Cleft Hands

My story is not a happy one..I was born on August-17-1994 The day I came into the world doctors were so interested in my Birth… Continue reading Cleft Hands

Read full story

My disease

Hello! I am Jan. I am 19 years old. I live in Slovenia (Ljubljana). I have had TPN from birth 20 hours per day. I… Continue reading My disease

Read full story
What's your story?

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!

Share your story

Share your colours

Join the community. Help us build awareness. Share your photos, videos and experiences!