Rare Disease Day in Libya
Libya first participated in Rare Disease Day in 2016. In 2017, paediatricians from different specialities gave talks raising awareness of the challenges they face at diagnosing and treating rare diseases.
In 2019, the children’s hospital in Tripoli hosted an event to discuss the recommendations for a new national centre or association of rare diseases. They will work with other international centres to improve the documentation of rare disease and increase the access to data on rare diseases and social and financial support for patients.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]