Stop FMF & Rare Disease Day

Asociación Española de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios

06 Mar 2021
Online

Jornada del Día Mundial de las Enfermedades Raras 2021

Generalitat Valenciana- IIS INCLIVA

16 Mar 2021
Valencia , Spain

Church of St. John the Evangelist in the Municipality of Logatec lit up for Rare...

Church of St. John the Evangelist

28 Feb 2021

Conference on Rare Skin Diseases

Lithuanian University of Health Sciences

23 Feb 2021
Kaunas

Webinar Enfermedades Raras Voces de la Sociedad Civil

Funsalud en alianza con Iniciativa Pensemos en Cebras México

04 Mar 2021
México , México

2do Foro de Tamiz Neonatal y Enfermedades Raras

Mujer México y la Iniciativa Pensemos en Cebras México

05 Mar 2021
México , México

You are not alone even if one in a million

National Association for Diagnosis and Education of Rare diseases (NADER)- RarEgypt

04 Mar 2021
Cairo , Egypt

Lesch Nyhan Virtual Meeting

BRC

27 Feb - 28 Feb 2021
West Roxbury

Online Conference dedicated to the Rare Disease Day

Center for Rare Diseases Research of the School of Medicine, New Vision University

28 Feb 2021
Tbilisi , Georgia

Rare Glow over Athens

95, Rare Alliance Greece

28 Feb 2021
Athens

Online conference on Rare Diseases

Social Fund "Omirge sen" (Believe in Life) in Kazakhstan

28 Feb 2021

Austria is shining in the colors of the rare diseases – “Austrian Chain of Light...

Pro Rare Austria

28 Feb 2021
Vienna, Salzburg, Linz , Austria

CONFERENCIA ¿Qué es la uveitis?

ALER

04 Mar 2021
LEON , ESPAÑA

CONFERENCIA

ALER

03 Mar 2021
LEON , ESPAÑA

Ciné-Débat Le Tiroir - La vie cachée

Filière de Santé maladies rares AnDDI-Rares

09 Mar 2021
France

RD 2021 with the First Lady of North Macedonia

Association of citizens for rare diseases LIFE WITH CHALLENGES

27 Feb 2021
Skopje

RD 2021 at our government

Association of citizens for rare diseases LIFE WITH CHALLENGES

26 Feb 2021
Bitola

Lesch Nyhan Disease International Virtual Meeting

Boston Rare Connections

27 Feb - 28 Feb 2021
Boston , USA

Rare Disease Day at PEMEX Central South Hospital

Genetics Department

28 Feb 2021
Mexico City , Mexico

Il·luminació per al Dia mundial de les malalties minoritàries o rares

Servei de salut comunitària de l'Ajuntament de Terrassa

28 Feb 2021
Terrassa (Barcelona) , Spain

Colour Flair for Rare

NorthernIreland Rare Disease Partnership

24 Feb - 27 Mar 2021
Northern Ireland , United Kingdom

Belfast City Hall Light Up

Northern Ireland Rare Disease Partnership

28 Feb 2021
Northern Ireland , United Kingdom

Prevention is better than cure- free consultation of Renji hospital

Center for Reproductive Medicine, Renji Hospital, School of Medicine, Shanghai Jiao Tong University, Shanghai, China

28 Feb 2021
Shanghai , China

Gaucher disease awareness lecture

Kurdistan rare disease center

28 Feb 2021
Erbil , Iraq

Rare Always present

Libyan Medical Students and Young Doctors Association - Misurata

28 Feb 2021
Misrata , Libya

Rare Disease Day ARMENIA

Armenian Hematology Association

03 Mar 2021
Yerevan , Armenia

Virtual "Rare Coffee & Cake" for Rare Disease

Alternating Hemiplegia of Childhood (AHC UK)

28 Feb - 07 Mar 2021
Virtual All over the world , United Kingdom

RARE DISEASES, PAST, PRESENT AND FUTURE. Our videos are now out!

Division of Natural Sciences at the German Archaeological Institute (DAI), Berlin

28 Feb 2021
Online

RDD Telemedicine (Japan)

01 Feb - 07 Mar 2021
Online / Community Book Cafe at Mitaka-City

RDD Kanagawa

NPO Kanagawa Prefecture Nanbyo Patient Group Association

28 Mar 2021
Online

RDD Niigata (Japan)

NPO Niigata Nanbyo Support Network

22 Feb - 06 Apr 2021

RDD Matsumoto (Japan)

Medical Center for Nanbyo Diseases, Shinshu University Hospital

20 Feb 2021
Online / Shinshu University Hospital

RDD Gifu (Japan)

NPO Gifu Prefecture Nanbyo Patient Association

23 Jan - 28 Mar 2021
Online / 30 libraries in Gifu Prefecture

RDD Shizuoka (Japan)

NPO Shizuoka Prefecture Nanbyo Patient Association

24 Feb - 02 Mar 2021
Shizuoka Prefecture General Social Welfare Hall

RDD Aichi (Japan)

NPO Aichi Prefecture Nanbyo Patient Association

13 Feb - 18 Feb 2021
Kanayama Sogo Sta. / Aichi prefecture Library / Nagoya City Library

RDD Ishikawa (Japan)

RDD Ishikawa Executive Committee

20 Feb - 28 Feb 2021
Ishikawa Prefectural Government Building, 19th Floor Observation Lobby / Online

RDD Mie (Japan)

Rare Nanbyo Patient Group Mie

27 Feb 2021
Kuwana Media Live 1F

RDD Tokyo (Japan)

RDD Japan secretariat / ASrid

28 Feb 2021

20 years of care for butterfly children

DEBRA ČR

28 Feb - 31 Dec 2021
Brno , Česko

Visibilizacion de Enfermedades poco frecuentes Sanra Fe

Red EPOF Santa Fe

28 Feb 2021
Santa Fe , Argentina

Rare Disease Awareness Day 2021

Asia Pacific University SPE Student Chapter with support of Malaysian Rare Disorders Society

28 Feb 2021
Virtual, Malaysia

Light up at Tower 42

Tower 42

28 Feb 2021
London , United kingdom

The UAE Rare Disease Day 2021 Events

UAE Rare Disease Society

26 Feb - 27 Feb 2021
United Arab Emirates

Rare Disease Day In Mauritius

LUPUS ALERT

01 Feb - 28 Feb 2021
Mauritius

RARE RUN BOLOGNA - Virtual Edition

Fiori di Campo odv

28 Feb 2021
BOLOGNA , Italia

e-portal Launching Ceremony of the Ek-Sath! With patients having Rare Inherited ...

Aga Khan University

01 Mar 2021
Karachi , Pakistan

Phelan-McDermid Syndrome Foundation Australia Global High Tea

Phelan-McDermid Syndrome Foundation Australia

28 Feb 2021
Sydney , Australia

Perlan light up for rare disease

Godvild

26 Feb - 28 Feb 2021
Reykjavik , Iceland

Illumination de l'Hôtel de Ville de Basse-Terre en Guadeloupe aux couleurs de la...

Ville de Basse-Terre (Guadeloupe)

26 Feb - 28 Feb 2021
Basse-Terre , Guadeloupe

UILDM ACCENDE LE LUCI SULLE MALATTIE RARE ANCHE A BRINDISI

UILDM - UNIONE ITALIANA LOTTA ALLA DISTROFIA MUSCOLARE

28 Feb 2021
BRINDISI , ITALY

Nadir Hastalıklar

Nadir Hastalıklar Ağı

24 Feb 2021
Turkey

Rare Moms Talk Rare Diseases – Rare Disease Day 2021 IG Live

SmashSMARD

28 Feb 2021
United States

Webinário Doenças Raras no Brasil – Avanços e Desafios

FEDRANN - Federação das Assoc de Doenças Raras do N, NO e OE é

28 Feb 2021
Fortaleza , Brasil

Austria is shining in the colors of the rare diseases – “Austrian Chain of Light...

Pro Rare Austria

25 Feb - 28 Feb 2021
Vienna, Linz, Salzburg , Austria

Panel Discussion on Rare Diseases - Care for Rare

TerraBiz Group

05 Mar 2021
Online , Pakistan

WHAT DOES RARE MEAN TO ME

HWTH Health Awareness Campaign

28 Feb 2021
United Kingdom

Iluminacja Centrum Kultury i Sportu w Pruszczu Gdańskim

Centrum Kultury i Sportu w Pruszczu Gdańskim

28 Feb 2021
Pruszcz Gdański , Polska

IP.ASSI avanti nella RICERCA…contro la pandemia

IGB-CNR

06 Mar 2021
Naples , Italy

IGMM Shining a light on XLH Rickets - a rare bone disease

MRC Institute of Genetics & Molecular Medicine (IGMM), University of Edinburgh

02 Mar 2021
Edinburgh , United Kingdom

Međunarodni dan rijetkih bolesti uz eTwinning

II. osnovna škola Čakovec

23 Feb - 03 Mar 2021
Čakovec

Webinaire: Parcours de soins des patients atteints de MR en Guadeloupe : état de...

Plateforme de coordination des maladies rares de la Guadeloupe - KARUKERARES

26 Feb 2021
POINTE-A-PITRE , GUADELOUPE

Rare Disease Day in Libya

Tripoli children 's hospital in Libya

28 Feb 2021
Tripoli , Libya

Cuidando das Pessoas com Doenças Raras e Apoio aos Familiares

Conselho Municipal de Saúde da Cidade de São Paulo / MUNICIPAL HEALTH COUNCIL OF THE CITY OF SÃO PAULO

26 Feb 2021
Sao Paulo, SP , BRAZIL

Bietti's Crystalline Dystrophy (BCD) Awareness Campaign

Invincible Vision

15 Feb - 31 Mar 2021
United States

Dia mundial das Doenças Raras - ASPEC BRASIL

ASPEC - Associção de Paraparesias Espasticas Correlatas do Brasil

26 Feb - 28 Feb 2021
On line , Brasil

National Palace of Culture in Sofia will be lit in blue, purple, pink and green

National Patients' Organization

28 Feb 2021
Sofia , Bulgaria

DÍA MUNDIAL DE LAS ENFERMEDADES RARAS

INDEPF

28 Feb 2021
CAMPO DE CRIPTANA, CIUDAD REAL , SPAIN

Accendiamo le luci sulle Malattie Rare - La fontana monumentale della Piazza A. ...

