The story of Mohanad
My name is Mohanad Al Momani, a 52-year-old man from Jordan, and for more than four decades, I’ve been suffering in silence — caught in a relentless storm of both physical and psychological symptoms that have never been fully understood or diagnosed.
Since childhood, I have lived with severe and chronic fatigue, unbearable drowsiness, constant thirst, insomnia, numbness, cognitive fog, obsessive thoughts, loss of emotional and sexual drive, and a hunger so abnormal it defies logic. My daily life is a cycle of exhaustion, despair, and unanswered questions.
As the years passed, my symptoms only worsened. I underwent countless evaluations in neurology, endocrinology, psychiatry, and internal medicine — in Jordan, and even abroad — but nothing ever led to a clear diagnosis. Even a major bariatric surgery failed to change the course of my illness. I have tried every class of psychiatric medications, including SSRIs, bupropion, antipsychotics, and even ketamine. None have helped. My condition seems to fall outside the limits of conventional understanding.
One of the few doctors who truly listened to me suggested a possible hypothalamic dysfunction. Another suspected a rare neurological disorder triggered by childhood seizures. But I am still lost in a system that cannot define what I am fighting — and therefore, cannot treat it.
I now live in complete social and functional isolation. I am emotionally flat, unable to work or support my family, and overwhelmed by the weight of an illness that has robbed me of a normal life. Despite my financial hardship, I have secured a valid U.S. visa and flight ticket, hoping to find help in America — if only someone would believe in my case and offer a chance to be seen and understood.
I’m sharing my story here
because I know this community understands what it means to be rare, and to be left behind by medicine. I am not looking for miracles — only compassion, direction, and perhaps a door that hasn’t yet been closed.
Thank you