Italy.
Illumination of Giant Wheel (Riesenrad) in honor of Rare Disease Day in Austria
In collaboration with the Latvian Culture College and Pauls Stradins Clinical University Hospital, Latvian Alliance for Rare Diseases is expanding...
c’est un évènement qui regroupera des associations et des groupes de patients des maladies rares au niveau mondiale
Conferencia: “Aceptación y Resiliencia”, Si tenemos en cuenta que el 85% de las Enfermedades Raras son crónicas, el 65% son...
Illumination of Arc of Dreams in honor of Rare Disease Day in USA.
W 2022 roku Dzień Chorób Rzadkich obchodzimy 28 lutego. Aby szerzyć wiedzę na temat tych chorób, chcielibyśmy zaprosić Państwa do...
t’s time for our annual Rare Disease Day Celebration! Join us on Saturday, February 26, 2022 from 12pm to 3pm...
Please join us for Rare Disease Day Bay Area 2022. Once again, we will be hosting Rare Disease Day Bay...
Rare Fair 2022 is a good mood virtual event for a whole family. No entrance fee, registration needed. Come and...
Journée de sensibilisation aux maladies rares en Algérie, au programme: Stand de sensibilisation Témoignages par nos patients Présentation de la...
Illumination of Clinic Children Hospital “Dr. Victor Gomoiu’’ in honor of Rare Disease Day in Romania.
Betroffene der seltenen Erkrankung Pseudotumor cerebri (Idiopathische intrakranielle Hypertension) bemalen Steine mit verschiedenen Motiven und beschriften ihn mit Hinweisen auf...
“Spanish National Conference for RD day. “We are many, we are strong and we are proud. ” X Jornada Nacional...
WALK FOR RARE é uma caminhada solidária de consciencialização sobre as doenças raras em Portugal. Junte-se a nós em Cascais e...
La jornada será retransmitida vía online bajo el lema “Somos muchos, somos fuertes y estamos orgullosos”. En ella, especialistas presentarán...
Rare Disease Network South is organising an online Rare Disease Day on 26 February 2022 to celebrate Rare Disease Day...
Illumination of Lama monachile in honor of Rare Disease Day in Italy.
This year the UAE Rare Disease Society is celebrating Rare Disease Day 2022 in an exceptional way at EXPO 2020...
Illumination of Falls Park in honor of Rare Disease Day in USA.
Raiden Science Foundation first ever virtual 5K event to raise awareness for UBA5 disease and celebrate Raiden’s 2nd birthday. UBA5...
Illumination of Bergisel Schanze in honor of Rare Disease Day in Austria.
The Arnprior Museum will be lite with multi coloured lights Feb 26 – Feb 28.
UAE Rare Disease Day 2022 Family day in Expo 2020
Ladies and gentlemen, on behalf of the Organizers, I have the pleasure to invite you to participate in the International...
L’ evento è a favore del progetto “Io sono” dedicato alla malattia genetica rara Trisomia 9 a Mosaico ed è...
Rapid-onset obesity with hypothalamic dysfunction, hypoventilation, and autonomic dysregulation (ROHHAD) is an ultra-rare disorder of respiratory control and autonomic nervous...
On the occasion of World rare disease Day 2022, Dakshayani and Amaravati Health and Education is organizing a round table...
The Pearl is a landmark in Reykjavik, Iceland and it will be lit up in the colours of Rare Disease...
Transmissão ao vivo as 10h pelo canal da ACDG no Youtube através do link: https://www.youtube.com/watch?v=SJclQqtxFtI Abertura do evento (10min) –...
Lights on Rare Disease – Bari will light up of rare disease colours
Illumination of Torre dell’orologio del palazzo della Città Metropolitana di Bari in honor of Rare Disease Day in Italy.
Online Project – WATARU Channel from RDD https://youtu.be/0lcteks3Xw8 Saturday, February 26, 13:00- MC: Wataru HIKITA (Crohn’s disease) Guest: Mayumi SENOO...
Illumination of Municipio di Carnate in honor of Rare Disease Day in Italy.
Illumination of Palazzo municipale di Bono (Sassari) in honor of Rare Disease Day in Italy.
Poster presentation of Rare Disease Names. To have awareness about Rare Diseases among students
Illumination of Paleis Soestdijk in honor of Rare Disease Day in Netherlands.
Illumination of Municipio di Parma in honor of Rare Disease Day in Italy.
Este evento se trata de una Jornada de Donación de Sangre de la Fundación Un Corazón por Fanconi en conjunto...
Join us this Rare Disease Day and let’s learn more about #RareDiseases, more so in Kenya. This year we are...
We’ll be holding a community family celebration event “Rare-i-Tea Party” in Cambridge, UK for all of our rare disease families...
L’organisation de plusieurs conférences l’Amyotrophies Spinales Infantiles (SMA) en collaboration avec Service de Neuropédiatrie de l’INN la Rabta, L’institut Pasteur...
In allegato il COMUNICATO STAMPA con preghiera di diffusione dell’evento “LAVORO E DIS-ABILITÀ”, che si terrà il prossimo sabato 26...
Why jazz? In our opinion, jazz has a positive effect on the body and soul, including those affected by rare...
Clinic Hospital for Children “Victor Gomoiu”
Dhiti Omics Technologies is a precision molecular diagnostics service provider offering tests using state-of-the-art genomics technologies. Our objective is to...
We are making efforts to lighten up as many buildings in the Czech Republic as possible to create chain of...
All Ireland virtual rare disease research symposium is scheduled to take place on the 25th of February 13.00-17.00 (GMT) to...
Take a photo wearing the colors of Rare Disease and post it using #RareDiseaseDay #showyourcolours #showyourrare #cousinstogether
Illumination of Comune di Venezia in honor of Rare Disease Day in Italy.
WEBINAR Greeting Yasuko MASUDA（Hokkaido NANBYO regional center) Part I Keynote Lecture What is RDD? Naoya MINAMI Early Diagnosis of Rare...
2022 will be the fifth Rare Disease Day (dubbed Rare Showcase) to be observed in Ghana being championed by the...
Daremos charlas con profesionales de la salud, Defensoria del Pueblo para hablar de los Derechos, y experiencias personales de personas...
Los alumnos de la Facultad de Medicina de la Universidad Autónoma de Guadalajara compartirán sus fotos, en las Redes Sociales,...
En el panel estarán solo pacientes y familiares que viven con #EnfermedadesRaras; ellos contestarán preguntas profundas, interesantes, divertidas, de todo...
Illumination of PA State Capitol Building in honor of Rare Disease Day in USA.
On the occasion of Rare Disease Day, ERN BOND, the European Reference Network on Rare Bone Diseases, with the patronage...
“Jedna na milion. Czy to znaczy, że nie istnieje?” Chcielibyśmy zaprosić Państwa do udziału w III Dniu Chorób Rzadkich na...
Lights on Rare Disease – Lucca will light up of rare disease colours
Transmissão ao vivo pelo canal da ACDG no Youtube (https://www.youtube.com/channel/UCTcO5e3xHhR_KuLDiCpy6Fg) Dia 1 – 25/02 (19h) Tema: Inovação e Doenças Raras...
The 4th edition is organised under the theme From cell to systems: the teaching of Rare Diseases”. The celebration of...
The National Alliance for Rare Diseases Malta supporting our members who live in Gozo, Malta
Die 4. Praxis-Werkstatt für Epidermolysis bullosa richtet sich wieder an Betroffene und deren Angehörige, Fachkreise, Freunde, Förderer und Interessierte gleichermaßen....
The webconference “SCIENCE and ART together for rare diseases. Achievements, frontiers and artistic spaces” With the Proclamation of the winners...
Jornada lúdica amb l’objectiu de sensibilitzar respecte les malalties minoritàries
Aggiornamento sull’Epidermolisi Bollosa per i pazienti e le famiglie: Novità sulla Ricerca Internazionale, i trattamenti e l’Assistenza 13.00/13.10 Introduzione e...
We will illuminate our school building, with the colors of Rare Diseases, from the afternoon of Friday 25/2/2022 until Monday...
For the first time ever, a building in the Eastern part of North Macedonia will be illuminated for the Rare...
Presentación del Centro de Referencia de Enfermedades Poco Frecuentes de Chaco, Argentina. Recorrida por la provincia visitando hospitales y organismos...
“Si el vHL fuera un cuento…! Participa en la creación de un cuento sobre vHL, se leerán el día de...
In the spirit of Rare Diseases Day, let’s paint our social media profiles in the colors of the Rare! -We...
We will organize a press conference on 25th February 2022, 12.00 EET, online. The goal of the event is to...
This year on Rare Disease Day the Adenomyosis Advice Association will be focusing on future research opportunities and how with...
Fiori di Campo supports the Center for Rare Pediatric Diseases at the S. Orsola Malpighi Hospital in Bologna and since...
LIGHTING UP MUNICIPIO DI VOGHERA – PAVIA
WALK FOR RARE 2022 is the 3rd edition of an amazing walk to raise awareness about rare diseases in Portugal....
Foro conmemorativo de las enfermedades huerfanas, PIENSA EN…. porque todos podemos padecer de una enfermedad de baja prevalencia. Evento gratuito...
The 11th “Investigar es avanzar” Conference, organized by CIBERER on February 25, will deal with the potential, risks and benefits...
This is a traditional already national conference on rare diseases usually organized by Institute of Mother and Child, located in...
Jornada divulgativa para visibilizar las enfermedades raras y las mujeres que investigan en este campo. Acercar a la ciudadanía los...
The young students of the first grade of our school communicated with the citizens of Pefki, handed out leaflets, the...
El próximo viernes 25 de Febrero, Antonia Escudero, presidenta de AHEDYSIA impartirá una charla con motivo de la celebración del...
Do you know how many people have a rare disease worldwide? Join the annual Rare Disease Quiz for raising awareness...
Every child is a joy to every family, even if the child has a rare disease. Rare disease day 2022...
En el panel solo estarán pacientes y familiares que viven con #EnfermedadesRaras; ellos contestarán preguntas profundas, interesantes, divertidas, de todo...
We honor Dr. Anastasiadou, Founder of the Genetic Clinic in Cyprus due to her retirement. We launch children’s book ‘Unique...
University of Nottingham’s iconic Trent Building will be Illuminated to show support and raise awareness on Rare Disease Day.
LIVESTREAM https://www.youtube.com/watch?v=J4iG8jx0lxI -Panel exhibition -Disease names exhibition
The national conference will be organized in partnership by the Romanian National Alliance for Rare Diseases and Romanian Society for...
Illumination of Ibarra balcón Municipal in honour of Rare Disease Day in Ecuador
El próximo jueves 24 de febrero a las 19:00 h, en conmemoración por el Día Internacional de las Enfermedades Raras...
Panel Exhibition Nishi-Niigata Central Hospital Feb 24-March 10 Niigata Library March 15-April 5 Niigata Civic Plaza Feb. 22-March 7 Niigata...
Iowa State University’s Rare Disease Awareness Club will hold its fifth annual Rare Disease Day event on February 24th, 2022....
For Rare Disease Day 2022, ALAN-Maladies Rares Luxembourg, the Luxembourg national alliance for rare diseases, presents a photo exhibition entitled...
Rare Disease Day Webinar When: Feb 24, 2022 Time: 12:00 – 1:00pm ET Registration: https://bit.ly/3gmyp9J
Next Thursday we are going to do an Instagram Live from the Lovexair Foundation account (@lovexair) where 4 young people...
El día 24/2 se realizará un webinar destinado a estudiantes de odontología y a odontólogos para que conozcas aspecos etiológicos,...