RETE REGIONALE A.MA.RE PUGLIA

28 Feb 2021
BARI , ITALIA

Nadir Çağrı Kampanyası

Pulmoner Hipertansiyon ve Skleroderma Hasta Derneği

25 Feb - 25 Mar 2021
Türkiye , Türkiye

Nadir Hastalıklar Ağı - Nadir Hastalıklar Günü Online Basın Toplantısı

Nadir Hastalıklar Ağı

25 Feb 2021
Türkiye , Türkiye

Iluminación Plaza de España

Federación Española de Enfermedades Raras

28 Feb 2021
Sevilla , Spain

Iluminación fuente cuatro estaciones

Federación Española de Enfermedades Raras

28 Feb 2021
Sevilla , Spain

Muralla de Puerta Pilar

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Muralla Parques infantiles

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Iluminación Muralla Puente Real Badajoz

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Iluminación Plaza Alta Badajoz

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Iluminación Puerta Palma

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Iluminación Ayuntamiento de Cáceres

Federación Española de Enfermedades Raras

28 Feb 2021
Cáceres , Spain

Iluminación Ayuntamiento de Valladolid

Federación Española de Enfermedades Raras

28 Feb 2021
Spain

Iluminación del Congreso de los Diputados

Federación Española de Enfermedades Raras

28 Feb 2021
Madrid , Spain

Austria is shining in the colors of the rare diseases – “Austrian Chain of Light...

Pro Rare Austria

25 Feb - 28 Feb 2021

Gründung Zentrum für Interstitielle und Seltene Lungenerkrankungen (ZISLE)

Asklepios Fachkliniken München-Gauting

28 Feb 2021
München, Gauting , Germany

Webinar

FFO / Unge Funksjonshemmede

28 Feb 2021

Online information campaign about rare diseases

Nasjonal kompetansetjeneste for sjeldne diagnoser

25 Feb - 27 Feb 2021

Good morning Norway - Tv-program

Nasjonal kompetansetjeneste for sjeldne diagnoser

25 Feb 2021

Ligting up the Hospital

Nasjonal kompetansetjeneste for sjeldne diagnoser

22 Feb - 28 Feb 2021
Oslo University hospital

Rare Disease Day gardening activity

FITIMA Guinea

26 Feb 2021

Rare Disease Day Educational outing

FITIMA Burkina

27 Feb 2021

National Conference RARE DISEASES DAY 2021

Institute of Mother and Child, Centre of Reproductive Health and Medical Genetics in cooperation with Pediatric Society from Moldova, State University of Medicine and Pharmacy ”N. testemitanu”, Asscoeciation of PKU Children

26 Feb 2021
Chisinau , Moldova

NEL SALENTO TELETHON ACCENDE LE LUCI SULLA RARITA

Coordinamento provinciale Lecce Fondazione Telethon

28 Feb 2021

IV Edizione "Rare Abilità"

Associazione di Volontariato "Area Celsi"

24 Feb - 04 Mar 2021
Fasano , Fasano

III Всероссийский форум по орфанным заболеваниям

Всероссийский союз пациентов

26 Feb - 27 Feb 2021
Москва , Россия

RDD Shiga (Japan)

Shiga NANBYO regional center

28 Feb 2021
Shiga Prefecture NANBYO Support Center

RDD Osaka (Japan)

RDD Osaka Executive Committee

28 Feb 2021

RDD Osaka Meisei Gakuen High school (Japan)

Osaka Meisei Gakuen High school

20 Feb 2021

RDD Hyogo Prefectural Rehabilitation Center at Nishi-Harima (Japan)

Hyogo Prefectural Rehabilitation Center at Nishi-Harima

26 Feb 2021
Hyogo Prefectural Rehabilitation Center at Nishi-Harima

RDD Kakogawa Minami High school (Japan)

Kakogawa Minami High school

30 Jan 2021
Kakogawa Minami High school

RDD Nara (Japan)

Nara NANBYO regional center

28 Feb 2021
Nara City Western Civic Center

RDD Oakayama (Japan)

Comprehensive Support Network for Intractable Diseases

21 Mar 2021
Okayama prefecture southern part Health center

RDD Tottori (Japan)

Psychoro

28 Feb 2021

RDD Hiroshima (Japan)

Hiroshima NANBYO regional center

28 Feb 2021
Hiroshima Prefectural Health and Welfare Center

RDD Yamaguchi (Japan)

Orange-no-kai (Yamaguchi Prefecture Idiopathic Osteonecrosis of the Femoral Head Friendship Association)

07 Mar 2021

RDD Tokushima (Japan)

Tokushima Prefectural Koryu-Plaza for the Disabled

14 Feb - 28 Feb 2021
Tokushima Prefectural Exchange Plaza for the Disabled

RDD Ehime (Japan)

Ehime NANBYO regional center

27 Feb 2021

RDD Fukuoka (Japan)

NANBYO NET.RDing Fukuoka

07 Feb - 28 Feb 2021

RDD Kitakyushu (Japan)

02 Feb - 26 Feb 2021
Kitakyushu City Hall

RDD Saga (Japan)

Saga Prefecture NANBYO Support Network

26 Feb 2021

RDD Kumamoto (Japan）

Kumamoto NANBYO regional center

19 Feb - 01 Mar 2021
Kumamoto Health Cenber

RDD Kagoshima (Japan)

Kagoshima NANBYO Support Network

28 Feb 2021

RDD Satsuma- rare disease (Japan)

Kagoshima Prefecture Association of the Severely Neurological Intractable Diseases

28 Feb - 31 Mar 2021

RDD Okinawa (Japan)

NPO Ambitious

28 Feb 2021

RDD Ishigakijima (Japan)

Private school A and T

31 Mar 2021

RDD Job Fit (Japan)

Japan A.S. Friendship Association

25 Feb 2021

RDD Kids (Japan）

RDD Kids Office (in MECP2 Duplication Syndrome Patients Family Association)

13 Feb 2021

RDD NABYO Cafe (Japan)

Kanto NANBYO Cafe Network

13 Mar 2021

RDD rare cancer (Japan)

Japan Rare Cancer Patient Network

01 Feb - 28 Feb 2021

RDD SCD MSA (Japan)

SCD MSA patient group

15 Mar 2021

Oncology and Rare Diseases

A.S.C.O - Tecnológico de Monterrey

28 Feb - 01 Mar 2021
Monterrey, Mexico City , Mexico

ENFERMEDADES RARAS:repercusiones orales y aspectos histopatológicos

Cátedra de Anatomía Patológica A-FO-UNC

27 Feb 2021
Còrdoba , Argentina

Cápsula del tiempo de los Pacientes, una década para conquistar Derechos

Alianza Argentina de Pacientes - ALAPA

01 Mar 2021
Ciudad de Buenos Aires , Argentina

UILDM ACCENDE LE LUCI SULLE MALATTIE RARE

UILDM - Unione Italiana Lotta alla Distrofia Muscolare

28 Feb 2021
Montecatini Terme, Montale, Agliana, San Marcello Piteglio, Serravalle Pistoiese, Uzzano, Monsummano Terme, Ponte Buggianese, Miggiano, Francavilla Fontana, Martina Franca, Taranto, San Donaci, Bergamo, Legnano, L'Aquila, Torino , Italy

Rare Disease Awareness Day

Oman Society for Genetic Medicine

27 Feb 2021
Muscat , Oman

Rare Disease Awareness Day 2021

Oman Society for Genetic Medicine

25 Feb 2021
Muscat , Oman

Inherited metabolic diseases:Rare but United in Arms!

KRIKOS ZOIS

06 Mar - 07 Mar 2021
VIRTUAL , GREECE

Move2Advocate Pledge2Move

Move2Advocate

28 Feb 2021
United States

Malattie rare e Covid-19: un bilancio dopo un anno di pandemia

Forum A-Rare

26 Feb - 27 Feb 2021
online , Italy

Conferences Virtuelles

Association Aux Pas Du Coeur

27 Feb - 28 Feb 2021
Abidjan , Cote d'Ivoire

Wellbeing for those affected by myotubular and centronuclear myopathy

Myotubular Trust

06 Mar 2021
LONDON , United Kingdom

Rare Disease Day public awareness afternoon

Maladies Rares SPM

28 Feb 2021

The Challenge

Ataxia Care Project

15 Feb - 01 Sep 2021
Melbourne to Sydney , Worldwide virtual challenge

Accendiamo le luci sulle malattie rare

Associazione Rete Malattie Rare OdV

28 Feb 2021
San Donà di Piave (VE) , Italia

Digital Poster

Nadir Hastalıklar Ağı

25 Feb - 28 Feb 2021
İzmir , Türkiye

İzmir Kent Konseyi Dünya Nadir Hastalıklar Günü Etkinliği

Nadir Hastalıklar Ağı

27 Feb 2021
İzmir , Turkey

Rares desease day

Sciences City at Tunis

28 Feb 2021
Tunis , Tunisia

Nós e os Outros: O Caminho a Fazer

ANDO Portugal

28 Feb 2021
Online , Portugal

Rare Disease Day In Iran

Rare Diseases Foundation of Iran (RADOIR)

26 Feb 2021
Tehran , Iran

Symposium about Rare Diseases

CHU Liège in Belgium

26 Feb 2021
Belgium

Rare Disease Day illuminations in Poland

Foundation of Borys the Hero

28 Feb 2021
Gdańsk | Gdynia | Katowice | Pruszcz Gdański | Szczecin | Wrocław , Poland

Summer Picnic

Muscular Dystrophy Northern Inc

28 Feb 2021
Orewa, Auckland , New Zealand

Evento de Concientización de las Enfermedades Raras en la UAG

Universidad Autónoma de Guadalajara

22 Feb - 26 Feb 2021
Zapopan , México

RDD GBS CIDP (Japan)

GBS (GUILLAIN-BARRÉ SYNDROME) PATIENT GROUP

28 Feb 2021

RDD GBS CIDP (Japan)

GBS (Guillain-Barré syndrome) patient group

28 Feb 2021

In Basilicata Telethon accende le luci sulla rarità

Coordinamento Telethon Basilicata

28 Feb 2021
Basilicata

NADİR HASTALIKLARDA GENETİĞİN ROLÜ

BEFEMDER Behçet ve Ailevi Akdeniz Ateşi Hasta Derneği

27 Feb 2021
çevimiçi , Türkiye

SMA Awareness Day

SANEM/SNS - in collaboration with Biologix

28 Feb 2021
Saudi Arabia

Rare Disease Weekend

SOCIEMUVEM

26 Feb - 28 Feb 2021
Minatitlán , México

Healthcare and Advocacy Careers in Rare Diseases

Mission San Jose High School Students for Rare Diseases Club

26 Feb 2021
United States

Rare Disease Day Celebration

Kids In Motion Pediatric Therapy and Wellness

22 Feb - 28 Feb 2021
MANDAN , United States

Accendiamo le luci sulle malattie rare - Rocca Rangoni Spilamberto MO

AISW-ER, AST

27 Feb - 28 Feb 2021
Spilamberto , ITALIA

Accendiamo le luci sulle malattie rare

Forum A-Rare

27 Feb - 28 Feb 2021
Torino , Italy

Research for the CURE

Charlotte and Gwenyth Gray Foundation

28 Feb - 01 Mar 2021
Los Angeles , United States

Journée Internationale des Maladies Rares - Zoé Action

Zoé Action

28 Feb 2021

Guapos por dentro y por fuera (ataxia telangiectasia)

AEFAT

23 Feb - 02 Mar 2021
España

Rare Disease Day 2021 in Nepal

Individual patient advocate

23 Feb - 28 Feb 2021

Virtual Run for Rare

Firefly Fund

26 Feb - 28 Feb 2021
USA

Ada Apa Dengan Cinta?

