Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2020 events
Tell your story!
Anti-LGI1 LE & Neuromyotonia
Paul - Israel
NPLE-Anti-LGI1, Neuromyotonia
My husband was diagnosed in late 2017 after comments like "It's just your age - forgetfulness (68) - talk to a psychiatrist; and those are benign fasciculations" - but only when the bracchio-facial dystonic
Je suis Drépanocytaire
Shelley - Gabon
DREPANOCYTOSE
Je Shelley, je vis au Gabon, drépanocytaire SS suis née et thalassémique. De plus petite, je ne comprenais pas j Pourquoi maaaaaaaal à attrocement en avais tous mes os, mon ventre se gonflait pendant les
My ICP story
Samantha - Canada
Intrahepatic cholestasis of pregnancy
I was 22 years old and expecting my first child. I was extremely excited to bring my little man into this world. Around 31 weeks pregnant I expierienced extreme itching on my hands and feet to the point