Friends

stichting spierkracht logo
Contact person:
Sayen Leijenhorst
Category:
EURORDIS Members
Contact
Event in Netherlands
Zeldzameziektendag
Rare disease day in
29 Feb 2020 The Hague
Spinning for less pressure
SOSNL is a Dutch foundation
29 Feb 2020 Hoofddorp
Rare is many, grow in the
Stichting SpierKracht
15 Jan 2021 - 01 Mar 2021 Bilthoven
image
Mosaic of PID's
In order to create
09 Feb 2021 - 27 Feb 2021
Awareness for medical issues
Bijnierpatienten in
28 Feb 2021 - 31 Dec 2021 The Netherlands...
Netherlands

stichting spierkracht

Stichting Spierkracht organises the bulb project. Covid 19 had isolated many families with LGMD2D. As a symbol that there is light at the end of the tunnel, we send bulbs to the affected families. A tulip always grows to the light and bloom. We are rare, but we will bloom. We are proud to take your spotlight and together we are strong! This project is international carried by the LGMD CAB Europe


http://www.stichtingspierkracht.com/

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