WAUlahh by Malaysia RD Youth

20 Feb 2021
Kuala Lumpur , Malaysia

RDD HAMAMATSUCHO Building (Tokyo, Japan)

RDD HAMAMATSUCHO Building executive committee

10 Mar 2021

Sällsynta dagen - Ta del av fakta, livsberättelser, intervjuer och musik, var du...

Ågrenska

28 Feb - 28 Feb 2022
Hovås , Sweden

RDD CHIBA Children Hospital (Japan)

CHIBA Prefecture Children Hospital

10 Feb - 28 Feb 2021

RDD CHIBA (Japan)

Chiba Nishi Regional Comprehensive Multi-Professional Group

07 Mar 2021

RDD SAITAMA western part (Japan)

Nimokaka Club

20 Feb - 28 Feb 2021

RDD Futaba Mirai Gakuen (Fukushima)

Futaba Mirai Gakuen

28 Feb 2021

RDD SAKATA-NISHI Highschool (Yamagata, Japan)

Sakata Nishi high school

30 Jan - 28 Feb 2021
Sakata Nishi high school

RDD TSURUOKA (Yamagata, Japan)

RDD Tsuruoka executive committee

27 Feb 2021
Tsuruoka City Advanced Research and Industrial Support Center, Tsuruoka, Yamagata

RDD IWATE (Japan)

Iwate NANBYO regional center

28 Feb 2021

RDD Hokkaido (Japan)

Hokkaido NANBYO regional center

26 Feb 2021
Hokkaido Prefectural Government, Sapporo, Hokkaido

Rare is Beautiful - Let's Break The Stigma

Australian Sickle cell Advocacy Inc

28 Feb 2021
Melbourne, Australia

Mi autoestima y resiliencia: Reconozco y acepto mi lugar en el mundo

APPEL

27 Feb 2021

Cómo ser un buen cuidador, pero cuidándome

APPEL

25 Feb 2021

La historia de Piper, un pajarito valiente

APPEL

25 Feb 2021

Nel prisma della rarità

Associazione Linfa odv

28 Feb 2021
Padova

Webinaire Maladies Rares : quels parcours pour les patients ?

AP-HP.Nord Université de Paris

02 Mar 2021
France

Raise Awareness for KLS in Times Square

Kleine-Levin Syndrome Foundation

28 Feb 2021
Manhattan, New York , United States

TV Tower in Tbilisi illuminated with the colours of rare disease day

GSIEM

28 Feb 2021
Tbilisi

IncontRARE le RASopatie

Associazione Nazionale Sindrome di Noonan e RASopatie ODV

27 Feb 2021
WEBINAR ON LINE , ITALIA

Rare Disease Day Bay Area

Rare Disease Day Bay Area

27 Feb - 28 Feb 2021
UK, Toronto, NYC, Chicago, Las Vegas, Los Angeles, Bay Area , United States

BARRILETEADA POR LAS ENFERMEDADES RARAS

FUNDACION LAUTARO TE NECESITA

28 Feb 2021
Bs As , Argentina

ILLUMINIAMO LA RARITA’

A.Ma.R.A.M Aps

26 Feb - 28 Feb 2021
Puglia - Basilicata - Calabria , Italia

Education for students

National organization for rare diseases of Serbia

28 Feb 2021
online , Serbia

Share with rare

National organization for rare diseases of Serbia

01 Feb - 28 Feb 2021
online , Serbia

Webinar sulle malattie rare ed il diritto alla salute

Centro per la Tutela del Diritto Alla Salute degli Ammalati Ematologici ed Oncologici "Pablo Amato" O.D.V.

27 Feb 2021
Siracusa , Italia

Meet rare heroes

Slovak Alliance for Rare Diseases

19 Feb - 06 Mar 2021
Pezinok , Slovensko

RaccontRare: l'Epidermolisi Bollosa dalla voce di pazienti, ricercatori e clinic...

Le Ali di Camilla

28 Feb 2021
Online , Italy

LAND's online meeting on Rare Disease Day;

LAND

19 Feb 2021

Care for Rare awareness campaign

Aljawhara center/Arabian Gulf University

22 Feb - 07 Mar 2021

Afternoon Tea Virtual Event

RARE Ireland

28 Feb 2021
Ireland

RARE/D LIVE 2021 - RARE CANCERS - LIVE PODCAST RECORDING

The Whitworth Group

28 Feb 2021
United Kingdom

Webinar: Rare is beautiful, let's break the stigma!

Australian Sickle cell Advocacy Inc

28 Feb 2021
Melbourne Australia

Rare Disease Day with HAE Junior

HAE Junior

15 Feb - 28 Feb 2021

Who AMMA is and rare disease representss

AMMA

21 Feb - 28 Feb 2021

Ilumination, and chorus concert Casa de la Vall

AMMA

28 Feb 2021
Andorra La Vella

No Somos Raros,Somos Increíbles

ADAIDF

26 Feb - 28 Feb 2021
Illescas, Toledo , España

Iluminación de la Fuente de Cibeles

Federación Española de Enfermedades Raras

28 Feb 2021
Madrid , Spain

Iluminación del Ayuntamiento de Valladollid

Federación Española de Enfermedades Raras

28 Feb 2021
Valladolid , Spain

Iluminación de la Cúpula del Milenio

Federación Española de Enfermedades Raras

28 Feb 2021
Valladolid , Spain

Iluminación del Ayuntamiento de Cáceres

Federación Española de Enfermedades Raras

28 Feb 2021
Cáceres , Spain

Iluminación del Ayuntamiento de Badajoz

Federación Española de Enfermedades Raras

28 Feb 2021
Badajoz , Spain

Iluminación de la Plaza de Don Juan de Austria

Federación Española de Enfermedades Raras

28 Feb 2021
Sevilla , Spain

Iluminación de la Plaza de España d

Federación Española de Enfermedades Raras

28 Feb 2021
Sevilla , Spain

Iluminación del Edificio de Gerencia de Urbanismo

Federación Española de Enfermedades Raras

28 Feb 2021
Almería , Spain

Iluminación del Teatro Apolo

Federación Española de Enfermedades Raras

28 Feb 2021
Almería , Spain

Iluminación de la Calle Santiago

Federación Española de Enfermedades Raras

28 Feb 2021
Almería , Spain

Iluminación de la Fuente de los 103 pueblos

Federación Española de Enfermedades Raras

28 Feb 2021
Almería , Spain

Iluminación del Parque de las Familias de Almería

Federación Española de Enfermedades Raras

28 Feb 2021
Almería , Spain

Iluminación del Ayuntamiento de Almería

Federación Española de Enfermedades Raras

28 Feb 2021
Almería , Spain

Iluminación de la Playa del Hemiciclic

Federación Española de Enfermedades Raras

28 Feb 2021
Spain

Iluminación de la Ciudad de las Artes y de las Ciencias

Federación Española de Enfermedades Raras

28 Feb 2021
Spain

Iluminación del Ayuntamiento de Álava

Federación Española de Enfermedades Raras

28 Feb 2021
Spain

Iluminación del Hospital de Cruces

Federación Española de Enfermedades Raras

28 Feb 2021
Spain

Iluminación de la Diputación Foral de Álava

Federación Española de Enfermedades Raras

28 Feb 2021
Spain

Iluminación del Polideportivo Pando

Federación Española de Enfermedades Raras

28 Feb 2021
Spain

Iluminación del Estadio de San Mamés

Federación Española de Enfermedades Raras

28 Feb 2021
Spain

Iluminación de la Casa Consistorial de Gijón

Federación Española de Enfermedades Raras

28 Feb 2021
Gijón , Spain

Iluminación del Ayuntamiento de Palma de Mallorca

Federación Española de Enfermedades Raras

28 Feb 2021
Palma de Mallorca , Spain

Iluminación del Cabildo de Tenerife

Federación Española de Enfermedades Raras

28 Feb 2021
Spain

Evento online por el Día Mundial de las Enfermedades Raras

Federación Española de Enfermedades Raras

28 Feb 2021
Spain

Conversations for the month of rare diseases

FENPOF

09 Feb - 28 Feb 2021
Santiago y Regiones , Chile

Escuchando Raro

Asociación Nacional Síndrome Treacher Collins Liam Mx

22 Feb - 03 Mar 2021
Todo México , México

28 days Ohrid will shine in the colors of rare diseases!

IT IS RARE TO BE RARE and LIFE WITH CHALLENGES

01 Feb - 28 Feb 2021
Ohrid , NORTH MACEDONIA

SMA Malaysia Talk Show With Kedah FM (Visual Radio Conti Selection))

Spinal Muscular Atrophy Malaysia (SMA Malaysia)

23 Feb 2021
Kedah , Malaysia

SMA Malaysia Talk Show With Negeri FM (I-Medic)

Spinal Muscular Atrophy Malaysia (SMA Malaysia)

23 Feb 2021
Negeri Sembilan , Malaysia

SMA Malaysia Talk Show With Kelantan FM (Morning Cheer Segment - Kecek Kiro Kito...

