Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
Rare diseases heard day 2016 29 february Only 100 days remaining
2019 events
Tell your story!
My Body odour
Dinithi - Sri Lanka
Trimethylaminuria
I  am suffering from body odour issues since 2014. I was 12 back then. I somehow managed my life till 2017 I think been a child helped me.I was 16 in 2018 that's the year I found about the condition called
Even stiff person syndrome
Nitnem - India
Stiff person syndrome and related disorders
Imagine a life in which the brain runs twice the normal speed, with an uncertain focus jumping onto various things ; while your spine and limbs feel as stiff as rock, hands continuous ly trembling, while
Visual snow
Scarlett - India
Visual snow syndrome
I was 7 years old when i first suffered this disease .  I was scared of the floaters and dots i see . As i grow up i begin to develop my interests towards various rare diseases . Then i found a word visual