About Advocacy for Neuroacanthocytosis Patients
The NA Advocacy is dedicated to bringing together clinicians, researchers, patients, families, friends and research sponsors to strive for relief for patients of the formsof neuroacanthocytosis, a rare disease affecting the brain.
Our goals are to:
* Assist patients and their families
* Promote international collaboration
* Encourage cross fertilization of knowledge
* Fund research
* Establish a virtual database