Rete Regionale A.Ma.Re Puglia

Italy Italy

About Rete Regionale A.Ma.Re Puglia

We are an associative network of 27 rare disease patient associations to work for advocacy in Apulia, a Region of Italy, to improve the quality of life of citizens who live every day together a rare desease and their families. During Rare Desease Day we organize events to raise awareness civil society, health workers, researchers and politicians on special needs and expectations.


Partner details

Riccarda Scaringella
E-mail partner