About China Alliance for Rare Disease (CHARD)
The China Alliance for Rare Disease (CHARD) is a national, non-profit, cooperative exchange platform for rare disease, approved by the national health authority, and supported by Peking Union Medical College Hospital, PhiRDA, the Chinese Medical Association, the Chinese Hospital Association and the Chinese Research Hospital Association, as well as multiple universities, scientific research institutes and enterprises.
The Alliance aims to meet the growing needs of the Chinese people for a better, healthier life, particularly those who suffer from rare diseases, by promoting the development of a rare disease biomedical industry, as well as improving standardized rare disease diagnosis, treatment and education for patients and the medical community in China. The Alliance is focused on creating patient-centered solutions, through bringing together multiple stakeholders, to build a robust and efficient rare disease infrastructure in China that can improve the quality of life for patients and their families.