Friends

Hypersomnolence Australia logo
Contact person:
Michelle Chadwick
Category:
Other Patient Groups
Contact
Event in Australia
Fabry Australia's Be Rare.
Fabry Australia, is
15 Jan 2020 - 29 Feb 2020
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Rare Disease Day Fun Run
Rare Friends is a community
23 Feb 2020 Cairns
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Rare Disease Day Seminar
Rare Disease Day is
24 Feb 2020 Canberra
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Rare Disease Day Public
Rare Disease Day Public
24 Feb 2020 Canberra
National Strategic Action
National Strategic
26 Feb 2020 Canberra
Light up Brisbane for Rare
The Story Bridge will
27 Feb 2020 Brisbane
Light up Brisbane for Rare
The Victoria Bridge
27 Feb 2020 Brisbane
Adelaide Oval to light
Adelaide Oval will
27 Feb 2020 Adelaide
Perth's Parliament House
Perth's Parliament
28 Feb 2020 - 01 Mar 2020 Perth
Perth's Yagan Square Digital
Perth's Yagan Square
28 Feb 2020 Perth
Tasmania's Town Hall lights
The St John Street
28 Feb 2020 - 02 Mar 2020 Tasmania
Genetic Support Network
The Genetic Support
28 Feb 2020 Melbourne, Victoria
Rare Disease Day
Rare Disease Day Event
28 Feb 2020 Parkville
Rare Disease Day by the
Rare Disease Day is
28 Feb 2020 Parkville
Light up Brisbane City
Brisbane City Hall
29 Feb 2020 Brisbane
Council House Perth light
Perth's Council House
29 Feb 2020
Perth's Mandurah Bridge
Perth's Mandurah Bridge
29 Feb 2020 Perth
Telstra Tower in Canberra
Canberra Telstra Tower
29 Feb 2020 Canberra
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Rare Together Expo
Come along to our Rare
29 Feb 2020 Perth
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Rare Disease Day 2020 -
Come along to our Rare
29 Feb 2020 Perth
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Townsville lunch for Rare
Join the Myasthenia
29 Feb 2020 Queensland
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Brisbane Rare Disease Day
Coffee and Chat, The
29 Feb 2020 Queensland
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Brisbane Rare Disease Day
Join Myasthenia Gravis
29 Feb 2020 Queensland
Sydney Town Hall Illuminations
Sydney's Town Hall
01 Mar 2020 Sydney
Rare Star Day
RARE STAR DAYThe Steve
30 Mar 2020 Gold Coast, Queensland
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Rare Kids Art Competition
To celebrate Rare Disease
22 Jan 2021 - 22 Feb 2021
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Rare Disease Day Photography
To celebrate Rare Disease
22 Jan 2021 - 28 Feb 2021
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The Challenge
Virtual fundraising
15 Feb 2021 - 01 Sep 2021 Melbourne to Sydney
FoxG1 Rare Disease Day:
#February is Rare disease
21 Feb 2021 Sydney, Melbourne,...
SCN2A Awareness
We will be sharing
21 Feb 2021 - 28 Feb 2021 National
The Genetic Support Network
This year the Genetic
26 Feb 2021 Victoria, Australia
The Genetic Support Network
Join the GSNV in celebration
26 Feb 2021 Online
Western Australia's Rare
The following locations/landmarks
28 Feb 2021 Perth
Victoria’s Rare Disease
The following locations/landmarks
28 Feb 2021 Victoria
Queensland's Rare Disease
The following locations/landmarks
28 Feb 2021 Queensland
New South Wales' Rare Disease
The following landmark in
28 Feb 2021 New South Wales
South Australia's Rare
The following location in
28 Feb 2021 South Australia
ACT's Rare Disease Day
The following landmark in
28 Feb 2021 ACT
Tasmania's Rare Disease
The following locations
28 Feb 2021 Tasmania
Werribee Mansion Illumination
For the first time,
28 Feb 2021 Werribee, Melbourne
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Phelan-McDermid Syndrome
PMSF Australia is hosting
28 Feb 2021 Sydney
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Rare Disease Day Fun Run
Rare Friends is a community
28 Feb 2021 Cairns
Webinar: Rare is beautiful,
Australian Sickle Cell
28 Feb 2021 Melbourne Australia
Rare is Beautiful - Let's
Over 300 million people
28 Feb 2021 Melbourne, Australia
Australia

Hypersomnolence Australia

Hypersomnolence Australia's primary purpose is to support the medical community work towards a better understanding of the rare neurological disorder Idiopathic Hypersomnia (IH), better access to effective treatment options, and identifying biomarkers that will lead to more appropriate diagnostic tools and ultimately a cure for Idiopathic Hypersomnia. We are committed to being a strong advocate, raising awareness and educating others about Idiopathic Hypersomnia.

Our goal is to not just change the process to diagnosis but also the level of care and services available to people post diagnosis. We take advantage of Rare Disease Day to help us reach our goals by sharing information and stories online and by encouraging others in the IH community to do so too. We will be hosting our regular Living with Idiopathic Hypersomnia support group meeting on 15th Feb where we will discuss what living with a rare disease is like and what we do to help overcome the obstacles.


https://www.hypersomnolenceaustralia.org.au/

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