Carion Fenn Foundation presents our 2nd Annual Virtual Rare Disease Expo, Monday, February 28, 2022, 6:30pm – 8:30pm Eastern. In...
How can we change the lives of people with a rare disease? And what role can patient organisations play in...
En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2022, se llevará a cabo...
Fundación Mexicana de Prevención y Salud Materna A.C. “Mujer México” y la Iniciativa Pensemos en Cebras México. Como cada año,...
En el marco de la conmemoración del Día Mundial y Nacional de las Enfermedades Raras 2022 Fundación Mexicana de Prevención...
A webinar about patient-centered research in rare diseases and how real improvements might be achieved for people living with rare...
Illumination of The Rock Hall in honor of Rare Disease Day in USA.
Mesa de trabajo: Avances de los pacientes y familias por la reglamentación de la Ley 13.892- Epof Provincia de Santa...
Como cada año Mujer México, la Iniciativa Pensemos en Cebras México y la FEMEXER en conjunto con la Comisión de...
1er Simposio de Enfermedades Raras y Tamiz Neonatal 2022 Organiza la Fundación Mexicana de Prevención y Salud Materna “Mujer México”...
Illumination of Tower City in honor of Rare Disease Day in USA.
Showing slides created by students and conducting a survey
Centre for Proteomics and Drug Discovery (CPDD), Amity University Maharashtra takes this opportunity to organize for a national event on...
Invitación abierta a pacientes, padres de pacientes, médicos especialistas, asociaciones de pacientes y otros interesados en el tema; I SIMPOSIO...
Bu Halk Sağlığı Uzmanları Derneği (HASUDER)’in çatısı altındaki Nadir Hastalıklar Çalışma Grubu’nun düzenlediği webinar etkinliğidir. 24 Şubat 2022 Perşembe Günü...
“you are not alone”; Prof Salwa Sharf Eldin’s initiative on rare diseases awareness together with “know and grow”; a Mind...
During the event, KOLs will connect one folklore custom/habit with one rare disease.
Lighting up Nya Karolinska sjukhuset in honor of Rare Disease Day in Sweden.
Bereits im fünften Jahr schaffen wir im Vorfeld des Tages der Seltenen Erkrankungen auf dem Tagesspiegel Fachforum Gesundheit eine Öffentlichkeit...
Anche quest’anno l’Azienda Ospedale Università di Padova (AOUP), in occasione della giornata mondiale sulle Malattie Rare (Rare Disease Day) del...
Promotion the results of the study performed by COPAC in partnership with RONARD to assess the needs of the students...
Bereits im fünften Jahr schaffen wir im Vorfeld des Tages der Seltenen Erkrankungen auf dem Tagesspiegel Fachforum Gesundheit eine Öffentlichkeit...
We are pleased to invite you to attend a GSK-sponsored educational programme, “Diagnosing rare eosinophilic diseases, HES and EGPA: Celebrating...
Illumination of Klangturm St. Pölten in honor of Rare Disease Day in Austria.
Illumination of Istituto Superiore della Sanità in honor of Rare Disease Day in Italy.
Iluminación Día Mundial y Nacional de las Enfermedades Raras 2022 Senado de la República. 📢🦓Toda la Comunidad de Enfermedades Raras...
Radio show with expert talks from Pediatrician Geneticists and Rare Disease Patients groups presentations. www.moysikotherapeiawebradio.com
Rare diseases – challenges and advances A conversation on public policies, patient rights and access to diagnosis and treatment. Online...
La Iniciativa pensemos en Cebras México y Mujer México, convocan una Conferencia de prensa en el Senado de la República...
Colors have a strong symbolism for people around the world. This year the theme of the global campaign dedicated to...
Rare is Everywhere. As a NORD Rare Disease Center of Excellence, Nationwide Children’s is a trusted medical home where patients...
La Federación Española de Enfermedades Raras (FEDER) presenta el 22 de febrero en Madrid mediante una rueda de prensa su...
Illumination of Fontana Dei Due Leoni. Lighting up Teramo in honor of Rare Disease Day in Italy.
19h30 : Prof Vincent Bours : Introduction 19h40 : M. Jean-Stéphane Gatot : “Le NIPT whole genome au CHU de...
Video about POMC and POMC Island
Conversatorio sobre cómo se vive el #28F entre otros temas comunes y de interés con representantes de Argentina, Chile y...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
Illumination of l’hôtel de Ville de Faches-Thumesnil in honour of Rare Disease Day in France
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
#Челябинскредкий проект, направленный на поддержку семей, столкнувшихся с редкими заболеваниями. В так называемую “редкую неделю” читатели URALPRESS.RU познакомятся с историями...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
Meeting with the Foundation for Social Welfare Services, Gozo
Project activities for students in the elementary school Vancho Prkje in the Municipality of Shtip. Educational brochures, educational conversation with...
Illumination of Torre Civica di Pescara in honor of Rare Disease Day in Italy.
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
Fingal County Council will light up Swords Castle each evening from 21-28th Feb to raise awareness of Rare Diseases. Take...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
Gaucher disease is one of the many, but few known rare genetic diseases. When the diagnosis is early and the...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
Illumination of Istituto di Ricerca Pediatrica Città della Speranza in honor of Rare Disease Day in Italy.
La AMC- Asociación de Artrogriposis múltiple congénita – España, la Asociación Española del Síndrome de Wolf-Hirschhorn, la Asociación Nacional de...
Illumination of PHO “BIOMED LAB”
Illumination de l’hôtel de Ville de Faches-Thumesnil et concours de selfies. Sensibilisation sur les réseaux sociaux
For the “Global Chain of Lights” in Luxembourg, many prestigious buildings are illuminated in blue, pink, green and purple throughout...
Illumination of Comune di Buccinasco in honor of Rare Disease Day in Italy.
Illumination of Rock and Roll Hall of Fame in honor of Rare Disease Day in USA.
En coopération avec le “walking_club” , les scouts tunisiens à Nabeul ont Lancé la campagne de sensibilisation concernant le #mois_des_maladies_rares....
REAR DISEASE AND PHARMACIST ROLE
We are celebrating the approval of our 501(c)(3) status & spreading awareness for Rare Conditions Day. Celebrate with us by...
Si tenés una alopecia autoinmune y querés participar, vamos a hacer una sesión de Fotografía Terapéutica y si no tenes...
Rare diseases (RD) cumulatively are estimated to afflict 70-90 million Indians. According to the government data, this number is comparable...
Jornada académica donde se tendrán varios ponentes que hablarán diversos temas relacionados con las Enfermedades Huérfanas además de testimonios.
Feb 19, 2022, 1400-1500 Discussion topic; How to deal with illness Feb. 28 2022, 1600-1700 Discussion topic; Useful Patient Groups
HAE Junior patient organization, as a member of both EURORDIS and Czech Rare Disease Association, joins Rare Disease Day 2022...
The congress is organized like an on line webinar. The argument is the condition of people with fragile x syndrome...
Infratentorial superficial siderosis (iSS) is more commonly known as superficial siderosis of the central nervous system. It is a rare...
¿Qué nos quieren compartir tres expertos mexicanos que abordan el tema de las enfermedades raras desde el punto de vista...
Illumination of Monumento ai caduti in honor of Rare Disease Day in Italy.
Ukraine is once again joining the global movement dedicated to the International Rare Disease Day – three famous buildings in...
We are pleased to invite you to our second capacity building webinar in preparation for Rare Disease Day 2022! Find...
Illumination of Portici comunali “P. Di Pietro” in honor of Rare Disease Day in Italy.
Share your Rare Disease Day colours (blue, pink, green or purple) through a unique artwork, expressing what it’s like to...
As we emerge from COVID and look forward towards Rare Disease Day 2022, please join Rare Diseases Ireland and Northern...
🩸CAMPANHA: *RAROS, EU ME IMPORTO!* Informe o Código: 1086 Em alusão ao fevereiro lilás, mês da Conscientização sobre as doenças...
We will organize different events online `and face to face to raise awareness regarding the needs of students with rare...
Rare Disease Day is a time for our community to come together in a collective display of support for raising...
The Saudi Society of Medical Genetics (SSMG) in collaboration with Pfizer Saudi Arabia are planning to hold an awareness campaign...
This year campaign is continuing our activities initiated in 2013 and will make more visible the AGU and AJC contribution...
Com objetivo de sensibilizar a sociedade civil com casos reais e impactantes de famílias raras e sua jornada de superação,...
All citizens and associates are called to participate in a picture contest developed in the Instagram of AMMA (association of...
Sportello di Ascolto, Orientamento e Informazione in favore dei pazienti e delle famiglie affetti da malattie rare, ematologiche ed oncologiche....
LIVESTREAM https://www.youtube.com/channel/UCeTau5sembVYB1KOuJj3M3A LECTURE (Feb 12, 2022) “What We Can Do – How We Started and Current Activities to Send Children’s Wheelchairs...
Academic Conference on Rare Diseases, which began in 2018 with a single Symposium and which for the fourth consecutive year...
The #RareRace2022 is a race from 4 different Geocaching Travelbugs. They just roam around and tell people about the Rare...
EXHIBITION of books related to NANBYO Aichi Prefectural Library: February 11 – March 1 Nagoya City Tsurumai Library: February 19...
Educational forum for journalists, titled “GIve a world a little colour, Rare are Many” (srb “Dodaj svetu malo boje, retkih...
Webinares educativos semanales gratuitos por la plataforma Zoom para conmemorar las enfermedades huérfanas. 9 de febrero -Generalidades de las EH...
The EURORDIS Black Pearl Awards (https://blackpearl.eurordis.org/) are one of the biggest events in Europe marking the occasion of Rare Disease...
Help CDKL5 Canada ‘Light up’ our windows to support and raise awareness for Rare Disease day 2022. Get creative with...
Race 4 Rare. Some children afflicted with profoundly debilitating Rare diseases like Kush are not able to run or even...
Illumination of the Mustafa Çelebi Mosque – Struga in honour of Rare Disease Day in North Macedonia
LECTURE + PANEL DISCUSSION ”Toward an Inclusive Society for People with Rare Diseases” Dr. Takayuki SHIOSE Ayako OZAWA Aki YUKI...
Join us for a Virtual 5K to celebrate Rare Disease Day on February 28. Rare Disease Day is the globally-coordinated,...
Illumination of the Memorial House of brothers Miladinovci – Struga in honour of Rare Disease Day in North Macedonia
Illumination of Lincoln Financial Field in honor of Rare Disease Day in USA.
-Family Visitation Project for Children with Rare Diseases -Pediatric rare disease children’s family exchange meeting -Dialogue with high school students
A webinar for practical ways of implementation of RD CODE platform in all centers of expertise in Romania.
Illumination of the Monument of Revolution – Struga in honour of Rare Disease Day in North Macedonia
Illumination of Mother Teresa Statues – Struga in honour of Rare Disease Day in North Macedonia
Učenici Posebnog razrednog odjela i učenici 1. razreda osnovne škole ( Tin Ujević Krivodol ) kroz eTwinning projekt ACCEPTING OUR...
En el marco del Día Mundial y Nacional de las Enfermedades Raras 2022. 2DA JORNADA DE ENFERMEDADES RARAS 2022 A...
Illumination of Struga’s municipality building in honour of Rare Disease Day in North Macedonia
Press Conference to launch Rare Diseases Campaign in Malta. The ceremony was held under the Patronage of The Speaker of...
As part of our initiative to raise awareness about rare diseases in Zimbabwe, our organization’s director Trudy Nyakambangwe will represent...
