The story of Loago
I still remember the day I was diagnosed with Gaucher disease like it was yesterday. The doctor’s words were a shock, like a cold splash of water in the face. But little did I know that this diagnosis would be just the beginning of a long and challenging journey. A journey that would test my strength, resilience, and determination to survive.
In the days following my diagnosis, I was filled with and uncertainty. I was scared of what this disease would mean for my life, my health, and my future. I struggled to cope with the idea of being different, of having a disease that few people understood. But as I began to learn more about Gaucher disease, I realised that I was not alone in my struggle. I discovered 2 fellow Gaucher disease survivors who were also fighting the disease.
The road to managing my Gaucher disease was anything but smooth. In 2015 I had to drop out of the school due to severe symptoms and frequent checks ups to Princess Marina Hospital at Gaborone. The strain of trying to balance my health and education was too much.
My journey to obtaining the medication I needed was not an easy one. For two years after diagnosis in 2015, I faced setback after setback, with Botswana Government unable to provide me with the necessary assistance. But it was during this time when my doctor introduced me to chairperson and founder of Botswana Organisation for Rare Disease. It was through her tireless efforts and relentless determination that I was finally able to receive the medication I so desperately needed as donation from other country.
Over the years I learned how to manage my symptoms and cope with the challenges of living with Gaucher disease. I started the treatment in 2017 and then 2021 I was able to go back to school to continue where I left as I was now better.
In 2022 as I was about to write my form 5 final exam, tragedy struck once again. My mother, who had been a pillar of strength throughout my journey, suffered a stroke and passed away. It was devastating blow, and one that threatened to derail all the progress I
had made. But despite the grief and heartache, I knew that my mother would have wanted me to continue my education, and returned to school with renewed determination.
I managed to pass my final exams and I am proud to say that I am now in my second year at Baisago University, pursuing my dreams
and building my future, one day at a time. And while the road may still be long and uncertain, I am grateful for every step I take and every moment I have. For each day is a gift, and I choose to live it to the fullest.
And so, as I continue on my journey, I do so with the knowledge that there will be ups and downs, more challenges and triumphs. But I’m
no longer afraid of what lies ahead, for I know that whatever comes my way, I will face it with courage and determination. And if there is
one thing I want to leave you with, it is this: Never underestimate the power of your own resilience and the strength of your spirit. For in
the darkest of times, that is where your true light shines through.