38 Friends of rare disease day ALL EURORDIS Members Other Patient Groups Private companies Public Authorities Foundations Caregivers Health Professionals Researchers Others All Belgium Brazil Canada France Germany Ghana Italy Poland Spain United Kingdom United States Zimbabwe Worldwide CMT-NET CONTACT: Lisa Reinecke Researchers Germany View details Cure IBM CONTACT: Kevin Dooley Other Patient Groups United States View details Debra Belgium vzw CONTACT: Ingrid Jageneau EURORDIS Members Belgium View details EBD Group CONTACT: Guadalupe Rodriguez Others United States View details Entrepreneurship & Innovation for Leber's Congenital Amaurosis (E&ILCA) CONTACT: Renata Szyszka, PhD Private companies Poland View details Groupe de recherche interdisciplinaire sur les maladies neuromusculaires CONTACT: Cynthia Gagnon Researchers Canada View details Hemophilia Alliance of Maine CONTACT: Bridget Hunnewell Others United States View details International Pemphigus and Pemphigoid Foundation CONTACT: Marc Yale EURORDIS Members United States View details Jeune Syndrome Foundation CONTACT: Valerie Kiln-Barfoot EURORDIS Members United Kingdom View details Keratoconus Group CONTACT: Sophia Devetzi Other Patient Groups Worldwide View details 1 2 3 4