Colorful palms! Our organization for the support of patients with Duchenne and Becker muscular dystrophy in Russia joins the international...
The Rare Disease Genomics research group directed by Prof Shahida Moosa at Stellenbosch University and Tygerberg Hospital, will be hosting...
In conjunction with World Rare Disease Day 2022 (28 Feb 2022), Malaysia Lysosomal Diseases Association (MLDA) will be organising our...
📢🦓🧬👉 Iluminación del Congreso Legislativo de Quintana Roo, México 2022. En el marco del Día Mundial y Nacional de las...
The main structure in Kiev will be highlighted by the International Rare Diseases Day
En el marco de la Primera Conmemoración del Día Estatal de las Enfermedades Raras en Quintana Roo. ¡Conmemorando y trabajando...
#MilesRareDiseaseDay2022 February is Rare Disease Awareness Month. Between 1st and 27th of February we challenge you to gather as many...
Illumination of River Black Drim in honour of Rare Disease Day in North Macedonia
Join New Hope Run Club and Avery’s Hope for the 4th annual Zebra 5K celebrating and honoring the rare disease...
On the first day of RDD month, the first RDD Japan kick-off on YouTube. You can see the archive here:...
#LightUpforRare
This year we are marking the occasion by asking our Stargardt’s community along with their family, friends or colleagues to...
To mark Rare Disease Day 2022, we’re running a “Living with CMT Art Competition.” We’re looking for original artwork that...
Illumination of Samuel’s Fortress Ohrid in honor of Rare Disease Day in North Macedonia.
Celebrate Rare Disease Day with SRNA by joining the challenge! Between now and February 28, log your miles as you...
II ed. del Concurso de dibujo Solidario que organiza CONGEN para visibilizar las enfermedades raras en España. Con los 12...
Every day we post an information or a testimony of a member on a Facebook Group page that was created...
#LightUpforRare The company building will be illuminated the month of February to raise awareness for ALL rare diseases.
La Fundación Mexicana de Prevención y Salud Materna A.C. “Mujer México” y la Iniciativa Pensemos en Cebras en conjunto con...
Join us for our 7th annual Rare Disease Day virtual race to benefit the National Organization for Rare Disorders (NORD)...
Program designed by RD-Portugal, aimed at disseminating information on rare diseases, without stigma, in Portuguese schools. RD-Portugal trains the teachers...
In cooperation between the Ministry of Health, the Tunisian Scout and the Association Charles Nicole’s doctors for Medical Development and...
The Voortrekker Monument is the most visited heritage site of its kind in Gauteng and one of the top ten...
The IFCR is putting together a CDKL5 awareness video that will be released on Rare Disease Day across our social...
Celebrating rare disease day in Nigeria.
IndoUSrare invites submissions from artists all over the globe for our Annual Rare Art Contest, ART4RARE 2022. This year’s theme...
Concurso de videos sobre el Día de las Enfermedades Raras 2022 Los estudiantes de la Facultad de Medicina de la...
Je m’appelle Clémence GUALY, j’ai 26 ans, je suis atteinte d’une Cardiomyopathie Hypertrophique depuis ma naissance, j ‘ai été opérée...
Indonesia CARE for RARE Diseases proudly present SpectacuRARE Fest 2022. All event will be a virtual event. Webinar | IG...
TED Talk for “Eagle syndrome” and the great value of using our Voice, in Vienna
Gogohope Virtual Sport Challenge is created with the objective to inspire and motivate everyone especially our MLDA patients to be...
1) Activities to learn about diseases Picture book reading Thinking about illness and life 2) Pray for the convergence of...
Presentation and sharing of experiences by members of member organizations (patient groups)
The project “Online meetings and counseling for patients with lysosomal diseases”, refers to organizing, for 1 year (March 2021-March 2022),...
Program (tentative) -Support System for Intractable Diseases in the Corona Era -Spiritual care -Live music performance by musicians -Medication counseling...
Meeting aimed at disseminating research activities on rare diseases carried out in the Valencian Community.++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++Jornada destinada a dar a conocer...
Multiple System Atrophy (MSA) Online International Exchange Meeting 1〉Opening remarks (10 minutes) Panel discussion (60 minutes) [Theme] “International Treatment Research...
In recent years, intractable disease cafes have been gradually spreading from the Kyushu area to the Kanto and other regions...
RDD2021 introduction Patients testimonial Mr. and Mrs. Wakui Participants: Only those who work at Hamamatsucho Building
Date: March 9 – 10, 2021 Time: 11am – 2pm EST Registration: https://bit.ly/39szgDs
Ciné-débats gratuits, 100% digitaux. L’objectif est d’inviter chacun à ouvrir les yeux sur les maladies rares dans une démarche bienveillante...
In RDD Yamaguchi, we will express the theme of RDD Japan 2021, “Your want to know rare, I want to...
What do you know about Rare Diseases? Today, 28 February, is the very well-known Rare Disease Day; the day dedicated...
Held online-live Patients’ testimonial Discuission; What we can do for welfare and care, etc.
Nuove ricerche sull’Incontinentia pigmenti ai tempi del COVID-19 In occasione della Giornata Mondiale Malattie rare, l’Associazione Italiana Incontinentia pigmenti ONLUS (IPASSI)...
El pasado sábado 6 de marzo de 2021 la Asociación Española de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios, organizó un encuentro...
Coping Through Covid and BeyondA health and wellbeing presentation, delivered by Dr Christianna Kyriacou, Counselling Psychologist, Royal Brompton Hospital. A...
Simposio iberoamericanoAtención integral en Enfermedades RarasEl caso de los Trastornos Hereditarios del Tejido Conectivo«Un marco estratégico para Latinoamérica»Hashtag: #THTC2021El simposioEl...
Join the McGill medicine rare disease interest group (RareDIG) on March 6th at 6PM EST for their third edition of...
The challenges facing patients with inherited metabolic diseases (IMDs) in Greece are many and formidable and are highlighted due to...
2DO FORO DE TAMIZ NEONATAL Y ENFERMEDADES RARASEn el marco del Día Mundial y Nacional de las Enfermedades Raras 28...
Hello, all! Come join the KGI community to help raise awareness for rare disorders at the NORD club’s 14th Annual Rare...
There are more than 7,000 different rare diseases, collectively affecting more than 350 million people around the world. Given their...
Para conmemorar el Día Mundial contra el Cáncer (4 de febrero) y el #RareDiseaseDay (28 de febrero), trataremos el Tumor de...
New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
This week the world shares in raising the awareness on Rare diseases. Being aware means early diagnosis and effective treatment.#Rareismany#Rareisproud#Rareisstrongالاسبوع...
En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2021.La Lic. Jacqueline Tovar Presidenta...
The Psi. Paulina Peña, director of AcceSalud, will be a speaker at this important forum. La Psi. Paulina Peña, directora...
El próximo 4 de marzo se presentará el cluster de enfermedades raras - CER.Para más información consulte la página de Facebook...
Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org
Conferenza Stampa conclusiva "Giornata delle malattie rare: UNIAMO le forze", Mar 4, 2021 11:00 AM in Rome. Link per registrarsi https://zoom.us/webinar/register/WN_Y4FEbnWGSFWSEhuhquaHjQ
Be a part of History. Join the call for the United Nations to adopt a Resolution for Persons and Families Living with a...
Podéis inscribiros en el enlace https://cutt.ly/DkViivh o a través de la página web asociacionaler.org
Hello-Barev!Scientific event, organised by AHA, aim to discuss the following topics: Hemophagocytic Lymphohistiocytosis, Vexas Syndrome, MGUS, Primary Immunodeficiencies, Rare Fungal Infections,...
Focus on rare disease: Prime time — gene therapy for rare disordersSixth annual seminar showcasing rare disease research.Wednesday, March 3...
Desde el Ministerio de Salud de la Nación de Argentina conmemoramos el Día Internacional de las Enfermedades Poco Frecuentes con un...
A l’occasion de la Journée Internationale des Maladies Rares, vous êtes conviés au premier webinaire des Rendez-Vous du GHU organisé par...
On 2 March, people living with XLH, a rare genetic bone disease, as well as scientists, staff and students from...
Utah Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Fecoer organizará el 2 de Marzo el Foro Virtual "Soy Raro, soy Único". Para más información consulte la página de Facebook...
Conference aimed at learning the communication tools and strategies through social networks to improve the visibility of the research carried...
A l'occasion de la journée internationale des maladies rares 2021 et dans la continuité de l' action de sensibilisation et de mobilisation de l'opinion...
Cerramos una semana de acciones con un acto emblemático. A las 11 horas izaremos la bandera de la Unión Latinoamericana de...
From 02/02/2021 until 01/03/2021 BORDIS is committed to create awareness on rare diseases by sharing information on rare diseases and...
Pak-IMD Net: Patient Support Group Meeting: Living Better with IMD’s in PakistanEngaging patients & families of patients with inherited metabolic...
Maine Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
We are excited to announce that we will be hosting our first ever Virtual Conference, running from 1st - 6th March...
L'obiettivo di Rarity on Wheels "Rarità su ruote" promossa da ll' Associazione Nazionale Un Filo per la Vita si svilupperà attraverso...
More information to come in the following days!
The patient organization “95” Rare Alliance Greece has among its objectives the Education and Empowerment of patients with Rare Diseases,...
Monday, March 1, 13 PM. remotely there will be a conference on Youtube ′′ Genetics Revolution - are we ready...
Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH research collaborations underway...
Giornata Nazionale IICB – 1 MARZO 2021 Il racconto della Comunità di Un Filo per la Vita Onlus fatto attraverso...
In occasione della prossima Giornata Nazionale dell’IICB Un Filo per la Vita Onlus desidera realizzare una grande campagna dedicata al...
The following locations/landmarks in the United States will be illuminated to mark 2021 Rare Disease Day: - Niagara Falls, New York - The Helmsley...
Program of RDD Tokyo (Feb. 28, 13pm-19pm (JST)) 13:00 Opening performance / Ayako Ozawa (Singing and storytelling by people with...
The FMDSA would like to bring awareness to #RareDiseaseDay by inviting you to submit a picture wearing your favorite zebra print...
En février, les projecteurs se braquent sur la résilience des personnes vivant avec une maladie rare! Voilà, nous lançons la...
An all day online event with activites for children and parents. -story telling. 5 actors are reading the stories in an...
1. Explanation of the purpose of the project Guest; Yukiko Nishimura (RDD Japan chief secretariat) 2. (Discussion) First, let’s learn...
The following locations/landmarks in Perth will be illuminated to mark 2021 Rare Disease Day:- Optus Stadium - Bell Tower Perth - Fremantle...
On Rare Disease Day we will make the exciting announcement of our SMA research project!We hope to help to increase...
IndoUSrare presents ART4RARE 2021, our first Annual Kids Art Contest. Calling on kids everywhere to show off their artistic talents...
What does RARE mean to me? - HWTH Health Awareness Campaign
China's very first official white paper on rare diseases: "Rare Diseases Diagnosis, Treatment and Security" will be published by the...
1 abanderado niño y 1 adulto con EPOF serán los abanderados de las EPOF en el arrío de la Bandera...
For the first time, we are going to do a charity event for Rare Disease Day in the online virtual...
Il 28 Febbraio 2021 il Comune di San Donà di Piave (VE) illuminerà il Municipio in Piazza Indipendenza con i...
The colours and the logo of Rare Disease Day will be projected from 6.00 pm to 10 pm on 28th February...
Online streaming of mini-concerts and greeting messages from concerned parties!
Nuestro comité Científico representado por dos grandes referentes de nuestro País,Dr. Victor Raggio ...