Spinal Muscular Atrophy Malaysia (SMA Malaysia)

09 Feb 2021
Kelantan , Malaysia

Support for people with rare diseases

Latvian Alliance of Rare Diseases

24 Feb 2021
online , Latvia

Dreams unite

Latvian Alliance of Rare Diseases

22 Feb - 28 Feb 2021
Latvia

Virtual event Rare Disease Day 2021

Rare Diseases Denmark

28 Feb 2021
zoom

Forum virtuelle magrebin sur les maladies rares

Allliance Algérienne contre les Maladies Rraes

27 Feb 2021
maroc

National Rare Disease Week Social Media Campaign

Philippine Society for Orphan Disorders Inc,

22 Feb - 28 Feb 2021
Nationwide , Philippines

Puhon: Progress and Perspectives in Caring for the Filipino Rare (Webinar)

Philippine Society for Orphan Disorders Inc,

25 Feb 2021
Nationwide , Philippines

Reaching Everyone Everywhere

Indonesia MPS and Rare Disease Foundation

27 Feb - 28 Feb 2021
Jakarta , Indonesia

Hablemos de Enfermedades Raras

Trazando lo Invisible

27 Feb 2021
Facebook Live at https://www.facebook.com/trazandoloinvisible

Raise A Toastie

Rare Diseases Ireland

28 Feb 2021
Ireland , Ireland

Rare disease Awareness day

Saudi Society of medical genetics &Saudi Society of clinical chemistry

28 Feb 2021
Riyadh , Saudi Arabia

"The Day of Orphan Diseases"

Pulmonary Hypertension Ukrainian Rare Disease Association

26 Feb - 28 Feb 2021
Lviv , Ukraine

Illumination of the Church of Christ's Resurrection in Kaunas

Lithuanian Child Neurology Association

28 Feb 2021
Kaunas

Illness Challenge Foundations activities on Rare Disease Day

Illness Challenge Foundation

27 Feb - 28 Feb 2021
China

Journée des Maladies Rares 2021

CHU AMIENS PICARDIE

28 Feb 2021
AMIENS , FRANCE

GeneRare: Getting to Know Genetic and Rare Diseases

Associazione "Casa Famiglia Rosetta"

24 Feb - 15 Mar 2021
Caltanissetta , Italy

Día Internacional de las Enfermedades Poco Frecuentes

Ministerio de Salud de la Nación - Argentina

03 Mar 2021
Argentina

Webinar: Lesson from 2020; Together we can do the imposible

Oxford-Harrington Rare Disease Centre

26 Feb 2021
Virtual , United Kingdom

Programa Salud con los Expertos

Mujer México y la Iniciativa pensemos en Cebras México

04 Feb - 25 Feb 2021
México , México

Medicina e Arte. I colori della vita attraverso il concorso "Il Volo di Pegaso"

Istituto Superiore di Sanità - UNIAMO FIMR onlus

23 Feb 2021
Italy

Conmemoración del Día Internacional de las Enfermedades Raras

ASCER. AC. Asociación Chihuahuense de enfermedades Raras

26 Feb 2021
Chihuahua , Mexico

Rare Disease Day 2021 in Slovakia

Slovenská aliancia zriedkavých chorôb (Aliancia ZCH)

21 Feb - 28 Feb 2021

Multiskill contest for people living with a rare disease

Family support group for rare diseases OMAN

18 Feb - 21 Feb 2021

Rare Disease Day 2021 conference in Montenegro

Nacionalna organizacija za rijetke bolesti Crne Gore

28 Feb 2021

Light It Up

ALAN - Maladies Rares Luxembourg

22 Feb - 28 Feb 2021
Luxembourg, Esch, Ettelbruck, Mamer, Schengen, Wiltz , Luxembourg

Ritka Betegségek Világnapja 2021

Rare Diseases Hungary

27 Feb 2021

Gaucher disease - awareness campaign in Romania

Asociația Gaucher România/Romanian Gaucher Association

22 Feb - 28 Feb 2021
Romania

Lappia Talo illuminated in support of rare diseases

Isabella Victoria Borgogni, a student at Lapland UAS, organised the illumination of Lappia Talo in relation to her Bacheor’s thesis on raising awareness of rare diseases through events, whose commissioner is Harvinaiset-Verkosto

26 Feb - 01 Mar 2021
Rovaniemi , Finland

Webinar: Always Together - Proud and Strong

National Organization for Rare Diseases of Serbia

28 Feb 2021
Online

Онлайн семинар за редки болести

Bulgrian Huntington Association

27 Feb - 28 Feb 2021

Conference: Genetics Revolution - are we ready to be one of the leaders?

Rare Diseases Lithuania

01 Mar 2021
Online

Reto slimību ārstēšanas progress un tuvākie uzlabojumi

Latvian Association of Rare Disease Specialists

26 Feb 2021
Online

Rare Disease Day 2021

Dúshlán

28 Feb 2021
France

All about rare diseases

Cyprus Alliance for Rare Disorders

24 Feb 2021
Nicosia , Cyprus

RARE Diseases Lesotho Association: What makes us rare

RARE Diseases Lesotho Association

28 Feb 2021

III Encuentro Latinoamericano de Niños y Jóvenes con AME

Organizado por la Fundación AME Costa Rica y la Fundación Atrofia Muscular Espinal México

27 Feb 2021

Rare Disease Day illuminations in Ukraine

Громадська спілка"Орфанні захворювання України"

18 Feb - 28 Feb 2021

Rare Siblings

Mondo Charge

28 Feb 2021
online, Italia , Italia

UNO SCATTO RARO SOTTO L'ALBERO DI CHIARI E SIRINGOMIELIA

AISMAC

28 Feb - 20 Mar 2021
CATANIA , ITALIA

ItineRARI

Vox Artes APS

28 Feb 2021
Padua , Italy

Webinar sur le thème "La prise en charge des maladies rares en période de Covid-...

Espoir VML Maroc

02 Mar 2021
MAROC

Accendiamo le luci sulle malattie rare

Rete malattie rare OdV

28 Feb 2021
Jesolo (VE) , Italia

Focus on rare disease: Prime time — gene therapy for rare disorders

Broad Institute of MIT and Harvard

03 Mar 2021
Cambridge , United States

Rare Disease Day - Second Life

N/A

28 Feb - 01 Mar 2021
Global event , Global event

Dan Rijetkih Bolesti

Association of Rare Disease Patients

28 Feb 2021
Gracanica , Bosnien and Hercegovina

TODOS SOMOS PACIENTES

OMER (Organización Mexicana de Enfermedades Raras)

28 Feb 2021
Mexico City, remote event , Mexico

Presentación de las Tarjetas de Emergencia para Trastornos Hereditarios del teji...

Conectiva.Lat

20 Feb 2021
San José, San Salvador, Ciudad de Panamá, Ciudad de México, Quito, Bogotá, Lima, Santo Domingo, Caracas, Sucre, Santiago de Chile, Buenos Aires, Madrid, Barcelona, Badajoz

JUGUEMOS JUNTOS

AFASCOL

28 Feb 2021
ON LINE , ESPAÑA

PERCORSI RARI INSIEME

A.Ma.R.A.M. Aps, AS.S.I.Em.E. onlus, AID KARTAGENER onlus e VITE DA COLORARE onlus ed il Centro di Ascolto Incont-Rare

24 Feb 2021
BARI - ITALY

LE AIUOLE DELLA RARITÀ

A.Ma.R.A.M. Aps, AS.S.I.Em.E. onlus, AID KARTAGENER onlus e VITE DA COLORARE onlus ed il Centro di Ascolto Incont-Rare

22 Feb 2021
BARI - ITALY

ORCHESTRA ASCLEPIO

ORCHESTRA ASCLEPIO

22 Feb - 28 Feb 2021
PADOVA , ITALY

RDSS Virtual Run 2021

Rare Disorders Society

04 Feb - 22 Feb 2021

Rare Disease Day 2021 in Iran

Rare Disease Foundation of Iran

26 Feb 2021

Illuminating Medical University in Timisoara, Romania

Romanian National Alliance for Rare Diseases

26 Feb - 27 Feb 2021
Timisoara , Romania

PACIENTES Y PROFESIONALES EXPERTOS

ALEM Asociación de Lucha contra la Esclerosis Múltiple

20 Feb 2021
Medellín , Colombia

Monólogos Solidarios

Asociación Española de Esclerodermia

28 Feb 2021
Online

Accendiamo le luci sulle Malattie Rare - Torre dell'Orologio della Città Metropo...

RETE REGIONALE A.MA.RE PUGLIA

28 Feb 2021
BARI , ITALIA

Exposición del Mes de las Enfermedades Raras 2021

Ayoudas Panamá

06 Feb - 28 Feb 2021
Panamá , Panamá

1era Jornada de Enfermedades Raras 2021

Ayoudas Panamá

18 Feb - 20 Feb 2021
Panamá , Panamá

Webinário #SomosTodosRaros

Associação Brasileira de Profissionais atuantes em Doenças Genéticas, pacientes, familiares e voluntários – ACDG

27 Feb 2021
Fortaleza com transmissão ao vivo pelo canal da associação no YouTube , Brazil

Apresentação do livro infantil ilustrado “As Aventuras do Tito - O Tito nasceu c...

Associação Portuguesa de Neurofibromatose, APNF

28 Feb 2021
Lisboa , Portugal

3rd Annual GROW AWARENESS: VIRTUAL SHARE-A-THON

RARE.

28 Feb 2021
WORLDWIDE , WORLDWIDE

Light Up for Rare

Ataxia and me.org

28 Feb 2021
Carmarthenshire , Wales

V Fórum internacional de Doenças Raras

Ser Raros

27 Feb 2021
Uberlândia , Brasil

Stargardt’s Connected Community Meeting

Stargardt's Connected

28 Feb 2021
Virtual , UK

Raising awareness Week 1: Bleeding Disorders

Child and Youth Care

14 Feb - 20 Feb 2021

Rare Disease Day in Zimbabwe

Child and Youth Care

28 Feb 2021

6 National Conference on Rare Diseases

Rare Diseases Croatia

01 Mar 2021

Patientenforum zum Weltenzephalitistag und TDSE vom Netzwerk GENERATE

ACHSE e.V.

