We’re proud of the resilience the Myhre community shows each and every day.

The story of Kate

We’re proud of the resilience the Myhre community shows each and every day.

Myhre Syndrome is an ultra-rare condition, with only around 200 cases globally. The Myhre Syndrome Foundation, in celebration of Rare Disease Day put together a montage of images of the global Myhre community, proud of the strength and resilience they show daily. For more information visit www.myhresyndrome.org

 

*Find others with Myhre syndrome on RareConnect, the online platform for people affected by rare diseases