The following locations/landmarks in Estonia will be illuminated to mark 2021 Rare Disease Day:- TV Tower EstoniaDisclaimer: Illuminations organised by Andrew Bannister...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Con motivo del día mundial de las enfermedades raras, vamos a preparar desde FEDER una serie de acciones online en...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Thanks to UILDM's branch of Martina Franca and to the positive answer of the local authorities, three monuments will be enlighted...
Thanks to the work of UILDM branches (UILDM - Unione Italiana Lotta alla Distrofia Muscolare) we will have 19 monuments...
On the Rare Diseases Day 2021 we will start our celebration of the 20's anywersary of the EB Centre Czech...
illumination of the maqam echahid monument during the night of February 28 with the logo of the RDD2021
Lighting from 5pm to midnight on the Terrassa City Council in the colors green-pink-blue for the day of minority diseases. Highlighted...
TV Tower in Tbilisi will be illuminated with colours of rare diseases in order to spread awareness of rare diseases.
Thanks to the active management of Mujer México (saludmaterna.org), the deputies will once again illuminate the frontispiece of the beautiful...
We are hosting a Rare Disease themed trivia night at the University of Western, Ontario. The event will take place...
This year the Lithuanian Rare Diseases Community has joined the global chain of lights. Lithuanian Child Neurology Association and Hospital...
Rare Diseases Montenegro are pleased to invite you to the online conference that will be organized on Rare Disease Day,...
In occasione della “Giornata delle malattie rare – Rare Disease Day”, Arcoiris Onlus ha il piacere di invitarvi al tour virtuale della mostra Per Gioco....
The Adenomyosis Advice Association is working hard on this year's Rare Disease Day 2021 campaign and in this our 10th...
https://www.rarediseaseday.org/downloads
Este año en OMER hemos decidido sumarnos a las actividades del Rare Disease Day, a través de un evento dirigido a...
[ENG] On the occasion of the Rare Disease Day 2021, Dúshlán is organizing an online event on Feb. 28h, from 11h...
Now that it is difficult to get together at the Corona disaster, we will collect your voices and create a...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Foro realizado desde hace 4 años con la intención de ayudar a visibilizar a las enfermedades poco frecuentes en el...
Lançamento do 1º CURSO A DISTÂNCIA: “SINAIS DE ALERTA DE DOENÇAS E SÍNDROMES RARAS PARA EDUCAÇÃO BÁSICA E ATENÇÃO PRIMÁRIA...
In occasione del RARE DISEASE DAY, il coordinamento provinciale Lecce Fondazione Telethon ha deciso di aderire all’iniziativa di UNIAMO “Accendiamo...
“Baking is done out of love, to share with family and friends, to see them smile.”JOIN US! Let’s make chocolate...
On Rare Disease Day join us for a 2-hour special virtual meeting of our international Stargardt's Community, bringing together people living...
A Rare Disease and Mental Health Chat with David Ross, Chelsea Streit and special guest The Mata sisters from @Looms4LupusThis...
The following landmark in New South Wales will be illuminated to mark 2021 Rare Disease Day:- Newcastle Clock Tower Illuminations organised by Andrew...
The following locations/landmarks in New Zealand will be illuminated to mark 2021 Rare Disease Day:- Oamaru Opera House, New Zealand- Michael...
"Que história é que eu quero contar?" foi a pergunta que a Lia Silva colocou a si mesma acerca de como...
Il 28 Febbraio 2021 il Comune di Jesolo (VE) illuminerà la biblioteca comunale in Piazzetta Jesolo e la scritta "JESOLO" in Piazza...
El día 01 de marzo se llevará a cabo una videoconferencia con una Dra especialista en genética, dirigida a estudiantes...
We are really pleased to announce our virtual Rare Disease Day event. We are holding a virtual Afternoon Tea with...
The following location in South Australia will be illuminated to mark 2021 Rare Disease Day:- Adelaide OvalIllumination organised by Andrew Bannister.
On February 28, 2021 the Center for Rare Diseases Research Center of the School of Medicine, New Vision University organized...
Together with the Vita Club Salzburg we are going into the second round again this year, we will show you...
Social Fund "Omirge sen" (Believe in Life) in Kazakhstan organized today (28 Febr.) the online Conference dedicated to the Rare Desiese Day ...
O Instituto Nacional de Saúde Doutor Ricardo Jorge, em colaboração com a DGS, a Comissão Interministerial de Coordenação da Estratégia...
This event took place on Feb 28 and lead by Pro. Sun Yun, director of the Department of Reproductive Medicine of Renji Hospital. The...
Nurture the Hope! Together to increase the awareness on SMA disease leaving no patient behind.
Lanzamiento de video poco frecuente “Mi Bandera 2021” con canción de bandera cantada por Attaque77 y otros artistas.
OUR VOICE for RARE digital 2021 This fundraising event aims at informing our population about rare diseases, and at raising money for research.Our...
La Fontana monumentale di Piazza A. Moro di Bari il giorno 28 febbraio 2021 sarà illuminata di verde per celebrare...
La Torre dell'Orologio della Città Metropolitana di Bari il giorno 28 febbraio 2021 sarà illuminata di verde per celebrare la...
Il 28 febbraio 2021 avrà luogo l'evento PADOVA SI ILLUMINA. In tale occasione, dalle 18.30 verrà illuminato il Palazzo della Ragione della città di...
Acıbadem Mehmet Ali Aydınlar Üniversitesi ACURARE-Rare Diseases and Orphan Drugs Application and Research CenterRare Immune System Diseases During The Pandemic...
The following landmark in the ACT will be illuminated to mark 2021 Rare Disease Day:- Telstra TowerIllumination organised by Andrew Bannister.
"In the prism of rarity” will be held on Sunday 28 February at 11.30 am live on our Facebook page...
The following locations/landmarks in Queensland will be illuminated to mark 2021 Rare Disease Day: – Mackay Fountain – Story Bridge –...
February 28th, 2021 is Rare Disease Day. Our group, RARE, will be hosting a 24 hour share-a-thon on the Clubhouse...
En este día tan especial se iluminarán en la ciudad de Rosario diferentes edificios gubernamentales, entre ellos el PALACIO VASALLO,...
Texas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Get to know about rare disease from speakers who will bring their unique perspective. Dr Neelam Ismail, a family medicine resident...
La Asociación Española de Esclerodermia, Fundación Ahuce y Asociación Conciertos Solidarios organizan la IV edición de la gala MONÓLOGOS SOLIDARIOS POR EL DIA MUNDIAL DE LAS...
The following locations in Tasmania will be illuminated to mark 2021 Rare Disease Day:- Paranaple Convention Centre- Launceston Town HallIllumination organised by Andrew Bannister.
Move2Advocate, Pledge2Move VIRTUAL CELEBRATION!! On Rare Disease Day, Next Sunday February 28, 2021, will you move with us?! Here's what...
The Charlotte and Gwenyth Gray Foundation was founded in 2015 by Kristen and Gordon Gray when their oldest daughter Charlotte was diagnosed...
Il Forum Toscano delle Associazioni per le Malattie Rare celebra la RDD 2021 con la campagna di sensibilizzazione "LA TOSCANA...
Die Coronavirus-iCovid 19 hat begonnen, auch Kinder ernsthaft zu treffen. Das Multisystem-Entzündungssyndrom (MIS-C) bei Kindern gefährdet die Gesundheit von Kindern,...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
يوم توعوي، عبر منصة الزوم، موجه للجمهور، يهدف الى زيادة وعي المجتمع الأمراض النادرة، التي ليست نادرة في السعودية، وكيفية...
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The National Conference on Rare Diseases and Digital Health on 28.02.2021 had over 300 participants. Mr. Cristian Bușoi, Member of the European Parliament presented EU4Health. A...
In occasione della Giornata delle Malattie Rare, Le Ali di Camilla e il Centro di Medicina Rigenerativa “Stefano Ferrari” dell’Università...
On February 28, 2021, at 13:00 EET in front of the National Palace of Culture in Sofia, Bulgaria, patients with...
On February 28, 4 p.m., a free yoga session will be available on Elena Boriani's youtube channel and will remain...
"Rare is sometimes painful, often unseen.Always present.Rare is brave, determined, finds joy in the little things"In our event, we focus...
Sällsynta dagen – vad är det?Vad innebär det att leva med ett sällsynt hälsotillstånd?Varför är det viktigt att få en...
O Tito tem a doença rara Neurofibromatose Tipo 1 (NF1), e é a personagem principal deste livro infantil. Nesta história,...
We hope to see plenty of members and any others at our beach picnic at Orewa this Sunday in support...
Kurdistan rare disease center in cooperation with Sanofi Genzyme recognized international rare disease day by conducting a lecture about Gaucher disease...
New Center for Research and Treatment of Pulmonary Rare Diseases. Cooperation between University Hospital of Ludwig-Maximilians-University Munich and Asklepios Fachkliniken...
Domenica 28 febbraio, STORIE RARE –Noi i veri protagonisti!!! | Intervista a due bambini metabolici (pubblicazione sulle pagine Social di AISMME...
The KLS Community has come together to spread awareness of Kleine-Levin Syndrome and Rare Disease. All members of the community were...
Raise A Toastie to Raise Awareness for those living with a rare disease in Ireland. Join RDI and help make the...
Presenting a unique run/walk/bicycle ride for 7000 meters at 7:00AM on 28 February 2021Your Venue, Your Choice! Run on your own,...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
[EN]LBioMiT & CNC (Center for Neuroscience & Cell Biology) Communication Office celebrate RDD2021! With interventions of scientists, doctors, patients & their caregivers,...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Os animamos a grabar un vídeo con nuestro lema: LA INVESTIGACIÓN, NUESTRO CAMINO A LA ESPERANZA. Podéis hacérnoslo llegar por...
Over 300 million people are living with a rare disease worldwide. Rare diseases are currently affecting 3.5% – 5.9% of...
By using the Rare Disease Day colours to light up Technopolis (Gazi), an industrial museum and a major cultural venue...
Delaware Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
The Chinese Organization for Rare Diseases (CORD) plans three simultaneous charity sales in Beijing, Hunan and Hangzhou. The proceeds will...
La Fondation Maladies Rares vous invite à participer à la Journée internationale des maladies rares pour soutenir les 3 millions de personnes...
Each bone tells a story. Each story is a bridge between past, present and future.Watch these short videos to: 1. Know...
On Sunday 28 February, on the occasion of the 14th Rare Desease Day, the "Together we illuminate the rarity" event...
The purpose of the event is to enhance awareness about the centers of excellence for rare endocrine diseases in Greece there...
Social media campaign held by RARE Diseases Lesotho Association. Throughout Sunday we will be posting videos of what makes us...
Il gruppo dei volontari del Coordinamento Telethon della Basilicata, guidato dalla Coordinatrice regionale Eliana Clingo, ha chiesto alle amministrazioni comunali...
The following locations/landmarks in Canada will be illuminated to mark 2021 Rare Disease Day: – CN Tower in Toronto, Canada – Calgary...
We will iluminate the old parliement of Andorra, with the colors that represents the rare disease. Other emblematic building will be...
l CIBERER organiza la décima edición de la Jornada Investigar es Avanzar con motivo del Día Mundial de las Enfermedades Raras el...
Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim
Held “online-live” Dialogue with patient families (By invitation only)
Serán iluminados con el color violeta (referente de los colores de FADEPOF)CABA, Buenos Airess:•Palacio Lezama•Usina del Arte•Planetario•Torre Monumental•Floralis•Puente de la...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Under the slogan: "MAKE YOURSELF VISIBLE", and within the framework of the International Campaign for Dissemination and Awareness for Rare...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Campagna “Accendiamo le luci sulle malattie rare”: i monumenti più rappresentativi di diverse città italiane si illumineranno con i colori...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
La Cité des sciences à Tunis, célèbre le dimanche 28 février 2021 la journée internationale des maladies rares, et ceci...
On the 2021 RD Day a building of the Czech Ministry of Health will lit in the colours of the RD...
Pendant la journée du 28 février, nous aurons exceptionnellement ce dimanche là ,une thématique sur l 'Ictère (jaunisse ) et...
For the first time, the iconic Werribee Mansion will be illuminated in the colours of Rare Disease Day from 7.30pm...
- le Chu d'Amiens s'associe à la filière AnDDI Rares et propose un ciné débat gratuit en ligne,- l'hôtel de ville...
Webinário Doenças Raras no Brasil Avanços e Desafios - Domingo 28/02 às 10h pelo canal do YouTube da FEDRANN (https://www.youtube.com/channel/UCAGDOBFEBSTX-NmEmo9RWyA)Abertura...
Australian Sickle Cell Advocacy Inc will be hosting a panel of discussion with 5 people living with rare diseases in...
Evento solidario para dar a connocer y visualizar las colagenopatias tipo II.Este acto se hara el día 28 de Febrero,...
We would like to inform you that Farmaceutski fakultet, Novi Sad will mark the International Day of Rare Diseases in...
Thank you councillor Emlyn Dole. Leader @CarmsCouncil for arranging County Hall #Carmarthen #Wales to be lit up to mark Rare...
The Joint Organization of the Disabled and Young Disabled People invites you to a webinar on Rare Disease Day 2021....
Recordatorio durante todo el día de que la Distonia es una Enfermedad Rara pero no por ello es invisible, requiriendo...
RARE CANCER – how rare is rare?’ 11am-1pm GMT Sunday 28th February 2021Join our live audience for a special podcast...
Message from a person with a rare and incurable disease Mrs. Aya Nakajima, mother of a son with congenital central...
Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February 2020.
Report a debriefing session for the GBS|CIDP Foundation International Volunteer Meeting held in Sydney, Australia in February 2020.
Koronavirüs hastaliginin çocukları da ciddi şekilde etkilemeye başladı.Çocuklarda Multisystem Inflammatory Syndrome (MIS-C), COVID-19 ile enfekte kullanım sağlığını riske atıyor.Pandeminin başladığı...
The Swedish Association of Chronic Oedema, member organization of EURORDIS, has decided to organize a Webinar on Dercum´s disease with...
We will light the top of tower 42 in rare dieseaae day colours in 28th Feb 2021!
10 guide turistiche per 8 tour "Rari" nel centro storico di Padova.Domenica 28 febbraio dalle 14 alle 17 con partenza...
28 FEBBRAIO 2021 RARE DISEASE DAY: Mondo Charge aderisce alla giornata internazionale di sensibilizzazione sulle malattie rare con la campagna...
Church of St. John the Evangelist in the Municipality of Logatec, in Slovenia, was lit up to raise awareness of...
As we cannot meet for our traditional RARE RUN BOLOGNA we orginized a Special Edition: the VIRTUAL RARE RUN BOLOGNA
The Association of Rare Disease Patients registered in Bosnia and Herzegovina is organizing an online event to mark the Rare...
Rare diseases are not as uncommon as they seem. More than 300 million people are affected by a rare disease,...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
The Illness Challenge Foundation (ICF) plans to continue raising public awareness on rare diseases through public events and media coverage....
El próximo domingo 28 de febrero, pacientes, familias y asociaciones que conformamos la Red EPOF Santa Fe estaremos visibilizando enfermedades...
2/28/21 is #RareDiseaseDay2021 around the world I partnered with SkyView Atlanta this year to host a family outing for our special...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Hong Kong will host a round table on RD Drug Policy on 28 Feb. Academia, health economist ,Sociologist and pharma...
10 Jahre Kongenitaler Hyperinsulinismus e.V.Zum Tag der Seltenen Erkrankung begehen wir den 10. Jahrestag unserer Vereinsgründung.Mit unseren Mitgliedern möchten wir...
During the last 13 years, we have with great success commemorated Rare Disease Day in Colombia, in a public event...
Rare Friends is a community of supporters for Far North Queenslanders affected by rare conditions. Once a year, on the...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Medical lecture on intractable neurological diseasesLecturer: Shinno Clinic Dr. Susumu Kamino, DirectorLecture title: "Let's learn about intractable neurological diseases!"1:30 p.m....
On the occasion of celebrating the Day of Rare Diseases in 2021, NORBS is organizing an educational program for students of...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
In Catania Aismac photo contest the subject of de Chiari tree in Piazza Martiri della Libertà.Fotografare l'albero di Chiari.Concorso fotografico AISMAC...
The following locations/landmarks in Victoria will be illuminated to mark 2021 Rare Disease Day:- AAMI Park Melbourne - Wodonga Water Tower - Crown...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
11:00 – 12:30 Talk show-1 Let’s become a disaster preparedness person” – Mr. Toru Terukina 12:30 – 13:00 Break (RDD...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Online-social small event
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
We celebrate the Rare Disease Day (Día Mundial de las Enfermedades raras) including doctors of every department, nurses, social workers, lab...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Northern Ireland Rare Disease Partnership (NIRDP) are really excited to share that the Iconic Belfast City Hall, in Northern Ireland will...
Being mind-full. Wellness for people living with a Rare DiseaseWe welcome everyone to join us online to iscuss mental health...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
The following locations/landmarks in the United Kingdom will be illuminated to mark 2021 Rare Disease Day:- Bradford City Hall, Bradford- Macmillan...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Illuminations for Rare Disease Day 2021 in Poland:- Neptun's Fountain, Gdansk | LINK- Stadion Gdańsk, Gdańsk | LINK- Dyrekcja Building of the...
PMSF Australia is hosting its 8th High Tea event. This year we have decided to go GLOBAL. Join from any...
Poster Exhibition Poster exhibition by member organizations of the Kagoshima NANBYO Support Network Introduction of the 10th anniversary of the...
February 28, 2021 is Rare Disease Day.My son, Archie, was diagnosed at birth via the newborn screening test with a...
Virtual Musical RariTea – 28th February 2021 @3pm RariTea is the NIRDP campaign to encourage people to get together and...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
Virtual tour of the exhibition "Per Gioco". The collection of antique toys of the Capitoline Superintendence..The exhibition focuses on the...
Representantes de la Comunidad de ER en nuestra Ciudad junto a autoridades locales participarán del Izamiento de Nuestra Enseña Patria...
The colours and the logo of the World Rare Diseases Day will be projected from 6.00 pm to 10 pm...
The Allliance Algérienne contre les Maladies Rares will organise an online forum on Rare Diseases. More information to come!
For more information: [email protected] prévoyons un après-midi sensibilisation grand-public, avec divers animations, entre 14h00 et 17h00 :- Atelier sur la gestion...
When the disease is rare, it is hard to find others in the same situation. For Rare Disease Day 2021,...
Infinity Family Car ClubNitroxx ArubaTeam X-pa Aruba Family and Friends did organized a drive by on 28 febr 2021.Media was there...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
To coincide with Rare Disease Day on 28th February, Andrew Roach Talent and Ingenious Fools are pleased to announce that...
https://enfermedades-raras.org/index.php/slider-home/14918-%C2%A1espa%C3%B1a-se-ilumina-por-las-enfermedades-raras-en-su-d%C3%ADa-mundial-2
Join us on Sunday 28th of February as we celebrate our beneficiaries and every 1 in 2000 citizens who go...
We are celebrating Rare Disease Day 2021 by showcasing the rare disease community in UAE. Families, professionals and academics will share...
Our Rare AHC Event:A Virtual "Rare Coffee & Cake" for International Rare Disease Day 2021 and collecting funds for Alternating Hemiplegia of...
Here we are again continuously for the sixth year with all the challenge either in the hospital itself or the...
Con motivo del Día Mundial de las Enfermedades Raras, desde FEDER y nuestro teijod asociativo procedemos a la coordinación de...
The celebration of 11th Rare Disease Day Thailand is scheduled on Sunday, 28th February 2021, from 8:30 a.m.-4 p.m. at...
O webinário #SomosTodosRaros busca levar identificação com a causa para diferentes públicos, pois somos todos ÚNICOS em nossa individualidade e podemos...
Campaign "Let's turn on the lights on rare diseases": the most representative monuments of various Italian cities will light up...
Sehr geehrte Damen und Herren, sehr geehrte Selbsthilfeaktive, sehr geehrte Interessierte, gerne möchte ich Sie heute nochmals auf...
The green colour and the logo of the World Rare Diseases Day will be projected from 6.00 pm on 27th...
Why jazz? In our opinion, jazz has a positive effect on the body and soul, including those affected by rare...
Apresentaremos um vídeo com as pessoas integrantes do grupo POLICONDRITE AMIGOS - REDE BRASILEIRA PELA POLICONDRITE RECIDIVANTE, conscientizando sobre o...
İzmir Kent Konseyi'nin Değerli Paydaşları ve İzmir Kamuoyuna 28 Şubat Dünya Nadir Hastalıklar Farkındalık Günü etkinlikleri çerçevesinde, İzmir Kent Konseyi...
La nostra organizzazione di volontariato unitamente all'Associazione Consumatori e Cittadini Italiani organizza un webinar sui diritti di welfare di cui...
Webinar concerning Rare DiseasesMetabolic diseases are rare diseases.Implementation of the Belgian Rare Disease Plan, updateRegister Now!
Tarih:27 şubatsaat:21:00yer;zoomFebruary 28 Rare diseases event Başkent University Social Work Department lecturer, one of the authors of Rare Diseases in...
Ladies and gentlemen,on behalf of the Organizers, I have the pleasure to invite you to participate in the International Symposium...
Louisiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
V Fórum internacional de Doenças Raras - Uberlandia Brasil - dia 27/02/2021. ingressos gratuitos em https://www.sympla.com.br/v-forum-internacional-de-doencas-raras-de-uberlandia__1107076participem!!
ENG: Our event’s mission is to gather Polish medical students and people living with rare diseases (as well as their...
In the International Rare Disease Day 2021, Trazando lo Invisible invites you to the virtual and free event: “Hablemos de...
In occasione della giornata Mondiale delle Malattie Rare il giorno 27 febbraio l’Associazione Nazionale Sindrome di NOONAN e RASopatie ODV,...
Three reports with three different focuses of rare disease in China will be released on RDD 2021 by the...
Mi autoestima y resiliencia: Reconozco y acepto mi lugar en el mundo Jóvenes y adultos.
Sabato 27 febbraio, dalle ore 18 alle 19 | STORIE RARE – Facciamo che “io ero”…Storie per stare insieme | Letture per...
Harvinaisten ilta on verkossa toteutettava koko illan ohjelma! Harvinaisten illan aikana kuulemme mm. opiskelusta harvinaisen sairauden kanssa, minkälaista on kun diagnoosin...
Para el Día Mundial de las EPOF lanzaremos un video junto al cantante Nahuel Penissi. La canción elegida es Avanzar. El...
Rare Disease Day 2021.On February 27, 2021, at the Colussi SNC Pharmacy in Martignacco (UD), there will be an information...
For the celebration of the fourteenth International Rare Disease Day that is held every year the 28th of February, students...
