Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2020 events
Tell your story!
My son has donnai barrow
Tarah - United States
Donnai-Barrow syndrome
My son was diagnosed with Donnai-Barrow syndrome. 
Sudden loss of leg control
juares - Spain
Undiagnosed
Time to time, suddenly, I lose control and sensitivity in my legs. Then I fall down.It's long for aprox. 15 minutes.Nobody knows what is it.
Rare kidney syndrome with
Jessica - United States
Renal nutcracker syndrome
I was diagnosed with Nutcracker syndrome 2 years ago. I had multiple unexplained symptoms for years that all resulted from this rare syndrome. It wasn't until I had an appointment with a new doctor, that