About Rare Disorders Kenya
Rare Disorders Kenya is a community of people with rare diseases and all who support them. We provide a united voice for the rare disease community by capturing the experiences of patients and families and raising the profile of rare diseases across Kenya.
We aim at bringing together different rare conditions that are represented in the country. We hope to rally enough voices so as to be heard by the different stakeholders in the rare community to see how we can better improve the quality of life of persons with rare diseases in Kenya.