About Fabry Australia
Fabry Australia is a patient led non-profit charity founded in 1994. It’s Mission is Uniting and Supporting the Australian Fabry Community. Its aims include; connect Fabry affected patients and their families providing mutual support and latest inforamtion and research on Fabry Disease, Raise public awareness of Fabry Disease, improve medical services to Fabry patients in Australia, promote and support research into Fabry Disease, collaborate with other like minded groups to promote mutual interests and raise funds to support these aims.
Services include; website, social media platforms and chat group, Australian Medical Advisory Committee, Fabry Australia E Newsletter, Advocacy, Educating families and doctors, funding research, Fabry educational materials, conference, Fabry Wellness Retreat, Fabry Awareness Month campaign and visiting Fabry speakers.Â
Further information; www.fabry.com.au