22 Feb 2021
Germany

Investigar es avanzar

CIBERER

28 Feb 2021
Spain

Sheffield Autism Research Lab (ShARL) Rare Disease Day activity

Sheffield Autism Research Lab (ShARL)

21 Feb - 28 Feb 2021
Sheffield , United Kingdom

Estreno Rap para el Día Mundial De Las Enfermedades Raras

AHEDYSIA

18 Feb - 28 Feb 2021

Especial LIVE día mundial de las Enfermedades Raras

Fundación Uruguaya Para la Investigación de las Enfermedades Raras

28 Feb 2021
Montevideo , Uruguay

Advocating for Rare Disease Patients on Malta National Television TVAM

The National Alliance for Rare Diseases Support - Malta

17 Feb 2021
Valletta

National Rare Disease Week Philippines

Philippine Society for Orphan Disorders (PSOD)

17 Feb - 28 Feb 2021

The untold and unheard story of the Rare Disease Community

ORDI

21 Feb 2021

Race for 7

Organization for Rare Diseases India (ORDI)

28 Feb 2021
Your Venue, Your Choice!

RDD Japan kick-off live

RDD Japan

01 Feb 2021

RDD Press Seminar

RDD Japan

16 Feb 2021

Rare Disease Innovation Competition

Illness Challenge Foundation

28 Feb 2021

Charity sales in Beijing, Hunan and Hangzhou

CORD

28 Feb 2021

Launch of China's very first official white paper on rare diseases

CHARD

28 Feb 2021

Rare Disease Day Hong Kong

Rare Disease Hong Kong

28 Feb 2021
Hong Kong

Release of RDD Japan 2021 introduction movie

RDD Japan

16 Feb - 28 Feb 2021
Online

Tercer Conversatorio: "Hablando de Epofs: Una Mirada desde [email protected] Pacientes".

FENPOF

16 Feb 2021

Segundo Conversatorio: "Hablando de Epofs: Una Mirada desde la Medicina"

FENPOF

11 Feb 2021

Primer Conversatorio: "Hablando de Epofs: Una Mirada de los Pacientes"

FENPOF

09 Feb 2021
Online

2 Congreso internacional de enfermedades raras

FUNEDERE

26 Feb - 28 Feb 2021
Quito

13 Conmemoración del Día Mundial de las Enfermedades Huérfanas en Colombia

ACOPEL

28 Feb 2021
Virtual

Tour virtuale Mostra di giocattoli PER GIOCO

Arcoiris Onlus

28 Feb 2021
Roma

Vivre avec une maladie rare au temps du COVID19

Alliance Tunisienne des Maladies Rares

26 Feb 2021
webinars

Foro Enfermedades Raras GDL

Instituto Mexicano del Seguro Social

28 Feb - 03 Mar 2021
Guadalajara , México

Spreading MED13L Awareness Through Social Media

MED13L Foundation

01 Feb - 28 Feb 2021
Barrington; Philadelphia , United States

1er Simposio Intl del RDD 2021

FEMEXER colaborando para LIIGH-UNAM

26 Feb 2021
Redes sociales de LIIGH-UNAM

Foro «EERR: voces d la sociedad civil»

Funsalud en alianza con FEMEXER

04 Mar 2021
Redes sociales de Funsalud

Adisen Estudio 2021

Adisen, Asociación Nacional de Addison y Otras Enfermedades Endocrinas

16 Feb - 31 May 2021
Online , Internacional

IV Concurso de Relatos Cortos

Adisen, Asociación Nacional de Addison y Otras Enfermedades Endocrinas

16 Feb - 31 Mar 2021
Online , Internacional

Illumination of the Presidential Palace, Ministry of Health and the Cyprus Insti...

Cyprus Alliance for Rare Disorders

26 Feb 2021
Nicosia , Cyprus

Latest developments and technological solutions in Rare Diseases: Cyprus 2021

Cyprus Alliance for Rare Disorders

27 Feb 2021
Nicosia , Cyprus

GIORNATA NAZIONALE IICB

UN FILO PER LA VITA ONLUS

01 Mar 2021
Italia

RARITY ON WHEELS - ROW

UN FILO PER LA VITA ONLUS

01 Mar 2021
Italia

Rare Disease Day At SkyView Atlanta

CannaCrawlers

28 Feb 2021
Atlanta , United States

ILUMINACIÓN DEL FRONTISPICIO DE CÁMARA DE DIPUTADOS Y SENADORES EN CONMEMORACIÓN...

Fundación Mexicana de Prevención y Salud Materna A.C. "Mujer México" Iniciativa pensemos en Cebras México

24 Feb - 28 Feb 2021
México , México

Primer Simposio Latinoamericano Virtual Enfermedades Lisosomales

Iniciativa pensemos en Cebras México

06 Feb - 13 Feb 2021
México , México

Jornada de Enfermedades Raras y Tamiz Neonatal Ampliado

Iniciativa pensemos en Cebras México

01 Feb - 28 Feb 2021
México , México

Rare Disease Day 2021 Moldova

AO COPIII PLOII

27 Feb - 28 Feb 2021
Chisinau , Moldova

Virtual tour of the exhibition 'PER GIOCO'

ARCOIRIS ONLUS

28 Feb 2021
VIRTUAL , ITALY

GIORNATA NAZIONALE IICB

UN FILO PER LA VITA ONLUS

01 Mar 2021
Italia

Genetica e nuove terapie in epoca Covid-19 “Ripensare la rarità”

Coordinamento Regionale Malattie Rare - Puglia

23 Feb 2021
Bari , Italy

New postal stamp for RD 2021

Association of citizens for rare diseases LIFE WITH CHALLENGES

26 Feb 2021
Bitola

PADOVA SI ILLUMINA

DIPARTIMENTO FUNZIONALE MALATTIE RARE

28 Feb 2021
PADOVA , ITALY

Rare Disease Day

The National Center for Diabetes Endocrinology and Genetics

28 Feb 2021
Amman , Jordan

International Symposium Rare Disease Day 2021 - Warmia and Mazury, Olsztyn. „Lon...

Prof. dr. Stanislaw Popowski Regional Specialized Children’s Hospital in Olsztyn

27 Feb 2021
Olsztyn, online

Tag der Seltenen Erkrankungen in Mainz

AHC18+ e.V. & Kooperationspartner

26 Feb 2021
Online

Awareness for medical issues by Adrenal patients!

Bijniervereniging NVACP

28 Feb - 31 Dec 2021
The Netherlands (online) , The Netherlands

Rare disease day 2021 in Georgia

GSIEM

07 Feb - 28 Feb 2021
Tbilisi

Rare disease day Israel

CdLS האגודה הישראלית

21 Feb - 28 Feb 2021
Israel , Israele

Multisystem-Entzündungssyndrom (MIS-C) bei Kindern

FAROMDER

28 Feb 2021
Seligenstadt , Deutschland

COVID-19’un komplikasyonu Multisistem İnflamatuar Sendromu (MIS-C )

FAROMDER

28 Feb 2021
Istanbul , Türkiye

IX Encuentro Nacional Día Mundial de las Enfermedades Raras

Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias (Creer)

26 Feb - 27 Feb 2021
Burgos , España

14th Annual Rare Disease Day at KGI

NORD Students For Rare- KGI Chapter

05 Mar 2021
Zoom(RSVP for link) , United States

Unlocking Rare Disease Treatments with Stem Cells

The NYSCF Research Institute

24 Feb 2021
United States

RAPPEL POR LAS EPOF

Fundación Síndrome de Cantú

20 Feb 2021
Rosario, Santa Fe , Argentina

Lanzamiento del cluster de enfermedades raras - CER

FECOER

04 Mar 2021

Foro Virtual "SOY RARO, SOY ÚNICO"

FECOER

02 Mar 2021

VII JORNADA INTERDISCIPLINAR SOBRE AVANCES EN ENFERMEDADES RARAS

IBIMA-RARE

26 Feb 2021
MALAGA , SPAIN

Retos y oportunidades para atender eficazmente las enfermedades catastróficas

FEPER

04 Feb 2021

Intendencia de Soriano pinta las letras de las localidades conmemorando el día d...

ATUERU

11 Feb - 28 Feb 2021
Soriano

Rare Disease Day at SickKids

SickKids

26 Feb 2021
Canada

Diretta Facebook Noi Hutington

Noi Hutington

27 Feb 2021
Italy

Rare Disease Day Thailand 2021

Thai Rare Disease Foundation, Thai NHSO and the Ministry of Public Health

28 Feb 2021
Bangkok , Thailand

Rare Disease Day Lombardia

Regione Lombardia

25 Feb 2021
Videoconferenza

Virtual comedy night for Poland Syndrome Charity

PIP-UK

28 Feb 2021
UK

Hacettepe Üniversitesi Nadir Hastalıklar Günü

Hacettepe Üniversitesi Genombilim ve Nadir Hastalıklar Uygulama ve Araştırma Merkezi (HÜGEN)

26 Feb 2021
Ankara , Türkiye

Faccia da CMT

ACMT-Rete per la malattia di Charcot-Marie-Tooth Odv

01 Feb - 21 Feb 2021
Italy

COLAZO ENTRE AMIGOS

Asociación para Todos

27 Feb 2021
Región Oriente

Cumbre nacional de enfermedades raras

Enfermedades Raras Costa Rica

24 Feb - 26 Feb 2021

Lanzamiento del video de FADEPOF

FADEPOF

28 Feb 2021

Iluminaciones de edificios en Argentina

28 Feb 2021
Buenos Aires, Venado Tuerto, María Susana, Carcarañá, San Genaro, Zavalla, Capitán Bermúdez, San Lorenzo, Villa Gobernador Gálvez, Rosario, Santa Fe

Arrío Bandera en Plaza de Mayo

FADEPOF

28 Feb 2021
Buenos Aires

Webinar Rare Diseases

BOKS vzw/asbl

27 Feb 2021
Melsele , Belgium

Round table on the occasion of RD Day

Rare Diseases Czech Republic

26 Feb 2021
Prague , Czech Republic

RD Day 2021 is held under the auspices of the Czech Minister of Health

Rare Diseases Czech Republic

01 Feb - 28 Feb 2021
the entire country , Czech Republic

Lighting of the buildings in RD Day colors

Rare Diseases Czech Republic

28 Feb 2021
Prague and other cities of the country , Czech Republic

Bulletin Special- holistic care for patients with RDs

Rare Diseases Czech Republic

26 Feb - 28 Feb 2021
Entire Country , Czech Republic

Primer Simposio Latinoamericano Virtual Enfermedades Lisosomales

Iniciativa pensemos en Cebras México

06 Feb - 13 Feb 2021
México , México

JOURNÉE MONDIALE DES MALADIES RARES EN GUYANE

Centre Hospitalier Cayenne

26 Feb 2021

18th Parent Project International Conference on Duchenne and Becker muscular dys...

