28 Februaryis Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
Share your colours Download materials300M
people with rare diseases
600+
events worldwide
106
countries involved
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Read our stories
Carina’s miracle journey
I’m a self taught disabled award winning artist and now an inspirational artist. I was born with a rare genetic disorder called Elhers Danlos Syndrome… Continue reading Carina’s miracle journey
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Aaron Loving Determination
During the summer of 2021, Aaron started to complain about his hearing and unable to see. This led us down a rabbit hole of doctors… Continue reading Aaron Loving Determination
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A vida é uma dádiva, viva e agradeça por estar vivo!
Sou Mariana (37 anos), de Brasil. Nasci sem complicações no parto, mas foi observado a falta de pêlos no corpo todo (os cabelos da cabeça… Continue reading A vida é uma dádiva, viva e agradeça por estar vivo!
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Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!
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Thousands of events
in over 100countries
Every year, thousands of events are
organised across the world.
In the news
On February 8 at 2PM (CET) the Rare Disease Day team is hosting a webinar on “Driving Awareness by amplifying young voices in the rare… Continue reading Learn to engage your young community
With 100 days to go, the countdown to Rare Disease Day 2024 begins today. This isn’t just a date on the calendar; it’s the start… Continue reading Join the Countdown: Rare Disease Day 2024 Starts Now
In the run up to Rare Disease Day 2023 on 31 January at 5.30 CET, we hosted a webinar with guest speakers and medical experts… Continue reading Webinar: How to Raise Awareness Among Healthcare Providers
