About Rare Diseases South Africa
Rare Diseases South Africa fights to have rare diseases and congenital disorders recognised and treated.
By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the South African rare disease and genetics community, Rare Diseases South Africa strengthens the patient voice and shapes research, policies and patient services.
Improving quality of life takes advocacy, support for research and medicine development, facilitating networking amongst patient groups and caregivers, raising general awareness with key stakeholders and the broader community and providing a platform for key discussions when it comes to inclusive healthcare