Parent Project aps

17 Feb - 21 Feb 2021
Virtual Event

Atención integral en Enfermedades Raras

Conectiva.Lat

06 Mar 2021
San José, San Salvador, Ciudad de Panamá, Ciudad de México, Quito, Bogotá, Lima, Santo Domingo, Caracas, Sucre, Santiago de Chile, Buenos Aires, Madrid, Barcelona, Badajoz , Latinoamérica

LIVESTREAM CONCERT

UNIQUE SMILES

18 Feb 2021
Nicosia , Cyprus

Living with PNH

Stiftung lichterzellen

11 Feb - 06 Mar 2021
Germany

JORNADA FORMATIVA VISUALIZACIÓN DEL PERSONAL INVESTIGADOR EN REDES SOCIALES

IIS INCLIVA

02 Mar 2021
Valencia , Spain

Rare Disease Day in DIMED Research Projects 2021

Dipartimento di Medicina- DIMED Università degli Studi di Padova

01 Feb - 27 Mar 2021
Padova

The Genetic Support Network of Victoria Rare Disease Day 2021

Genetic Support Network of Victoria

26 Feb 2021
Online , Australia

STATI GENERALI SULLE MALATTIE RARE CITTÀ DI PADOVA

DIPARTIMENTO FUNZIONALE MALATTIE RARE

24 Feb - 28 Feb 2021
PADOVA , ITALY

Get to know our molecular biology laboratory, where we study rare diseases! - Fa...

Fundación IMO

25 Feb 2021
Online, Facebook Live

Energias Raras: Ver Mais Além / Rare Energies: See Beyond

Laboratório de Biomedicina Mitocondrial e Teranóstica

28 Feb 2021
Online

Sorteio Energias Raras/Rare Energies Raffle

Laboratório de Biomedicina Mitocondrial e Teranóstica

15 Jan - 28 Feb 2021
Online

STORIE RARE –Noi i veri protagonisti!!!

AISMME

28 Feb 2021
Italy

STORIE RARE – Facciamo che “io ero”…Storie per stare insieme

AISMME

27 Feb 2021
Italy

Non solo SNE: l’importanza del prelievo su cartoncino a domicilio per il control...

AISMME

26 Feb 2021
Italy

"Pillole Rare in .. malattie rare. Facciamo centro."

FareComunicazione

20 Feb 2021
Italy

"Pillola rare in...talassemia"

FareComunicazione

17 Feb 2021
Italy

"Pillole rare in... alfa-mannosidosi"

FareComunicazione

10 Feb 2021
Italy

Conferenza stampa conclusiva Giornata delle Malattie Rare

UNIAMO

04 Mar 2021
Italy

Dia das Doenças Raras

FEBER - Associação Brasileira de Enfermidades Raras

06 Feb - 28 Feb 2021
São Paulo , Brasil

"Accendiamo le luci sulle malattie rare"

UNIAMO

28 Feb 2021
Florence, Prato, Pistoia, Massa , Italy

"Shine a light on XLH"

UNIAMO - AISMME

17 Feb - 28 Feb 2021
Florence , Italy

Lanzamiento de colaboración con Nahuel Penissi

ALAPA

27 Feb 2021

Concurs Fotogràfic Malalties Minoritàries

Associació Malalties Minoritàries d'Andorra

31 Jan - 25 Feb 2021

Nano Rare Diseases Day

Nanomed Spain

24 Feb 2021
Barcelona, on line , Spain

Webinar: A rare view of the future - where do we want to go?

Norwegian Federation of Organizations of Disabled People (FFO)

28 Feb 2021
Online

LIVE NO ONE BEHIND

ALI KIMARA RARE DISEASE FOUNDATION & TANZANIA SOCIETY OF HUMAN GENETICS

14 Feb - 28 Feb 2021
DAR-ES-SALAAM , TANZANIA

Primeiro evento virtual de comemoração do dia das doenças raras_Somos muitos; So...

Instituto Nacional de Saude Ricardo Jorge, INSA

28 Feb 2021
on-line , Portugal

DES KMS SOLIDAIRES

Fondation Maladies Rares

28 Feb 2021
France

JORNADA FORMATIVA DIVULGATIVA SOBRE LA ESTRATEGIA DE INVESTIGACIÓN EN ENFERMEDAD...

IIS INCLIVA

22 Feb 2021
Valencia , Spain

Concurso de dibujo "mi vida con EB"

Debra México

10 Feb - 20 Feb 2021
México

Semana del Tamiz Coordinada por la Asociación Mexicana de Amigos Metabólicos A....

Asociación Mexicana de Amigos Metabólicos, A.C.

22 Feb - 26 Feb 2021
Ciudad de Mexico , México

LUMIÈRE SUR LES ZÈBRES

Regroupement québécois des maladies orphelines

28 Feb 2021
Canada

Louisiana Rare Disease Day Virtual Event

NORD

27 Feb 2021
USA

Kansas Rare Disease Day Virtual Event

NORD

24 Feb 2021
USA

Massachusetts Rare Disease Day Virtual Event

NORD

24 Feb 2021
USA

Maine Rare Disease Day Virtual Event

NORD

01 Mar - 02 Mar 2021
USA

Wisconsin Rare Disease Day Virtual Event

NORD

25 Feb 2021
USA

West Virginia Rare Disease Day Virtual Event

NORD

23 Feb 2021
USA

Virginia Rare Disease Day Virtual Event

NORD

24 Feb 2021
USA

Utah Rare Disease Day Virtual Event

NORD

02 Mar 2021
USA

Texas Rare Disease Day Virtual Event

NORD

28 Feb 2021
USA

Tennessee Rare Disease Day Virtual Event

NORD

26 Feb 2021
USA

South Carolina Rare Disease Day Virtual Event

NORD

26 Feb 2021
USA

Oklahoma Rare Disease Day Virtual Event

NORD

25 Feb 2021
USA

Ohio Rare Disease Day Event

NORD

23 Feb 2021
USA

North Carolina Rare Disease Day Virtual Event

NORD

23 Feb 2021
USA

New York Rare Disease Day Virtual Event

NORD

25 Feb 2021
USA

New Jersey Rare Disease Day Virtual Event

NORD

04 Mar 2021
USA

New Hampshire Rare Disease Day Virtual Event

NORD

24 Feb 2021
USA

Nevada Rare Disease Day Virtual Event

NORD

24 Feb 2021
USA

Illinois Rare Disease Day Virtual Event

NORD

26 Feb 2021
USA

Indiana Rare Disease Day Virtual Event

NORD

24 Feb 2021
USA

Georgia Rare Disease Day Virtual Event

NORD

26 Feb 2021
USA

Florida Rare Disease Day Virtual Event

NORD

26 Feb 2021
USA

Delaware Rare Disease Day Virtual Event

NORD

28 Feb 2021
USA

Connecticut Rare Disease Day Virtual Event

NORD

26 Feb 2021
USA

Colorado Rare Disease Day Virtual Event

NORD

24 Feb 2021
USA

Arkansas Rare Disease Day VIrtual Event

NORD

27 Feb 2021
USA

California Rare Disease Day Virtual Event

National Organization for Rare Disorders (NORD)

17 Feb 2021
United States

Arizona Rare Disease Day Virtual Event

NORD

24 Feb 2021
USA

Rare Disease Day 2021

RareDIG McGill

06 Mar 2021
Zoom

Journée des maladies rares-Édition 2021-Saguenay Lac St-Jean

CORAMH, CISD, GRIMN, CIUSSS-SLSJ

25 Feb 2021
Ville de Saguenay , Canada

Rosario muestra sus colores por las ER

Fundación Síndrome de Cantú

28 Feb 2021
Rosario, Santa Fe , ARGENTINA

Gemeinsam für Selten - Together for the Rare

Rare Disease Salzburg

28 Feb - 25 Sep 2021
Salzburg

Izamiento de la Bandera Nacional

Fundación Síndrome de Cantú

28 Feb 2021
ROSARIO , ARGENTINA

1st International Conference on Rare Diseases

95, Rare Alliance Greece

01 Mar - 02 Mar 2021
Greece , Greece

Exhibition in Second Life (Virtual World)

University of Puerto Rico

08 Feb - 28 Feb 2021
San Juan, Puerto Rico

Be RARE Finish Line Run powered by MDA

MDA HELLAS

06 Feb - 28 Feb 2021
ATHENS , Greece

#S4RMonth activity: Childhood Cancer and Rare Tumours Week

Share4Rare

15 Feb 2021

#S4RMonth activity: How to navigate psychological care in neuromuscular conditio...

Share4Rare

26 Feb 2021

Harvinaisten ilta

HARSO ry

27 Feb 2021
Finland

Pandemi Döneminde Nadir Bağışıklık Sistemi Hastalıkları

ACURARE

28 Feb 2021
Online , Turkey

Virtual Parliamentary Event

Rare Disease UK

24 Feb 2021
Online , United Kingdom

Logge dei Banchi Palace illuminated with the colours and the logo of Rare Diseas...

ERN ReCONNET

28 Feb 2021
Logge dei Banchi Palace

Leaning Tower of Pisa illuminated with the colours and the logo of Rare Disease ...

