The story of Adrian
After 50 years alone, two weeks ago, I finally shook the hand of another person with Poland Syndrome for the first time in my life, in person, real time in the flesh and lives only 10km from my home. Helped beta test the new global Poland Syndrome register, spoke on the phone with another person with Poland Syndrome like me. Now we are planning a Poland Syndrome attraction in Sydney for Rare Disease Day 2022. Mighty Excited.