The story of Elijah
Rare Disease Day, we shine a light on the battles few understand -but many live. This is the story of Elijah, a brave young soul who faced one of the rarest and most aggressive blood cancers: BPDCN (Blastic Plasmacytoid Dendritic Cell Neoplasm). Elijah was more than a diagnosis. He was laughter in the room, a spark of kindness, and a walking hug to everyone who met him. When his journey with BPDCN began, he was just a 10 year old child – but he carried a strength that could move mountains. The treatments were intense, the hospital visits long, but Elijah never lost his light. Out of his fight came a mission. Elijah’s Entourage was born not just to honor Elijah’s fight, but to keep his spirits alive- one act of love, one hug, one moment of hope at a time. Our Slogan says it all: “Simon Says: Give me a hug. One hug at a Time.” This rare Disease Day, We send a message of Solidarity to every warrior, family, and caregiver affected by rare conditions. You are not alone. we see you We support you. Elijah’s story reminds us that even rare battles can inspire global movements of compassion and change. BPDCN may be rare. Elijah may be Thriving but there’s more kids fighting it. Hug someone today. Stand with the rare. Be part of Elijah’s Entourage. Follow us on Facebook Elijah Randolph.