ERN ReCONNET

28 Feb 2021
Pisa

FAIR FOR THE RARE

UNIQUE SMILES

28 Feb 2021
strovolos , Cyprus

SCHOOL CAMPAIGN 2021 WEAR THAT YOU CARE

UNIQUE SMILES

22 Feb - 28 Feb 2021
strovolos , Cyprus

Rare Disease Day 2021

Rare Disorders Kenya

27 Feb 2021
Virtual

ART THERAPY WEBINAR-PARENTAL STRESS RELEASE DUE COVID19

UNIQUE SMILES

20 Feb 2021
Nicosia , Cyprus

Rare Disease Day Virtual Showcase

UAE Rare Disease Society

28 Feb 2021
Abu Dhabi , United Arab Emirates

Dia das Doenças Raras

FEBER -Associação Brasileira de Enfermidades Raras

08 Feb - 28 Feb 2021
São Paulo , Brasil

Partagez vos couleurs شارك معنا بألوانك

Association nationale de la phénylcétonurie

05 Feb - 28 Feb 2021
Algeria

8th Annual Rare Disease Symposium

Alabama Rare

26 Feb - 27 Feb 2021
United States

FREE YOGA SESSION - relaxation and breathing

A.I.D. Kartagener Onlus

28 Feb 2021
Italy

Not a Unicorn

RaDiOrg

01 Feb - 28 Feb 2021
whole country , Belgium

Promotion campaign on RDD2021

Allliance Algérienne contre les Maladies Rraes

01 Feb - 27 Feb 2021
Algiers

illumination of the maqam echahid monument

Alliance Algérienne contre les Maladies Rares

28 Feb 2021
Algiers

Werribee Mansion Illumination

Wyndham City

28 Feb 2021
Werribee, Melbourne , Australia

FMD Zebra's Unite

FMDSA

28 Feb 2021
North Olmsted , United States

LA TOSCANA SI ILLUMINA PER LE RARE

Forum Toscano Associazioni Malattie Rare aps

28 Feb 2021
Firenze, Prato, Pisa, Livorno, Siena, Scandicci, Sesto Fiorentino, Pistoia, Empoli, Massa, Campi Bisenzio, Carrara, Arezzo, Lucca , Italia

Rare disease awareness in Rwanda

Centre-Alliance

20 Feb - 28 Feb 2021
KIGALI , Rwanda

Monologo "Que es una enfermedad rara" por Packito Mor

Asociación Española de Paraparesia Espástica Familiar

26 Feb 2021
Madrid , Spain

10. Jahrestag unseres Vereins Hi-e.V. zum Tag der Seltenen Erkrankung

Kongenitaler Hyperinsulinismus e.V.

28 Feb 2021
Berlin

Zeldzame ziektendag

Hodgkin en non)Hodgkin vzw

27 Feb 2021
Vlaanderen

OUR VOICE for RARE digital 2021

International School Of Geneva

28 Feb - 28 Mar 2021
Geneve , Switzerland

Presentación del Día Mundial de las Enfermedades Raras 2021

Federación Española de Enfermedades Raras

17 Feb 2021
Spain

Illumination of the frontispiece of the Chamber of Deputies:

FEEMXER

28 Feb 2021
Ciudad de México

FEMEXEResillient Carousel

FEMEXER

25 Feb - 28 Feb 2021
(Online)

FEMEXEResiliente

FEMEXER

20 Feb 2021
(Online)

RDI Policy Event: Call for a UN Resolution for Persons and Families Living with ...

Rare Diseases International (RDI)

04 Mar 2021
all , Global (Online)

Show your colours Share your story

International XLH Alliance

03 Feb - 28 Feb 2021
Organisation is based in England campaign is on Instagram

Aniridia y Tumor de Wilms

Asociación Española de Aniridia

04 Mar 2021
Online , España

Mosaic of PID's

Stichting voor Afweerstoornissen

09 Feb - 27 Feb 2021
Netherlands

The Genetic Support Network of Victoria Rare Disease Day Conversations "Who's on...

The Genetic Support Network of Victoria, Australia

26 Feb 2021
Victoria, Australia , Australia

Rare Disease Day Fun Run & Walk

Rare Friends FNQ

28 Feb 2021
Cairns , Australia

Corre y ayuda 2021

GENerando Esperanza

26 Feb - 28 Feb 2021
Online , Mexico

The Story of my Skin - Art Contest

Fondation René Touraine

02 Jan - 28 Feb 2021
International

Rare Disease Day Virtual Musical RariTea

NorthernIreland Rare Disease Partnership

28 Feb 2021
Northern Ireland , United Kingdom

FoxG1 Rare Disease Day: Birthday

FoxG1 Foundation Australia

21 Feb 2021
Sydney, Melbourne, Brisbane, Adelaide, Perth Canberra

Estonia's Rare Disease Day Illumination

Andrew Bannister

28 Feb 2021
Estonia

The United States' Rare Disease Day Illuminations

Andrew Bannister

28 Feb 2021
United States

New Zealand's Rare Disease Day Illuminations

Andrew Bannister

28 Feb 2021
New Zealand

Canada's Rare Disease Day Illuminations

Andrew Bannister

28 Feb 2021
Canada

United Kingdom's Rare Disease Day Illuminations

Andrew Bannister

28 Feb 2021
United Kingdom

Promoting Life Skills Through the Power of Cooking for RDD 2021

CSNK2A1 Foundation

28 Feb 2021
Online

Virtual Rare Disease Day

Botswana organization for rare diseases

01 Mar 2021
Gaborone

Campanha frases de Impacto

Grupo Paraná de Doenças Raras

01 Feb - 28 Feb 2021
Curitiba , Brasil

Lançamento do 1º Curso Sinais de Alerta de Doenças e Síndromes Raras na Educação...

Grupo Paraná de Doenças Raras

28 Feb 2021
Curitiba , Brasil

Campanha frases de Impacto

Grupo Paraná de Doenças raras

01 Feb - 28 Feb 2021
Curitiba , Brasil

Historias de Enfermedades Raras

Trazando lo Invisible

01 Feb - 28 Feb 2021
Mexico

Primer Simposio Latinoamericano Virtual Enfermedades Lisosomales

Fundación Mexicana de Prevención y Salud Materna A.C. "Mujer México" Iniciativa pensemos en Cebras México

06 Feb - 13 Feb 2021
México , México

RAROS PERO NO INVISIBLES

ALDA - ASOCIACION DE LUCHA CONTRA LA DISTONIA EN ARAGON

28 Feb 2021
Zaragoza , España

Zebra 5K

Avery's Hope

01 Feb - 28 Feb 2021
New Hope , United States

Small, big draws

Asociación Síndrome Phelan-McDermid

01 Feb - 21 Feb 2021
Spain

We Are Pituitary Virtual Conference

The Pituitary Foundation

01 Mar - 06 Mar 2021
UK

Together for patients with rare diseases

INSMC Alessandrescu-Rusescu

24 Feb 2021
Bucharest , Romania

Concurso Fotografico Rare Disease Day

Yo Nemalínica

01 Feb - 28 Feb 2021
España

Virtual Forum on rare Diseases

Allliance Algérienne contre les Maladies Rares

28 Feb 2021
Algiers

#S4RMonth activity: Caring for caregivers and patients in pandemic times

Share4Rare

12 Feb 2021
Online

Rare Beer competition

Rare Disorders NZ

26 Feb 2021
Wellington , New Zealand

A Rare Disease and Mental Health Chat with David Ross, Chelsea Streit and specia...

@looms4lupus

28 Feb 2021
Brighton and San Francisco , U.k. and USA

Walk for Rare | Virtual

Addapters Org

25 Feb - 28 Feb 2021
Portugal

#ShareYourRare

Rare Diseases South Africa

22 Feb - 28 Feb 2021
National , South Africa

We share about this day in social networks!

Parent project to help patients with Duchenne/Becker myodystrophy

01 Feb - 28 Feb 2021
Москва, Санкт-Петербург, Воронеж , Россия

Rare Disease Awareness and Advocacy Campaign dedicated to Rare Disease Day

Georgian Foundation for Genetic and Rare Diseases (GeRaD)

21 Feb - 06 Mar 2021
Tbilisi , Georgia

Move For A Diagnosis + "$28 on the 28th"

Little Zebra Fund

01 Feb - 28 Feb 2021
Worldwide

Share your story in Rare Disease Diary

Comitato I Malati Invisibili

28 Jan 2021

World of Rare Disease Pop Quiz

Northern Ireland Rare Disease Partnership

09 Feb - 11 Feb 2021
Northern Ireland , United Kingdom

Gogohope Virtual Sports Challenge

Malaysia Lysosomal Diseases Association

15 May - 15 Jun 2021
Kuala Lumpur , Malaysia

National Conference "Rare diseases in a digital world"

Romanian National Alliance for Rare Diseases

28 Feb 2021
Online

Press conference: Equitable access to care for patients with rare diseases throu...

Romanian National Alliance for Rare Diseases

26 Feb 2021
Online

Launch of Rare Disease Day campaign

Romanian National Alliance for Rare Diseases

15 Feb 2021
Online

Rare Disease Day Virtual Run

Kolej Kediaman 1 Borneo, University Malaysia Sabah with Malaysian Rare Disorders Society

25 Jan - 28 Feb 2021

Rare Disease Day Conference: From Draft to Action Plan

Canadian Organization for Rare Disorders i

09 Mar - 10 Mar 2021

Light it up for Rare Diseases. RDM in collaboration with the Mdina Mayor will be...

The National Alliance for Rare Diseases Support - Malta

22 Feb 2021
Valletta

Colloquium organised by RDM and the University of Malta Biobank entitled: “Patie...

The National Alliance for Rare Diseases Support - Malta

18 Feb 2021
Valletta

Press Conference to launch of the MDS research project in collaboration with Mal...

The National Alliance for Rare Diseases Support - Malta

17 Feb 2021
Valletta

Light it up for Rare Diseases! RDM together with the Ministry for Gozo will be l...

The National Alliance for Rare Diseases Support - Malta

15 Feb 2021
Valletta

Rare in the City in front of the Parliament Building

The National Alliance for Rare Diseases Support - Malta

01 Feb - 05 Feb 2021
Valletta

Press Conference to launch Rare Diseases Campaign in Malta in front of the Parli...

The National Alliance for Rare Diseases Support - Malta

01 Feb 2021
Valletta

Giornata delle Malattie Rare 2021

Farmacia Colussi SNC

27 Feb 2021
Martignacco , Italy

I Jornada de Enfermedades Raras (I Conference of Rare Diseases)

Committee for Social Assistance and Human Projection (Comité de Asistencia Social y Proyección Humana) and AYOUDAS Panama, foundation in help for children with low incomes and rare diseases

18 Feb - 20 Feb 2021
Panama , Panama

Virtueller Tag der Seltenen Erkrankungen Ulm

Zentrum für Seltene Erkrankungen Ulm

27 Feb 2021
Ulm , Germany

Jazz4Rare 2021 online

Foundation Borys the Hero

27 Feb 2021
Gdynia , Poland

Rare Diseases: Beyond Covid 19 (webinar)

Institute For Rare Diseases

28 Feb 2021
Online , Israel

Pro Rare Austria Rare Disease Day

Pro Rare Austria

27 Feb 2021
Vienna , Austria

Rare Diseases - Public Webinar Series

University College Dublin & Queen's University Belfast

11 Feb - 25 Feb 2021
Dublin , Ireland

Rare Disease Day ZSE Ulm

Zentrum für Seltene Erkrankungen Ulm

27 Feb 2021
Online Konferenz

Rare Disease Genetics Research Poster Competetion

Centre for Omic Sciences, Islamia College Peshawar

22 Feb - 01 Mar 2021
Islamia College Peshawar

SpectacuRARE Fest 2021

Indonesia CARE for RARE Diseases

06 Feb - 31 Mar 2021
Online , Indonesia

WEBINAR - INBORN ERRORS OF METABOLISM: MORE KNOWLEDGE, BETTER FUTURE

Aspida Zois (Association for Inherited Metabolic Diseases)

20 Feb 2021
CYPRUS

Feb 23 - Final Policy Conference

Rare 2030

23 Feb 2021

Being mind-full. Wellness for people living with a Rare Disease

Rare Disease Network of Alberta

28 Feb 2021
Calgary , Canada

3er simposio : Atención a las enfermedades raras.

