Rare Disease Day in Indonesia
Indonesia participated in Rare Disease Day for the first time in 2016! They held an event which included a blood drive and a consultation corner for patients and family. For Rare Disease Day 2017, an awareness-raising campaign called “Infinite Hope: A Tribute to Rare Warriors” collected testimonies from the parents of children living with a rare disease and published them on social media.
In 2018 Indonesia also shared rare warrior stories on social media, but there were also some new events including a writing contest, talk show and fashion show.
Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]