Tisztelettel és szeretettel meghívjuk a Ritka Betegségek Világnapja alkalmából szervezett programjainkra, melyeket a RIROSZ, a Ritka és Veleszületett Rendellenességgel Élők...
Oman Society for Genetic Medicine is organizing a virtual awareness event for public on 27th February 2021.
Arkansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
We are going to have 2 event for Rare Disease Day 2021 1. “Illuminates Building For Indonesia’s Rare Disease Day...
Online social events Organizing coloring book projects
We are organizing the Rare Day for the second time in Mali. This event will gather scientists, patients and officials...
We shall be holding a virtual event on 27th February, 2021 at 10.00am Theme: Rare in a Covid World Kindly...
Ziua Internațională a Bolilor Rare 2021 Anul 2021 marchează cel de-al 14-a an în care comunitatea internațională a bolilor rare...
Rare Disease Day Bay Area is 2-day Livestream event on Twitch, featuring a Raid Train on Saturday and Sunday with over...
Making people aware of rare Nanbyo diseases; 9:40 Registration 10:00 Opening remarks 10:10 Performance 10:40 Workshop 12:00 Break 13:00 Watch...
On 27 February 2021, the Cyprus Alliance for Rare Disorders in collaboration with the Cyprus Medical Association will be hosting...
Dit jaar hebben we aandacht voor erfelijke (zeldzame hematologische) kankers. Een geneticus vertelt wat het is en een clinicus vertelt...
For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host "Fight...
Diretta Facebook ore 16 con il dr. Squitieri che risponderà alle domande dei giovani sulla malattia di Huntington e sugli...
Dear colleagues, ladies and gentlemen, The Center for Rare Diseases (ZSE) of the Ulm University Hospital would like to cordially...
For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host "Fight...
we are happy to announce that on February 27 and 28 we will hold the so-expected Bilateral Seminar with the...
12:30 Opening / Watching RDD Japan video 13:00 Opening remarks 13:05 Self-introduction of participants 13：30 Break / Watching RDD Japan...
We helped in organization of a meeting with experts in rare disease (doctors, Ministry of Health, researchers, and psychologist)Around 16 organizations...
La tienda Trek - Bike junto a varios patrocinadores estan invitando a participar en un COLAZO ENTRE AMIGOS, de 82...
Due to the covid 19 pandemic we are organizing two virtual conferences from February 27 to 28, 2021 from 8:30...
l'Alliance Algerienne contre les Maladies Rares participe au Forum virtuelle Magrebin des maladies rares hebergé par l'Alliance des Maladies raresau Maroc(AMRM) et...
JOURNEE MONDIALE DES MALADIES RARES: 28 FEVRIER 2021Organisée par la Société Maliennede Génétique Humaine (SMGH)27 Février 2021,Grande Salle de réunion...
Estimados amigos y compañeros: Como coordinadores del área IBIMA-RARE nos corresponde el honor y tenemos el placer de daros la...
Форум проводится по инициативе Всероссийского союза пациентов и Всероссийского общества орфанных заболеваний. При поддержке Министерства здравоохранения Российской Федерации и Министерства...
Dia Mundias das Doenças Raras 2021A associação de Paraparesias Espaastica Correlatas do Brasil ira promover nos dia 26 a 28...
Gran congreso Internacional sobre Enfermedades raras o poco frecuentes, en donde participarán. Organizaciones, médicos y pacientes en el marco de...
Join Share4Rare’s webinar with live Q&As with renowned experts in the field of psychology and neuromuscular conditions. During an hour-long...
La Sociedad Científica de Estudiantes de Medicina de la Universidad Veracruzana en Minatitlán, a través de los Comités Permanentes de...
We will have an online tea party using Zoom. Please bring your own tea and favorite snacks by your computer...
Le Centre Hospitalier Cayenne organisera la Journée Internationale des maladies rares en Guyanne le 26 Février entre 10:00h et 12:00h. Affiche
A national conference on Rare Disease Day is traditional scientific event already in Moldova for the end of February, organized...
The president of FEMEXER will be a speaker at this important forum. El presidente de FEMEXER, David Peña, será ponente...
Her yıl Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN) olarak farklı kurum, kuruluş ve toplumsal organizasyonlardan...
This Round Table is currently being prepared and will be organized by a newspaper Zdravotnický deník (specializes in healthcare issues)...
International Rare Disease Day is an annual celebration' day held each year on the last day of February. This year in Tunisia...
On Friday 26 February 2021 we will run a virtual event directed to secondary school years 10, 11 and 12....
The last day of February is recognized worldwide as Rare Disease Day. We at SickKids, are proud to join the many...
Le 26 février, à l'occasion de la Journée des Maladies Rares 2021 (28/02/21), le Centre des Maladies Rares du CHU...
La Asociación Española de Paraparesia Espástica Familiar – AEPEF, participa en el Día Mundial de las enfermedades raras de una...
Alabama Rare, Children's of Alabama, The University of Alabama at Birmingham, and the Alabama Genomic Health Initiative will host the...
Już po raz czwarty Instytut Biochemii i Biofizyki PAN organizuje sympozjum w Międzynarodowym Dniu Chorób Rzadkich. Tym razem wydarzenie „Dzień...
Illumination of UAP Tower in honor of Rare Disease Day in Kenya
Firefly Fund is challenging you to Run for Rare starting on World Rare Disease Day, Feb. 28. Over the next month, we...
A special issue of the bulletin which we dedicate to describing what entails such holistic care for a person with...
Tag der Seltenen Erkrankungen in Mainz
2/26/2021 From 12:00 to 13:30 there will be an expert discussion via zoom “Progress of Rare Diseases Treatment and Upcoming Improvements” organised...
Join us for a Rare Disease Day WebinarThe Oxford-Harrington Rare Disease Centre (OHC) is pleased to present a guest lecture...
Rare Disease Day In IranFriday 26th Feb., 2021RARE IS STRONG! RARE IS PROUD!Rare Diseases Foundation of Iran (RADOIR) is participating with a...
Tennessee Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Rare Fair 2021 is a good mood virtual event for a whole family. No entrance fee, registration needed. Come and...
The Mission San Jose High School Students For Rare Diseases Club is kick-starting the year with a Rare Disease Day...
Join the GSNV in celebration of Rare Disease Day with a virtual journey showing the power of alliances that build...
(1) Screening of contents provided by RDD Japan (2) Online lecture (3) Screening of a video introducing our rehabilitation center...
Le vendredi 26 février de 12h00 à 13h30 (CET), la nouvelle plateforme de prise en charge des maladies rares du...
ILLUMINIAMO LA RARITA’L’Associazione Amaram Aps di Altamura, grazie alla collaborazione dei suoi referenti di zona e dei suoi soci attivi...
PROGRAMME OF THE EVENT On February 26, 2021, together with the movement of the orphan community "Orphan Bell" we will hold...
Illinois Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Rare disease day in Iceland To honor rare disease patients all over the world Perlan Museum together with Gódvild will...
South Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
On 26.02.2021, the Medical University of Timisoara has illuminated in the colours of RDD as a solidarity event of patients with...
The UAE Rare Disease Society celebrates Rare disease day 2021 with a variety of events.1. An online webinar on 24.02.2021 directed...
A l'occasion de la journée mondiale des maladies rares, plusieurs monuments se pareront en région des couleurs de la journée...
Inter-Institutional virtual event organized by civil associations of patients and their families with the support of the pharmaceutical industry that...
The press conference - Equitable access for care for people living with rare diseases through the National Plan for Rare...
Connecticut Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Join us for a Rare Disease Day WebinarFriday, February 2610 -11 am ET 3 - 4 pm GMTThe Oxford-Harrington Rare...
The 26th of February the Rare Disease Foundation of Iran will celebrate Rare Disease Day with an online event. More information...
Venerdì 26 febbraio, dalle ore 17.30 alle 19 | Non solo SNE: l’importanza del prelievo su cartoncino a domicilio per il...
Lappia Talo, the iconic building designed by Alvar Aalto and hosting the Rovaniemi Theatre, will show support for Rare Disease...
Campaña de información a la ciudadanía a través de las redes sociales, de entrevistas de radio ,correos electrónicos y diarios digitales...
https://meet.google.com/vgb-vhvc-jyu
Georgia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Looking to raise awareness and share key knowledge on rare diseases, the Cyprus Alliance for Rare Disorders is organising an...
El Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias (Creer), dependiente del Imserso, organiza...
Welcome to the fourth SEE RARE RUN VIRTUAL RACE! This year, we have two distance options: 5K or 5 miler! SEE RARE RUN...
For RDD we planned an event for the 3rd postal stamp for rare diseases. The first was for children with rare...
Online race, 5K and 10K for men and women, for raising awareness and funds for ECHS1 Deficiency and Mitochondrial Disease.
We had the opportunuty to gather around 15 rare disease organization at the government of North Macedonia to have a...
Programa do Segundo Seminário do Conselho Municipal de Saúde/Secretaria Municipal de Saúde – Cuidando das Pessoas com doenças Raras e...
Florida Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
The CMID, Coordination Center of the Interregional Network for Rare Diseases of Piedmont and Valle D’Aosta, organizes in collaboration with...
This year the Genetic Support Network of Victoria (GSNV), Australia will hold a virtual event to raise awareness amongst the general...
Introduction of activities of the Hokkaido NANBYO regional center RDD2021 panel display Others
Wisconsin Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
#FEMEXEResillient Carousel of videos of the allied associations of FEMEXER (from February 25 to 28, 24 hours a day on...
Rare Disease Day at Iowa State University is a completely virtual event hosted on Zoom by the ISU's Rare Disease...
On the occasion of World Rare Disease Day, we invite you to participate in a Facebook Live session with Dr....
We are inviting everyone to a webinar to be held on 25 February 2021 (Thursday, 4:00 PM) in observance of...
Part I: Actual Balancing of Treatment and Work in Various Diseases (Roundtable Discussion) Part 2: Information exchange meetings by disease...
La historia de Piper, un pajarito valiente. Descubriendo el miedo y cómo ser fuertes.
Oklahoma Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
WALK FOR RARE is a virtual walk to raise awareness about rare diseases in Portugal. Join us and show how rare...
İzmir ili Dijital billboard ve toplu taşıma araçlarında videomuz yayınlanacak.
Bugün, Nadir Hastalıklar Günü’ne dikkat çekmek üzere, Nadir Hastalıklar Ağı olarak çevrimiçi bir basın toplantısı düzenledik. Kurulduğumuz günden bugüne dek...
New Jersey Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
This is the 4th Rare Disease Day to be observed in Ghana being organized by Rare Disease Ghana Initiative. This...
Cette journée dédiée aux maladies rares permet de sensibiliser la population sur ces maladies et leurs impacts sur la vie...
Nadir Çağrı Kampanyası Türkiye’de bilinmeyen ve fark edilmeyen nadir yaşamlara dikkat çekmek, toplumda empati ve bilinç yaratmak amacıyla, “Sağlıklı birey,...
Cómo ser un buen cuidador, pero cuidándome. Evento dirigido a padres y madres.
Il Convegno è rivolto agli operatori del SSN ai diversi livelli, ricercatori, referenti delle associazioni e a tutti gli stakeholder...
Rare Diseases Awareness Day for Health Professionals This event was organised by members of Oman Society of Genetic Medicine mainly to...
Colorado Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Tygerberg Hospital and Stellenbosch University will celebrate Rare Disease Day on 24 February 2021 and with #28FactsFor28Days on social media.
COLOUR FLAIR FOR RARERare Disease Day 2021Delighted to share our #RareDiseaseDay Colouring Challenge to raise awareness. Its a very simple...
