About The E.WE Foundation
The E.WE Foundation is a nonprofit healthcare advocacy organization.
To support families affected by Edwards Syndrome, commonly known as Trisomy 18, while changing the medical perspective through efforts of advocacy, education, and public policy.
To ensure all families affected by Edwards Syndrome, commonly known as Trisomy 18, have equitable access to quality healthcare, resources, health & financial literacy and disease education.
We believe patients with chronic illness like Edwards Syndrome, Trisomy 18, should have immediate access to quality healthcare, medical resources, and economic assistance, without bias or prejudice.
Rare Disease Day 2022
Being Rare Podcast, the E.WE Foundation’s digital resource hub and community conversations platform, is excited to welcome Sarah Tompkins, patient advocate and Ms. Wheelchair Washington USA 2022 for Rare Disease Day 2022! Listen online Monday, February 28th as we discuss advocacy, pageantry, and life as a rare disease patient!