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Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity! You can write about your story and also submit photos or a video testimonial.
Life Before Diagnosis Life Before Diagnosis

From Metal Head to Literal Metal Head

Rhys, Superficial Siderosis, United Kingdom, February 5, 2020

When I was 8 years old I was diagnosed with a brain tumour at the back of my head. I was rushed to the hospital to have it removed. The neurosurgeons advised the tumour was benign, and the consultant ...

SSRA Introduces David M Dickson Jr. SSRA Introduces David M Dickson Jr.

My Superficial Siderosis Diagnosis Story

David, Superficial siderosis, United States, January 18, 2020

 David M. Dickson Jr. has always enjoyed a zest for an active life. From neighborhood quarterback to surfing, fishing, weightlifting, and mountain biking this outgoing Florida native loved staying on ...

Gary 2017 Gary 2017

One in three million- Superficial Siderosis

Gary, Superficial Siderosis, United States, December 28, 2017

In January of 2014, our neurosurgeon called with great news. No sign of tumors. Gary could make arrangments to see if an otolaryngologist could discover the cause behind his rapidly declining hearing....


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