28 Februaryis Rare Disease Day

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

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people with rare diseases


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Join the community. Help us build awareness. Share your photos, videos and experiences!

Read our stories

Carina’s miracle journey

I’m a self taught disabled award winning artist and now an inspirational artist. I was born with a rare genetic disorder called Elhers Danlos Syndrome… Continue reading Carina’s miracle journey

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Aaron Loving Determination

During the summer of 2021, Aaron started to complain about his hearing and unable to see. This led us down a rabbit hole of doctors… Continue reading Aaron Loving Determination

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A vida é uma dádiva, viva e agradeça por estar vivo!

Sou Mariana (37 anos), de Brasil. Nasci sem complicações no parto, mas foi observado a falta de pêlos no corpo todo (os cabelos da cabeça… Continue reading A vida é uma dádiva, viva e agradeça por estar vivo!

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What's your story?

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!

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Thousands of events
in over 100countries

Every year, thousands of events are
organised across the world.

In the news

On February 8 at 2PM (CET) the Rare Disease Day team is hosting a webinar on “Driving Awareness by amplifying young voices in the rare… Continue reading Learn to engage your young community

With 100 days to go, the countdown to Rare Disease Day 2024 begins today. This isn’t just a date on the calendar; it’s the start… Continue reading Join the Countdown: Rare Disease Day 2024 Starts Now

In the run up to Rare Disease Day 2023 on 31 January at 5.30 CET, we hosted a webinar with guest speakers and medical experts… Continue reading Webinar: How to Raise Awareness Among Healthcare Providers

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