PERCORSI RARI INSIEMEMERCOLEDI’ 24 FEBBRAIO ORE 16-18 su piattaforma ZoomLe associazioni Amaram aps, Assieme onlus, Aid Kartagener onlus, Vite da...
O Observatório de Doenças Raras (ODR) da Universidade de Brasília realiza, desde 2012, um evento alusivo ao Dia Mundial das...
Indiana Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
IV edizone di "Rare Abilità", adesione alla campagna Nazionale con l' illuminazione di Palazzo di Città (Fasano -BR) e momenti...
Cumbre Nacional de Enfermedades RarasEs hora de construir oportunidades por un mundo sin barreras.
Kansas Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Online. Public registration coming soon!For more information please see the Black Pearl Awards website or email [email protected].
The NYSCF Research Institute's Live Conversations with ExpertsUnlocking Rare Disease Treatments with Stem CellsFebruary 24, 2021 at 5:00 PM ETRegister...
EN EL MARCO DE LA CONMEMORACIÓN DEL DÍA MUNDIAL Y NACIONAL DE LAS ENFERMEDADES RARAS SE ILUMINARÁN EL FRONTISPICIO DE...
We are showing a new documentary about Rare in Iceland and how the system is working ore not working in the...
Virtual Parliamentary EventRare Disease Day is an opportunity for the rare community to come together to raise awareness of the...
Rare diseases are characterized by a large number of broad and diverse disorders and symptoms, majority having identified genetic origin....
"Thinking about Coexistence Week" Paintings, photographs, paper cutouts, picture postcards, calligraphy, calligraphy, haiga, stained glass, pottery, puzzles, floral arrangements, kumihimo,...
Actual discussion: Santa Survila, Ivars Balodis interviewing Baiba Ziemele, head of Latvian Alliance of Rare Diseases. Available support for people...
New Hampshire Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
On 24 February 2021, the President of the Cyprus Alliance for Rare Disorders, Mr Charalambos Papadopoulos, will be giving a livestreamed...
#AnkaraKentKonseyi Halk Sağlığı Çalışma Grubu tarafından organize edilen "Ankara Kent ve Sağlık Buluşmaları" Nadir Hastalıklar başlığı altında 24 Şubat Çarşamba günü...
Arizona Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Nevada Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Il 28 febbraio 2021 si celebrerà l’annuale giornata mondiale sulle Malattie Rare. L’Azienda Ospedale Università di Padova [AOUP] è la...
El Nano Rare Diseases Day es un evento organizado en el marco del Día Mundial de las Enfermedades Minoritarias donde se darán a...
Massachusetts Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
GeneRare:Getting to Know Genetic and Rare DiseasesMeetings on Rare Diseases and new genomics addressed to health promotion, prevention and responsible...
Tercer simposio, que se desarrolla con participación de personas con enfermedades raras, familiares, red comunitaria y profesionales de salud e...
In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce that SMA Malaysia will...
The students of the 2nd Primary School Čakovec (II. osnovna škola Čakovec) through the eTwinning project Teachers for Europe: Democratic...
The excitement is continued! In conjunction with the celebration of World Rare Disease Day 2021, we are pleased to announce...
North Carolina Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
The European Reference Network for Rare Neurological Diseases (ERN-RND) is pleased to invite you to attend the webinar on "Improving...
Cuidarse por fuera, pero también ser “guapos” por dentro, siendo solidarios. Es el objetivo de la campaña #GuaposPorDentroYPorFuera que lanzamos desde Aefat,...
Il 23 febbraio 2021 dalle ore 10 alle ore 13 avrà luogo online l’evento Medicina e arte. I colori della...
The future of rare diseases starts today - Recommendations from the Rare 2030 Foresight StudyThis event will be the culmination...
webinar: https://stream.lifesizecloud.com/extension/7692222/50fd52a8-e9c6-4268-ad33-1fcd476f6a75 La celebrazione della Giornata mondiale delle Malattie Rare assume quest’anno, anch’esso unico e raro, una connotazione ancora più...
Since 2016 every year in February the Department of Skin and Venereal Diseases of the Lithuanian University of Health Sciences...
West Virginia Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this...
Ohio Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
Khim Lamichhane, a patient advocate from Nepal, has organised several events to raise awareness for people living with a Rare...
Join us online for a week of free events revolving around rare diseases and the rare disease community. Each evening...
In the Philippines, National Rare Disease Week, which is held every last week of February, places the concerns of the...
Exhibition at the following facilities. 1) Niigata Prefectural Library February 25 – March 7, 2021 2) Honport Niigata...
Social media campaign with video about people with rare diseases: we live with same dreams, needs, emotions as everyone else....
This February we're flipping the script and encouraging South Africans to share their rare stories in an effort to stimulate a...
Khyber Pakhtunkhwa province has 36 million population. Most of the families prefer to marry within their closer relatives which has...
Light it up for Rare Diseases! The National Alliance for Rare Diseases Support - Malta in collaboration with the Mdina...
Online. This is a closed event for the accepted applicants from the Council of National Alliance members.For more information please...
XIV GIORNATA MONDIALE MALATTIE RARE "AIUOLE DELLA RARITÀ"LUNEDÌ ’ 22 FEBBRAIO ORE 10. 00 Ospedale Pediatrico Giovanni XXIII di Bari...
We are interviewing our parents of children with rare diseases to bring awareness in our community.
L’Orchestra Asclepio, composta da medici, studenti di medicina e operatori sanitari, rende omaggio ad uno dei luoghi più significativi della...
On the occasion of the rare diseases day, Dravet Italia Onlus Is promoting a campaign aimed at raising awareness on...
Gaucher disease is a little known rare genetic disease. When the diagnosis is early and the treatment begins in time, the quality...
This year, an online event in honor of the rare is dedicated to highlighting the importance of networking for medical...
Asociación Mexicana de Amigos Metabólicos, AC, se suma a la celebración de los “50 años del Instituto Nacional de Pediatría”...
Liebe Patientinnen und Patienten, liebe Angehörige und Interessierte,anlässlich des Welt Enzephalitis Tages am 22. Februar 2021 laden wir Sie herzlich...
With the slogan "I am rare alone, together we are strong", we invite all schools on this day to join us in...
Visibilizar, concientizar y difundir información acerca de las enfermedades raras o poco frecuentes y la salud auditiva en México, principales...
Como cada año, los alumnos de la Facultad de Medicina de la Universidad Autónoma de Guadalajara (UAG), en colaboración con...
This year campaign moved in social media for continuing our activities initiated in 2013 and will focus on:*Press Releases in...
Young researchers will present the equipment acquired with FEDER funds and its applicability in their research on Rare Diseases.+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++En esta...
https://youtu.be/jWhpqb1PnhUACCENSIONE DELL’ARENA DI VERONA IN OCCASIONE DELLA GIORNATA MONDIALE DELLE MALATTIE RARE - In occasione della giornata mondiale delle malattie rare che...
Due to the COVID-19 pandemic, gathering events will not be possible in 2021. Thus, the rare disease community has decided...
If you still haven't heard of Rare Diseases, this is your chance to get to know better. The untold and...
#February is Rare disease month,Kush was the first child in Sydney and the first child in India Diagnosed with FoxG1...
The Georgian Foundation for Genetic and Rare Diseases (GeRaD) conducted a wide campaign in social media, TV and radio to...
This year's Rare Disease Day in Slovakia is about solidarity and positive examples, which our society needs so much. In...
We will be sharing interviews with parents abotu the impact of have SCN2A and why it needs further funding and...
Sheffield Autism Research Lab (ShARL) will be publishing a Rare Disease Day blog series and informative videos about our ongoing...
Due to the pandemic, public authorities and other known persons has send a litle video explaining what is a rare...
On World Rare Disease Day, we will post stories and videos from CdLS families. It will be a special day...
Este sábado, por Zoom te contaremos sobre las tarjetas de emergencia que hemos creado para Marfan, Loeys-Dietz y Ehlers-Danlos. Cómo...
Sabato 20 febbraio, dalle ore 10 alle ore 13 | Evento conclusivo “Pillole Rare in … malattie rare. Facciamo centro.” (organizzato da...
Lecture and social event for families of patients with FAP (Familial Adenomatous Polyposis)1. Opening remarks2. Lecture by Researcher3. Information Exchange4. Learning...
After 1 year of the open day, now we continue of the awareness of rare disease in Rwanda.We hope to...
Ada Apa Dengan Cinta?All individuals with rare disorders (RD): - don't have romantic feelings - don't want to have relationships...
Program (tentative) Introduction of RDD Study tour by high school students Exchange of opinions with high school students from other...
1) Panel exhibition Date: February 20 to February 28, 2021 Location: Ishikawa Prefectural Government Building, 19th Floor Observation Lobby 2) Online...
Opening – Introduction of social issues related to rare and incurable diseases 2. special lecture webinar My Face, My Style...
Webinar about resilient organizations, and within this framework we will share what the experience of 2020 was like and the...
La Agrupación Bomberos Zapadores de la Ciudad de Rosario, Prov. de Santa Fe, realizará un triple descenso utilizando la técnica...
Recognizing the difficulties caused by the pandemic, the social distancing and the inclusion of us parents, we organize an introductory...
Webinar – INBORN ERRORS OF METABOLISM: MORE KNOWLEDGE, BETTER FUTURE Organizer: Association of Inherited Metabolic Diseases ‘Aspida Zois’ (Life Shield) Co-organizer:...
ALEM Association to Fight Multiple Sclerosis of Medellin Colombia commemorates the World Day of Rare Diseases with the realization of...
Panel Exhibition NANBYO ”Senryu" exhibition Senryu: a seventeen‐syllable poem that is often satirical of the times.
Meet rare heroes: • Anna, Alkaptonuria: "I am no longer lonely with my rarity - science has intervened!" • Ingrid,...
On the 19th of February 2021, the Lebanese Association for Neuromuscular Diseases hosted a webinar on Rare Disease Day alongside...
It is a fundraising event celebrating the Rare Disease Day and part of the proceeds will be donated to the...
Os presentamos la nueva canción de Alex García a.k.a. AlexPunto0, uno de nuestros héroes que vive con una enfermedad rara.Alex nos ha...
Colloquium organised by The National Alliance for Rare Diseases Support - Malta and the University of Malta Biobank entitled: “Patients...
Los invitamos a la I Jornada de Enfermedades Raras del 18 al 20 de febrero organizado por CASPH en colaboración...
ندعوكم للمشاركة في مسابقة " نادر ونادرة للأشخاص ذوي الإعاقة" الفئات المستهدفة: فئة ذوي المهارات المتعددة- فئة ذوي المهارات اللفظية...
The largest light initiative for the International Day of Rare diseases has already started in five cities of Ukraine!From yesterday...
I Conference of Rare Diseases in Panama is an academic and social event organized by CASPH from Faculty of Medicine of...
An accurate and early diagnosis is essential in the prognosis of rare diseases! Come to know more about genetics and...
Conferenza di lancio della Campagna “SHINE A LIGHT ON XLH” – Accendi la luce sull’XLH. Campagna per evidenziare i benefici apportati...
Advocating for Rare Disease Patients on Malta National Television TVAM
El día 17 de Febrero estaremos en #Btvinforma en Bolivia tv a las 10 de la mañana!Los invitamos a ver el...
Press Conference to launch of the MDS research project in collaboration with Malta Association of Biomedical Science (MABS), RDM will...
California Rare Action Network invites you to join patients, families, caregivers and other rare disease community members at this important...
CALL FOR PARTNERS | NATIONAL RARE DISEASE WEEK 2021This year we're going 100% virtual! Due to the pandemic, social media...
