Rete Regionale A.Ma.Re Puglia

Italy Italy

About Rete Regionale A.Ma.Re Puglia


We are an associative network of 27 rare disease patient associations to work for advocacy in Apulia, a Region of Italy, to improve the quality of life of citizens who live every day together a rare desease and their families. During Rare Desease Day we organize events to raise awareness civil society, health workers, researchers and politicians on special needs and expectations.

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Partner details

Riccarda Scaringella
Italy
E-mail partner