I will probably never meet another human with my disease. Only 3 out of every 1 million people get it. But, I will meet another… Continue reading Alone…yet not alone.
I will probably never meet another human with my disease. Only 3 out of every 1 million people get it. But, I will meet another… Continue reading Alone…yet not alone.
HypoGal Shares Information about Disability Insurance, Sheehan’s Syndrome and Relapsing Polychondritis (R.P.) HypoGal, My Story My Story; most of my life I have never considered… Continue reading HypoGal My Story With Sheehan’s Syndrome, Relapsing Polychondritis
My son is two years old, and has seen 12 different doctors. His weekly schedule is jammed packed with 11 hours of therapy – PT,… Continue reading Curren’s Journey
~ I had hoped Liliana’s birth would be the end of the pregnancy chaos, but I had no idea it was only the beginning. During… Continue reading Liliana’s Legacy
My name is Lauren. I am 25 years old and have not only 1 but 2 rare diseases. After 23 years of having infection after… Continue reading Zebra Unleased–25 years of falling apart…literally
Hello, my Name Is Debbie I have AVN in my knee I found out in 12/2014 I am not sure exactly how I got AVN… Continue reading My AVN Journey(Avascular Necrosis)
What can you say my story of how I was born as an Intersex/DSD person and living my life is as unique as the next… Continue reading Life with Kallmann’s syndrome
Soon, on February 29th there will be RARE DISEASE DAY and I want to share my PATIENT VOICE with you. In 2007 my first son… Continue reading Okke and Bohring-Opitz Syndrome
I know the title sounds kind of morbid, but this is based on a real scenario and it happened during my college years! A SIMPLE… Continue reading Back from the dead!