Mio Fratello ( my brother) by Giulio Base

By Edoardo, Hereditary spastic paraplegia, Italy, February 13, 2018

Margherita & Edoardo

When Edoardo was one year old we saw that something was wrong. He could not walk and when he started walking at 18 months, he walked on tiptoe. We began going to many different doctors and after two years we found out that he had Hereditary Spastic Paraplegia, new mutation, so not inherited but a first and new mutation. It was like a punch in the face. From that time on he started to make many therapies, physical and cognitive. He also liked water a lot and learned how to swim. Now he is 13 years old, he loves to swim, he makes many phisical therapies every week, he is  a very joyful person, nice and deep. He is our hero and our prince!


Find others with Hereditary spastic paraplegia on RareConnect, the online platform for people affected by rare disease


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