NATIONAL ALLIANCE

Indonesia


Rare Disease Day in Indonesia


Indonesia participated in Rare Disease Day for the first time in 2016! They held an event which included a blood drive and a consultation corner for patients and family. For Rare Disease Day 2017, an awareness-raising campaign called “Infinite Hope: A Tribute to Rare Warriors” collected testimonies from the parents of children living with a rare disease and published them on social media.

2020 saw a Rare Disease Day roadshow and March taking place in Jakarta, Depok and Malang with photo sessions, a photo campaign and interactive talk shows. 

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]



NATIONAL ALLIANCE

FRIENDS IN Indonesia

Events in Indonesia


Reaching Everyone Everywhere image
Reaching Everyone Everywhere

We are going to have 2 event for Rare Disease Day 2021  1. “Illuminates Building For Indonesia’s Rare Disease Day 2021” The...

27 Feb 2021 - 28 Feb 2021 - Jakarta

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SpectacuRARE Fest 2021

SpectacuRARE Fest 2021 is an online event.We will talk about "Living with a Rare Disease" on zoominar, IG live, FB live,...

06 Feb 2021 - 31 Mar 2021 - Online

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