Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2020 events
Tell your story!
Respirando a Cura da Hap
YARA - Brazil
Pulmonary arterial hypertension
Minha História de Vida & Superação! Sempre fui uma criança arteira,amava me divertir correndo atrás das borboletas aos 05anos, era a minha brincadeira favorita,observar as cores,a textura e a diversidade
Pyoderma gangranosuem
Stacey - United States
Pyoderma gangrenosum
I'm currently 34 years old, I have had Rheumatoid arthritis since I was about 8. When I was 20 I had my right hip fused together as there was no cartilage left between my hip joint. At age 25 I was diagnosed
Living with 2 rare diseases
Sarah - United Kingdom
Hereditary spastic paraplegia, MAP2 Variant
When our son Corey was born, he was happy and healthy with no sign of any health problems. We had no idea what the future held for us. It wasn't until Corey was around 9 month old that we realised he wasnt