Minsa

24 Feb 2021
Estelí , Nicaragua

Virtuaaliset Harvinaismessut

Harvinaiset-verkosto

26 Feb - 28 Feb 2021
Finland

Rare Disease Day Photography Competition

Genetic and Rare Disease Network

22 Jan - 28 Feb 2021
Australia

Rare Kids Art Competition

Genetic and Rare Disease Nework

22 Jan - 22 Feb 2021
Australia

Rare Disease Day Event

Rare Disease Network

23 Feb - 27 Feb 2021
USA

Improving care for rare disease patients in Europe - Rare Disease Day 2021

European Reference Network for Rare Neurological Diseases (ERN-RND)

23 Feb 2021
Online

Rare Disease Day at Iowa State University

Rare Disease Awareness Club

25 Feb 2021
Ames, Iowa , United States of America

Rare is many, grow in the light and Bloom

Stichting Spierkracht

15 Jan - 01 Mar 2021
Bilthoven , Europe

"Recognize The Rare-Accept it"

Friends play for rare

22 Feb - 28 Feb 2021
Prilep , North Macedonia

Dzień Chorób Rzadkich: Terapie Dostępne i Poszukiwanie Nowych

Instytut Biochemii i Biofizyki PAN

26 Feb 2021
Warszawa , Poland

SCN2A Awareness

SCN2A Asia Pacific

21 Feb - 28 Feb 2021
National , Asia Pacific

Real Love, Rare Love in Texas

Love for Kids Inc

14 Feb 2021
Ft. Worth , United States

Virtual Walk for MCADD/Rare Disease Day

Clarissa McCully

28 Feb 2021
Parrsboro , Canada

Einstök born og fullorðnir / Unique children and adults in Iceland

Einstok born

24 Feb - 28 Feb 2021
Iceland

Rare Showcase 21

Rare Disease Ghana Initiative

25 Feb - 03 Mar 2021
Accra , Ghana

Tasmania's Rare Disease Day Landmark Illuminations

Rare Voices Australia

28 Feb 2021
Tasmania , Australia

ACT's Rare Disease Day Landmark Illuminations

Rare Voices Australia

28 Feb 2021
ACT , Australia

South Australia's Rare Disease Day Landmark Illuminations

Rare Voices Australia

28 Feb 2021
South Australia , Australia

New South Wales' Rare Disease Day Landmark Illuminations

Rare Voices Australia

28 Feb 2021
New South Wales , Australia

Queensland's Rare Disease Day Landmark Illuminations

Rare Voices Australia

28 Feb 2021
Queensland , Australia

Victoria’s Rare Disease Day Landmark Illuminations

Rare Voices Australia

28 Feb 2021
Victoria , Australia

Western Australia's Rare Disease Day Landmark Illuminations

Rare Voices Australia

28 Feb 2021
Perth , Australia

Webinar Dercum´s disease

Svenska Ödemförbundet/Swedish Association of Chronic Oedema

28 Feb 2021
Stockholm

Rare Disease Day 2021 - 10 Years On!

Adenomyosis Advice Association

28 Feb 2021
UK , UK

See Rare Run Virtual Race

See Rare Run

26 Feb - 28 Feb 2021
USA

6th Annual Rare Disease Day virtual race

Running On Air

01 Feb - 28 Feb 2021
United States

Rare Disease Day at Royal Holloway 2021

Royal Holloway University of London

26 Feb 2021

Black Pearl Awards 2021

EURORDIS-Rare Disease Europe

24 Feb 2021
Digital

Rare Disease Day 2021

EURORDIS-Rare Disease Europe

28 Feb 2021
Worldwide

Rare Disease Week

EURORDIS-Rare Disease Europe

22 Feb - 25 Feb 2021
Online, Brussels

The Story of my Skin - Art Contest

Fondation René Touraine

01 Jan - 28 Feb 2021
Paris , International

Racefor7 2020 COIMBATORE

Organization for Rare Diseases India

08 Mar 2020
Coimbatore, Tamilnadu

RACEFOR7 2020 MYSURU

Organization for Rare Diseases India

08 Mar 2020
Mysuru, Karnataka

LAND's Family Day

LAND Lebanese Association for Neuromuscular Diseases

14 Mar 2020
Baabda

RARE RUN BOLOGNA 2020

FIORI DI CAMPO onlus

15 Mar 2020
BOLOGNA , ITALY

Fair For Rare "Fairness and Equality"

Yayasan MPS dan Penyakit Langka Indonesia

08 Mar 2020
Tangerang , Indonesia

Rare Disease Day Family Day

07 Mar 2020

Rare Disease Day at CHdN

Centre Hospitalier du Nord

04 Mar 2020
Ettelbruck , Luxembourg

INHERITED METABOLIC DISEASE:RARE BUT UNITED IN ARMS!

KRIKOS ZOIS (LIFE-LINK) SOCIETY FOR PATIENTS AND FRIENDS OF PATIENTS WITH INHERITED METABOLIC DISEASE

14 Mar 2020
Virtual , GREECE

Panel Foro sobre Enfermedades Raras

Rett Guatemala

04 Mar 2020
Guatemala

Giornata delle malattie rare

Delegazione AISMAC – Puglia

07 Mar 2020
Putignano (BA) , Italy

Acto Institucional en el Parlamento de Andalucía

Federación Española de Enfermedades Raras

23 Mar 2020
Sevilla , España

Acto Institucional en el Palacio de San Esteban de Murcia

Federación Española de Enfermedades Raras

03 Mar 2020
Murcia , España

INCONTRO FORMATIVO SULLA NUTRIZIONE ARTIFICIALE DOMICILIARE PER PAZIENTI PEDIATR...

ASSOCIAZIONE UN FILO PER LA VITA ONLUS –

07 Mar 2020
rome , italy

6th NATIONAL CONFERENCE TO MARK RARE DISEASES DAY

Association for Rare Diseases of Slovenia

03 Mar 2020
Brdo pri Kranju , SLOVENIA

Rare Disease Day Walk

UAE Genetic Diseases Association

29 Mar 2020
Dubai, Ras Al Khaimah

X Roundtable of Rare disorders - „Rare disordes in 2020“

SA Eesti Agrenska Fond/Estonian Agrenska Foundation

02 Mar 2020
Estonia

1ra Jornada Cientifica Internacional Enfermedades Raras y Defectos congénitos HC...

Hospital de Especialidades Carlos Andrade Marin

05 Mar - 06 Mar 2020
Quito , Ecuador

Living with rare diseases in Eastern Europe

University of Geneva

23 Mar 2020
Geneva

Gaucher disease patients rare disease day

Egyptian Society of medical genetics

09 Mar 2020
Cairo

LIVING WITH RARE- SHARING IT

ALJAWHARA CENTER/ ARABIAN GULF UNIVERSITY

05 Mar 2020
Manama , Bahrain

Acto Institucional Madrid

Federación Española de Enfermedades Raras

25 Mar 2020
Madrid , España

Sällsynta dagen 2020 den 4 mars

Center for Rare Diseases in Stockholm

04 Mar 2020
Stockholm

Rare Disease Day 2020 Breakfast Reception at Queen’s Park

03 Mar 2020
Queen's Park

Rare Disease Day 2020 Conference & Awards Dinner Gala Celebration

Canadian Organization for Rare Disorders

09 Mar - 10 Mar 2020
Delta Hotels Ottawa City Centre

JORNADA FORMATIVA DIVULGATIVA SOBRE LA ESTRATEGIA DE INVESTIGACIÓN EN ENFERMEDAD...

Instituto de Investigación sanitaria INCLIVA

09 Mar 2020
Valencia , Spain

Illuminating the Medical University Bucharest Carol Davila

Romanian National Alliance for Rare Diseases

28 Feb 2021
Zalau , Romania

Dünya Nadir Hastalıklar Günü: Nadir Yaşamlarda Haklara Erişim

ACU Nadir

02 Mar 2020
İstanbul , Turkey

ExoMars

Hoffnungsbaum e.V. / Millys Mission

03 Mar 2020
Willich , Germany

Targeted Metabolomics and Mass Spectrometry

Aga Khan University Hospital

04 Mar 2020
Karachi , Pakistan

Proyección documental "Reinvención"

Asociación Española de Fiebre Mediterránea Familiar y Síndromes Autoinflamatorios Stop FMF

06 Mar 2020
Valencia , España

Gemeinsam statt Einsam - Gemeinsam für Selten

RARE DISEASE SALZBURG

20 Mar - 30 Dec 2020
Austria

Rare Star Day

Steve Waugh Foundation

30 Mar 2020
Gold Coast, Queensland , Australia

Raramente 2020

AID Kartagener onlus

12 Mar - 31 Mar 2020
Bari , Italia

Multidisciplinary Conference on Rare Genetic Diseases in Pakistan: Reframe Rare ...

Aga Khan University

04 Mar - 07 Mar 2020
Karachi , Pakistan

Tag der Seltenen Erkrankungen in Düsseldorf

ACHSE e.V.

04 Mar 2020
ZSE im Universitätsklinikum Düsseldorf

RDD workshop Rare2030

Romanian National Alliance for Rare Diseases

25 Feb 2021
online , Romania

Rare Diseases at 360 medical

Romanian National Alliance for Rare Diseases

21 Feb 2021
Zalau , Romania

Rare Disease Day Holyrood Reception

Genetic Alliance UK

04 Mar 2020
Edinburgh , Scotland

Symposium zu Seltenen Erkrankungen in Hannover

ACHSE e.V.

06 Mar 2020
Zentrum für Seltene Erkrankungen Hannover

BRAZILIAN RARE DISEASE SCENARIO - 5TH EDITION

CASA HUNTER

05 Mar - 06 Mar 2020
SÃO PAULO , BRAZIL