Parent Project organizes every year an International Conference entirely dedicated to Duchenne and Becker muscular dystrophy. This is an event...
Webinar su zoom dalle 19 alle 20:30 sulla talassemia organizzato da FareComunicazione con il patrocinio di UNIAMO e il contributo non condizionato...
Presentamos los datos de impacto de la pandemia en este colectivo que suma alrededor de 3 millones de personas en...
IV Concurso de Relatos Cortos sobre Enfermedades Raras “Mi Experiencia Personal con la ER” Bases: https://www.adisen.es/noticias-y-actividades/iv-concurso-de-relatos-cortos-sobre-enfermedades-raras-mi-experiencia-personal-con-la-er-2/ Pueden participar personas afectadas...
L@s nvitam@s para este Martes 16 de Febrero a las 19:00 hrs. a nuestro Tercer Conversatorio: "Hablando de Epofs: Una...
An RDD press seminar held jointly with Pfizer Japan Inc.
On the occasion of the activities organized to commemorate Rare Disease Day, Adisen, the National Association of Addison and Other Endocrine...
This is a video introducing RDD Japan 2021. I made it simply with BGM only. Please use it for the...
15.02.2021 - Launching the RDD Campaign with an exhibition of art works realized by children at NoRo Center. We have attended...
Virtual fundraising challenge in sports routine or fitness routine to fundraise for Ataxia, ataxia research and climate change. Based on...
The third week of #S4RMonth will be dedicated to give visibility to childhood cancer and the different research projects on...
Program: Launch a live monthly support call program for patients and families: https://invinciblevision.org/calls-sign-up/ Launch the new Invincible Vision website and...
HAE Junior patient organisation joins Rare Disease Day 2021 with a digital campaign in Czech language about the rare condition Hereditary...
Light it up for Rare Diseases! The National Alliance for Rare Diseases Support - Malta together with the Ministry for Gozo will...
Love For Kids, Inc. is proud to honor children with rare conditions in partnership with musicians from Texas Music Network...
RDD Japan panel exhibition
In line with our 2021 Rare Disease campaign and leading up to the 28th of February!!Week 1: We will be...
Rare Disease Day commemoration is jointly organized by Ali Kimara Rare Disease Foundation (AKRDF) and Tanzania Society of Human Genetics...
Display of RDD panels Display of books related to intractable diseases
Please get to know ME! Part 1: Let’s learn about various diseases! Online Exchange Meeting for Families with Rare Diseases...
We will dedicate the second week of the month to the registry of patients with COVID-19 and rare diseases. The current global pandemic situation has...
La intendencia de Soriano intervendrá las letras corpóreas que identifican las localidades del departamento con los colores de las enfermedades...
There will be three public webinar series hosted by University College Dublin in collaboration with Queen's University Belfast during February to...
Living with PNHThe German filmmaker Julia Stromberg captured the life of a patient with the rare blood disorder PNH as...
L@s nvitam@s para este Jueves 11 de Febrero a las 19:00 hrs. a nuestro Segundo Conversatorio: "Hablando de Epofs: Una...
1er Concurso de Dibujo Debra México “Mi Vida con EB” Celebrando el Día Internacional de los Padecimientos RarosMándanos un dibujo con...
Webinar su zoom dalle 19 alle 20:30 con il patrocinio di UNIAMO e il contributo non condizionato di Chiesi.
RDD2021 panel exibition
World of Rare Disease Pop QuizFeatured on the NI Science Festival Schools & Educators ProgrammeTuesday 9 February - Thursday 11...
The Chilean Federation of Uncommon Diseases (FENPOF) comprises leaders of rare disease associations that seek to create awareness and promote...
In conjunction with the celebration of World Rare Disease Day 2021, a talk program was held on 9 February 2021 (Tuesday)...
In order to create awareness, the coming weeks we will ask our members via social media to send in pictures related...
Todos invitados para el Martes 09 de Febrero a las 19:00 hrs. a nuestro Primer Conversatorio: "Hablando de Epofs: Una...
Em comemoração ao Dia das Doenças Raras, a FEBER parabeniza todos os Raros com foto de alguns raros em nosso Atendimento...
This is an exhibition in the Virtual World Second Life. Community Virtual Library https://www.facebook.com/CommunityVirtualLibrary and Conrado F. Asenjo Library https://www.upr.edu/biblioteca-rcm made...
For the 8th RDD Fukuoka event, we will focus on radio broadcasting on YouTube. We will take the “change” from...
#VivirConMarfan La experiencia de pacientes con síndrome de Marfan y sus cuidadores.Ponentes:Giuliana Pachano. Ecuatoriana, mamá de Victoria de 9 años,...
Interesting activities will be held in February 2021 aimed at raising awareness of rare diseases in Georgia. CDKL5, Dravet syndrome,...
SpectacuRARE Fest 2021 is an online event.We will talk about "Living with a Rare Disease" on zoominar, IG live, FB...
En conmemoración del Día Mundial y Nacional de las Enfermedades Raras, se llevará a cabo nuetsro Primer Simposio Latinoamericano Virtual...
Iniciativa Pensemos en Cebras México Trabajando y commemorando.En commemoración del Día Mundial y Nacional de las Enfermedades Raras 2021, se...
PRIMER SIMPOSIO LATINOAMERICANO DE ENFERMEDADES LISOSOMALES 6 Y 13 DE FEBRERO 2021 En commemoración del Día Mundial y Nacional de las...
FEBRERO MES DE LAS ENFERMEDADES RARASLa fundación AYOUDAS Panamá da inicio a sus actividades y campaña de difusión masiva para...
All of Greece, the whole world, is becoming one route!The race is organized by MDA Hellas (Association for the care...
Em comemoração ao Dia das Doenças Raras, a FEBER parabeniza todos os Raros com foto de alguns raros em nosso Atendimento...
The event is aimed at people with rare diseases, doctors, family members and friends.To participate, you just have to send...
Help Raise Awareness for RARE by carrying HOPE with you! HOPE represents the dreams and aspirations of the beneficiaries of...
En el marco del Día Mundial y Nacional de las Enfermedades Raras 28 de febrero 2021Mujer México y la Iniciativa...
En el marco del mes internacional de las enfermedades raras y huérfanas (ERH), se ha convocado al evento internacional: Retos y oportunidades para...
We share our colours, our stories of people with the rare disease XLH (X-linked hypophosphatemia), daily on our social media...
RDD Japan 2021 panel display
Rare Disease Day may be the 28th, but we are celebrating all month. Join New Hope Run Club and Avery's...
II Concurso Fotografía ‘Rare Disease Day’ de Yo NemalínicaPor segundo año lanzamos nuestro #concursofotografico ‘Rare Disease Day’, sumándonos así a...
DAY ON RARE DISEASES AND NEONATAL SCREEN EXTENDED FROM FEBRUARY 1-28, 2021. The Pensemos en Cebras México and Mujer México...
The idea is that people who are living with rare diseases get gifts, in such a way that people who don't...
We are very honoured that the RD Day 2021 is held under the auspices of our current minister of health, professor...
Rare in the City in front of the Parliament Building under the patronage of the Hon. Speaker of the House...
Rare Impact Phrases Campaign - You are not alone! For campaign idea and to show that misinformation and lack of...
Rare Impact Phrases Campaign - You are not alone! For campaign idea and to show that misinformation and lack of...
RDD2021 kick-off live On the first day of RDD month, the first RDD Japan kick-off on YouTube. You can see the...
We will mobilise the media as well as the social media to raise awareness about rare diseases in Mauritius.
Lo scopo del convegno è quella di promuovere l'integrazione tra vari settori attuando sinergie nella ricerca clinica e traslazionale attraverso...
“Rare Cancers Awareness Month RARE CANCERS AWARENESS MONTH 2021” Program ～Rare is Many! Let’s learn about rare cancer ～February is...
1) Exhibition at Community Book Cafe at Mitaka-City Date: February 1 ~ February 28, 2021 2) Seminar on Telemedicine Date: February 1 ~...
Per far comprendere a chi non le vive quali siano le sfide che le persone che convivono con la CMT devono...
Родительский проект по оказанию помощи пациентам с миодистрофией Дюшенна/Беккера мы поддерживаем #RareDiseaseDay наше мероприятие «мы делимся об этом дне в...
the Alliance is organizing a promotional campaign for the RDD 2012 throughout the month of February oover medias
Press Conference to launch Rare Diseases Campaign in Malta in front of the Parliament Building in Valletta
To mark Rare Disease Day 2021, the European CMT Federation is hosting a global ‘Faces of CMT’ Photography competition in...
MED13L is a very rare syndrome that is characterized by intellectual disability, speech and language impairment, motor developmental delay with...
RaDiOrg organised a full digital media campaign with 2 objectives: raising awareness on rare diseases towards the larger public and stakeholders &...
This is our 6th year hosting the Rare Disease Day virtual race to raise awareness and to benefit the National...
Announcing our “Move for A Diagnosis” event that will run throughout the month of February, until Rare Disease Day on...
On February 1, we started with the national campaign "LEARNING ABOUT RARE DISEASES".Loleska Gordana and "Life with Challenges" and Super...
Trazando lo Invisible is a non-profit organization in Mexico with the goal of raising awareness about invisible disabilities. In february,...
https://www.instagram.com/p/CKwAxZ3Bkph/?igshid=1qbexuin9yqz0We would like to invite you to participate in the "Small, large draws" drawing contest organized by the Phelan-McDermid Association,...
Podrà participar en el concurs qualsevol persona major de 16 anys i resident al Principat d’Andorra. No poden participar els...
The catch phrase is To the medical professionals and to all people, give ale and kindness!Project 1: #Yell to the...
Exhibition at the Department of General Studies Presentation HallActivity Report (Presentation)
SOLIDARITY MUSICAL PROJECT - THE HAKA OF MARAVALMaRaVal calls on Valais musicians and singers to show solidarity: we call on...
Rare disease patients are considered 'invisibile' due to the marginalization, discrimination and stigma still often associated with rare diseases. They live...
In conjunction with Rare Disease Day 2021, there will be a virtual run held to bring awareness of rare disease...
1) Interview with a newspaper reporter and a Parkinson's disease patient (Video letter)2) Nanbyo Book Fair at 30 libraries in Gifu Prefecture
To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Rare Kids Art Competition. Ask...
To celebrate Rare Disease Day 2021 the Genetic and Rare Disease Network is running a Photography Competition. Get your cameras...
[EN] For RDD 2021, Mitochondrial Biomedicine and Theranostics Lab has created the Rare Energies Raffle! Acquiring a raffle ticket you...
Stichting SpierKracht Netherlands reaches out global. Covid 19 has quarantined a lot of families in the house. With our 2021...
ART CONTESTThe skin is to the body what the painting is to the painter: it always tells a story...The Fondation René...
ART CONTESTThe skin is to the body what the painting is to the painter: it always tells a story...The Fondation René...
Impara l’arte giapponese del kintsugi, per valorizzare Ferite e fragilità. Un laboratorio unico, per incollare i frammenti della nostra storia...
We will organise a meeting between Italian representatives of European Reference Networks on 22nd February. We will illuminate the Leaning...
The European D(dystonia)-DAYs 2017 will be held in Rome, Italy on 12-14 May at the Hotel IBIS Styles Roma in Rome,...
Arpan for Charity invites you to Disco Dandia in jeans, supporting Rare Disease Day. This first is the first ever...
HAPPENING TODAY! Join us for this #NRDW2024 webinar on our rare disease advocacy organized by IHG @UPManilaOnline and @vylhphilippines via...