The KCNC1 Foundation

Canada Canada

About The KCNC1 Foundation

The KCNC1 Foundation was established after our daughter was diagnosed with this ultra rare condition to accelerate the path to a cure/treatment. We support Rare Disease Day by sharing information with both our members and community about what it means to have a rare disease, rare disease facts, and how common rare diseases are.

Partner details

Stephanie Telesca
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