Rare Disease Day in Indonesia
Indonesia participated in Rare Disease Day for the first time in 2016! They held an event which included a blood drive and a consultation corner for patients and family. For Rare Disease Day 2017, an awareness-raising campaign called “Infinite Hope: A Tribute to Rare Warriors” collected testimonies from the parents of children living with a rare disease and published them on social media.
In 2019 Indonesia had a Rare Photo Parade campaign on social media and workshops and talkshows in Jakarta, Bogor, and Malang.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]